My sleep apnea cured?

Wulfman... wrote: Many who have had it also state that their eating changes.......like they will never be able to eat peanut butter again.

Den

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Now that would have killed me much sooner than sleep apnea would have.

I agree that the OP would have been fortunate to find this site sooner... but he didn't... and hearing now about his "autopsy reports" doesn't make his situation any better. If he is still reading here, I do hope he realizes the importance of having a sleep study once he is healed.

Wulfman... wrote:

49er wrote:I love the positive encouragement of this board when someone has the nerve to post that they had sleep apnea surgery, especially since it sounds like this person has tried many things, including pap therapy. Sheesh, if someone posted they had surgery after trying pap therapy for twenty years, you would condemn them to h-ll.

Do agree with the advice to get a sleep study to make sure the surgery was successful. Why anything else is necessary to add just is beyond me. CF, I normally greatly respect you as a poster but what you said was totally out of bounds.

49er

We all know how poorly the "medical mafia" has been with helping users with their therapy. If this person had found this forum years ago and took control of their own therapy, they may have had a different outcome.
This person had surgery less than a month ago and has now proclaimed himself/herself to be "cured".
If they would have done some searching on this site, they may have been scared enough to make a better attempt with their CPAP therapy.
Sometimes reality can be brutal.
It's like Jack Nicholson's line from the movie "A Few Good Men".......that begins with "You want the TRUTH?.........."


Den

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Den,

And then there are other folks whose therapy is optimized who still struggle with pap therapy. They just don't post on this board for obvious reasons. There is no guarantee the OP would have succeeded if he had found this forum although I don't disagree his chances were pretty good. But he played the cards as best he could and I don't understand the harsh judgment. Maybe it isn't up to your standards but since when does this forum get to decide on who passes and who doesn't?

And what is wrong posting on this board about feeling you are cured from sleep apnea? Yes, it is premature but it sounds like after the struggle this person has been though, I can't say I blame him, especially if he feels so much better.

Again, why the anger and the harsh judgment?

49er

49er wrote:

Wulfman... wrote:

49er wrote:I love the positive encouragement of this board when someone has the nerve to post that they had sleep apnea surgery, especially since it sounds like this person has tried many things, including pap therapy. Sheesh, if someone posted they had surgery after trying pap therapy for twenty years, you would condemn them to h-ll.

Do agree with the advice to get a sleep study to make sure the surgery was successful. Why anything else is necessary to add just is beyond me. CF, I normally greatly respect you as a poster but what you said was totally out of bounds.

49er

We all know how poorly the "medical mafia" has been with helping users with their therapy. If this person had found this forum years ago and took control of their own therapy, they may have had a different outcome.
This person had surgery less than a month ago and has now proclaimed himself/herself to be "cured".
If they would have done some searching on this site, they may have been scared enough to make a better attempt with their CPAP therapy.
Sometimes reality can be brutal.
It's like Jack Nicholson's line from the movie "A Few Good Men".......that begins with "You want the TRUTH?.........."


Den

.

Den,

And then there are other folks whose therapy is optimized who still struggle with pap therapy. They just don't post on this board for obvious reasons. There is no guarantee the OP would have succeeded if he had found this forum although I don't disagree his chances were pretty good. But he played the cards as best he could and I don't understand the harsh judgment. Maybe it isn't up to your standards but since when does this forum get to decide on who passes and who doesn't?

And what is wrong posting on this board about feeling you are cured from sleep apnea? Yes, it is premature but it sounds like after the struggle this person has been though, I can't say I blame him, especially if he feels so much better.

Again, why the anger and the harsh judgment?

49er

Actually, I was just about to ask something similar in a different context.........
WHY would someone post on this sleep apnea CPAP help forum that they had UPPP surgery and now self-determined themselves to be "cured"???

Last I checked, we're all "adults" here.
Many of us have been in managerial positions and had to deal with "situations" (or confrontations) with subordinates and also with higher management. Those circumstances aren't always the kind where all involved wore "kid gloves".
I also suspect that many of the folks who get "offended" with being confronted with the truth and reality here, have also been in the position of having to discipline subordinates. They reply with variations of "How dare you speak to me like that?!?!" when they've probably been in the position of dishing it out themselves.

No anger, no harshness. Just the blunt truth in various ways.
To me, having "tact" is being able to tell someone to go to Hell and making them look forward to the trip.......


Den

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ThomasJchere wrote: I still snore a bit but nothing like I use to.

It is surprising that nobody mentioned this. Even light snoring is an indication that the airway "ain't right". And, with obstructive sleep apnea being a progressive condition, and the patient being age 39, he is likely to experience more severe problems as the years go by.

BlackSpinner wrote:... he isn't even properly healed yet, the swelling is just going down.

