Is it true about Resmed and software?

If you look at the CPAPer population as a whole, it is damn ignorant of CPAP therapy and sleep apnea. Most of the people I speak to cannot even tell you who the manufacturer of their machine or mask is. They don't know the terms "nasal mask" and "full face mask". They express amazement that I have software that records apneas. One new member here said, "Before I visited this site, I just thought CPAP was a machine that helps you sleep."

That is what we are contending with. Members here and all CPAP software users are a small special group. We need to fight like hell to get what we need. I tell every ignorant CPAPer I meet, if you don't have the software your therapy may be *&^%$ing ineffective.

We need more doctors like Steven Park (see my signature).

Self advocacy with osa seems to be our only choice at this point. I think one of the reasons I buried my head in the sand for so long about the possibility of having osa is the laisez faire attitude of the primary physicians. I feel they had a field of dreams approach to cpap therapy (if you build it they will come) if you loose weight all this goes away. I feel like this condition is not worth their time because it would mean having to devote time to something that they don;t want to. I was absolutely shocked that no one either the pulminologist or my primary physician want to check my card to see if I have the proper pressure or what other kind of tweaking I might need.

If resmed and respironics thought by taking a way our right for software it would put more responsibility on the shoulders of the medical community they are sorely mistaken. I don;t think that it is the insurance companies dictating what machines they will pay for it, I think it is the money that DME's make on only selling on or two brands and not having to carry more inventory or do anymore training with their staff. The more different brands you carry the more training they would have to do with their staff and why bother doing that.

Thank goodness we have as many choice as to where we buy our units now if we only had ore choices in where we could get the money to pay for what we want we would all be happier and better off.

I am stepping down now from my soap box.

rise&shiner wrote:Self advocacy with osa seems to be our only choice at this point.
I was absolutely shocked that no one either the pulminologist or my primary physician want to check my card to see if I have the proper pressure or what other kind of tweaking I might need.

I was lucky in that my pulmonolgist read my titration reports and when I indicated that I had been reading the internet he gave me full control - as long as I keep my AHI at a reasonable level I don't have to come back every 6 months / year for titration. I don't know how he handles other patients but it sounds like they have to do the take home titration much more frequently. Of course my doctor is on salary with a hospital and everything except the machine is paid for by Canadian medicare so no-one is making money off the treatment except the DME's.

turbosnore wrote:

billbolton wrote:

6PtStar wrote:Some are trying to blame it on the FDA....

Since Resmed will sell ResScan to anyone without issue pretty much anywhere else in the world, the conclusion is inescapable.

Cheers,

Bill

Not in Europe. Trust me! Not even the memorycards.

This smells like some real corruption ... Sleep doctors that write prescriptions (or their union).

I can't see what the FDA has against me being able to read my informatiion. That is like giving me my diabetes meter and telling me I cant see the numbers! I think turbosnore has a handle on it. IMHO With Respirionics yoy can't even find their software in Australia. Everyone is still looking for a source for Encore Pro 2 even out of the country. Besides why does not Intellapap have to abide by the same rules if it is FDA!!!!!!!!!!!!!

Jerry

Autopapdude wrote: ...blah, blah, blah...

By your sidestepping and ad hominem attacks, I'll assume you can't support your BS statement that most CPAP patients want to be actively involved in their therapy and how ResMed's decision is hurting ALL of us. (How it could possibly hurt users of other brands is beyond me...)

The point is--and always has been--that individuals are NOT ResMed's primary customers. DMEs are. And DMEs want CPAPers to be dependant on them for data. ResMed is merely providing what their customer base wants.

Autopapdude wrote:
...blah, blah, blah...


By your sidestepping and ad hominem attacks, I'll assume you can't support your BS statement that most CPAP patients want to be actively involved in their therapy and how ResMed's decision is hurting ALL of us. (How it could possibly hurt users of other brands is beyond me...)

