support research on sleep apnea

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Krelvin
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Re: support research on sleep apnea

Post by Krelvin » Wed May 13, 2015 7:38 am

bmd wrote:Voting ends on May 15, 2015. To vote just click on the up-arrow in the box to the right of the title, and you will be asked to enter your name and email address.
Looks like the voting is not doing very well. -10 net votes at the moment.
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bmd
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Re: support research on sleep apnea

Post by bmd » Wed May 13, 2015 11:33 am

Sheffey wrote:
In the photo on the left, the young girl has a poorly developed jaw and that is abnormal. In the photo on the right, her jaw has been corrected more to the normal with orthodontics.

Image

Believe me when I tell you that my jaw is abnormal and my teeth are a mess and that has caused me bad health problems over the years, not the least of which is obstructive sleep apnea.

Oh, if my parents had known what I know today and if today's resources had been available way back when ... .
Thanks, Sheffey for posting those photos. That really helps make it clear what we are talking about.

I'm so sorry to hear that your jaw problems were not caught early, and that this caused sleep apnea and other health problems for you.

bmd
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Re: support research on sleep apnea

Post by bmd » Wed May 13, 2015 11:50 am

Julie wrote:I hope you're not suggesting that women stop breastfeeding because of this?
No, the opposite. It is lack of breastfeeding that puts kids at higher risk of developing sleep apnea. Here is some more info about that:
http://doctorstevenpark.com/tag/malocclusion/page/2

bmd
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Re: support research on sleep apnea

Post by bmd » Wed May 13, 2015 12:45 pm

Krelvin wrote:
bmd wrote:Voting ends on May 15, 2015. To vote just click on the up-arrow in the box to the right of the title, and you will be asked to enter your name and email address.
Looks like the voting is not doing very well. -10 net votes at the moment.
That is true, unfortunately. I guess it is harder than I realized to gain support for a new idea. I was hoping this group would help with that. Here is the link again for anyone who wants to see this research happen. Please vote!
http://nhlbistrategicvisioning.ideascal ... 0728-32287

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Wulfman...
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Re: support research on sleep apnea

Post by Wulfman... » Wed May 13, 2015 1:17 pm

bmd wrote:
Krelvin wrote:
bmd wrote:Voting ends on May 15, 2015. To vote just click on the up-arrow in the box to the right of the title, and you will be asked to enter your name and email address.
Looks like the voting is not doing very well. -10 net votes at the moment.
That is true, unfortunately. I guess it is harder than I realized to gain support for a new idea. I was hoping this group would help with that. Here is the link again for anyone who wants to see this research happen. Please vote!
http://nhlbistrategicvisioning.ideascal ... 0728-32287
Let's assume for a moment that your "new idea" had some validity and was in fact a reality..........
What or how would you envision incorporating the changes to the world population as a whole? OSA isn't only found in North America.
The same "chicken or egg" situation exists with informing the public about sleep apnea in general and specifically getting the potential users educated BEFORE they enter the "medical mafia machinery" (diagnosis, doctors, insurance, suppliers).
Far too often, they finally find their way here to discover they were given a data-less machine and no way to monitor their own therapy. And, with almost a 50% failure rate with actually USING XPAP, you can't force people to do something they don't want to do.
Years ago, we discussed forming an international CPAP users' group, but that same problem kept coming up. The medical records for individuals are kept secret (which is as it should be) and there's no way to get information to potential XPAP users before they realize they're going to need it.
Same thing with your proposal and ideas. Nobody is going to pay any attention to it until it's discovered that they or their children have a need for it. I seriously doubt that there are or could be overall blanket medical recommendations that will prevent genetic results or that things being done after a person is born will prevent them having OSA.

I'm sorry if I've been harsh in criticizing your quest for whatever it is you're seeking, but I just don't see how it could ever be implemented. Obviously, there have been other medical minds who have thought about this in the past and they haven't made any headway in altering habits and genetics to improve an outcome.

Good luck!


Den

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Krelvin
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Re: support research on sleep apnea

Post by Krelvin » Wed May 13, 2015 2:06 pm

bmd wrote:That is true, unfortunately. I guess it is harder than I realized to gain support for a new idea. I was hoping this group would help with that. Here is the link again for anyone who wants to see this research happen. Please vote!
http://nhlbistrategicvisioning.ideascal ... 0728-32287
I think you have been getting "help" from the group... Just that many may be hitting the other button rather than the one you are promoting.
Current Settings PS 4.0 over 10.6-18.0 (cmH2O) - Resmed S9 VPAP Auto w/h5i Humidifier - Quattro Air FFM
TNET Sleep Resource Pages - CPAP Machine Database
Put your equip in your Signature - SleepyHead v1.0.0-beta-1
Kevin... alias Krelvin

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ChicagoGranny
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Re: support research on sleep apnea

Post by ChicagoGranny » Wed May 13, 2015 3:01 pm

Wulfman... wrote:I'm sorry if I've been harsh in criticizing your quest
Den, I think you are being an idiot.

