100% compliant to CPAP, still tired, can I do something ?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
ezybreathykiwi
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by ezybreathykiwi » Mon Jun 13, 2016 6:47 am

I was only referring to his query about extra oxygen.... No need to be so snappy!
54yo airline pilot

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Julie
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Julie » Mon Jun 13, 2016 6:55 am

"Snappy" ?

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Pugsy
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Pugsy » Mon Jun 13, 2016 7:36 am

ezybreathykiwi wrote:I work at altitude, so spend significant part of life at lower oxygen levels. But I do believe that CPAP pressure will increase oxygen absorption in lungs over normal air pressure, so can imitate minimal supplemental oxygen.

Am I wrong?
I think you are wrong. So I will answer your question that way...for the same reasons I stated above.
Unless there is something going on with the lungs themselves the cpap machine isn't going to increase the O2 levels while awake and if something is going on with the lungs then that's a lung issue not related to sleep apnea and cpap machines can't fix issues that aren't related to sleep apnea.
They aren't ventilators (at least the regular cpap machines) and even at max pressure they don't "blow up the l lungs" to cause increased oxygenation...they can't even blow up a balloon.

Now if you feel like it helps for some reason...the mind is a powerful thing and it hurts nothing to use the cpap while awake if you think it makes you feel better.

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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Sonnyboy » Mon Jun 13, 2016 7:52 am

jaw wrote:
Pugsy wrote:I must have missed the mention of Hepatitis B being a consideration. I am sure you probably already know that fatigue and weakness is a common symptom.
Once again, a big thank.

No, my doctors have never told me this. They said I could continue living they way I had been living, I could consume beer moderately and I could smoke moderately (this doctor meant smoking is bad for me in the same way as with any other non-Hepatitis-B person).

I've just googled, and yes fatigue is mentioned here http://www.hepatitiscentral.com/news/four_ways_to_be/, although the Internet might says that there are no symptoms of Hepatitis-B http://www.webmd.com/hepatitis/hepb-gui ... b-symptoms.
Hepatitis B is easily diagnosed through a blood test, is very serious, and is also contagious.
Blood work will include testing for the specific Hepatitis B antigen and also checking your liver enzymes.
If you do have Hepatitis B you want to know if it is chronic or active and if treatments are available.
If you have Hepatitis B you liver is already compromised so you should not be drinking alcohol or taking "unnecessary" medication that is detoxified in your liver.
Severe fatigue can definitely be a symptom.

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jaw
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Mon Jun 13, 2016 2:10 pm

Hi all,

I remember that my doctors did confirm that I have chronic Hepatitis B, but that should not give me any symptoms. No treatment plan is needed, although a half-year check is necessary to see how it develops. They think that I might have had Hepatitis B since birth.

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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Sonnyboy » Mon Jun 13, 2016 3:26 pm

jaw wrote:Hi all,

I remember that my doctors did confirm that I have chronic Hepatitis B, but that should not give me any symptoms. No treatment plan is needed, although a half-year check is necessary to see how it develops. They think that I might have had Hepatitis B since birth.
There is a higher incidence of Hepatitis B in Asia so very possibly you have had it since birth, nonetheless, follow up as the doctors suggest and start reading about chronic Hepatitis B and how to take care of yourself.

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jaw
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Mon Jun 13, 2016 4:38 pm

Sonnyboy wrote:
jaw wrote:Hi all,

I remember that my doctors did confirm that I have chronic Hepatitis B, but that should not give me any symptoms. No treatment plan is needed, although a half-year check is necessary to see how it develops. They think that I might have had Hepatitis B since birth.
There is a higher incidence of Hepatitis B in Asia so very possibly you have had it since birth, nonetheless, follow up as the doctors suggest and start reading about chronic Hepatitis B and how to take care of yourself.
You are correct about Asia, but I think it's not so straightforward to say Hepatitis B caused my fucking tired brain.

This https://www.merckmanuals.com/home/liver ... -hepatitis says the most severe symptoms of Hepatitis B is fatigue. That I think I don't have much.

Actually I am still doing well in my Karate club, only that my brain is fucking me everyday.

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> 15 years of Apnea, discovered in 2016 with AHI = 50
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Sonnyboy » Mon Jun 13, 2016 9:28 pm

jaw wrote:
Sonnyboy wrote:
jaw wrote:Hi all,

I remember that my doctors did confirm that I have chronic Hepatitis B, but that should not give me any symptoms. No treatment plan is needed, although a half-year check is necessary to see how it develops. They think that I might have had Hepatitis B since birth.
There is a higher incidence of Hepatitis B in Asia so very possibly you have had it since birth, nonetheless, follow up as the doctors suggest and start reading about chronic Hepatitis B and how to take care of yourself.
You are correct about Asia, but I think it's not so straightforward to say Hepatitis B caused my fucking tired brain.

