Preparing for your own death

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Suddenly Worn Out
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Re: Preparing for your own death

Post by Suddenly Worn Out » Mon Apr 08, 2013 8:40 pm

Mozart22 wrote: I have heard that some people (not all) find that CPAPs do not work as well after tonsil or UPPP
surgery. I've read posts saying having those surgeries makes the CPAP less effective. I don't know why.
OH God, please dont let that be true. I ran it by three doctors and also ran it be Resmed before this tonsillectomy. I was very specific to make it clear I was not getting a UPPP but just a tonsillectomy. All told me the same, "dont worry about it, its the UPPP that makes you non respond to AutoPap." But what Ive been experiencing is along the line of what I had feared. My machine seems to have taken a life unto its own.

Eric

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Sir NoddinOff
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Re: Preparing for your own death

Post by Sir NoddinOff » Mon Apr 08, 2013 8:41 pm

Thinking about and dreaming about one's own demise is not uncommon when things get tough in life. I've done that a few times when my various therapys (a bunch of 'em besides CPAP) are going awry. Depression, sleeplessness, hormone imbalance, getting older... you name it, they can all play a part and sometimes we all start to feel mortal. That being said, don't hesitate to ask for help from professionals if you think you are slipping over the edge. The fact that you stated your troubles here is a good sign; this makes me think that you'll find a way to defeat these feelings of doom.

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Steve of Cornubia
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Re: Preparing for your own death

Post by Steve of Cornubia » Mon Apr 08, 2013 8:50 pm

I would imagine that having tonsils removed so recently, which will doubtless have resulted in some considerable swelling and possibly other temporary changes to the mouth and throat, could lead to a short-term increase in OSA? Secondly, in your current condition, you are worrying about the deteriorating numbers and this in turn is making you depressed.

It's easy for me to say of course, but my advice would be to ride the tonsilectomy recuperation out and only then start focusing on your AHI values.

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Mozart22
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Re: Preparing for your own death

Post by Mozart22 » Mon Apr 08, 2013 8:50 pm

Suddenly Worn Out wrote:
Mozart22 wrote: I have heard that some people (not all) find that CPAPs do not work as well after tonsil or UPPP
surgery. I've read posts saying having those surgeries makes the CPAP less effective. I don't know why.
OH God, please dont let that be true. I ran it by three doctors and also ran it be Resmed before this tonsillectomy. I was very specific to make it clear I was not getting a UPPP but just a tonsillectomy. All told me the same, "dont worry about it, its the UPPP that makes you non respond to AutoPap." But what Ive been experiencing is along the line of what I had feared. My machine seems to have taken a life unto its own.

Eric

I say hang in there for a week and you'll feel better, and in 2 weeks you'll be good to go with much less inflammation and no Percocet.
That said, you may need to adjust your pressures.

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SleepingUgly
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Re: Preparing for your own death

Post by SleepingUgly » Mon Apr 08, 2013 8:56 pm

  • Ignore the data from your machine for now. The results you're seeing now aren't going to be the ones you get after you recover. You aren't recovered.
  • Days 4-7 or 8 were the worst for me.
  • Read this: viewtopic.php?f=1&t=53426&st=0&sk=t&sd= ... ce#p495216
  • I wouldn't eat a sub at this point. That will hurt. See above link for foods to eat.
  • Stay on top of the pain medicine, meaning take it on time,as prescribed. You will need it at night longer than you'll need it in the day, and at some point you'll be able to switch to something less potent during the day, but not now.
  • Catastrophizing doesn't mean there's really a catastrophe. Tonsillectomies hurt. Recovery takes time. Your data is meaningless. Repeat to self.
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly

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Steve of Cornubia
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Re: Preparing for your own death