I hope the snoring he is experiencing is a result of swelling from the surgery, and that once he is healed from the surgery, his apnea is truly cured. But, I have my worries about his long term condition.

ChicagoGranny wrote:

ThomasJchere wrote: I still snore a bit but nothing like I use to.

It is surprising that nobody mentioned this. Even light snoring is an indication that the airway "ain't right". And, with obstructive sleep apnea being a progressive condition, and the patient being age 39, he is likely to experience more severe problems as the years go by.

BlackSpinner wrote:... he isn't even properly healed yet, the swelling is just going down.

I hope the snoring he is experiencing is a result of swelling from the surgery, and that once he is healed from the surgery, his apnea is truly cured. But, I have my worries about his long term condition.

I did notice that statement, but considering his recent surgery, thought it may be what BS noted......as you pointed out.


Den

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EDIT: since some people took the post seriously, it was meant as sarcasm and was criticizing the way the thread starter was attacked under the guise of "telling him the truth".

I agree with the people not afraid to "speak the truth". In fact I did just that on a cancer forum the other day. This woman posted all excited "my surgery worked, they didn't find anything in the lymph nodes, I'm cancer free, I don't need chemo!". I asked her to post her obituary and told here "don't kid yourself, the cancer is going to be back in a year or two even if you can't handle the truth".

And I did that without even know whether she really was cured, without asking her any questions, without having any idea what her true prognosis was, or offering her any caring words of encouragement. Because, you know, I wanted her to know "the "truth". I just like being truthy.

You seriously told her that her cancer was coming back?

You are a horror show all in one place!

Maybe the rottenest thing I've ever read here.

Truth? You need more help than there is in the world!

Julie wrote:You seriously told her that her cancer was coming back?

You are a horror show all in one place!

Maybe the rottenest thing I've ever read here.

Truth? You need more help than there is in the world!

har har

Can't wait 'til 49er gets here.

Julie wrote:You seriously told her that her cancer was coming back?

You are a horror show all in one place!

Maybe the rottenest thing I've ever read here.

Truth? You need more help than there is in the world!

uh, duh, Julie.

Heart Jumping wrote:I agree with the people not afraid to "speak the truth". In fact I did just that on a cancer forum the other day. This woman posted all excited "my surgery worked, they didn't find anything in the lymph nodes, I'm cancer free, I don't need chemo!". I asked her to post her obituary and told here "don't kid yourself, the cancer is going to be back in a year or two even if you can't handle the truth".

And I did that without even know whether she really was cured, without asking her any questions, without having any idea what her true prognosis was, or offering her any caring words of encouragement. Because, you know, I wanted her to know "the "truth". I just like being truthy.

If you really did that you are an Ass!!!!!!!! If you were on a Cancer forum, I assume you or someone close to you is affected.
People suffering with this don't need these type of comments.

Julie wrote:You seriously told her that her cancer was coming back?

You are a horror show all in one place!

Maybe the rottenest thing I've ever read here.

Truth? You need more help than there is in the world!

You said it first so I don't have to. My gawd

Heart Jumping wrote:I agree with the people not afraid to "speak the truth". In fact I did just that on a cancer forum the other day. This woman posted all excited "my surgery worked, they didn't find anything in the lymph nodes, I'm cancer free, I don't need chemo!". I asked her to post her obituary and told here "don't kid yourself, the cancer is going to be back in a year or two even if you can't handle the truth".

And I did that without even know whether she really was cured, without asking her any questions, without having any idea what her true prognosis was, or offering her any caring words of encouragement. Because, you know, I wanted her to know "the "truth". I just like being truthy.

Very funny.
I gather you think cancer and using cpap are the same thing?

People declaring themselves OSA free 3 weeks after surgery because they "feel" they sleep better are delusional and unfortunately have been had by some slick surgeon wanting to pay off his next BMW.

Just when I think I can't make it any more obvious that I'm being over the top sarcastic, some people still take it seriously, for those who did have you read the Onion today and thought it was real news ? I found some of the comments directed at the thread starter over the top unacceptable, and that was the point of my over the top sarcasm.

I'm still sitting here shaking my head that anyone could read that and not spot it as sarcasm. I mean, it wasn't subtle, it was like "SARCASM ALERT, SARCASM ALERT" Or maybe now I'm the one being played, I sure hope so .

Heart Jumping wrote:Just when I think I can't make it any more obvious that I'm being over the top sarcastic, some people still take it seriously, for those who did have you read the Onion today and thought it was real news ? I found some of the comments directed at the thread starter over the top unacceptable, and that was the point of my over the top sarcasm.

When reading the Onion...you expect that crap. That was not sarcasm...that was being downright mean. If you think crap like that is cute, we don't need you here.