This https://www.merckmanuals.com/home/liver ... -hepatitis says the most severe symptoms of Hepatitis B is fatigue. That I think I don't have much.

Actually I am still doing well in my Karate club, only that my brain is fucking me everyday.
Very possibly you do have another problem causing your brain issue and I encourage you to continue your investigation, however, you know you have chronic Hepatitis B and you do want to take of yourself.

Here is a link to help you get started including a quote regarding alcohol, smoking, over the counter medication, and diet:

http://www.hepb.org/patients/living_wit ... htm#ques12

What advice do you have for those living with chronic hepatitis B?

We strongly recommend avoiding alcohol, as it can be extremely harmful to a liver already infected with the hepatitis B virus. Additionally, you should avoid smoking for the same reason. You should be sure to talk to your doctor before taking any prescription, over the counter medication, or herbal remedies.

Although there is no special diet for people who have chronic hepatitis B, a healthy, well-balanced diet that is low-fat and includes plenty of vegetables is recommended. You may want to avoid eating raw shellfish, since they can contain bacteria that are harmful to your liver.

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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Tue Jun 14, 2016 1:03 am

Thanks for the info regarding Hepatitis B, i'll study it.

For my tired brain, I do this whenever there's not enough blood streamed to that brain, the immediate result is awesome, but can only last for around 2 hours.

Sanchin Kata, Goju Ryu Karate

https://www.youtube.com/watch?v=kybxNOlnl20

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> 15 years of Apnea, discovered in 2016 with AHI = 50
using PR System One REMstar Pro CPAP Machine with C-Flex Plus, PR System One Heated Humidifier, Mirage FX Nasal CPAP Mask with headgear.

Sonnyboy
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Sonnyboy » Tue Jun 14, 2016 6:05 am

jaw wrote:Thanks for the info regarding Hepatitis B, i'll study it.

For my tired brain, I do this whenever there's not enough blood streamed to that brain, the immediate result is awesome, but can only last for around 2 hours.

Sanchin Kata, Goju Ryu Karate

https://www.youtube.com/watch?v=kybxNOlnl20
I watched this video. Thanks for sharing. Karate is a very impressive art and your participation shows me you have discipline, strength, and energy.

Two things come to mind and you decide if either fits for you.

One is--take a good look at your avatar. The man at the desk has lousy posture. Your video points out the importance of posture to breathing when it discusses the circle of breath. What is your posture like when you are sitting at your desk on the computer and are you remembering to breathe and breathe correctly when you are not wearing the Cpap. Just a thought. Maybe you like the Cpap at work because it actually is reminding you to breathe. Instead of wearing the Cpap at your desk try sitting with correct posture and remembering to breathe. Might help.

The other has already been mentioned I believe. You indicate your "brain" is having the problem many times. Consider talking to a neurologist about these issues.

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jaw
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Tue Jun 14, 2016 10:33 am

I've booked an appointment with my family doctor. Doctors here in Holland are fucking slow: waiting list is often at least 2 week to reach a family doctor, and at least another month to reach a neurologist.

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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Julie » Tue Jun 14, 2016 11:55 am

Yes, but ... what are you doing about the hepatitis?

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jaw
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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by jaw » Tue Jun 14, 2016 2:06 pm

Julie wrote:Yes, but ... what are you doing about the hepatitis?
I''ve phoned another doctor at the hospital having the treatment, another story of waiting until they would give me another appointment, only then there could be another blood test and talk.

Holland is slow in health care.

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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Sonnyboy » Tue Jun 14, 2016 2:24 pm

jaw wrote:
Julie wrote:Yes, but ... what are you doing about the hepatitis?
I''ve phoned another doctor at the hospital having the treatment, another story of waiting until they would give me another appointment, only then there could be another blood test and talk.

Holland is slow in health care.
And you made the appointment-right?

The Netherlands is no different than what I often experience here [California, USA]. I made a first time appointment with a neurologist last week, the first available date was mid August, and I took it. Sometimes first time appointments with any of the specialists are harder to schedule because more time is required.

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Re: 100% compliant to CPAP, still tired, can I do something ?

Post by Julie » Tue Jun 14, 2016 3:27 pm

It still feels as if you're hoping a 'Cpap' fix will change everything, but if hepatitis IS the problem, Cpap may help, but not fix it, and the sooner you know the result of the lab, the sooner you can intelligently address things. I'm sure no one wants to have hepatitis or have to deal with it, but at least knowing the bottom line can free you to know where to go ahead, and if you don't have it, then you can start crossing off cpap answers one by one properly, addressing features one by one for a short time til something makes sense.