This Site Should Be Taken Down

My compliments to Alnhwrd for a reasoned and eloquent post.

[quote="alnhwrd"]This post is not for the original poster, but for the new cpap user who might be here just starting on his journey.


A final note to the original poster. This site is, in the host's own words, dedicated to the support and encouragement of CPAP users and respectful discussion of issues relating to Cpap use. It is not a place to spew venom and use foul language. If you feel the need to do so, PM me and get it all off your chest, don't put it on a public site.

My guess is this was posted by someone who has the "No Guest posting" agenda and is trying to make a point.

AKCPAPGUY

Point WELL taken - maybe that thought should be revisited even using chat without a registered username.

Excellent post, alnhwrd.
This is alnhwrd's message:
viewtopic.php?p=284236#284236

alnhwrdTHEdouche wrote:

alnhwrd wrote:I like cock.

grow up and I don't mean alnhwrd but the guest - alnhwrd had a great post

maybe akcpapguy was right

My guess is this was posted by someone who has the "No Guest posting" agenda and is trying to make a point.

AKCPAPGUY

In MY defense, I would argue AGAINST disallowing any guests to post. I really depend on this forum for my sanity, but I can't login during the day from my work.

This original poster is clearly a douchebag. My wonder is why we justify his existence by posting on his thread?

BTW, I like cock too. Preferably barbecued, with a little lime juice and garlic.

Cheers,
Babs

I am all for guest posts as long as they are civilized. The above post is not.

I have many "guest" posts myself but none since I joined as jules.

I feel that the IP numbers of the uncivilized guest posters on this thread should be traced (my concern is that they are posting from a sleep lab or medical establishment), and possible site bans be placed on those IP numbers or a suitable range of numbers (forum and chat)

If the posters do trace back to sleep labs or medical establishments, then the forum administrator should contact the facility or facilities about the conduct of this or these employees.

As much as this should be a site for all, it should also be a site where knowledge is exchanged in an acceptable way. Sure we joke at times and hijack threads, but isn't it all to further education about cpap, treatment of OSA, and provide other kinds of support.

Support can't be given or information exchanged if someone like alnhwrd is attacked for such a nice post.

We recently had a few other threads where attacks took place and people used spam delete to trash other's posts. Posts were returned on a couple, but not on one thread. That wasn't right as i felt they should have been returned. I understand the moderators do some screening of censored material, but hopefully, we also can be mature enough to make their job easier.

jmho

Incredibly well said, Alnwhrd!

And Jules, I respectfully disagree ... as much as I dislike reading garbage from some "Guests" like the one that started this post, I feel that censorship is a slippery slope. Best solution imho is Treesap's suggestion of not responding to the trolls.

Mindy

Alnwhrd's post was an excellent and reasoned response to the "guest" who attacked the forum.
Many others approached it by talking about the weather etc, in an attempt to take away from that ridiculous post. Some others did as Alnwhrd did and explained why this site helps people to adjust their own pressures and, the experienced ones, help the newer ones to do it responsibly.
This is the great thing about this site. The fact that people, with such a wealth of knowledge (allbeit -non medical) and experience help us to really get our therapy working well for us. That is more than can be said for the sleep medicine profession in general, with a few notable exceptions.
But--- responding "in kind" with foul language and attacks does not speak well for this forum. The more reasoned and articulate response are the most helpful. Answering, kind for kind, as far as foul language goes does nothing good for this site. A new person coming on may wonder----.
Responses like Alnwhrd's and some others are what we need to give. Ignoring the post is another way to go. We need people to do both. We do not need responses that use the same kind of foul language that the original guest used and that stoop to the same level.
I know there is frustration about these kinds of posts but we need to "keep our cool" to maintain our credibility.

This thread saddens me too. As I have shared many times, I have had an exceelent experience collectively with the tech, nurse practitioner, and doc at my sleep center, and also the DME. It is counter intuitive to what I have read on this forum so I am among the lucky few. I feel it has worked out that way, largely BECAUSE knowledge acquired from this site. I learned what to look for and what to say to get what I felt I needed and put out that expectation from the beginning. The result was my treatment has gone well.