The point is--and always has been--that individuals are NOT ResMed's primary customers. DMEs are. And DMEs want CPAPers to be dependant on them for data. ResMed is merely providing what their customer base wants.

I can't believe that you're that obtuse. If Resmed and Respironics takes away access to software and puts it in the hands of their "customer" base only (as you'd define it, not I), it is a restrictive move for everyone who uses a Cpap. An informed patient is a more educated, and enlightened one--the goal of any normal, sound medical practice. Unless you like the idea of "ignorance is bliss," it is a step backwards from the idea of the patient having an active role in their therapy. Also, there'sno reason I have to prove anything to you---you're like a broken record "prove it, prove it." That is the internet bully-boy game of someone who enjoys being a dick. I think I have proved that you love that role and fit it well.

Autopapdude wrote: An informed patient is a more educated, and enlightened one

Agreed. And why would DMEs WANT that? They'd rather have ignorant patients who are dependent on THEM for lack-luster service. And ResMed would rather keep their primary customer-base happy. They aren't into "sound medical practices". They prefer sound business decisions.

(Make you a deal. You stop making silly, illogical, or unfounded statements and I'll stop calmly challenging you on them.)

turbosnore wrote:Not in Europe. Trust me!

No, I dont trust you to comment on the whole of Europe as I know European users in several countries that have bought ResScan locally.

Agreed. And why would DMEs WANT that? They'd rather have ignorant patients who are dependent on THEM for lack-luster service. And ResMed would rather keep their primary customer-base happy. They aren't into "sound medical practices". They prefer sound business decisions.

(Make you a deal. You stop making silly, illogical, or unfounded statements and I'll stop calmly challenging you on them.)

Make you a deal. You start acting decently, without the sarcastic s&^%(^(, and I stop baiting you. You act like you come here for a discussion, and not a freaking lecture, we talk like men, not like I am speaking to a 12 year old.

Hey, I asked you a simple question about your statement that "most" CPAPers are actively involved in their therapy. No sarcasm. You still haven't answered it. I still don't believe for a moment that "actively involved" CPAPer are anywhere close to the majority. That's why I asked about it. I'd still like to hear your evidence.

MY only sarcasm was when you claimed to know that none of your friends and none of THEIR friends were passive CPAPers. Then you went ballistic and completely off-topic. (Talk about 12-year-old behavior!) Is that what you call "baiting"?

Do you expect everyone to just stand by while you make whatever outrageous and unfounded statements pop into your head? Good luck with that...

Hey, I asked you a simple question about your statement that "most" CPAPers are actively involved in their therapy. No sarcasm. You still haven't answered it. I still don't believe for a moment that "actively involved" CPAPer are anywhere close to the majority. That's why I asked about it. I'd still like to hear your evidence.

MY only sarcasm was when you claimed to know that none of your friends and none of THEIR friends were passive CPAPers. Then you went ballistic and completely off-topic. (Talk about 12-year-old behavior!) Is that what you call "baiting"?

Do you expect everyone to just stand by while you make whatever outrageous and unfounded statements pop into your head? Good luck with that...

Every time you post it is sarcastic. My response was according to the fact that you bait everybody, and act as if you're the final word. If you want to be civil, that is fine with me. If you want to generate flame wars, also fine. I'd rather be here to discuss OSA, and being supportive of the folks who are here for support. If my comments are too "outrageous and unfounded," then don't read them. Otherwise, you are acting like a know-it-all, and a bully who wants justification from everybody who posts. Nobody owes you any special explanation, or rationale for their opinions, quotations of fact as they see it, and the collective wisdom displayed herein. You're the only one who plays the "prove it" game, and that is b-o-r-i-n-g!

hobbs wrote:

Let's all click to the lobby:


Coming attractions:


Oops! Time to return:

-SWS wrote:

hobbs wrote:

Let's all click to the lobby:


Coming attractions:


Oops! Time to return:

Is that what is called a "cooling off period" ?

Have at it!