Preparing for your own death

Let me eat this submarine and see if my BP goes up and I feel halfway sane again after I eat a meal. If I still feel awful I will go to the ER. Im super hungry.

thanks,

Eric

BlackSpinner wrote:

Suddenly Worn Out wrote:One thing I feel like besides 'too relaxed" is I feel like I got punched in the chest. I dont know what that means, if anything. Chest muscles are all sore for no reason I can discern.

Eric

If your pressure raised it could be due to that. It could also be a sign of infection and a 100 other things. It is also a reason we tell people to go to ER.

It has been years since I had my tonsils out but I still remember the feeling. I felt like a huge hole had opened up inside my throat. It was frighting. I was not on cpap then thank the Lord but I can imagine that it would be a terrible feeling. It will take time to heal. This will pass. Maybe your pressure will be lower without tonsils.

Suddenly Worn Out wrote:Mostly I just look at the numbers every AM. I do a download whenever my sleep medicine doctors do a download or just ask for a copy of theirs. I dont like these current numbers and readings...its WEIRD. I went from CONSISTENT AHI of 1.0 to 3.0 nightly, with consistent 95th percentile of in the 14s,sometimes the 15s. Thursday night, my AHI jumped to 9.0 and its been as high as 12. in recent days. And my nightly pressures are like bottomed out at 19.6 or 19.8.

No leak rates hardly, its like my machine has stopped detecting stuff in a way. This is unsettling to me as i realize it could lead to disability if it continues. I was expecting a PRESSURE DROP.

Eric

Wulfman... wrote:

Suddenly Worn Out wrote:Since my tonsillectomy last week,

If you're using that APAP in a range of pressures, try switching to a straight pressure.
It could be mis-reading your breathing and bouncing your pressures all over the place, thus severely disrupting your sleep. Have you even looked at any actual reports.......or just numbers in the LCD screen?


Den

.

Well, you ain't getting a pressure drop and you need to LOOK AT THE REPORTS.

The "numbers" in the screen don't mean diddly squat.
Download the data and look at the reports......especially note what the pressure line is doing.
THEN, try switching to straight pressure.
Running an APAP in a range of pressures could be destroying your sleep quality.


Den

.

Good luck man.

I am very worried about you. Surgery is always difficult. I always feel much worse before I feel better and the anesthesia alone can do a number on you. On top of that, I cannot even begin to imagine having my tonsils out as an adult. I would think the AHI would go up if for no other reason than swelling in your throat which would be an obstruction (yes?). But I agree with others here and urge you to please get this checked and let someone know how you are feeling. I had sinus surgery that ended up in a staph infection. You really need to get checked out if for no other reason than to give you peace of mind. Please. Go and let a doctor take a look and tell them how you are feeling (physically and emotionally). Please.

I know it's not what you want to hear but it's your doctors who are killing you just so they can pay for their more than adequate standard of living.

The human body has the ability to heal itself given rest, and proper nutrition. You need protein and fat. Good quality whey protein shakes (Optimum Gold Standard is a cheap but decent quality choice) with coconut milk and full-fat milk and a raw egg or two mixed well should give your body the macro nutrients you need. Go to an alternative health pharmacy and get yourself a liquid based (ionic solution) of vitamins and minerals. Forget about the AHI and just set your machine to CPAP mode at your original titrated pressure as Den suggested.

Frankly, you should never have had the surgery ... again, not what you want to hear. But it is too late to go back and make that decision all over again so now move forward and focus on healing yourself. Stay away from doctors unless you really need to go to the ER. The only reason anyone should be going to a doctor is for a traumatic injury ... that is, after you have already had a traumatic injury, NOT to get a traumatic injury from a doc that needs to make a payment on his Jaguar.

Hopefully you have foe'd me and you will never see this advice ... so hope you get better anyway.

Eric, when your depressed, hurting, and sick it is hard to look beyond your present circumstances to all the wonderful things in life. You need to have a family member or trusted friend stop by and offer some chat time and encouragement.

In addition your physician needs to know how you feel. Since your throat is sore, have your trusted friend make the call. You can "croak along" on an extension line if needed.

If you are unable to find an advocate, drop me a PM with some contact information and I will make calls for you.

Make sure you monitor your temperature. Infections can be taken care of easily if they are caught early. Another issue is that you may feel bad because of an interaction with one of the medications.

Now let's take a look on the brighter side of things...

Your xPAP pressure may be able to be reduced, but your expectation that it will happen immediately is not correct. You should expect things to get worse while you are hurting and healing, then after recovery you may expect your numbers to drop. Consider that phase 2. Phase 1 is the healing process.

I consider your contemplation of being near death a blessing. We should all walk in life with the realization that death is a lot closer than we actually acknowledge. We should live each day as if it was our last, but at the same time plan as if we are going to live forever.

