pressure range questions

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lynninnj
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Re: pressure range questions

Post by lynninnj » Sat Oct 15, 2022 11:28 am

robysue1 wrote:
Sat Oct 15, 2022 10:57 am
lynninnj wrote:
Sat Oct 15, 2022 9:33 am
So what I want to know is-do you folks find you get a lot of flatulence with your aerophagia?
Aerophagia happens when air gets into your stomach, and hence into the digestive system.

There are two ways the body tends to get rid of excess air/gas in the digestive system. One is flatulence and one is burping.

Yes, when my aerophagia is acting up, I tend to fart more than usual. Some people tend to have more burps.
I believe I am not a burper. 🤓 Does it tend to have a different odor than normal? (sorry if it’s too many questions or too weird and personal)

I have several other things going on, including a lack of gallbladder, so I just don’t know what’s causing what but I think I’m going to try to keep the pressure settings where they are at for now and just see what happens after a few days. If my body responds well enough to that, then my plan will have worked.

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Re: pressure range questions

Post by Dog Slobber » Sat Oct 15, 2022 11:33 am

lynninnj wrote:
Sat Oct 15, 2022 10:03 am
That was just a part of why I wanted to knock the pressures down a bit though. Nothing radical going from 7 to 6.8.
With APAP, lowering your minimum pressure isn't going to lower your effective pressure. The machine will go where it wants to. In fact, lowering your pressure my result in higher pressure peaks and averages, as the machine compensates for getting a late start on events and pressure changing triggers.

If you want to curb the effects of Aerophagia you want to start throttling your maximum pressure.

A good starting point is to make a note of the days where your Aerophagia is worse than usual, and then set your max pressure to a little less than your maximum, for that night. Wait a couple days and see how it goes. If the Aerophagia continues, lower it 0.2. Repeat until you find the point where you find your tolerance point.

Keep your max pressure there, but feel free to test out if you've acclimated by increasing 0.2 every few weeks or so.

Keep an eye out on your AHI, during your changes, sometimes managing aerophagia and AHI means walking a thin line between optimum therapy.

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Re: pressure range questions

Post by robysue1 » Sat Oct 15, 2022 2:30 pm

Dog Slobber wrote:
Sat Oct 15, 2022 11:33 am
lynninnj wrote:
Sat Oct 15, 2022 10:03 am
That was just a part of why I wanted to knock the pressures down a bit though. Nothing radical going from 7 to 6.8.
With APAP, lowering your minimum pressure isn't going to lower your effective pressure. The machine will go where it wants to. In fact, lowering your pressure my result in higher pressure peaks and averages, as the machine compensates for getting a late start on events and pressure changing triggers.

If you want to curb the effects of Aerophagia you want to start throttling your maximum pressure.
It's not quite that simple. A lot of people with aerophagia are sensitive to the overall pressure---i.e. the median pressure for the night may be more important than whether you hit your max pressure.

Here is a scenario to illustrate what I mean: If you are running in a range like 7-15 and your 95% pressure is 14, cutting your max pressure setting from 15 to 13 or 14 is not likely to do much in terms of affecting the aerophagia, particularly if your median pressure for the night is around 10 or 11 cm.

Whether cutting the minimum pressure to 6 (with or without a reduction in max pressure) will help the aerophagia is an open question: It might or it might not. If it does help the aerophagia, the question then becomes, "At what cost?" Does the number of OAs and Hs go way up? Do you start snoring again? Do you start having more flow limitations? If any of those things happen and the machine is starting to "chase" events, then lowering that minimum pressure could actually increase the median pressure for the night. But if 6cm is actually enough to keep things under control for the most part, then it's just possible that lowering the min pressure will keep the aerophagia under control.

Another thing to keep in mind is that for some people, the trigger for aerophagia is rapid pressure increases. In this case that original 7-15 range may need to be tightened on both ends: It could be that using 8-13 might be better than either 7-14 or 6-15.
A good starting point is to make a note of the days where your Aerophagia is worse than usual, and then set your max pressure to a little less than your maximum, for that night. Wait a couple days and see how it goes. If the Aerophagia continues, lower it 0.2. Repeat until you find the point where you find your tolerance point.
If maximum pressure is the culprit this approach can work.

But if median pressure is the culprit, then this may not work.
Keep your max pressure there, but feel free to test out if you've acclimated by increasing 0.2 every few weeks or so.
There's no need to increase the pressure by 0.2 every few weeks if the current pressure range is controlling your apnea and you are sleeping well and waking up feeling rested and refreshed.

Keep an eye out on your AHI, during your changes, sometimes managing aerophagia and AHI means walking a thin line between optimum therapy.
This is the key idea when you have serious aerophagia issues.

