General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Enchanter
- Posts: 715
- Joined: Thu Apr 16, 2015 4:34 am
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by Enchanter » Sun Jun 14, 2015 9:42 pm
ems wrote:Enchanter wrote:Another reason why I'm ticked is because the doctor's assistant told me that the study was going to be a titration study, simply for seeing the settings I need. But now I'm back to the diagnostic study. So I have to think the tech perhaps didn't do his job correctly because why would I be back to a diagnosis study after attempting 2 titrations? I'm not making this up. I'm not gonna lie, I'm losing faith that this is every going to get done.
Maybe the tech person didn't do his job correctly, you'll never know. Maybe the doctor made the decision that you have another study because the results of the first study (and the titrations) weren't acceptable to him/her for whatever reason and wanted to be 100% certain you were correctly diagnosed in order to correctly prescribe your pressures. Again,
maybe because if you don't speak to your doctor you'll never know. Maybe the doctor wasn't even sure you have sleep apnea. There are so many unanswered questions. You are absolutely entitled to get answers to all your questions, along with copies of all your studies thus far! You are also entitled to change doctors.
We are only guessing based on what you tell us. You need to call your doctor to get the answers you are looking for. The only way this will get done is if you let your doctor know in no uncertain terms that you want answers! We are not doctors so can only guess what you are asking; and the answers you get are only guesses based on our own experiences.
Think about this... unless you are asking simple, generic questions how can we answer the questions you ask? We don't know you. We aren't doctors. Call your doctor and hopefully you'll get the answers you are looking for.
Fair enough. But I'm almost ready to give up. I don't think this process is ever going to get finished. Too shaky. The tech knows I have sleep apnea. I know it. But somehow I think they're just going to either postpone it forever or tell me I don't need a machine. I just think they don't want to help me and are waiting for me to just go. I may have to just learn how to live with my pain. If I do the titration in the lab, they'll probably tell me I need to do another diagnostic test. That's what they already did, so what's to change their mind? I don't think I'm gonna make it.
My Current Therapies
- CPAP + Humidifier
- Allergy Shots + nose Spray + Hepa Air Purifier
- Cardiovascular Exercise + Stretching
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yaconsult
- Posts: 1099
- Joined: Fri Nov 14, 2014 10:43 pm
- Location: "Silicon Valley", CA
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by yaconsult » Sun Jun 14, 2015 10:28 pm
Vermonter wrote:herefishy wrote:I had a sleep study years ago - they used the first part of the night to diagnose the apnea and the second to titrate - why on earth would they ever drag it out over 3-4 weeks?
A friend of mine had one of those "one night" quickie sleep studies and the Sleep Center was run by a DME company.
My Sleep Center is at a teaching college.
I think it is more common in cases of severe apnea. My medical foundation staffs its own sleep clinic and my most recent testing was done there. The first half of the night was pure torture because with my AHI of 80, I can't sleep at all without cpap. So after a few hours they came in and put me out of my misery by putting a mask on me.
There would have been no reason to go back a second time unless it was for the sleep lab to make more money.
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ems
- Posts: 2757
- Joined: Fri Jul 29, 2011 12:46 am
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by ems » Sun Jun 14, 2015 10:41 pm
Enchanter wrote:ems wrote:Enchanter wrote:Another reason why I'm ticked is because the doctor's assistant told me that the study was going to be a titration study, simply for seeing the settings I need. But now I'm back to the diagnostic study. So I have to think the tech perhaps didn't do his job correctly because why would I be back to a diagnosis study after attempting 2 titrations? I'm not making this up. I'm not gonna lie, I'm losing faith that this is every going to get done.
Maybe the tech person didn't do his job correctly, you'll never know. Maybe the doctor made the decision that you have another study because the results of the first study (and the titrations) weren't acceptable to him/her for whatever reason and wanted to be 100% certain you were correctly diagnosed in order to correctly prescribe your pressures. Again,
maybe because if you don't speak to your doctor you'll never know. Maybe the doctor wasn't even sure you have sleep apnea. There are so many unanswered questions. You are absolutely entitled to get answers to all your questions, along with copies of all your studies thus far! You are also entitled to change doctors.
We are only guessing based on what you tell us. You need to call your doctor to get the answers you are looking for. The only way this will get done is if you let your doctor know in no uncertain terms that you want answers! We are not doctors so can only guess what you are asking; and the answers you get are only guesses based on our own experiences.
