Scan of my results (what is RERA and UAR?)

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Fri May 31, 2013 10:26 am

caffeinatedcfo wrote:Sleep Study Data should be reams of paper if printed out. A Sleep Tech then summarizes it into a nice concise report. This is of course assuming done by a reputable and qualified lab. I've heard of people getting their sleep study raw data on CD or flash drive from the lab before and having someone else analyze it.

Your providers seem evasive and that is a huge red flag to me.

Yeah I've getting a really strange run around. I'll go to the hospital this afternoon and get everything on a disk

pootsie · Post by **pootsie** » Fri May 31, 2013 10:47 am

http://www.hhs.gov/ocr/privacy/hipaa/un ... cords.html

SleepingUgly · Post by **SleepingUgly** » Fri May 31, 2013 11:47 am

I don't think any rights have been violated here. No one has refused to give her the raw data (yet). She just can't get them to answer the phone and get her questions answered. Annoying to be sure, but that's about it.

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Fri May 31, 2013 11:59 am

Back from visiting my Aunt in the records department. I just had them put the whole 15 pages of data onto a disk. I'll take it with me when I visit the new Sleep doctor and have them get someone to RECHECK all the information

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Fri May 31, 2013 12:02 pm

Well..... now I have no idea what's going on!!! UGH!

All the stuff on the disk? Is the paperwork that I filled out FOR the sleep study plus the 'report' and 'events' page.

Still no actual information.

I'm done with this all. I'm just going to forget the whole study ever happened and get on with my life.

pootsie · Post by **pootsie** » Fri May 31, 2013 12:07 pm

Ah, that's why I posted the link.

You have every right to your full data. A quick call to the legal office might help if you get any more runaround.

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Fri May 31, 2013 12:09 pm

pootsie wrote:Ah, that's why I posted the link.

You have every right to your full data. A quick call to the legal office might help if you get any more runaround.

I wonder if they don't know what I'm asking for? But a call to my GP office says she's now on vacation for a week. So yeah I think I'll just accept the info I have that I snore and that's all that needs treatment and go from there.

SleepingUgly · Post by **SleepingUgly** » Fri May 31, 2013 12:46 pm

You're understandably frustrated. I think they don't know what it is you want, and I think you can get what you want from the head of the sleep lab. If this is a place big enough to have a "medical records department", then start with them and ask for the phone number for the lab. If need be, call the operator and the pulmonary department...call whoever might be able to give you the phone number to the person in charge of the sleep lab. Also, on the paperwork you got ahead of time about how to prepare for your sleep study, there should be a phone number for the lab. Sometimes calling in the evening works if they aren't there because they aren't doing daytime sleep studies. You can even post a note on the door to the sleep lab asking them to call you. You will get a hold of someone eventually. Once you do, ask to speak to the head of the sleep lab (you can try asking your questions of the person you get, and they might, or might not, be able to answer you). Ask the questions about the hypopnea scoring and the RERAs that were noted in the written part. Tell them you want the raw data on CD (what's the format she wants, Mollete? EDF?).

The squeaky wheel probably wasn't as tired as we are, but staying this way is not an option if there are alternatives.

SleepingUgly · Post by **SleepingUgly** » Fri May 31, 2013 12:50 pm

BTW, the reason I keep saying ask them about the hypopnea scoring and RERAs is because (1) depending on their answers, you may feel they've done an adequate assessment and that you don't need another study now (although I'd ask them specifically about what they saw in REM, and if there was even a whiff of something in REM, I'd redo the study...), and (2) it's theoretically possible to have another doctor look at raw data (and I've done so), but it isn't usually the first choice of any doctor to score someone else's data.

