100% compliant to CPAP, still tired, can I do something ?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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jaw
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Fri Jun 17, 2016 9:31 am

palerider wrote: I must say that I feel great today, thanks to the good room that I slept in yesterday.
how very fung shui [/quote]

This is the 2nd time I notice, will try sleeping there today and report here.

It could be about how easily the air of rich oxygen gets into my machine before getting into my lung.

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> 15 years of Apnea, discovered in 2016 with AHI = 50
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Julie
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Julie » Fri Jun 17, 2016 11:50 am

The good room was probably cooler than the other... Cpap doesn't work very well if the room is too warm.

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LSAT
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by LSAT » Fri Jun 17, 2016 12:10 pm

Julie wrote:The good room was probably cooler than the other... Cpap doesn't work very well if the room is too warm.
Nonsense

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Julie
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Julie » Fri Jun 17, 2016 2:31 pm

I spoke from long experience... mine, though I know others who've had similar ones, but what happens to others is their experience. This particular person is looking for answers, so I don't know how what I shared is invalid. Speak for yourself only.

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CowFish
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by CowFish » Fri Jun 17, 2016 2:55 pm

LSAT wrote:
Julie wrote:... Cpap doesn't work very well if the room is too warm.
Nonsense
Yes, it is nonsense. CPAP even works at 95F/35C while tent camping. You may not be able to sleep well at that temperature, but CPAP works well.

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Julie
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Julie » Fri Jun 17, 2016 3:46 pm

I wasn't suggesting that Cpap as a machine was actually faulty, only that the effects of using it in warm conditions were less than in cool ones.

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CowFish
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by CowFish » Fri Jun 17, 2016 4:06 pm

It's still nonsense. A CPAP system splints your airway open. It will do this in cold and hot temperatures.

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Julie
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Julie » Fri Jun 17, 2016 5:14 pm

I guess you don't understand the word 'effect', or the ones 'my experience'.

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palerider
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by palerider » Fri Jun 17, 2016 5:41 pm

jaw wrote:
palerider wrote: I must say that I feel great today, thanks to the good room that I slept in yesterday.
how very fung shui
This is the 2nd time I notice, will try sleeping there today and report here.

It could be about how easily the air of rich oxygen gets into my machine before getting into my lung.[/quote]

it's highly unlikely that there's any more oxygen in your 'good' room than in your 'bad' room, and unless you're putting the machine inside a tightly sealed box, there it's not going to make a difference as to "how easily the air gets in". my first CPAP had a muffler attachment on the intake that had a 10mm hole in it for air to get in.

of course, the placebo effect has been scientifically proven, so if you want to think that sleeping in a different room affects your brain, then join the pyramid believers and enjoy.

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palerider
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by palerider » Fri Jun 17, 2016 5:43 pm

Julie wrote:I guess you don't understand the word 'effect', or the ones 'my experience'.
perhaps the experience has nothing to do with the cpap, rather the common situation that it's more comfortable to sleep when cooler. I sleep much worse if the AC isn't working down here, and that goes back to before I ever even heard of cpap.

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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by chunkyfrog » Fri Jun 17, 2016 5:47 pm

Temperature does have a bearing on a liquid or gas to hold oxygen; but I don't know if it is significant.

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jaw
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Fri Jun 17, 2016 6:06 pm

During the last 75 days, I have noted down how I feel at several moments at 90% of the days.

I use 3 indicators:

- Morning headache
- Daytime Fogginess (with highest fogginess from 09:30 until 13:30)
- Evening Tiredness

While I see an improvement over pre-CPAP, the variation between the days is big. I feel worse the next day mostly when

- (1) If I have stressed my brain too much (in the evening, when my brain is already tired, if I continue working or even read news while lying down)
- (2) If I have sex the night before. Daytime fogginess will very often be high the next morning. To be isolated are whether or not (a) I have spent several hours reading erotic stories before doing the release (thus the brain is too much stressed since it's already in the evening, (b) whether I masturbate or have sex with partner
- (3 If I sleep in one "bad" room (comparing to a "good room" inside my house. This I have seen two times since the last 5 days. Temperature difference between these 2 rooms is only max 1 degree I guess, and I cannot say which room is cooler.

