Hi Liz.lizkayfast wrote:lizkay aka lizkayfast. Thanks to those who have responded.
I have had horrible daytime sleepiness (not body fatigue/muscle fatigue) since 1-03. First sleep study was done 3-05 by the director of an ASSM certified sleep lab in Lincoln, NE. AHI was .09, but had 93 RERAs, 21.2 event index. 116 arousals & awakenings = index of 25, 1.5% stage 3, 0% stage 4, 9.3% REM
Titration droped the AHI to 0, 1 RERA, 0.6 event index. 79 arousals & awakenings = index of 14. 26% stage 3, 0% stage 4, .05 % REM.
Diagnosis was OSA, primarily in the form of RERAs.
Had a second study at a smaller outstate lab in 10-05. Pressure was left at 5 all night. AHI was .04, 76 arousals = index of 13, 10% Stage 3, 35% stage 4, 10% REM. No mention of RERAs
Had a third study at a different outstate lab in 11-06. AHI 12.8, 77 arousals = index of 20. No mention of RERAs. 22% slow wave sleep. 5.7% REM.
While I know CPAP helps eliminate all of the snorting type breathing episodes that would continually wake me up, the horrible sleepiness continued. I am 100% compliant in CPAP use.
Decided to go to major university medical center (300 miles one way). After numerous visits, variety of medications, another sleep study was done (my MD is director of that center) there 11-08. AHI 1.6, 45 arousals = index of 8.2. No mention of RERAs. 0% stage 3 & stage 4. 0% REM. Diagnosis = "no evidence of significant sleep disordered breathing, PLM, or increased upper airway resistance. Did have severly fragmented sleep as she has been on CPAP for a number of years and likely has developed somewhat of a dependence on using the CPAP despite the fact that she does not have any overt evidence of flow limitation based on the study on this night." I did not meet criteria for titration study and would not have been prescribed CPAP based on this study.
I have taken all the sleep medications and all the wake promoting medications. The sleepiness continues. Fibro and CFS have been ruled out.
I see that you updated your profile and show this information:
Machine: REMstar Auto C-Flex CPAP Machine
Mask: ComfortLite 2 Cushion and Nasal Pillow CPAP Mask With Headgear
Humidifier: REMstar Heated Humidifier
Software: Encore Pro Smart Card
Thanks for doing that.
You indicated you are using the Encore software.
My questions at this moment are:
What pressure setting(s) are you using in your Auto?
What are your current/typical AHI numbers? (from the Daily Details section)
Den