Scan of my results (what is RERA and UAR?)

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Thu May 30, 2013 3:13 pm

SleepingUgly wrote:Looking at your report again, it's curious that they say RDI=0 but they note RERAs. I wonder if the RERAs were primarily in the tiny bit of REM time you had, which averaged into nothing when combined with none in NREM... Someone needs to explain that.

I would think you'd be able to call this lab and ask about their scoring of hypopneas.

Very good questions.

I haven't been able to contact the lab at all. The phone just rings unendingly. All the scheduling was done through the Hospital's central scheduling and besides the tech I never saw ANYONE at the lab. It was a two room lab with 1 tech and no other staff.

I'm also wondering about the RERAs because the morning after my test? The tech told me without a doubt I had some episodes. So this whole situation really is weird

Pugsy · Post by **Pugsy** » Thu May 30, 2013 3:17 pm

Your sleep doctor doesn't believe there is such a thing as UARS...that's scarey.
By any chance was this sleep doctor a younger person or older?

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Thu May 30, 2013 3:19 pm

Pugsy wrote:Your sleep doctor doesn't believe there is such a thing as UARS...that's scarey.
By any chance was this sleep doctor a younger person or older?

She was much older. I'm really just at the end of my rope with everything.

To go to any of the private labs I have to get a referral for a new study and I doubt my GP will do that.

caffeinatedcfo · Post by **caffeinatedcfo** » Thu May 30, 2013 3:23 pm

Getting a Second Opinion is your right as a patient.

If your GP / PCP will not do that it is time to switch doctors.

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Thu May 30, 2013 3:26 pm

caffeinatedcfo wrote:Getting a Second Opinion is your right as a patient.

If your GP / PCP will not do that it is time to switch doctors.

Thank you. I'll call tomorrow to make an appointment with her and I'm printing out a referral thing from a private lab local to here. Lol I want this specific lab because it talks about UARS

I'm just so exhausted of all this

Todzo · Post by **Todzo** » Thu May 30, 2013 3:35 pm

SleepyonMagnoliaSt wrote:
I eat very healthy and have a regular exercise regimen. Unfortunately a dietitian and trainer are not something I can afford LOL

But I will definitely work on my stress!

For me it is helpful to purchase things like high quality pedometers (Ipod Nano 6th gen - or my current pedometer (see: http://www.amazon.com/Omron-HJ-720ITFFP ... 003U3HMN2/ ). The graphs make for good feedback on how close I am to my goal of 10,000 steps a day. It is all about keeping motivated. I still think a personal trainer could be helpful - they start from a very different perspective and tend to bring out your best. Perhaps for the future.

Check your insurance and talk with your doctor about using a dietitian. Medicare gladly paid for two years of every six week meetings for me and it proves helpful today.

Take good care of your microbiome!

Todzo

Pugsy · Post by **Pugsy** » Thu May 30, 2013 3:38 pm

SleepyonMagnoliaSt wrote: I want this specific lab because it talks about UARS

This would be who I would be wanting to talk to also. Someone who at least understands what UARS is and thus we would assume knows what to look for.

I am not surprised that the sleep doctor was older. They tend to get stuck in the "old" way of thinking and are not able to think outside the box. UARS has been around for quite a while but is just now getting some direct attention. It used to be sort of a catch all diagnosis when nothing else would fit but now they are realizing that UARS and those RERAs and fragmented sleep and poor sleep quality can be just as hard on the body as full blown plain jane OSA.

Your insurance company may not recognize UARS though...assuming that is what you have going on here.

Do you happen to know anyone with an extra cpap machine???

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Thu May 30, 2013 6:51 pm

Pugsy wrote:
SleepyonMagnoliaSt wrote: I want this specific lab because it talks about UARS
This would be who I would be wanting to talk to also. Someone who at least understands what UARS is and thus we would assume knows what to look for.

I am not surprised that the sleep doctor was older. They tend to get stuck in the "old" way of thinking and are not able to think outside the box. UARS has been around for quite a while but is just now getting some direct attention. It used to be sort of a catch all diagnosis when nothing else would fit but now they are realizing that UARS and those RERAs and fragmented sleep and poor sleep quality can be just as hard on the body as full blown plain jane OSA.