I have had no problems calling the lab, or DME to ask them advice so I think it should be remembered that for all the bad experiences people have had here, we are mostly hearing about the bad experiences and not the many more good ones that I am sure happen.

Moby wrote:The bush flowers are emerging, we have already had some little orchids.
My very favourite flower is the delicate semishade loving twiner "hardenbergia". The photos don't do it justice, in shade it looks like blue fire



[/img]

Oh Moby, the pics are just gorgeous. Don't you want to host a CPAP convention for those of us who haven't made it yet to the lovely land of Oz? Someday, I'll get there!

Insomniyak wrote:This thread saddens me too. As I have shared many times, I have had an exceelent experience collectively with the tech, nurse practitioner, and doc at my sleep center, and also the DME. It is counter intuitive to what I have read on this forum so I am among the lucky few. I feel it has worked out that way, largely BECAUSE knowledge acquired from this site. I learned what to look for and what to say to get what I felt I needed and put out that expectation from the beginning. The result was my treatment has gone well.

I have had no problems calling the lab, or DME to ask them advice so I think it should be remembered that for all the bad experiences people have had here, we are mostly hearing about the bad experiences and not the many more good ones that I am sure happen.

Noah, there is an interesting phenomenon happening here. YOUR DME, as pointed out on Live Chat last night, is one of those owned by the folks who also own cpaptalk.com and cpap.com. I am not quite as convinced that MOST of the experiences with DME providers are as positive as yours.

While it does seem that there are mostly negatives posted here, isn't that how it always seems to be? As a teacher I found very few parents complimenting me, and MANY, MANY more criticizing me. Most of those who criticized would, through communication, become more positive--and often--became supporters of me and my program.

It is probably true that this forum does not attract those with only positive experiences. Folks usually look for help when there is a problem.

Another factor, IMHO, is the intelligence (some present company excluded) and wide knowledge base of the forum. Any given thread could find postings in various realms of expertise.

It is my opinion that we should consider this to be...A FORUM! By definition, a forum is a "a public facility to meet for open discussion"
(wordnet.princeton.edu/perl/webwn as quoted on Google Search for define: forum)

Here is a more specific explanation of Internet fora: http://en.wikipedia.org/wiki/Internet_forum

I would urge all of us to remember that this is a DISCUSSION; we must remember that there is nothing that we should take as medical advice being given by non-medical personnel.

The problem occurs when we are not given adequate medical advice. The professions related to sleep disorders are fairly young. The field is also attractive to many of those investing in this area--as it is a fairly rapidly evolving field. (Can you say, "cash cow"?) This, and the state of heath care in the USA and Canada, among other countries, encourages cost cutting. Cost cutting measures often give poorer treatment to those of us who use the services of the medical providers.

I want to say much, much more on the topic of sleep technologists...we wouldn't be here without them, you know. However, I need to go for a committment. So, there may be MORE later from me! Try not to let that ruin your day...


Karen
Who admires Rodney King's famous statement


P.S. My usual smileys are missing due to time, but they are all gotten from a Firefox extension? (Add on? Plug in?) called Smiley Xtra 4.

Very nice post Karen. Definitely the majority of people on this site have been short changed by the system, even if it is due to lack of information given or information withheld.

I was also saying last night that I worked in healthcare for years and I have seen how the system works and the strings you have to pull to get what you need out of it. I recall once having to drive to my health insurance providor's office with an ICDM-9 book to get what I needed. I fully understand that alot of people come here last, after learning the hard way about the short falls of our system. I came on because I knew nothing about DMEs and CPAP machines, and MAPs and I am glad I did.

I know this resource makes it easier for others because of the sharing from personal experiences which is what it is, nothing more nothing less. I don't necessarily agree with changing pressures without getting the opinions or script from a professional, but by the same token, I can't judge others for doing it, because it's what works for them. If I point the finger at someone, I get 3 pointing back.