BlackSpinner wrote:MoonBear wrote: Jane Brody of the NY Times has an article on this therapy for asthma, and from what I can read, overseas this is considered a valid and legitimate treatment for apnea.
No it is not a valid therapy for Apnea anywhere
As for the "placeb0 effect," it's a WONDERFUL thing that I wish we could bottle. If the mind makes some adjustments that create health than this is more interesting information about how our consciousness DOES inform our unconscious. Placebo effect means some change has happened because the mind has believed something. How powerful and how wonderful.
Yes but only in the mind and your perception of it.
In these days of the chaos theory, the knowledge that the brain works not because of the grey matter, but because of the SPACE between the grey matter (anatomically), etc. it is wonderful that people are reaching out to find new ways of dealing with this life-threatening condition. NOW CPAP is the gold standard, but at some point science WILL come up with a less uncomfortable way of dealing with all this.
actually a tracheotomy is the best. and it is the neurological/ electrical activity created by "the greymater" that matters
As someone else commented, it is kind of amazing that people seem to discourage people who want to try other ways of dealing with this illness. I would think that EVERY person here would behave with compassion to every person who writes. I am GRATEFUL that SO many people her love their cpap machines. I am GRATEFUL that Chopper has posted his information, and I have bought DVD to learn about it.
It will help your asthma a lot. Assuming you can keep up the practice.
I learned an interesting technique called autogenics - it helps prevent migraines, you would think that something that creates so much pain you puke for hours would be enough to get people to practice this 30 times a day for one minute. but people don't want to take that much effort, especially if they are working. They forget, they get busy, they are having fun, they need to make dinner, drive the kids somewhere, answer this one call...
So even if this might possibly work - which is very very questionable, the vast majority of people will be unable to do it.
People have different soft spots. Some people are freaked by heights, some by water. I swim with sharks when i swim with dolphins and they don't scare me. But I do not criticize or laugh or call people idiots who are afraid of swimming with sharks. I have been educated and KNOW that I am not going to be attacked by a nurse shark unless I am a total idiot.
Everyone has a soft spot and everyone is doing the best he or she can. I think it's GREAT to have a place to come with seasoned pros about the ups and downs of this therapy, but I wish people could refrain from bashing when they just don't agree. It's easy not to reply or to use the word "please" now and then.
I would be gentle if I thought there was any slightest possibility of it working but there isn't.
Blackspinner.
'There is a principle which is a bar against all information, which is proof against all arguments and which CANNOT FAIL to keep a person in everlasting ignorance – that principle is CONTEMPT prior to investigation.
Blackspinner you said: - actually a tracheotomy is the best.
My reply: -
Some of the problems with a Tracheostomy
Indications of a Swallowing Problem
· Difficulty or refusing to eat
· Over-reaction or no reaction to food in the mouth
· Choking and coughing while eating or drinking
· Vomiting
· Evidence of food in tracheostomy secretions
· Excessive drooling
· Large amounts of watery secretions from trach
· Congested lung sounds
· Frequent respiratory infections
If the patient eats by mouth, it is recommended that the tracheostomy tube be suctioned prior to eating. This often prevents the need for suctioning during or after meals, which may stimulate excessive coughing and could result in vomiting.
Encouraging fluid intake is helpful for a patient with a tracheostomy. Increased fluid intake will thin and loosen secretions making coughing and suctioning easier.
Always observe the patient while eating to be sure food does not get into the trach
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I would rather do my Butekyo exercises anyday of the week rather than blowing Dixie through a hole in my throat { Nothing against people who have already had this drastic operation to fix their life threating sleep apnoea }
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Blackspinner you said : -
It will help your asthma a lot. Assuming you can keep up the practice.
I learned an interesting technique called autogenics - it helps prevent migraines, you would think that something that creates so much pain you puke for hours would be enough to get people to practice this 30 times a day for one minute. But people don't want to take that much effort, especially if they are working. They forget, they get busy, they are having fun, they need to make dinner, drive the kids somewhere, answer this one call...
So even if this might possibly work - which is very very questionable, the vast majority of people will be unable to do it.
My reply: - again contempt prior to investigation: -
The Butekyo exercises can be preformed anywhere anytime of day i.e. while shopping.walking, doing housework, driving a car and while at work I will not go into it at length but the exercises can be reduced by 50% or totally eliminated in as little as 6 to 8 weeks once a person has reached a high CP level and re – set the respiratory rate centre of the brain - to maintain our CP level we simply chose a physical exercise of our choose such as walking, swimming, bike riding ect and practise it while breathing through our nose with mini breath holds.
Blackspinner you said –
I would be gentle if I thought there was any slightest possibility of it working but there isn't.
My reply: - again contempt prior to investigation: -
I am on my 10th day of applying what I learned in the Butekyo course – last night I had 10 hours sleep I woke up feeling like a sleep like a baby what a comparison compared to only 2 weeks ago Gasping and choking for air all through the night with maybe 2 to 3 hours very light sleep I am sure there are many sleep apnoea sufferer's who can understand this nightly torment.
Now lets look at some FACTS
· - I have absolutely nothing against cpap users or cpap machines what so ever everyone is entitled to chose whatever option they want to try and overcome their symptoms of sleep apnoea including surgery this link here gives the surgical options for
· Sleep apnoea and its % success rate. –
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http://www.lakesidepress.com/pulmonary/ ... urgery.htm
I have every right as a sleep apnoea sufferer to seek out whatever treatment I can find on the face of this earth that might help my horrible condition I just so happened to chose Butekyo considering that cpap only works in 50% of people what other options are there for the other 50% who FAIL on cpap according to your contempt prior to investigation statements my only other options if cpap fails and it does in 50% of people is surgical intervention I have already posted the success rates of various surgical operations in the link above.
Bottom line situation: -
My cpap fails me
I don't want half of the inside of my mouth cut away or a hole in my throat just yet.
I go looking for another option for me that was Butekyo and as of now I am so glad I did.
TO REPEAT - 'There is a principle which is a bar against all information, which is proof against all arguments and which CANNOT FAIL to keep a person in everlasting ignorance – that principle is CONTEMPT prior to investigation.
Have a nice day I know I will – Chopper.
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