I'm back to Diagnostic Study- Home Study Tonight

bobmc · Post by **bobmc** » Thu Jun 18, 2015 8:18 pm

Enchanter wrote:The problem is this is getting NOWHERE... All these tests.. It's getting nowhere. First a diagnostic test, then a titration. Then another titration. Then a home diagnostic test. Then, they say they don't understand the data and don't think I took it correctly. When does this end? Not to mention the fact that even if I get a mask, that could take months too! When does this end? It hasn't even started yet! 2 months in and we are going backwards!

That is why at times I'm just saying it feels like it's best to give up since it doesn't seem like this is every going to get anywhere. So please understand. I'm very frustrated, baffled and ashamed. It's getting to the point where I feel like giving up but I don't know what to do. This isn't good.

Enchanter- Get a copy of your sleep test results from your Dr who ordered the test. That is the way to move forward. Don't give up. It's your health/your life.

palerider · Post by **palerider** » Thu Jun 18, 2015 8:21 pm

Enchanter wrote:The problem is this is getting NOWHERE... All these tests.. It's getting nowhere. .

why don't you just buy a machine and a mask and go it alone?

if you start feeling better, great, if not, sell it to someone else.

postitnote · Post by **postitnote** » Thu Jun 18, 2015 8:22 pm

Enchanter wrote:The problem is this is getting NOWHERE... All these tests.. It's getting nowhere. First a diagnostic test, then a titration. Then another titration. Then a home diagnostic test. Then, they say they don't understand the data and don't think I took it correctly. When does this end? Not to mention the fact that even if I get a mask, that could take months too! When does this end? It hasn't even started yet! 2 months in and we are going backwards!

That is why at times I'm just saying it feels like it's best to give up since it doesn't seem like this is every going to get anywhere. So please understand. I'm very frustrated, baffled and ashamed. It's getting to the point where I feel like giving up but I don't know what to do. This isn't good.

Call the doctor's office and ask if it's okay for them to talk to someone else so you can have a second person help you sort this all out. I don't see why that would be a problem. My husband refuses to do anything but show up to the doctors he sees. I have to go with and ask questions. He doesn't like doctors so he puts a wall up.

If we can get the test results they have on what they have done someone can interpret them here. If it looks like you have sleep apnea we can get you a mask and machine! There are great people here that will help you configure your pressure. We just need a place to start from and that report is vital

Pesser · Post by **Pesser** » Thu Jun 18, 2015 8:25 pm

palerider wrote:
Enchanter wrote:The problem is this is getting NOWHERE... All these tests.. It's getting nowhere. .
why don't you just buy a machine and a mask and go it alone?

if you start feeling better, great, if not, sell it to someone else.

PR is right!
This is super easy. Buy a machine for about $200. You don't need data capability you only need pressure. If you tweek the pressure upward and slowly; you will get good sleep. The machine will tell you what your AHI is at a given pressure. Increase very slowly; over a few months. If you have no AHI or low AHI and you are still lacking sleep then you can assume you have UARS. Increase pressure over a few months. Later if you decide you want a high end machine your $200 will serve as your backup. What’s the problem? Is it the $200?

Enchanter....do you have GAD?

ems · Post by **ems** » Thu Jun 18, 2015 8:56 pm

Pesser wrote:Enchanter....do you have GAD?

Enchanter... GAD = Generalized Anxiety Disorder

Enchanter · Post by **Enchanter** » Thu Jun 18, 2015 9:00 pm

palerider wrote:
Enchanter wrote:The problem is this is getting NOWHERE... All these tests.. It's getting nowhere. .
why don't you just buy a machine and a mask and go it alone?

if you start feeling better, great, if not, sell it to someone else.

Really? Someone on here wrote it could cost thousands. But doesn't a mask have to be customized?

Enchanter · Post by **Enchanter** » Thu Jun 18, 2015 9:01 pm

bobmc wrote:
Enchanter wrote:The problem is this is getting NOWHERE... All these tests.. It's getting nowhere. First a diagnostic test, then a titration. Then another titration. Then a home diagnostic test. Then, they say they don't understand the data and don't think I took it correctly. When does this end? Not to mention the fact that even if I get a mask, that could take months too! When does this end? It hasn't even started yet! 2 months in and we are going backwards!

That is why at times I'm just saying it feels like it's best to give up since it doesn't seem like this is every going to get anywhere. So please understand. I'm very frustrated, baffled and ashamed. It's getting to the point where I feel like giving up but I don't know what to do. This isn't good.
Enchanter- Get a copy of your sleep test results from your Dr who ordered the test. That is the way to move forward. Don't give up. It's your health/your life.

Alright, might as well do that. But if it doesn't mean getting a mask, even with obvious results, then that means I'll have to buy my own mask or look into that.

