Pur-Sleep Cpap Aromatherapy

Pugsy · Post by **Pugsy** » Tue Aug 07, 2012 10:49 am

Everyone is indeed entitled to their opinion. TorontoCpapGuy had a nasty, nasty health scare in the past. I respect that he feels the need to be ultra cautious. It doesn't matter if I agree with him or not.

To insinuate that those of use who don't hold to his way of thinking are "gambling" is a far stretch and an uncalled for and tasteless assumption IMHO. I don't think that he should make that sort of assumption about us anymore than I think it would be acceptable for me to say that he is way too worried about every little thing and belittle his thoughts.
It is not my place to judge him. It is not his place to judge me.

I see zero risk in using aroma therapy. He sees tons of risk. Difference of opinions and it should be left at that.
Going further to belittle a difference in opinions leaves a bad taste in my mouth. The gambling part leaves a bad taste in my mouth and sort of pisses me off to be honest about it. I don't think it was meant as a respectful difference of opinion.

brucifer · Post by **brucifer** » Tue Aug 07, 2012 11:08 am

Pugsy wrote:Everyone is indeed entitled to their opinion. TorontoCpapGuy had a nasty, nasty health scare in the past. I respect that he feels the need to be ultra cautious. It doesn't matter if I agree with him or not.

To insinuate that those of use who don't hold to his way of thinking are "gambling" is a far stretch and an uncalled for and tasteless assumption IMHO. I don't think that he should make that sort of assumption about us anymore than I think it would be acceptable for me to say that he is way too worried about every little thing and belittle his thoughts.
It is not my place to judge him. It is not his place to judge me.

I see zero risk in using aroma therapy. He sees tons of risk. Difference of opinions and it should be left at that.
Going further to belittle a difference in opinions leaves a bad taste in my mouth. The gambling part leaves a bad taste in my mouth and sort of pisses me off to be honest about it. I don't think it was meant as a respectful difference of opinion.

Everyone has his or her reason for believing the way that they do. Whatever floats their boat. Whatever. However, I do have a problem when someone goes on an emotional tirade and needlessly instills fear in others. I'm not particularly interested in skydiving or bungee jumping, but I'm not going to rant and rave against those who find such thrills worthwhile. Live and let live. Most people can use essential oils just fine, CPAP patients included. If someone doesn't like it, he or she should either chill or use a reasonable tone of caution. Shouting "Fire!" in a crowded theater is a gross overreaction to seeing someone flick a lighter.

chunkyfrog · Post by **chunkyfrog** » Tue Aug 07, 2012 11:35 am

Remember also, that what may seem to be an extreme, alarmist comment to some;
may be a perfectly reasonable entreaty to 'be careful,' from someone who has personal experience
significant enough that his conscience cannot allow him to not speak up--out of genuine concern for the rest of us.
Other members have laid bare their own apprehensions for our benefit--even if the degree of danger is not the same for everyone.
We thank you, those who care enough to be thought of as less than rational; we know you care.

torontoCPAPguy · Post by **torontoCPAPguy** » Tue Aug 07, 2012 1:11 pm

No. You did not err in bringing this up. There are always going to be (well, almost always) contrary opinions on a product or products. My opinion was simply that I don't want to ingest by mouth or by inhaling anything that is not absolutely proven to be safe. It took us hundreds of years before we realized that cigarette smoke was bad for the body; ditto asbestos, etc.

For all I know, "essential oils" are absolutely safe and perhaps even physically beneficial to the human body. All I was saying was that I, personally, do not know either way and am going to be the one that waits to find out.

And, having said that, I should point out again that I supplement heavily, especially Magnesium, Potassium, Taurine and CoEnzyme Q10 Ubiquinol amongst about a half dozen other 'standard' vitamins, fish oil and so on. While not FDA approved there are numerous studies indicating that these are beneficial to the body. I can tell you that in particular, Magnesium and ESPECIALLY Potassium, keep my heart demons at bay. I have gone from aFib (a byproduct of sleep apnea by the way) 24/7 to only the occasional attempt at a breakthrough or occasional PAC's or PVC's (I also take Rx TIKOSYN but the Potassium and Magnesium stores MUST be up there for it to work well). Studies by the Cleveland Clinic, for instance, show that Sodium to Potassium intake has to be AT LEAST 1:4 to keep your heart demons at bay. Ditto studies done at many major research clinics. So I supplement to ensure I am within the ranges recommended although the supplements are NOT FDA approved or regulated at this time. I buy from reputable suppliers.

The same may be true of 'essential oils' but I have no solid empirical data nor long term studies to fall back on for personal peace of mind. That's all.

