Speculations about CPAP-dependency.

camper wrote: ↑

Sun Jun 02, 2019 9:45 am

BTW, I'm not advocating surgery - and wouldn't consider it for my mild case, and neither did my ENT. That is to say, if my OSA is real - the extreme discomfort, atypical sleep position, and lack of sleep created by those during my sleep studies makes me think those results may have been atypical.

I know this isn't what you are hoping to hear, but we actually get a lot of new people who say pretty much the same thing. They doubt the sleep test results because they didn't sleep well in the study, or slept in the wrong position, etc. This is a normal reaction to a diagnosis we don't want. But please consider that the results are more likely to be lower ahi than the real, not the other way around.

And as I'm about to post in another thread, using a fan last night made much more difference to the soundness of my sleep than the CPAP machine has. Though that might be because I'm new to CPAP, and started out with the wrong masks (at least for me) and possibly the wrong machine (for me). I may decide I like CPAP if results keep improving.

I used to think I slept pretty well, only waking up 2-3 times a night,. The problem is that we don't remember all the disturbances. I had a split night study, so I barely slept on my back, and never reached REM during the diagnosis phase. In less than 2 1/2 hours, I managed to get a 79 ahi. I have no doubt that a full night would have produced much higher results.

If anyone is worried about CPAP somehow breathing for you, let Uncle Rapoport explain what CPAP is and why it can't do that . . .

https://youtu.be/IP3IgvE36GA?t=309

What a pile of s(*& Dr Paulose has written in order to create fear and to make money.
How disgusting.
I try not to focus too much on negative issues online but find myself very angry at that article. Now I need to go and focus on something positive and clear my brain from those toxic words he spewed.
Maybe breakfast at Cora's will do it.

Some articles make my brain want to take a shower right after reading them. But then again, maybe I'm just brainwashed.

jnk... wrote: ↑

Sun Jun 02, 2019 9:27 pm

I'm bleeding but afraid that stopping bleeding might not be the best choice. Maybe it's better that I just bleed to get used to it. After all, I wouldn't want to start causing myself internal-blood dependence. I think I'll just start taking some iron supplements instead in case I bleed out.

Oh boy I do that twice a year and I still haven't got used to it.

Does the iron help ? I should try it.

Usually my bleeding stops by itself. Am I doing something wrong ?

esel wrote: ↑

Mon Jun 03, 2019 7:38 am

Oh boy I do that twice a year and I still haven't got used to it.

I didn't know bloodletting was still a thing.

esel wrote: ↑

Mon Jun 03, 2019 7:38 am

Does the iron help ? I should try it.

Do not initiate or discontinue any supplements without consulting with your doctor. (Yeah, right, like anybody actually can afford to do THAT.)

esel wrote: ↑

Mon Jun 03, 2019 7:38 am

Usually my bleeding stops by itself. Am I doing something wrong ?

Please see palerider's earlier comment about taking into consideration artery size.

jnk... wrote: ↑

Mon Jun 03, 2019 6:28 am

If anyone is worried about CPAP somehow breathing for you, let Uncle Rapoport explain what CPAP is and why it can't do that . . .

https://youtu.be/IP3IgvE36GA?t=309

Oh my. I wish my sleep center or insurance program had had such lectures (or better still, written info) available. I feel like I've been thrown almost entirely on my own on what to do. I got a small amount of info on using the machine from the DME provider, and that's it.

I've been trying to learn a little about interpreting the results from my CPAP machine by downloading OSCAR and looking at the "Beginner's guide to using SleepyHead" (a program from which OSCAR was derived) posted to another discussion forum.

This has nothing to do with this thread, but do you folks know where to look for more info on interpreting CPAP results, for beginners?

camper wrote: ↑

Mon Jun 03, 2019 9:15 am

jnk... wrote: ↑

Mon Jun 03, 2019 6:28 am

If anyone is worried about CPAP somehow breathing for you, let Uncle Rapoport explain what CPAP is and why it can't do that . . .

https://youtu.be/IP3IgvE36GA?t=309

Oh my. I wish my sleep center or insurance program had had such lectures (or better still, written info) available. I feel like I've been thrown almost entirely on my own on what to do. I got a small amount of info on using the machine from the DME provider, and that's it.

