Scan of my results (what is RERA and UAR?)

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Thu May 30, 2013 10:20 pm

kteague wrote:If you find that this lab used the scoring criteria least likely to count hypopneas, I'm wondering if as part of a 2nd opinion you can just have this study rescored by a lab using the other method. It may turn out the results would be enough to either diagnose OSA, indicate another study is warranted, or put your mind at ease.

I'm calling the place I want to be referred to to ask them some questions BEFORE I get my doctor to refer me to them

mollete · Post by **mollete** » Fri May 31, 2013 3:11 am

SleepingUgly wrote:The field of Sleep Medicine is a hot mess.

You're a hot mess!

49er · Post by **49er** » Fri May 31, 2013 3:22 am

Stormynights wrote:
SleepyonMagnoliaSt wrote:Ok I saw my sleep doctor! She said based on my symptoms she wouldn't have given me a sleep study in the first place. Obviously I sleep fine so the problem is quality of sleep.

We're starting Sleep Restriction Therapy. Starting today. I'm supposed to stay awake for 24 hours. All day today, all night tonight, and all day tomorrow. THEN I need to go to sleep at midnight and sleep only until 6 am. That's all I can sleep from now on. It's supposed to increase my quality of sleep? She said that my sleep study obviously was lack of quality because I had been sleeping all day (even though the day of the study I was up from 6 am on with 0 naps)

She also made sure to mention that UARS doesn't exist and I needed to stop reading online.

LOL so I'll start my Sleep Restriction Therapy with staying up until Midnight tomorrow night! Wish me luck!!
Maybe it is just me but I think this sound really stupid. You had such a hard time not napping the day of your sleep study. I understand improving your sleep hygiene but Sleep Restriction Therapy? Isn't that for insomnia?

Nope Stormy, it isn't just you as I thought the exact same thing. Kind of like a version of throwing psych meds at a problem that physicians can't figure out that turns out to be legitimate. In the sleep medicine field, SR is the psych med being thrown at a problem when it doesn't seem like an appropriate treatment.

49er

mollete · Post by **mollete** » Fri May 31, 2013 3:27 am

49er wrote:Nope Stormy, it isn't just you as I thought the exact same thing.

Me3.

Especially when the actual treatment is Sleep Deprivation w/Phase Advance.

FUBAR.

SleepingUgly · Post by **SleepingUgly** » Fri May 31, 2013 6:22 am

kteague wrote:If you find that this lab used the scoring criteria least likely to count hypopneas, I'm wondering if as part of a 2nd opinion you can just have this study rescored by a lab using the other method. It may turn out the results would be enough to either diagnose OSA, indicate another study is warranted, or put your mind at ease.

Absolutely. You don't have to redo the test if you can get the raw data and get someone else to look at it. But first you need to find out (1) which criteria did they use for scoring hypopneas (AASM Recommended, which requires desaturations, or AASM Alternative, which can be arousals) and (2) if they scored RERAs, and acknowledge that you had them in the written part of the report, why aren't they reflected in the RDI? The only viable explanation I can see for that is that possibly they were all in REM and got washed out in the averaging across the night. But if they were frequent in REM, that to me is an indication there's an issue here.

SleepingUgly · Post by **SleepingUgly** » Fri May 31, 2013 6:28 am

mollete wrote:
SleepingUgly wrote:The field of Sleep Medicine is a hot mess.
You're a hot mess!

I appreciate an insult I can understand!

SleepingUgly · Post by **SleepingUgly** » Fri May 31, 2013 6:35 am

SleepyonMagnoliaSt wrote:She said that my body just is on a 'wrong schedule' and we need to fix it.

Didn't you say you sleep like 16 hours a day? How is that appropriate, regardless of what time of day it occurred?! I agree there may be sleep hygiene issues, but as far as I know, sleep restriction is for people who can't sleep. I don't know how you're going to function on 6 hours of sleep a night. On the other hand, I'd love you to go into a sleep study somewhat sleep deprived so that you'll get adequate amounts of REM during the sleep study.

I just don't even know what to do

Do you want me to tell you? First, find a way to get a hold of the lab and get the answers to the questions I posted. Depending on what they say, you can decide whether to get a second opinion on the raw data or another sleep study.

mollete · Post by **mollete** » Fri May 31, 2013 6:49 am

SleepingUgly wrote:
mollete wrote:
SleepingUgly wrote:The field of Sleep Medicine is a hot mess.
You're a hot mess!
I appreciate an insult I can understand!

What!?

I thought that was a compliment!

You kids and your lingo...

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Fri May 31, 2013 7:06 am

Called the hospital to get my full sleep study results. Ironically my aunt Millie is the one working in the records department LOL! I'll go over there in an hour or two and pick up them up. Maybe it can shed some light

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Fri May 31, 2013 8:33 am

So..... there is no 'long results' I got the same paper plus a sheet from the nurse plus a layout of how my whole night went. And wow, no wonder my sleep was fragmented lol. I barely slept.

Then on the tech page it says I didn't have events.

SleepingUgly · Post by **SleepingUgly** » Fri May 31, 2013 8:44 am

Weird that the tech told you that you did have events and then wrote that you didn't. Sounds like you need to get hold of the head of the lab and get some answers.

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Fri May 31, 2013 8:47 am

SleepingUgly wrote:Weird that the tech told you that you did have events and then wrote that you didn't. Sounds like you need to get hold of the head of the lab and get some answers.

I've tried. The phone just rings forever and no one ever answers. I guess I'll just bring this all up at the follow up with a sleep doctor.

BlackSpinner · Post by **BlackSpinner** » Fri May 31, 2013 9:09 am

SleepyonMagnoliaSt wrote:So..... there is no 'long results' I got the same paper plus a sheet from the nurse plus a layout of how my whole night went. And wow, no wonder my sleep was fragmented lol. I barely slept.

Go there with a writeable cd and a dvd and a thumb drive and tell them you want the full data of your study. This can then be looked at by the other labs and scored properly.

SleepyonMagnoliaSt · Post by **SleepyonMagnoliaSt** » Fri May 31, 2013 9:20 am

BlackSpinner wrote:
SleepyonMagnoliaSt wrote:So..... there is no 'long results' I got the same paper plus a sheet from the nurse plus a layout of how my whole night went. And wow, no wonder my sleep was fragmented lol. I barely slept.
Go there with a writeable cd and a dvd and a thumb drive and tell them you want the full data of your study. This can then be looked at by the other labs and scored properly.

Where would I go for that? Back to the medical records department?

I definitely will try!

caffeinatedcfo · Post by **caffeinatedcfo** » Fri May 31, 2013 10:24 am

Sleep Study Data should be reams of paper if printed out. A Sleep Tech then summarizes it into a nice concise report. This is of course assuming done by a reputable and qualified lab. I've heard of people getting their sleep study raw data on CD or flash drive from the lab before and having someone else analyze it.

Your providers seem evasive and that is a huge red flag to me.

Is the lab connected to the Hospital in some way (by arrangement not physically)? If so, call the hospital patient relations dept and ask who you would talk to about filing a formal complaint about violation of patient rights.

Scan of my results (what is RERA and UAR?)

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Re: Scan of my results (what is RERA and UAR?)