My own battle with aerophagia when I was a newbie was intense and prolonged. I was first prescribed CPAP @ 9cm and I was using Resmed S9 APAP in CPAP mode with EPR = 3. And while I was no longer snoring and my AHI was consistently below 1.0, I was waking up to a basketball of air in my stomach multiple times a night.

Changing to Auto mode with a range of 4-9 (with EPR = 3) did nothing to help with my aerophagia and my 95% pressure was about 8cm. But there was still no snoring and my AHI was still quite low. Changing to a range of 4-8 (with EPR =3) did nothing to help my aerophagia. Changing to 4-7 helped some with alleviating the worst of the painful aerophagia, but my AHI started to creep up. And I still wasn't sleeping particularly well because of numerous aerophagia-caused wakes plus assorted other issues.

After several months of misery, I was switched to a PR System One BiPAP Auto running in fixed BiPAP mode with IPAP = 8 and EPAP = 6. Breathing was more comfortable with the bilevel machine and my AHI once again was consistently below 1.5-2.0. But my aerophagia problems with PAP continued, and a couple of months later I was re-titrated in a lab setting to settings of 7/4. Using this setting at home completely eliminated the aerophagia problems, but the AHI crept up and I would snore on some nights.

So I was switched to BiPAP Auto mode with min EPAP = 4, max IPAP = 9, max PS = 5, and min PS =2, and that's pretty much did the trick for keeping my aerophagia at bay. (With my Dreamstation, I've also increased min PS = 3.) My 95% IPAP = 9 almost every night; my 95% EPAP is almost always between 4 and 4.5, unless it's allergy season or I'm coming down with something. (Both of these things trigger more snoring, more overall restlessness, more bad sleep, and, yes, more OAs, more Hs, and more CAs being scored.)

Flow limitations can make my PR Dreamstation sit at IPAP = 9 for long periods of time. And I've occasionally played with the max IPAP settings to see if reducing the flow limitations would lead to better sleep. But whenever I've increased max IPAP above 9, the aerophagia comes back and the flow limitations don't seem to be any better. I even did a short lived experiment once of setting max IPAP to something like 13 in an effort to see where the machine wanted to go, and flow limitations zoomed it right up to 13 and I woke up with aerophagia like I had not had since the dark old days of my horrible PAP beginnings. I've learned one lesson the hard way: IPAP pressures above 9cm don't play well with my stomach and IPAP pressures above 9cm don't make any real difference in my AHI or snoring as compared to IPAP pressures in the 8-9cm range.

On the other end of things, snoring is used to increase EPAP pressure on a PR Dreamstation BiPAP. And I still have occasional nights where I snore. And when my EPAP used to max out at 7cm (when my min PS = 2 on the System One) for any length of time, I would definitely feel the aerophagia the next morning. Nowadays, with min PS = 3 and max IPAP = 9, my max EPAP = 6 and I really don't have any aerophagia issues, except on those rare nights when I'm doing a lot of snoring and my EPAP maxes out at 6cm for long periods of time. In other words, on those very rare nights where my 95% EPAP = 5.5-6.0, I usually have some (usually mild) aerophagia, and if my median EPAP is above 5.5, the the aerophagia is worse. So I've concluded that EPAP pressures above 5.5cm don't play well with my stomach.

It's clear that sometimes max EPAP = 6 is not enough to stop all the snoring. And it's clear max IPAP = 9 doesn't eliminate all my flow limitations. But my current settings do a decent enough job on most nights and I'm sleeping well, so I'm happy to trade off typical AHIs in the 1.5-3.0 range, with the occasional night with an AHI > 4.0 and the occasional night where hubby says I snored for little or no aerophagia problems.
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Re: pressure range questions

Post by robysue1 » Sat Oct 15, 2022 2:37 pm

lynninnj wrote:
Sat Oct 15, 2022 11:28 am
I believe I am not a burper. 🤓 Does it tend to have a different odor than normal? (sorry if it’s too many questions or too weird and personal)
I'm not a burper either. And there are times that I really wish I could burp.

As for odor: It's not any smellier than usual. Of course, how smelly a given fart is depends on what I've eaten in the last 24 hours. Onions will pretty much guarantee that I'll let loose some silent stinkers as me and my husband refer to them. (He does silent stinkers too.)

If anything, the odor might be a bit less than usual since it's just air rather than gas produced by the digestive system.
I have several other things going on, including a lack of gallbladder, so I just don’t know what’s causing what but I think I’m going to try to keep the pressure settings where they are at for now and just see what happens after a few days. If my body responds well enough to that, then my plan will have worked.
One thing that is worth noting about battling aerophagia: You do need to try to resist changing the pressure settings all the time---it can take several nights to acclimate to the new settings and figure out what's really going on.

