Someone please help this Newbie!

Pugsy wrote:This was the first symptom that I had of OSA that was immediately relieved with xpap treatment.
I was getting up to pee probably ever hour or two with a full bladder each time. It was worse than being pregnant...

Same here. My biggest concern during the sleep study was having to go to the bathroom (with all the wires on) all the time like I was used to. But after they woke me up halfway through the night and put the mask on, I was able to sleep through without getting up and haven't had to pee at night ever since I've been on CPAP. The night sweats went away immediately as well.

"Sleep disorders for dummies" mentions this as being due to the body never really sleeping and therefore not turning down kidney function at night as it's supposed to. But that may be oversimplifying.

[quote="DreamOn"]Hey, you. Yes, additional familia is always good! This is the most supportive and helpful forum I have ever been involved with!!! You're fitting right in too.

Anyway, I've been using the S9 Autoset for 9 months now. At first, I used it as an APAP. I found that didn't work well for me at all. So I eventually returned to CPAP.

DreamOn, can you explain in a little more detail why Cpap works better for you and what the differences are for you with Apap vs Cpap? Mike seems to do well on Cpap most of the time at 12cms and then for some reason AHI starts to increase(never above 2.5) and he seems tired so then he'll do better for awhile on Apap at 11-13 with AHI dropping under 1.0 and feeling better. This happens several times a year. But I can't get any useful information from him as to any differences he feels with either mode. Thanks.

AJimen05 wrote: I can't wait until tonight! never felt so excited about sleep before...lol.

That's the first thing I noticed. I was clock watching, looking forward to going to sleep!
For the first week or so, whenever I wanted to go to bed, I did.

Not getting up to pee was an added benefit but I thought maybe I was being more disciplined about going before I put the mask on.

Pugsy wrote:Simplest way to explain is that the apnea events causes stress on the heart which makes it work harder and there is some hormone or enzyme (I forget exactly which or the name) that gets produced and goes to the kidneys along with the added blood supply from the added work of the heart and low and behold, more urine gets produced.

The hormone that causes frequent urination at night (nocturia) is called atrial natriuretic peptide. Here's a good explanation of how that works: http://www.sleepapnea.org/resources/pubs/noct.html

DreamOn wrote:I don't really like to talk about this, but maybe it'll help someone else. It was so bad for me at one time that I would pee the bed, fairly often. I would dream that I urgently had to urinate. In my dream, I'd be on the toilet and then, well.... It was like I couldn't fully awaken myself. Or maybe I was in some kind of twilight sleep. It was very bizarre!

Wellllll, since you brought it up. Don't feel alone. I never dreamed I needed to go (or didn't remember it). I just plain woke up in a wet bed.... Only happened 3 or 4 times but very upsetting at the time. It was before I was ever diagnosed with OSA and didn't have a clue what was happening. Funny thing was I asked the sleep doctor's PA about this when we were discussing the nocturia and she said she didn't think it was related. But I bet it was...haven't done it since I started on the machine.

I had researched at one time, and bookmarked this web page: http://www.netwellness.org/question.cfm/48873.htm. There's not much of an explanation there, but it does seem that there is an association with sleep apnea.

Looking back, I think I was much sicker than I realized. Even though it was mild/moderate, I had sleep apnea for a long time before it was properly diagnosed and therapy started.

There is an association between SDB and nighttime enuresis in children, although I hadn't heard of it in adults. I assume it is the combination of frequent need to urinate + so tired that it's hard to wake up.

[quote="

DoriC wrote:DreamOn, can you explain in a little more detail why Cpap works better for you and what the differences are for you with Apap vs Cpap?

Dori, I know that Mike has problems with those nasty infections periodically. Do you think there may be any correlation between that and his pressure needs? I'm just wondering if pain may be affecting him, even before the infection is detected, which may cause his sleep to be more disturbed? That may be something to look at if you keep records of his therapy and can recall surgery/infection dates.[/quote]

I really have to go back and see if all these different sleep patterns coincide with his flareups. I know for sure the surgery this time has been more difficult for him to bounce back from but he's still a tough guy and never complains, that's the problem. Alex, sorry I hijacked your thread. Thanks for letting me borrow Dream On!

DreamOn wrote:

Pugsy wrote:Simplest way to explain is that the apnea events causes stress on the heart which makes it work harder and there is some hormone or enzyme (I forget exactly which or the name) that gets produced and goes to the kidneys along with the added blood supply from the added work of the heart and low and behold, more urine gets produced.

The hormone that causes frequent urination at night (nocturia) is called atrial natriuretic peptide. Here's a good explanation of how that works: http://www.sleepapnea.org/resources/pubs/noct.html.

I don't really like to talk about this, but maybe it'll help someone else. It was so bad for me at one time that I would pee the bed, fairly often. I would dream that I urgently had to urinate. In my dream, I'd be on the toilet and then, well.... It was like I couldn't fully awaken myself. Or maybe I was in some kind of twilight sleep. It was very bizarre!

Good morning all!

Hey DreamOn...I thought I was just going crazy at some points but then I read your comments about not being fully awake at times and it hits home. Before I was diagnosed with OSA and going through my sleep disorder, apparently I would go to the bathroom without even being fully awake...some kind of in-between sleep and awake where I don't remember going to the bathroom but wake up there...it was so odd!

DoriC wrote:[quote="

DoriC wrote:DreamOn, can you explain in a little more detail why Cpap works better for you and what the differences are for you with Apap vs Cpap?

Dori, I know that Mike has problems with those nasty infections periodically. Do you think there may be any correlation between that and his pressure needs? I'm just wondering if pain may be affecting him, even before the infection is detected, which may cause his sleep to be more disturbed? That may be something to look at if you keep records of his therapy and can recall surgery/infection dates.

I really have to go back and see if all these different sleep patterns coincide with his flareups. I know for sure the surgery this time has been more difficult for him to bounce back from but he's still a tough guy and never complains, that's the problem. Alex, sorry I hijacked your thread. Thanks for letting me borrow Dream On! [/quote]

Hi Dori!!

It's ok don't even worry about it. I actually like you guys using the thread. I get to know more about all of you much better... Post on!

Hey Alex, Do you know what your oxygen desaturations were during your sleep study? That would be interesting to know. If you got a recordable oximeter it might help you guage how aggressive you want to be with adjustments to your pressure. Just a thought.

Lizistired wrote:Hey Alex, Do you know what your oxygen desaturations were during your sleep study? That would be interesting to know. If you got a recordable oximeter it might help you guage how aggressive you want to be with adjustments to your pressure. Just a thought.

Hey Liz...I don't have it in front of me right now but If I remember correctly it was pretty low. I want to say 48%.

Yikes!

AJimen05 wrote:

Lizistired wrote:Hey Alex, Do you know what your oxygen desaturations were during your sleep study? That would be interesting to know. If you got a recordable oximeter it might help you guage how aggressive you want to be with adjustments to your pressure. Just a thought.

Hey Liz...I don't have it in front of me right now but If I remember correctly it was pretty low. I want to say 48%.

When my husband was in the hospital recently his 02 dropped to 87% for a short period post-op and they put him on oxygen for 24hrs, then his levels went back up into the normal 90's.

Here is last night's graphs...I only slept 3.5 hours because I had to get up and take my brother to the airport early. But my Sleep quality screen showed AHI of 12.9. This is after I set the pressure to 13 and the EPR to 2. I might go ahead and switch the EPR down to 1 and stay with that for a week...