Aromatherapy has been around for CENTURIES and probably weighs in pretty close to accupuncture in its efficacy. It is an ancient and venerable 'medicine'. Just wish there were some long term scientific studies to fall back on.

Just sayin'

But that's just me.

Starlette · Post by **Starlette** » Tue Aug 07, 2012 1:57 pm

Understood torontoCPAPguy. Thank you for responding.

Starlette

brucifer · Post by **brucifer** » Tue Aug 07, 2012 3:06 pm

Most of the people who have contributed to this thread use Pur-Sleep products because the scents smell pleasant to them and put them in a nice frame of mind before going to sleep. In terms of efficacy, that is all the efficacy that they need. As far as they're concerned, the products do their job and do it well. They're not talking about aromatherapy being used to heal OSA or Alzheimer's.

That being said, there are indeed quite a few dubious studies heralding the wondrous benefits of aromatherapy. You won't find them in any credible scientific journal or sponsored by NIH grants. Instead, you will find articles about those studies in magazines and brochures located in so-called health stores and in company sales literature. Furthermore, those studies are almost always sponsored/funded by organizations and companies that market those products to some degree. (BTW, Big Pharma is famous for doing the exact same thing when manufacturing and marketing new medications.) As consumers, we owe it to ourselves to discern what is hype and what is real. Therefore, if an aromatherapy product is safe and people enjoy it for the scent alone, then it is just fine. Now, if some people believe that lavender essential oil is going to heal their OSA and bring them to perpetual Nirvana, well, I won't be tagging along for the ride. Anyway, risk is fairly minimal for Pur Sleep products. In this day and age of sue-happy consumers, I'm sure the Pur Sleep legal team made sure that they protected themselves as much as possible from litigation. Thus, they wrote the disclaimer. As far as I'm concerned, Pur Sleep products carry about a much risk as the smell of Aunt Sally's baked ham.

Personally, I have no interest in Pur Sleep or any other aromatherapy. My wife is not a CPAPer and loves her Lampe Berger, but I couldn't care less. Yeah, it smells okay, but I prefer the real smell of a campfire, the piney woods, or the salty mist of an ocean breeze.

Starlette · Post by **Starlette** » Tue Aug 07, 2012 3:12 pm

Yeah, it smells okay, but I prefer the real smell of a campfire, the piney woods, or the salty mist of an ocean breeze.

@ Brucifer - You're no fun

chunkyfrog · Post by **chunkyfrog** » Tue Aug 07, 2012 3:30 pm

Just don't sit downwind from Curly.
He had 2 extra helpin's of beans.

Starlette · Post by **Starlette** » Tue Aug 07, 2012 3:46 pm

Too funny CF!

lazer · Post by **lazer** » Wed Aug 08, 2012 9:08 am

Pugsy wrote:
lazer wrote: Are you sure about this? I had asked a month or two ago in another thread (can't find it right now) about doing this using those $3 "flea market" oils / scents that are used in those burner lamps and was told that is a no-no.
I am the ultimate tightwad .
I have used el cheapo essential oils. Walmart or those $3 flea market little bottles. I have used those wax candle things that smell good. Unlit and just lay them beside the air intake. I am still alive.
I was referring to just about any essential oil. Doesn't have to be the PurSleep brand.

I have never thought of oils that are used in burner lamps. Not sure what you are referring to. All the lamp oil I have doesn't have enough of a scent to carry through the humidifier. It has to be a pretty concentrated scent to make it through.

I think I may have read the thread you are referring to. I think that the poster pretty much nixed any oils near the intake as being dangerous being possibly inhaled into the lungs. I remember rolling my eyes thinking that there was no way that I could think of that actual oil droplets could ride the air molecules and enter the lungs. If they could we shouldn't stand close to a scented candle and inhale the pleasant aroma or sniff whatever we have put the essential oils on. I didn't want to argue though.
Is the pur sleep essential oil a "medical" grade essential oil compared to the Walmart brand or el cheap flea market? I don't think so. I think essential oil is essential oil.

I can't think of any way that the oils can be physically transmitted to the lungs as long as the oil doesn't come in contact with the physical components of the humidifier like hose or water. Even with contact I am not so sure that much could "maybe" be transmitted. I can't see an air molecule supporting the weight of oil. Even with added moisture I can't see how it can physically be done but then I am not a biochemist. People used to put the PurSleep thingies in the hose...yep in the hose. As far as I know it didn't harm anyone. Then someone made a big to do about it maybe being dangerous so they changed to placing the thingy next to the air intake. I think it was more of a CYA thing than real evidence of harm.

