100% compliant to CPAP, still tired, can I do something ?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Pugsy
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Pugsy » Sat Jun 18, 2016 6:35 am

jaw wrote:I see two options: "Auto on" and "Auto off", what are they ?
Those options relate to the machine turning on or off automatically.
With Auto On being set to the On position if you put the mask on and take a few breaths the machine will sense you are attached and it will start blowing without your having to push the button to start the machine. I have always utilized this feature on any machine I have used. ResMed has a similar feature.

With Auto Off being set to On....it's weird I know that off is on...if you remove the mask the machine will turn itself off once it senses you aren't attached...but it takes about a minute.
If it is set to off...the machine will blow after you remove the mask until you manually turn off the machine.

Now as to why you can't find the auto trial mode....it should be there along with the check mode and cpap mode.
I thought it was called auto trial mode. I haven't actually seen a 460/461 model machine.
I need to get the provider manual and check it out.
The only other thing that might be a factor for the absence of auto trial mode might be the "1" part of your model number. In the US the model number is 460. The 461 is supposed to be the same machine but marketed outside the USA. I wouldn't have thought that the machines marketed outside the USA would have different menu options or in this case the absence of auto trial mode.
If you highlight cpap mode...can you change it? If so what are the option choices?

Finally....if you aren't seeing many RERAs on your reports then I doubt that you are having very many Flow limitations. They sort of go hand in hand for the most part. It's rare that I have seen someone with low RERAs and high FLs. So if you don't have auto mode available (for some strange reason related the the "1") it probably isn't the end of the world.

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cpapernewbie
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by cpapernewbie » Sat Jun 18, 2016 12:52 pm

PR System One Model 60 460 and 461 = Pro - this is FIXED CPAP
PR System One model 560 and 561 = Auto

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Pugsy
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Pugsy » Sat Jun 18, 2016 8:36 pm

cpapernewbie wrote:PR System One Model 60 460 and 461 = Pro - this is FIXED CPAP
True BUT it does have a 30 day limited auto trial mode where it functions like the regular 560 does in auto mode
and I believe that 30 days can be rest up to 5 times. Once auto trial days are used up then it becomes no longer available and fixed cpap is all there is.

https://www.cpap.com/productpage/pr-sys ... chine.html
The 60 Series Pro combines the proven comfort of C-Flex Plus pressure relief found in the PR System One REMstar Pro CPAP Machine with C-Flex Plus, the smart technology of Auto-Trial and CPAP-Check modes first offered in PR System One REMstar Pro CPAP Machine with AutoIQ and the leading edge advancements in humidification that come with the System One 60 Series Heated Tube Humidifier with Heated Tube.

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jaw
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Sun Jun 19, 2016 3:38 pm

Pugsy wrote:
cpapernewbie wrote:PR System One Model 60 460 and 461 = Pro - this is FIXED CPAP
True BUT it does have a 30 day limited auto trial mode where it functions like the regular 560 does in auto mode
and I believe that 30 days can be rest up to 5 times. Once auto trial days are used up then it becomes no longer available and fixed cpap is all there is.

https://www.cpap.com/productpage/pr-sys ... chine.html
The 60 Series Pro combines the proven comfort of C-Flex Plus pressure relief found in the PR System One REMstar Pro CPAP Machine with C-Flex Plus, the smart technology of Auto-Trial and CPAP-Check modes first offered in PR System One REMstar Pro CPAP Machine with AutoIQ and the leading edge advancements in humidification that come with the System One 60 Series Heated Tube Humidifier with Heated Tube.
I don't know if mine is exactly the one you mentioned https://www.cpap.com/productpage/pr-sys ... chine.html,

My machine's accompanying manual (in Dutch, the language of the Netherlands) mentions only 2 therapy modes CPAP and C-Check, not an Auto mode.

However, a quick google on "remstar pro c-flex+ manual" gives me the following
- One manual in Dutch shows only 2 modes: CPAP and C-Check. This PDF seems to be exactly the same as the paper manual accompanying my machine http://www.vivisol.nl/assets/uploads/se ... versie.pdf.
- One manual in English shows 3 modes: CPAP, Auto-trial and C-Check. I am not sure if it is 100% the same as my machine https://www.sleepapnea.com/documents/Sy ... Manual.pdf

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Pugsy
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Pugsy » Sun Jun 19, 2016 5:37 pm

It's very possible that Respironics did the Dutch machine without Auto Trial mode..that would be the "1" part of the 461 that I mentioned. There are 2 PR System One 60 series Pro models...460 (normally for the USA market) and the 461 for the "other "markets. The "1" means a little different from what we in the USA are used to.

I don't doubt you...it should be easy to see if it is there and since you don't see it then the only explanation is that for some reason your 461 machine is lacking the Auto Trial mode. Not much we can do about it right now.
Should you ever be in the market where you are going to buy a backup machine out of your own pocket you can always get a real 560 apap model and it will work with your existing humidifier.

While apap mode is nice and can be especially useful for some people...it isn't the end of the world to not have the FL data available or have auto adjusting pressures available. Some people don't even like apap mode.

It is what it is though...so what you have is what you have and I doubt that you would be able to get a 560 now but I suppose you could always ask. The Netherlands health care system may only supply this particular model...at least it isn't a total brick.