Looking further on the bright side. If it normally takes 2 weeks to recover and you are 4 days into this, you only have 10 days of feeling like crap left...

Did you ever think that the percocet could be causing the breathing difficulty?

cflame1 wrote:Did you ever think that the percocet could be causing the breathing difficulty?

YES! Along with swelling in the throat and airway from the surgery. My side and back of my tongue feels like it has pin pricks on it since the surgery. When I talk, swallow liquid and eat, I have to be careful not to move my tongue too much right now or it stings even more. Its terrible pain.

Yes, the percocet depresses my breathing. Not in a " mental depression" kind of way, but in a nervous system way. The percocet depresses my chest wall muscles and airway muscles and what else I do I have to say. CNS depression. Too relaxed of an airway. But if I dont take some pain medications, I feel the burning and pain so badly I want to cry its so bad.

Eric

Good news. Ive eaten half a Jersey Mike's Italian sub (without salt, vinegar or spices added) and I can feel some strength coming back quickly. That "bottom dropped out" feeling is going away. I suspected it might be something as simple as not eating all day long.

I also think I have a mild fever, I will monitor that.

Im in pain, so much pain right now. Im eating the other half the sub and going to bed soon.

Thanks for all who answered.

Eric

Suddenly Worn Out wrote:Since my tonsillectomy last week, I have not been feeling well. My sleep apnea pressures have gone up markedly and my AHI has gone up markedly as well. I was told my sleep apnea pressures should go down, not go up. I am also feeling much worse sleep apnea wise, marked more fatigue, severe sore throat, malaise, just feel awful. I dont think I was prepared for this surgery.

I came to the realization today that I am near death, I am unwell. I have been having premonitions of my own death since yesterday. I get scared then, because I dont want to die. Im afraid of "dying slow" rather than dying fast and have the gut intuition this surgery made me worse somehow.

Anybody else had death premonitions? I feel so physically and mentally weak I can barely lift my head up to type this. Just totally worn out. I know its still early in my recovery (fourth day) but I was not expecting to feel THIS BAD.

Anyway, anyone else had a surgery that went worse, not better?

thanks,

Eric

Having that type of surgery and sleep apnea, I might expect to feel near death. But it doesn't mean you are going to die.

You have to make a judgment about when to go to the ER to be checked out. Keep an eye on BP, pulse, urine flow and color of BM.

DreamStalker: You need protein and fat. Good quality whey protein shakes (Optimum Gold Standard is a cheap but decent quality choice) with coconut milk and full-fat milk and a raw egg or two mixed well should give your body the macro nutrients you need. Go to an alternative health pharmacy and get yourself a liquid based (ionic solution) of vitamins and minerals.

Yep, that is nutrition-dense real food - good for the ill and the healthy.

Things may turn around for you more quickly than you imagine. I am lifting up a prayer for your speedy recovery.

Dear Eric,
I am SO sorry you are going through this. Thank you for sharing with us. I have prayed for you and will continue to. I agree with most of the posts here. You really should see a doctor again. Also, do you have a close friend or someone to be with you? Do you live alone? You need lots of love and support now. Please keep us posted, and remember!!! this too will pass, honest

Dreaming

THREE important things:

1. In one week you should feel much better, in two weeks you should feel even better

2. The percocet and the swelling both are likely to make you very tired and week, give it a couple weeks then judge

3. Now that you no longer have tonsils, you will likely need to adjust your pressure. Things have changed so your pressure
likely need to change as well. I have heard that some people (not all) find that CPAPs do not work as well after tonsil or UPPP
surgery. I've read posts saying having those surgeries makes the CPAP less effective. I don't know why.

Mozart22 wrote: . I have heard that some people (not all) find that CPAPs do not work as well after tonsil or UPPP
surgery. I've read posts saying having those surgeries makes the CPAP less effective. I don't know why.

Not for tonsils but for the UPPP. Many people here have had their tonsils out. Mine are long gone. Eventually, when the swelling goes down, he may be able to reduce his pressure.

BlackSpinner wrote:

Mozart22 wrote: . I have heard that some people (not all) find that CPAPs do not work as well after tonsil or UPPP
surgery. I've read posts saying having those surgeries makes the CPAP less effective. I don't know why.

Not for tonsils but for the UPPP. Many people here have had their tonsils out. Mine are long gone. Eventually, when the swelling goes down, he may be able to reduce his pressure.

Yeah I guess it was UPPP then. I don't know. I've heard mixed reports. But having had surgery and taking percocet, no wonder he's tired and weak now.
I figure in a few days he'll be better. But he will likely have to adjust the CPAP because of the change, maybe lower pressure a bit idk. From what I hear,
tonsillectomies are a hit and miss, for a lot of people they don't help much with apnea