Think about this... unless you are asking simple, generic questions how can we answer the questions you ask? We don't know you. We aren't doctors. Call your doctor and hopefully you'll get the answers you are looking for.
Fair enough. But I'm almost ready to give up. I don't think this process is ever going to get finished. Too shaky. The tech knows I have sleep apnea. I know it. But somehow I think they're just going to either postpone it forever or tell me I don't need a machine. I just think they don't want to help me and are waiting for me to just go. I may have to just learn how to live with my pain. If I do the titration in the lab, they'll probably tell me I need to do another diagnostic test. That's what they already did, so what's to change their mind? I don't think I'm gonna make it.
They can't postpone indefinitely. It's not ethical! They could get into big trouble if they did that.
Please reread my last post.
At this point I have to tell you that it's your life. Do whatever you feel is right for you. I wish you the very best.
If only the folks with sawdust for brains were as sweet and obliging and innocent as The Scarecrow! ~a friend~
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Madalot
- Posts: 4287
- Joined: Sat Jan 30, 2010 7:47 am
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by Madalot » Mon Jun 15, 2015 6:32 am
ems wrote:Why are people not understanding Enchanter?? I understand exactly what's going on.
I'm glad you do and I'm sure Enchanter is as well. I suspect that the reason you can follow is that you have read every post of his and very carefully. I have found Enchanter's tendency to post a lot, about a lot of things at once, overwhelming and don't read them all. So when I come in on a new thread and his post assumes people know everything, it doesn't make a lot of sense, at least to me.
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chunkyfrog
- Posts: 34545
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nowhere special--this year in particular.
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by chunkyfrog » Mon Jun 15, 2015 6:48 am
---In which case, it might have been helpful to stick to ONE thread.
Multiple threads are so hard to follow!
It's like going to a half dozen different doctors, and giving each one only a few clues;
and to compound it, failing to tell each doctor about the other doctors you are seeing.
It is possible to follow along, but challenging, possibly too much so for many of us.
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LSAT
- Posts: 13349
- Joined: Sun Nov 16, 2008 10:11 am
- Location: SE Wisconsin
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by LSAT » Mon Jun 15, 2015 7:27 am
Madalot wrote:ems wrote:Why are people not understanding Enchanter?? I understand exactly what's going on.
I'm glad you do and I'm sure Enchanter is as well. I suspect that the reason you can follow is that you have read every post of his and very carefully. I have found Enchanter's tendency to post a lot, about a lot of things at once, overwhelming and don't read them all. So when I come in on a new thread and his post assumes people know everything, it doesn't make a lot of sense, at least to me.
Well said...+1
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Enchanter
- Posts: 715
- Joined: Thu Apr 16, 2015 4:34 am
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by Enchanter » Mon Jun 15, 2015 1:12 pm
Just made an appointment so I can go on allergy shot treatment. So if I never get my CPAP and they decide the initial diagnosis wasn't correct, then I'll have to hope the allergy treatment helps me sleep. It's airway related, so maybe I don't need CPAP or have apnea. The fact I have to do a home-test makes me think that I might not have OSA. Just don't know why the tech was firm that I did.
My Current Therapies
- CPAP + Humidifier
- Allergy Shots + nose Spray + Hepa Air Purifier
- Cardiovascular Exercise + Stretching
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Julie
- Posts: 20052
- Joined: Tue Feb 28, 2006 12:58 pm
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by Julie » Mon Jun 15, 2015 1:24 pm
Because he got the hard data to confirm it... and your (understandably at this point) not wanting to go with it won't make it untrue, though it would be nice if the allergy shots help you otherwise.
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Enchanter
- Posts: 715
- Joined: Thu Apr 16, 2015 4:34 am
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by Enchanter » Mon Jun 15, 2015 2:47 pm
Julie wrote:Because he got the hard data to confirm it... and your (understandably at this point) not wanting to go with it won't make it untrue, though it would be nice if the allergy shots help you otherwise.
The tech had the data, however I'm back to doing the diagnosis test. It doesn't make sense, but true.
My Current Therapies
- CPAP + Humidifier
- Allergy Shots + nose Spray + Hepa Air Purifier
- Cardiovascular Exercise + Stretching
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ems
- Posts: 2757
- Joined: Fri Jul 29, 2011 12:46 am
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by ems » Mon Jun 15, 2015 5:11 pm
Enchanter wrote:Julie wrote:Because he got the hard data to confirm it... and your (understandably at this point) not wanting to go with it won't make it untrue, though it would be nice if the allergy shots help you otherwise.