Enchanter · Post by **Enchanter** » Thu Jun 18, 2015 9:06 pm

Pesser wrote:
palerider wrote:
Enchanter wrote:The problem is this is getting NOWHERE... All these tests.. It's getting nowhere. .
why don't you just buy a machine and a mask and go it alone?

if you start feeling better, great, if not, sell it to someone else.
PR is right!
This is super easy. Buy a machine for about $200. You don't need data capability you only need pressure. If you tweek the pressure upward and slowly; you will get good sleep. The machine will tell you what your AHI is at a given pressure. Increase very slowly; over a few months. If you have no AHI or low AHI and you are still lacking sleep then you can assume you have UARS. Increase pressure over a few months. Later if you decide you want a high end machine your $200 will serve as your backup. What’s the problem? Is it the $200?

Enchanter....do you have GAD?

Actually if 200 dollar machine works, I might do that. I was under the impression it costs thousands.

ems · Post by **ems** » Thu Jun 18, 2015 9:08 pm

palerider wrote:
Enchanter wrote:The problem is this is getting NOWHERE... All these tests.. It's getting nowhere. .
why don't you just buy a machine and a mask and go it alone?

if you start feeling better, great, if not, sell it to someone else.

Excellent suggestion! I hope he thinks about it. I'm sure he can get a machine at Second Wind (or whatever) as many people have done.

palerider · Post by **palerider** » Thu Jun 18, 2015 9:10 pm

Enchanter wrote:
palerider wrote:
Enchanter wrote:The problem is this is getting NOWHERE... All these tests.. It's getting nowhere. .
why don't you just buy a machine and a mask and go it alone?

if you start feeling better, great, if not, sell it to someone else.

Really? Someone on here wrote it could cost thousands. But doesn't a mask have to be customized?

nobody here said that.

and, as to the second part of your question, are you *completely* incapable of reading and understanding ANYTHING else on the forum?

palerider · Post by **palerider** » Thu Jun 18, 2015 9:12 pm

Pesser wrote:
palerider wrote:
Enchanter wrote:The problem is this is getting NOWHERE... All these tests.. It's getting nowhere. .
why don't you just buy a machine and a mask and go it alone?

if you start feeling better, great, if not, sell it to someone else.
PR is right!
This is super easy. Buy a machine for about $200. You don't need data capability you only need pressure. If you tweek the pressure upward and slowly; you will get good sleep.

I disagree, full data is critical. and an auto would be preferable. and he might not get good sleep, because there's many factors besides whether or not it's OSA.

what it WOULD do is end the waiting, and answer some questions.

Enchanter · Post by **Enchanter** » Thu Jun 18, 2015 9:14 pm

palerider wrote:
Pesser wrote:
palerider wrote:
Enchanter wrote:The problem is this is getting NOWHERE... All these tests.. It's getting nowhere. .
why don't you just buy a machine and a mask and go it alone?

if you start feeling better, great, if not, sell it to someone else.
PR is right!
This is super easy. Buy a machine for about $200. You don't need data capability you only need pressure. If you tweek the pressure upward and slowly; you will get good sleep.
I disagree, full data is critical. and an auto would be preferable. and he might not get good sleep, because there's many factors besides whether or not it's OSA.

what it WOULD do is end the waiting, and answer some questions.

What is an auto?

postitnote · Post by **postitnote** » Thu Jun 18, 2015 9:15 pm

Enchanter wrote:
Pesser wrote:
palerider wrote:
Enchanter wrote:The problem is this is getting NOWHERE... All these tests.. It's getting nowhere. .
why don't you just buy a machine and a mask and go it alone?

if you start feeling better, great, if not, sell it to someone else.
PR is right!
This is super easy. Buy a machine for about $200. You don't need data capability you only need pressure. If you tweek the pressure upward and slowly; you will get good sleep. The machine will tell you what your AHI is at a given pressure. Increase very slowly; over a few months. If you have no AHI or low AHI and you are still lacking sleep then you can assume you have UARS. Increase pressure over a few months. Later if you decide you want a high end machine your $200 will serve as your backup. What’s the problem? Is it the $200?

Enchanter....do you have GAD?
Actually if 200 dollar machine works, I might do that. I was under the impression it costs thousands.

I acquired 2 machines in the last few months. I only need one and you are welcome to the one I keep as a back-up. I just gave away all my extra non pillow masks but we can get one for you to start out with. I don't have the card reader I bought anymore. I gave it away because I couldn't get it to work. Maybe someone here who offered to send me one would send it to you instead! I have a new hose I can send too.

chunkyfrog · Post by **chunkyfrog** » Thu Jun 18, 2015 9:15 pm

Sigh, I have to get to bed. Got to get up by a quarter after five. G'night.

postitnote · Post by **postitnote** » Thu Jun 18, 2015 9:19 pm

chunkyfrog wrote:Sigh, I have to get to bed. Got to get up by a quarter after five. G'night.

Do you have to milk cows coz that's the only reason to be up that early

Machine	Mask	Humidifier

Additional Comments: Fear of devil with halo

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