I've been trying to learn a little about interpreting the results from my CPAP machine by downloading OSCAR and looking at the "Beginner's guide to using SleepyHead" (a program from which OSCAR was derived) posted to another discussion forum.

This has nothing to do with this thread, but do you folks know where to look for more info on interpreting CPAP results, for beginners?

Just consult your DME or better yet a Dental App Seller, for Advice have they ever steered anyone down the wrong path! Jim

The DeNile patients best friend, and fools too.

I do believe this camper person is "having you on".
JPB

camper wrote: ↑

Mon Jun 03, 2019 9:15 am

jnk... wrote: ↑

Mon Jun 03, 2019 6:28 am

If anyone is worried about CPAP somehow breathing for you, let Uncle Rapoport explain what CPAP is and why it can't do that . . .

https://youtu.be/IP3IgvE36GA?t=309

Oh my. I wish my sleep center or insurance program had had such lectures (or better still, written info) available. I feel like I've been thrown almost entirely on my own on what to do. I got a small amount of info on using the machine from the DME provider, and that's it.

I've been trying to learn a little about interpreting the results from my CPAP machine by downloading OSCAR and looking at the "Beginner's guide to using SleepyHead" (a program from which OSCAR was derived) posted to another discussion forum.

This has nothing to do with this thread, but do you folks know where to look for more info on interpreting CPAP results, for beginners?

That was part of a lecture from an A.W.A.K.E. meeting I attended in Manhattan years ago. Getting an A-list speaker like that one was an exceptional circumstance, for sure.

Goofproof always cracks me up, that witty prankster.

I think the link you are looking for may be this one. Even though you aren't brand new. I still read that post once in a while myself.

viewtopic/p1260774/Sticky--Newbies-PLEA ... l#p1260774

This forum itself is provided as an educational resource. You are at the right place. You are welcome to ask any questions about interpreting data at any time.

The only requirement for being here long enough to learn and asking interpretation questions is your having the ability to put up with our odd personalities.

Pugsy is pretty much the only sane one among us. The rest of us can be more of an, um, acquired taste.

For example. I am old school. I am terrible at interpreting squiggly lines. Once I can tolerate a mask and leak is steady within reason and usage hours are up, I monitor my AHI and keep the running weekly/monthly average as low as I can, but I don't worry about getting AHI lower than I can get it. That's really about all I know about interpreting machine data and acting on it responsibly.

Righteous Rage can be fun for a short while.

jnk... wrote: ↑

Mon Jun 03, 2019 10:22 am

<snip>
I monitor my AHI and keep the running weekly/monthly average as low as I can, but I don't worry about getting AHI lower than I can get it. That's really about all I know about interpreting machine data and acting on it responsibly.

so.much.this.

it mirrors my own philosophy almost exactly. when i first came here, i thought that THE MACHINE was the answer. if i could just get to that ZERO, all would be perfect.

flash forward(or lumber. take your time. don't hurt yourself.) and here i am almost four years later. i still look at my numbers everyday, mainly because i still can't believe i've gotten them this low. but no panic if i have an occasional bad night. it's the averages that satisfy me.

zonker wrote: ↑

Mon Jun 03, 2019 11:08 am

when i first came here, i thought that . . . if i could just get to that ZERO, all would be perfect.

Now, please help me to get that dang song out of my head!

https://youtu.be/gnw6veYD4Wo

jnk... wrote: ↑

Mon Jun 03, 2019 6:28 am

If anyone is worried about CPAP somehow breathing for you, let Uncle Rapoport explain what CPAP is and why it can't do that . . .

https://youtu.be/IP3IgvE36GA?t=309

Excellent... not that it'll make impressions on people who WANT to believe garbage... but nice try nonetheless.

palerider wrote: ↑

Mon Jun 03, 2019 11:52 am

jnk... wrote: ↑

Mon Jun 03, 2019 6:28 am

If anyone is worried about CPAP somehow breathing for you, let Uncle Rapoport explain what CPAP is and why it can't do that . . .

https://youtu.be/IP3IgvE36GA?t=309

Excellent... not that it'll make impressions on people who WANT to believe garbage... but nice try nonetheless.

Thanks, man. I try.

I owe the guy some juice, since I so thoroughly trashed his presentation in my early (younger-er/foolish-er) days: viewtopic/t51844/Dr-David-M-Rapoport-at ... -2010.html



I have since gained a MUCH greater respect for the fellow.