The tech had the data, however I'm back to doing the diagnosis test. It doesn't make sense, but true.
It does make sense. The tech could not have possibly decided all on his own that you have to have another sleep study. The doctor is the only one who could make that decision based upon what I mentioned in my last post... that he wasn't comfortable with the results of the study or titrations for a variety of reasons. They don't send people for a second sleep study if it isn't warranted. These studies cost a lot of money and he would have to have valid proof that you needed a second study, especially if you are with Kaiser or any other HMO.
Allergy shots work for some people; allergy shots don't work for some people. They didn't work for me and I had allergy shots for two years. If they work at all, it takes months for them to do any good.
Let the allergist know that you might have sleep apnea. It's very important that you tell him/her. He could easily get the results of any study you had or will have. He could very possibly be an advocate in helping you sort through all of this.
Why do you think you might not have SA if you have to do a home test? One has positively nothing to do with the other. I think it's reasonable to assume that a home test was ordered because of your difficulty sleeping in a lab.
If only the folks with sawdust for brains were as sweet and obliging and innocent as The Scarecrow! ~a friend~
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Enchanter
- Posts: 715
- Joined: Thu Apr 16, 2015 4:34 am
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by Enchanter » Mon Jun 15, 2015 7:28 pm
ems wrote:Enchanter wrote:Julie wrote:Because he got the hard data to confirm it... and your (understandably at this point) not wanting to go with it won't make it untrue, though it would be nice if the allergy shots help you otherwise.
The tech had the data, however I'm back to doing the diagnosis test. It doesn't make sense, but true.
It does make sense. The tech could not have possibly decided all on his own that you have to have another sleep study. The doctor is the only one who could make that decision based upon what I mentioned in my last post... that he wasn't comfortable with the results of the study or titrations for a variety of reasons. They don't send people for a second sleep study if it isn't warranted. These studies cost a lot of money and he would have to have valid proof that you needed a second study, especially if you are with Kaiser or any other HMO.
Allergy shots work for some people; allergy shots don't work for some people. They didn't work for me and I had allergy shots for two years. If they work at all, it takes months for them to do any good.
Let the allergist know that you might have sleep apnea. It's very important that you tell him/her. He could easily get the results of any study you had or will have. He could very possibly be an advocate in helping you sort through all of this.
Why do you think you might not have SA if you have to do a home test? One has positively nothing to do with the other. I think it's reasonable to assume that a home test was ordered because of your difficulty sleeping in a lab.
I don't think I have SA because if I did I don't think doctor would want to do another diagnosis test. Maybe it's just allergies like the others on here said. If I had it, why would he need to do a diagnosis test after 2 titrations? That doesn't make sense. Have you ever heard of that? No maybe the shots won't work, but at this point I have no choice. Better to keep trying, right? Even if it takes months to do any good, that's still quicker than getting CPAP treatment, which looks like it may not happen. Not sure how an allergists would help me with sleep apnea.
My Current Therapies
- CPAP + Humidifier
- Allergy Shots + nose Spray + Hepa Air Purifier
- Cardiovascular Exercise + Stretching
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49er
- Posts: 5624
- Joined: Mon Jan 16, 2012 8:18 am
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by 49er » Tue Jun 16, 2015 3:24 am
Enchanter,
Again, you really need an advocate or someone who can help you navigate the medical services and get the help you deserve. Any family members or friends willing to help out out with this?
49er
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Cardsfan
- Posts: 1509
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- Location: Close to St. Louis, MO
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by Cardsfan » Tue Jun 16, 2015 9:25 am
Enchanter- when do you get the results of the at home sleep test you just took?
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Enchanter
- Posts: 715
- Joined: Thu Apr 16, 2015 4:34 am
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by Enchanter » Tue Jun 16, 2015 11:32 am
Cardsfan wrote:Enchanter- when do you get the results of the at home sleep test you just took?
The way it's going- Never! I don't know if this is ever going to happen for me. That's why I'm starting to just consider I don't have OSA. Because they'll never let me know either way. Just don't know why the tech said I did.
My Current Therapies
- CPAP + Humidifier
- Allergy Shots + nose Spray + Hepa Air Purifier
- Cardiovascular Exercise + Stretching
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Cardsfan
- Posts: 1509
- Joined: Wed Apr 29, 2015 3:02 pm
- Location: Close to St. Louis, MO
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by Cardsfan » Tue Jun 16, 2015 11:41 am
When are you supposed to get the results?