And it may be,
Wulfman... wrote:whatever it is you're seeking
... because you don't understand what you are talking about.
"It's not the number of breaths we take, it's the number of moments that take our breath away."

Cuando cuentes cuentos, cuenta cuántas cuentos cuentas.

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Wulfman...
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Re: support research on sleep apnea

Post by Wulfman... » Wed May 13, 2015 3:09 pm

ChicagoGranny wrote:
Wulfman... wrote:I'm sorry if I've been harsh in criticizing your quest
Den, I think you are being an idiot.

And it may be,
Wulfman... wrote:whatever it is you're seeking
... because you don't understand what you are talking about.
Wouldn't be the first time...........


Den

.
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
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bmd
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Re: support research on sleep apnea

Post by bmd » Wed May 13, 2015 3:30 pm

Julie wrote:you say that diet is "associated" with 'abnormal' development but don't go into real or proven details about it... ??
Here is some more explanation of the reasons why most researchers who have looked into this topic have concluded that diet is the most likely cause of the changes to jaw structure (i.e. malocclusion) that are common in modern, industrial populations. Malocclusion is quite rare in hunter/gatherer tribes. In traditional, agrarian societies, a significant minority of people have malocclusion. In modern, industrial societies the majority of people have some degree of malocclusion. When hunter/gatherer groups transition to a modern, industrial lifestyle, the number of people with malocclusion in the population rises dramatically within one generation. The change happens too fast to be caused by a change in the genetics of the population. Evolution doesn't happen that quickly. So, it must be caused by some aspect of the change in lifestyle. Early researchers identified diet as the most likely cause of the change because the increased rates of malocclusion seemed to appear in the first generation of children born after the shift to a diet of modern, processed foods. More recent research in animals has confirmed that the consistency of the diet animals are fed while young influences the shape of their growing jaws.

Here are some links with more information about this:
http://wholehealthsource.blogspot.com/2 ... ation.html
http://www.ncbi.nlm.nih.gov/pubmed/6594064
http://www.ncbi.nlm.nih.gov/pubmed/15183669

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Julie
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Re: support research on sleep apnea

Post by Julie » Wed May 13, 2015 3:46 pm

Well, even if you don't convince the world to change for OSA reasons, I do think you're on the right track by looking at the research you've got.. the world could stand a new Nobel winner who's doing meaningful diet research that leads to more than weight loss.

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Hang Fire
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Re: support research on sleep apnea

Post by Hang Fire » Wed May 13, 2015 4:18 pm

Julie wrote: meaningful diet research that leads to more than weight loss
There is no diet that leads to weight loss.

Diet and exercise don't work either.


Image

It's gotten worse in all countries since this chart was made.

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Hang Fire
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Re: support research on sleep apnea

Post by Hang Fire » Wed May 13, 2015 4:22 pm

bmd wrote:In modern, industrial societies the majority of people have some degree of malocclusion.
I have seen those case studies in rural Kentucky. They clearly traced a big increase in malocculusion to the opening of grocery stores.

I hope your project gets approved and I have voted for it earlier.

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ChicagoGranny
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Re: support research on sleep apnea

Post by ChicagoGranny » Wed May 13, 2015 4:25 pm

Wulfman... wrote:Wouldn't be the first time.
It happens.
"It's not the number of breaths we take, it's the number of moments that take our breath away."

Cuando cuentes cuentos, cuenta cuántas cuentos cuentas.

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Wulfman...
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Re: support research on sleep apnea

Post by Wulfman... » Wed May 13, 2015 6:08 pm

ChicagoGranny wrote:
Wulfman... wrote:Wouldn't be the first time.
It happens.
But, probably not this time.
I may not have articulated my position well enough for you to understand, but I haven't changed my mind about this thread.


Den

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Hang Fire
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Re: support research on sleep apnea

Post by Hang Fire » Wed May 13, 2015 6:22 pm

Watch out Granny, he's moving from his Fixed Pressure Theory to a Fixed Jaw Size Theory.