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Fri May 31, 2013 1:03 pm

SleepingUgly wrote:You're understandably frustrated. I think they don't know what it is you want, and I think you can get what you want from the head of the sleep lab. If this is a place big enough to have a "medical records department", then start with them and ask for the phone number for the lab. If need be, call the operator and the pulmonary department...call whoever might be able to give you the phone number to the person in charge of the sleep lab. Also, on the paperwork you got ahead of time about how to prepare for your sleep study, there should be a phone number for the lab. Sometimes calling in the evening works if they aren't there because they aren't doing daytime sleep studies. You can even post a note on the door to the sleep lab asking them to call you. You will get a hold of someone eventually. Once you do, ask to speak to the head of the sleep lab (you can try asking your questions of the person you get, and they might, or might not, be able to answer you). Ask the questions about the hypopnea scoring and the RERAs that were noted in the written part. Tell them you want the raw data on CD (what's the format she wants, Mollete? EDF?).

The squeaky wheel probably wasn't as tired as we are, but staying this way is not an option if there are alternatives.

The medical records department is through the hospital. That's where the sleep study was done. So far when asking the operator of the hospital for the number to the sleep department that's when I end up with the number that I call and call and never answers.

The top of the paperwork just says 'Morgan County Hospital' which is the hospital I went through.

The post it note is a GREAT idea. I'll try t do that on Monday. I'll also ask about pulmonologists, that's a great idea too! Maybe I can find this doctor who scored the study.

Or would googling the doctor who went over the study and getting the number for his office and asking him these questions be weird? His name is all over the report so I could probably find his office number

SleepingUgly · Post by **SleepingUgly** » Fri May 31, 2013 2:26 pm

SleepyonMagnoliaSt wrote:The post it note is a GREAT idea. I'll try t do that on Monday. I'll also ask about pulmonologists, that's a great idea too! Maybe I can find this doctor who scored the study.

Or would googling the doctor who went over the study and getting the number for his office and asking him these questions be weird? His name is all over the report so I could probably find his office number

Hmmm... I don't know the answer to this. Maybe Mollete can weigh in here. I would think you'd want to try to first get the information from the sleep lab, and failing that, contact the sleep physician. I assume the sleep physician noted on your report (first post of this thread) is the one overseeing the sleep study scoring/interpretation, and not the sleep doc that you met with, correct?

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Fri May 31, 2013 2:33 pm

SleepingUgly wrote:
SleepyonMagnoliaSt wrote:The post it note is a GREAT idea. I'll try t do that on Monday. I'll also ask about pulmonologists, that's a great idea too! Maybe I can find this doctor who scored the study.

Or would googling the doctor who went over the study and getting the number for his office and asking him these questions be weird? His name is all over the report so I could probably find his office number
Hmmm... I don't know the answer to this. Maybe Mollete can weigh in here. I would think you'd want to try to first get the information from the sleep lab, and failing that, contact the sleep physician. I assume the sleep physician noted on your report (first post of this thread) is the one overseeing the sleep study scoring/interpretation, and not the sleep doc that you met with, correct?

You are correct about the doctor. I still haven't heard anything on my sleep doctor referral that I called about which sucks because my doctor is out of town for a week.

Our sleep lab does not seem well run at all. During the scheduling and such process? You never speak with anyone who works at the lab. Scheduling is done through the hospital scheduling and they tell you what to do. Two room sleep lab next to the labor and delivery ward. No one answers their phone. No answering machine. It's all really weird. Like they are keeping themselves as far away as possible and then the information sent to my GP was half assed at best.

BlackSpinner · Post by **BlackSpinner** » Fri May 31, 2013 5:15 pm

I would suggest you pm Mollete to get the exact wording for the data you want. It has a fancy file suffix and can only be read by special software that RTs have access to. It is all the raw data from the leads attached to your body.
Once you have the wording,print it out (several copies) and go pounding on doors again at the hospital. Also print out those HIPPA pages as ammunition.

caffeinatedcfo · Post by **caffeinatedcfo** » Fri May 31, 2013 6:37 pm

Stick with it just a bit longer; you've come this far.

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Fri May 31, 2013 11:35 pm

My trust in our lab just went down. I was looking at my CD?

I have some other patients REPORT ON MY CD!!!

It's for a 43 year old MALE who definitely has apnea!!

WTF is wrong with this lab!?

Scan of my results (what is RERA and UAR?)

Re: Scan of my results (what is RERA and UAR?)

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Re: Scan of my results (what is RERA and UAR?)

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Re: Scan of my results (what is RERA and UAR?)