Post by Steve of Cornubia » Mon Apr 08, 2013 10:31 pm

SleepingUgly wrote:
  • Ignore the data from your machine for now. The results you're seeing now aren't going to be the ones you get after you recover. You aren't recovered.
  • Days 4-7 or 8 were the worst for me.
  • Read this: viewtopic.php?f=1&t=53426&st=0&sk=t&sd= ... ce#p495216
  • I wouldn't eat a sub at this point. That will hurt. See above link for foods to eat.
  • Stay on top of the pain medicine, meaning take it on time,as prescribed. You will need it at night longer than you'll need it in the day, and at some point you'll be able to switch to something less potent during the day, but not now.
  • Catastrophizing doesn't mean there's really a catastrophe. Tonsillectomies hurt. Recovery takes time. Your data is meaningless. Repeat to self.
And remember that some pain meds increase OSA symptoms by relaxing the airway. That shouldn't stop you taking them though, just bear it in mind.

newsnore
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Re: Preparing for your own death

Post by newsnore » Tue Apr 09, 2013 4:29 am

I have a problem with low blood sugar (Hypoglycemia), and especially when recuperating from an illness (when I don't feel like eating much at all), this can cause me to feel very low in myself and lead to some very dark and bleak sorts of thoughts (along with the other symptoms of weakness, etc) - very similar to how you described you were feeling. I am slowly learning over time that I have to be careful to keep regular eating patterns as much as possible or my blood sugar will drop before I am aware of whats happening - particularly towards the end of the day it can be bad. So keep eating (protein especially rather than sugar food) regularly and often - even if just small amounts. These things have helped me - and hopefully can be a help to you too.
The chest pains in particular sound like they need to be checked out by a Dr

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RandyJ
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Re: Preparing for your own death

Post by RandyJ » Tue Apr 09, 2013 5:28 am

Den and others have given you excellent advice: Download your data and look at it closely. Do not pay attention to the onscreen AHI numbers for the time being. As Den said, if the pressure is all over the place, cpap might be a better choice for the moment, until inflammation has subsided and things normalize. The Percocet and and inflammation are likely responsible for the increased events. Crazy apap pressure swings can cause that chest muscle soreness.

Whether you were misled about how painful/difficult recovery would be following a tonsillectomy at your age is immaterial at this point. The here and now to focus on is pain management and sleep management.

Good luck, hoping each day gets better.

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pandatx
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Re: Preparing for your own death

Post by pandatx » Tue Apr 09, 2013 5:53 am

Just wanted to add that they have always (every single time) misled me about how much pain I'd have afterwards. They always say "mild discomfort" and every time it has been so much worse than what they led me to believe. Every. Single. Time.
Woke up thinking about you today. Hope that today is a better day for you.
xo
Amy

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deerslayer
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Re: Preparing for your own death

Post by deerslayer » Tue Apr 09, 2013 6:51 am

suddenly wore out ,
i can truly relate to your situation . Last April i had gall bladder rupture & went septic & was very close to the Angels in the OR. 11 days in hospital, meds & bags full of leviquin, zosan ,three shot of hepran daily, etc. i felt very depressed & even composed a poem i called " A Mountains Man Farewell". after getting out i felt very different about life and tried to make the most out of each day. i was fine until the 4th of july weekend , when i went septic again(blocked bile duct) from previous surgery. 6 more days in hospital with same routine. have been fine ever since. CPAP has helped me greatly & this forum has been a God send ! Keep the Faith Brother-one day at a time.
tim

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khauser
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Re: Preparing for your own death