If someone else thinks that oil can ride the air and get into the lungs at sufficient quantities that it might create a problem...well then all I can tell them is don't use it if that is what they think. If they think that then it pertains to all oils and not one brand over another.

Thanks for the explanation. Yes, these are the "burner oils" I'm referring to. I have yet to try them on a dab of cotton outside my Apap but am tempted. I already have about 6 different scents of which I use in my "burner lamp" throughout the day and they really make the house smell nice. I can't really see them being harmful either unless one was to drink them (ingest) maybe. I have a houseful of pets ( a mini zoo): 4 part chihuahua/toy fox terriers, 8 birds ranging in size from an African Grey to Parrolets, a Bearded Dragon, and a Tree Frog... and none of my pets have seemed to have suffered any ill consequences whilst I continually use my burner for several months now.

So I "might" try a little dab outside the intake one night... If you don't see me post back for some time, you'll know it may have turned out bad.

Starlette · Post by **Starlette** » Wed Aug 15, 2012 9:22 pm

Hi all. Just a quick report. I did get my aroma therapy a couple of days ago and have been using the different scents. Yes, it has made the the Pap experience better. Kind of look forward to going to bed now just to check out the different scents. And yes, DH likes the different scents also.
I think I know one that I'm not caring for atm is Bubble Gum. So if anyone likes the scent PM me and I'll forward it to you.

Starlette

Bert_Mathews · Post by **Bert_Mathews** » Thu Aug 16, 2012 8:15 am

Starlette wrote:Hi all. Just a quick report. I did get my aroma therapy a couple of days ago and have been using the different scents. Yes, it has made the the Pap experience better. Kind of look forward to going to bed now just to check out the different scents. And yes, DH likes the different scents also.
I think I know one that I'm not caring for atm is Bubble Gum. So if anyone likes the scent PM me and I'll forward it to you.

Starlette

Seems like there is a thread in this forum that would let you TRADE your "Bubble Gum" with somebody that has a scent you Like!

xenablue · Post by **xenablue** » Thu Aug 16, 2012 8:34 am

"I take the safe and proven highway these days."

Unfortunately the highways are full of vehicles spewing poisonous gases for us to breathe in as we go on our journey. These give me a real headache after a short period of time - proof to me that these are doing me harm.

I burn candles and use wax tarts at home, as well as use Pur-Sleep aromatherapy with my CPAP - none of which give me the slightest problem. Even my DH who is highly sensitive to, and suffers migraine from perfumes, has no issue with any of these.

I dunno - we're all gonna die of something - I'd rather the air smeall nice when I keel over.

Cheers,
xena

Pugsy · Post by **Pugsy** » Thu Aug 16, 2012 8:50 am

lazer wrote:Yes, these are the "burner oils" I'm referring to. I have yet to try them on a dab of cotton outside my Apap but am tempted.

I have been out of my Lavender essential oil for a week or so.
Last night I decided to try some of my La Tee Da effusion oil on a bit of cotton. I don't know why it is called effusion oil because it mainly is alcohol based. It did like I expected it to do. Smelled good for a little while but didn't last very long because it evaporates. It wasn't very strong either. It really has to "burn" to get the full benefit of the aroma.
I was afraid that with the alcohol base it wouldn't be very potent or last long. I was right.
I guess I will just have to bring the little lamp into the bedroom and "burn" it maybe closer to the air intake but hesitate to do that because that little stone gets awfully hot and sure don't want the hose to touch it even with the little cap guard on it.

Anyhow. I am still alive and no worse for the experience.

lazer · Post by **lazer** » Thu Aug 16, 2012 1:27 pm

Pugsy wrote:
lazer wrote:Yes, these are the "burner oils" I'm referring to. I have yet to try them on a dab of cotton outside my Apap but am tempted.
I have been out of my Lavender essential oil for a week or so.
Last night I decided to try some of my La Tee Da effusion oil on a bit of cotton. I don't know why it is called effusion oil because it mainly is alcohol based. It did like I expected it to do. Smelled good for a little while but didn't last very long because it evaporates. It wasn't very strong either. It really has to "burn" to get the full benefit of the aroma.
I was afraid that with the alcohol base it wouldn't be very potent or last long. I was right.
I guess I will just have to bring the little lamp into the bedroom and "burn" it maybe closer to the air intake but hesitate to do that because that little stone gets awfully hot and sure don't want the hose to touch it even with the little cap guard on it.

Anyhow. I am still alive and no worse for the experience.

haha! Funny you mention that as I actually tried a little drop of my burner oil... "moon something" on one of the diffuser pads I had left from the Pur-Sleep sample and had the very same thing. A bit of scent at first but I think it was non-existent like 30 minutes in and before I fell asleep. Might try the burner close to the intake

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