Your insurance company may not recognize UARS though...assuming that is what you have going on here.

Do you happen to know anyone with an extra cpap machine???

Hopefully we can get to the bottom of everything. Will get into my GP and I'm taking the referral sheet WITH me LOL. I've printed it from online.

I'm not going to jump to conclusions yet. But if it is UARS I do not know anything with a CPAP lol so I have no idea what I'll do. I guess cross that bridge if it comes

SleepingUgly · Post by **SleepingUgly** » Thu May 30, 2013 7:07 pm

CPAP is a treatment for UARS. One lab's UARS is another lab's mild OSA, etc.

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Thu May 30, 2013 7:27 pm

I'm writing down a lot of this to tell my GP tomorrow to give her my reasons for wanting a referral to the sleep doctors and another sleep study at this private lab.

Could anyone give me some links to information about how much REM sleep is normal?

Pugsy · Post by **Pugsy** » Thu May 30, 2013 7:39 pm

http://en.wikipedia.org/wiki/Sleep
see above for in depth information as well as % of the other sleep stages.
Rapid eye movement sleep, or REM sleep (also known as paradoxical sleep), accounts for 20–25% of total sleep time in most human adults

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Thu May 30, 2013 8:45 pm

A friend has brought up another point...... she didn't think it was POSSIBLE to score 0.0 on EVERYTHING. Could I have come unhooked or not been hooked up right?

Is it really possible to get ALL 0.0?

Stormynights · Post by **Stormynights** » Thu May 30, 2013 10:04 pm

SleepyonMagnoliaSt wrote:Ok I saw my sleep doctor! She said based on my symptoms she wouldn't have given me a sleep study in the first place. Obviously I sleep fine so the problem is quality of sleep.

We're starting Sleep Restriction Therapy. Starting today. I'm supposed to stay awake for 24 hours. All day today, all night tonight, and all day tomorrow. THEN I need to go to sleep at midnight and sleep only until 6 am. That's all I can sleep from now on. It's supposed to increase my quality of sleep? She said that my sleep study obviously was lack of quality because I had been sleeping all day (even though the day of the study I was up from 6 am on with 0 naps)

She also made sure to mention that UARS doesn't exist and I needed to stop reading online.

LOL so I'll start my Sleep Restriction Therapy with staying up until Midnight tomorrow night! Wish me luck!!

Maybe it is just me but I think this sound really stupid. You had such a hard time not napping the day of your sleep study. I understand improving your sleep hygiene but Sleep Restriction Therapy? Isn't that for insomnia?

kteague · Post by **kteague** » Thu May 30, 2013 10:16 pm

If you find that this lab used the scoring criteria least likely to count hypopneas, I'm wondering if as part of a 2nd opinion you can just have this study rescored by a lab using the other method. It may turn out the results would be enough to either diagnose OSA, indicate another study is warranted, or put your mind at ease.

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Thu May 30, 2013 10:19 pm

Stormynights wrote:
SleepyonMagnoliaSt wrote:Ok I saw my sleep doctor! She said based on my symptoms she wouldn't have given me a sleep study in the first place. Obviously I sleep fine so the problem is quality of sleep.

We're starting Sleep Restriction Therapy. Starting today. I'm supposed to stay awake for 24 hours. All day today, all night tonight, and all day tomorrow. THEN I need to go to sleep at midnight and sleep only until 6 am. That's all I can sleep from now on. It's supposed to increase my quality of sleep? She said that my sleep study obviously was lack of quality because I had been sleeping all day (even though the day of the study I was up from 6 am on with 0 naps)

She also made sure to mention that UARS doesn't exist and I needed to stop reading online.

LOL so I'll start my Sleep Restriction Therapy with staying up until Midnight tomorrow night! Wish me luck!!
Maybe it is just me but I think this sound really stupid. You had such a hard time not napping the day of your sleep study. I understand improving your sleep hygiene but Sleep Restriction Therapy? Isn't that for insomnia?

She said that my body just is on a 'wrong schedule' and we need to fix it.

But the last time I tried to restrict my sleep? I was horrible moody and viciously grouchy.

I just don't even know what to do

Scan of my results (what is RERA and UAR?)

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