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> 15 years of Apnea, discovered in 2016 with AHI = 50
using PR System One REMstar Pro CPAP Machine with C-Flex Plus, PR System One Heated Humidifier, Mirage FX Nasal CPAP Mask with headgear.

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Pugsy
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Pugsy » Fri Jun 17, 2016 8:01 pm

Flow limitation ? I can only see events there (hyponea, snore, apnea),
In cpap mode the Flow limitation flagging ability is turned off so the reason you don't see any is because the machine can't flag them in cpap mode...maybe you had some...maybe you had a lot of them...maybe you didn't really have any. We don't know or can't know in cpap mode.

Flow limitation flagging is only turned on in auto/apap mode. If your machine is a 460/461 model it will have a short term trial of apap mode...30 days.
If you can turn it to that trial apap mode ...just set the minimum to equal the maximum and it will function like the cpap being a fixed pressure but FL flagging will be turned on and then you can see if you are having very many. Just set it to you whatever you were using in cpap mode. Flow limitations aren't part of the AHI but you can think of them as little flow reductions that don't meet the criteria for hyponea or OA. A handful of FLs aren't likely to be a problem but having a lot of them and especially in clusters could potentially disrupt sleep quality and have a negative effect on how a person feels the next day.

If you want to try the apap trial....I would try a small range just to see if the machine wanted to do something.
Like set the minimum at what you are using no in cpap mode and add 2 cm to the minimum of 10 to make the max 12. You just want to see if the pressure wants to go higher for right now.

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jaw
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Fri Jun 17, 2016 8:45 pm

Pugsy wrote: In cpap mode the Flow limitation flagging ability is turned off so the reason you don't see any is because the machine can't flag them in cpap mode...maybe you had some...maybe you had a lot of them...maybe you didn't really have any. We don't know or can't know in cpap mode.

Flow limitation flagging is only turned on in auto/apap mode. If your machine is a 460/461 model it will have a short term trial of apap mode...30 days.
If you can turn it to that trial apap mode ...just set the minimum to equal the maximum and it will function like the cpap being a fixed pressure but FL flagging will be turned on and then you can see if you are having very many. Just set it to you whatever you were using in cpap mode. Flow limitations aren't part of the AHI but you can think of them as little flow reductions that don't meet the criteria for hyponea or OA. A handful of FLs aren't likely to be a problem but having a lot of them and especially in clusters could potentially disrupt sleep quality and have a negative effect on how a person feels the next day.

If you want to try the apap trial....I would try a small range just to see if the machine wanted to do something.
Like set the minimum at what you are using no in cpap mode and add 2 cm to the minimum of 10 to make the max 12. You just want to see if the pressure wants to go higher for right now.
Pugsy wrote: The PR System One model 461 has a short term (30 day) trial of auto mode.
You have to go into the clinical setup menu to see that choice though.
You have been in there where pressures are changed...where "mode" is offered and it's set to cpap....see if you can highlight mode and and turn the knob to auto trial mode.

CFlex + has nothing to do with auto mode...it's just an exhale relief setting.
In auto mode it's called AFlex.
My machine is
Brand = Philips Respironics,
Series = System One (60 Series),
Model = RemStar Pro with C-Flex+ (461P)
Serial = P1555788060A5

I''ve entered the clinical setup (by pressing and keeping for 5 seconds the round button an the small button at the same time).
I don'' t see any APAP mode, only "CPAP" or "C-Check" for Mode

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Mask: Mirage™ FX Nasal CPAP Mask with Headgear
Additional Comments: > 15 years of Apnea, discovered in 2016 with AHI = 50
> 15 years of Apnea, discovered in 2016 with AHI = 50
using PR System One REMstar Pro CPAP Machine with C-Flex Plus, PR System One Heated Humidifier, Mirage FX Nasal CPAP Mask with headgear.

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Pugsy
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Pugsy » Fri Jun 17, 2016 8:52 pm

Go check the total hours on the machine...see if it is much different from the therapy hours.
How long have you been using it? Roughly how many hours?

you scroll through the modes and you don't see apap/auto trial anywhere?

I wonder if your machine was used by someone else and they used up the 30 days.
Therapy hours can be reset to 0 and if someone doesn't know where to look they assume that means it's new but there's another area where the run hours are kept.

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