I don't think that your OSA therapy would necessarily be dramatically improved with auto mode anyway.
It's pretty darn good on paper anyway. I really suspect that a good bit of your unwanted symptoms are most likely caused by your other health issues. Now maybe things will get better gradually over time...stranger things have happened but there's nothing on your reports that scream out "fix me and you will have the miracle".
I wish there were because it would at least give you something to try while you are giving it more time.
I don't see it though and like I explained above...I doubt that the FLs would be all that exciting even if you had a machine that would show them. Usually with FLs we also see snores or RERAs or both and your machine does flag those and there's not enough of them to warrant worrying about.

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jaw
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Mon Jun 20, 2016 3:03 am

Pugsy wrote: I don't think that your OSA therapy would necessarily be dramatically improved with auto mode anyway.
But I might need to look into the Flow Limitations to find out what else is hindering me from having an awesome brain .

Thanks,

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> 15 years of Apnea, discovered in 2016 with AHI = 50
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Pugsy » Mon Jun 20, 2016 6:57 am

jaw wrote:But I might need to look into the Flow Limitations to find out what else is hindering me from having an awesome brain .
Well....if it eases your brain to know that you have exhausted every possible data point that these machines gather in an effort to figure out what your problem with your brain is...then you will need a machine that will offer that particular data point.
If your model machine isn't offering apap trial mode...then it ain't gonna happen with your existing machine.

Perhaps whomever supplied you with this machine has a 560 that you could maybe borrow for a week or so.
Or buy your own if your wallet permits.

I doubt that FLs are your problem though because you aren't showing any of the other stuff that is normally seen when FLs are high.
But if it eases your mind and you would sleep better knowing everything possible that these machines can gather is within normal/acceptable limits...then get a machine that will flag FLs.
At some point you are going to have to accept the fact that these machines have their limitations and can't always provide the clear cut answers that we are seeking when we don't feel the good numbers that we see.

I don't mean to sound rude or harsh or unsympathetic to your plight...but I do mean to sound realistic.
Not all our problems can be blamed on OSA and the machine only fixes OSA problems. It can't fix something that is unrelated to OSA no matter how much we want to put all our problems in that OSA basket.

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jaw
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Mon Jun 20, 2016 2:49 pm

I understand it, Pugsy,
Will wait for blood test results.
Thanks,

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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Wed Jun 22, 2016 12:10 am

Again, the "Good room" gives me several good days in a row: the past two days my brain productivity was good, and this morning i notice something different: i don't have a headache when i start a day with reading facebook and news (right 20 min after waking up), and later after at the two moments of 2 hours and 3 hours after waking up I feel less pain on my head behind my ears.

Will rearrange the "Bad room" and sleep there later to try.

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Last edited by jaw on Wed Jun 22, 2016 1:16 am, edited 1 time in total.
> 15 years of Apnea, discovered in 2016 with AHI = 50
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Sonnyboy » Wed Jun 22, 2016 12:27 am

jaw wrote:Again, the "Good room" gives me several good days in a row: the pas two days my brain productivity was good, and this morning i notice something different: i don't have a headache when i start a day with reading facebook and news (right 20 min after waking up), later after 2 hours after waking up I fewl less pain on my head behind my ears.

Will rearrange the "Bad room" and sleep there later to try.

Lots of variables to consider: Ventilation, mold, chemicals, temperature, humidity to name a few.
Hope you can use the "good" room permanently.

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jaw
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Sat Jun 25, 2016 6:07 am

Sonnyboy wrote:
jaw wrote:Again, the "Good room" gives me several good days in a row: the pas two days my brain productivity was good, and this morning i notice something different: i don't have a headache when i start a day with reading facebook and news (right 20 min after waking up), later after 2 hours after waking up I fewl less pain on my head behind my ears.

Will rearrange the "Bad room" and sleep there later to try.

Lots of variables to consider: Ventilation, mold, chemicals, temperature, humidity to name a few.
Hope you can use the "good" room permanently.
Thanks, I've been using the good room since 5 days, find it better relating to the nights sleeping in the bad room.
I'm aksing something new here: viewtopic/t112465/How-good-is-your-room ... nsor-.html

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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Mon Jun 27, 2016 4:55 am

So blood result is available
- Liver function better than 2 years ago, a bit deviated from a "normal range", but not so serious. This is going to be checked by my liver doctor in the hospital
- Vitamin B1 and B12 are good
- Vitamin D is low. This is understandable since I grew up in Vietnam where the sun is strong, and my skin is a bit darker than people of the the Netherlands.

So my action is to take vitamin D asap, but how about being fit with my body but bad with my brain ?

I complained to the family doctor that my brain is tired, short term memory is bad. She said that it is probably due to stress. Yes could be a brain stress is high, but the foggy feeling is only due to CPAP.

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> 15 years of Apnea, discovered in 2016 with AHI = 50
using PR System One REMstar Pro CPAP Machine with C-Flex Plus, PR System One Heated Humidifier, Mirage FX Nasal CPAP Mask with headgear.

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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Sonnyboy » Mon Jun 27, 2016 7:36 am

Re: "foggy feeling is only due to CPAP":


No!

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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Mon Jun 27, 2016 8:29 am

Sonnyboy wrote:Re: "foggy feeling is only due to CPAP":


No!
Sorry, I meant only due to OSA, or it is still not true ?

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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Sonnyboy » Mon Jun 27, 2016 9:18 am

jaw wrote:
Sonnyboy wrote:Re: "foggy feeling is only due to CPAP":


No!
Sorry, I meant only due to OSA, or it is still not true ?
Hi Jaw,
Read Blackspinners message in the other post. Try her suggestions.
You have only used Cpap since April. It is true that some people take longer than others to improve. Give your self time. Get some second opinions if your insurance will cover this.
You have two threads going and this is confusing. Take your pick which one you will keep and which one you will stop.

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