Post by khauser » Tue Apr 09, 2013 11:36 am

At the risk of re-igniting this thread:
Eric, there are a few points that I am not sure you caught:
1) People are NOT recommending you to head to the ER because they think you'll hurt yourself. The feeling of imminent dread is a strong clinical indicator that the ER will take very seriously. For whatever reason, when things are not going well the body is typically more in tune with it than we give credit. Imminent dread, for instance, is a common symptom of a heart attack ... sometimes it is the ONLY symptom, until it's too late.
2) I bet you got this one on your own, but your choice of foods immediately following surgery don't make a ton of sense. Soup, my friend ... GOOD soup. That'd be much easier on your throat. Tonsillectomy patients often get ice cream because it is easy to swallow, relatively nutritious and the coolness is a plus.
3) With regards to pain killers (I have too much experience here) it certainly is true that they will tend to depress your breathing (so does alcohol and a long list of other stuff), HOWEVER, you're experience some incredible pain right now, and another truth is that if you wait too long to take a pain pill you'll end up taking more than otherwise. Let's say your prescription is 1-2 percocet every 4-6 hours as needed. (That's a pretty common one...) So let's say you took 1, and it still hurts a lot, so an hour later you take another. Let's say that takes the edge off (nothing makes it go away, at least nothing we want to do). Well, around 3 hours after the FIRST pill was taken you might start to feel it getting worse. IF you do, then you might be smarter to take one more right then. If you don't and wait until 4 hours after the second pill wears off, you'll probably end up taking 2 again. But by taking the one right away, you might find you're fine for another 4 -6 hours. Why is this? It's harder to mask extreme pain than it is to keep it masked. Your brain gets very "tuned in" when things hurt, so you need a significant amount of counteractive medication to break that cycle. Once you do, it generally takes a lot less to keep it there. Just don't exceed the prescribed amount ... that leads to a different horror story.
4) If you are allowed, you should be taking some NSAID religiously. Why? Because one thing Percocet can't do is reduce swelling. Neither oxycodone (the narcotic) or acetomeniphen will reduce swelling. Additionally, I find that 2-4 advil easily match the pain reducing power of percocet when inflammation is involved. I was taking JUST advil for my chronic back problems for years. Unfortunately, my kidneys didn't think a lot of that plan...

I hope this helps.

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Suddenly Worn Out
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Re: Preparing for your own death

Post by Suddenly Worn Out » Tue Apr 09, 2013 11:42 am

This is a good way to put the way Ive been feeling. Its not a "cry for help" as in feeling suicidal or something. It is more along the line of realizing "wow dude, you are really sick now and you are not doing well and you feel like you could croak real easily from natural causes." Added into that is the background knowledge Im 44 (middle aged) no longer young and things go south easier regarding health issues.

Eric
Sir NoddinOff wrote:Thinking about and dreaming about one's own demise is not uncommon when things get tough in life. I've done that a few times when my various therapys (a bunch of 'em besides CPAP) are going awry. Depression, sleeplessness, hormone imbalance, getting older... you name it, they can all play a part and sometimes we all start to feel mortal. That being said, don't hesitate to ask for help from professionals if you think you are slipping over the edge. The fact that you stated your troubles here is a good sign; this makes me think that you'll find a way to defeat these feelings of doom.

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Suddenly Worn Out
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Re: Preparing for your own death

Post by Suddenly Worn Out » Tue Apr 09, 2013 11:45 am

Good observation. Thank you. Yeah Im going to swell up for days or even weeks afterwards which is going to make my OSA worse, which is going to make my depression worse. I did start feeling better after I ate a sub last night and ended up getting a halfway decent night of sleep. Still percocet stoned, though. The effects last all day in me, dont know why.

Definitely...

Eric
Steve of Cornubia wrote:I would imagine that having tonsils removed so recently, which will doubtless have resulted in some considerable swelling and possibly other temporary changes to the mouth and throat, could lead to a short-term increase in OSA? Secondly, in your current condition, you are worrying about the deteriorating numbers and this in turn is making you depressed.

It's easy for me to say of course, but my advice would be to ride the tonsilectomy recuperation out and only then start focusing on your AHI values.

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Re: Preparing for your own death

Post by chunkyfrog » Tue Apr 09, 2013 11:45 am

Can you get your doctor to give you something for your anxiety?
Just temporarily. You need to relax and calm down.
Give your body a chance to heal.
If you are freaking out, it raises your respiration and blood pressure, which ENHANCES pain.

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Suddenly Worn Out
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Re: Preparing for your own death

Post by Suddenly Worn Out » Tue Apr 09, 2013 11:49 am

Im so calm, if I were any calmer, I'd be dead.

Eric
chunkyfrog wrote:Can you get your doctor to give you something for your anxiety?
Just temporarily. You need to relax and calm down.
Give your body a chance to heal.
If you are freaking out, it raises your respiration and blood pressure, which ENHANCES pain.

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Additional Comments: Also own a PR System One APAP with humidifier and a Resmed S9 APAP with H5i humidifier