That said: Since you have other issues going on that might be contributing to the aerophagia/pressure/gas issues, it's well worth having those other things checked out and as part of that, having a frank talk with the doctor (or PA or nurse practitioner) about whether those other issues can cause you to swallow air in your sleep.
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Re: pressure range questions

Post by palerider » Sat Oct 15, 2022 3:21 pm

Pugsy wrote:
Sat Oct 15, 2022 9:44 am
lynninnj wrote:
Sat Oct 15, 2022 9:33 am
There was discussion on another thread about how CA may get worse with higher pressures (can someone confirm?).
Well yeah...with SOME PEOPLE higher pressures can trigger centrals but I have seen people develop too many centrals with as little as 5 cm cpap pressure. Just because something CAN potentially happen to SOME people doesn't mean that it will happen to anyone.
You *MAY* get struck by lightning while out walking your dog too. But that's not certain, or likely either. :D

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Re: pressure range questions

Post by Pugsy » Sat Oct 15, 2022 3:29 pm

palerider wrote:
Sat Oct 15, 2022 3:21 pm
You *MAY* get struck by lightning while out walking your dog too. But that's not certain, or likely either. :D
Yeah, you "may" have something not so great happen but again maybe nothing will happen.

My stepson tripped over his own 2 feet walking across the break room at work...fell and broke his neck right on the spot and died immediately.
So just plain walking is also "dangerous" depending on how you look at it.
How many people decide to stop walking because it "might" be dangerous??

Me....Shrugs and moves on. I don't see any sense in worrying about something I don't or won't have any control over. I got too much other stuff that I have no choice about worrying over.

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Re: pressure range questions

Post by palerider » Sat Oct 15, 2022 3:34 pm

Pugsy wrote:
Sat Oct 15, 2022 3:29 pm
palerider wrote:
Sat Oct 15, 2022 3:21 pm
You *MAY* get struck by lightning while out walking your dog too. But that's not certain, or likely either. :D
Yeah, you "may" have something not so great happen but again maybe nothing will happen.

My stepson tripped over his own 2 feet walking across the break room at work...fell and broke his neck right on the spot and died immediately.
So just plain walking is also "dangerous" depending on how you look at it.
How many people decide to stop walking because it "might" be dangerous??

Me....Shrugs and moves on. I don't see any sense in worrying about something I don't or won't have any control over. I got too much other stuff that I have no choice about worrying over.
No kidding.

That's what I hate about the ignorant people scaremongering "zomygod it might cause a :gasp: central apnea" [insert scary music].

Yeah yeah, hold your breath for 10 seconds, feel any effects? congratulations, you just had a central apnea... move along.

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Re: pressure range questions

Post by lynninnj » Sat Oct 15, 2022 4:06 pm

Dog Slobber wrote:
Sat Oct 15, 2022 11:33 am
lynninnj wrote:
Sat Oct 15, 2022 10:03 am
That was just a part of why I wanted to knock the pressures down a bit though. Nothing radical going from 7 to 6.8.
With APAP, lowering your minimum pressure isn't going to lower your effective pressure. The machine will go where it wants to. In fact, lowering your pressure my result in higher pressure peaks and averages, as the machine compensates for getting a late start on events and pressure changing triggers.

If you want to curb the effects of Aerophagia you want to start throttling your maximum pressure.

A good starting point is to make a note of the days where your Aerophagia is worse than usual, and then set your max pressure to a little less than your maximum, for that night. Wait a couple days and see how it goes. If the Aerophagia continues, lower it 0.2. Repeat until you find the point where you find your tolerance point.

Keep your max pressure there, but feel free to test out if you've acclimated by increasing 0.2 every few weeks or so.

Keep an eye out on your AHI, during your changes, sometimes managing aerophagia and AHI means walking a thin line between optimum therapy.
If you get a chance give the trend chart a look? (sorry if you already have). Hovering over a day shows pressure low, median and 95%. I am not at pressures that are causing a great deal of fluctuations.I am hovering just above the median most day so I wanted to give it a go.

I also don’t know if I am experiencing aerophagia or just plain gassy. (sorry if it’s tmi) Just feeling like a sailor some days and it can sometimes be inconvenient.

I heard you though.

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Re: pressure range questions

Post by robysue1 » Sat Oct 15, 2022 4:10 pm

palerider wrote:
Sat Oct 15, 2022 3:21 pm
Pugsy wrote:
Sat Oct 15, 2022 9:44 am
lynninnj wrote:
Sat Oct 15, 2022 9:33 am
There was discussion on another thread about how CA may get worse with higher pressures (can someone confirm?).
Well yeah...with SOME PEOPLE higher pressures can trigger centrals but I have seen people develop too many centrals with as little as 5 cm cpap pressure. Just because something CAN potentially happen to SOME people doesn't mean that it will happen to anyone.
You *MAY* get struck by lightning while out walking your dog too. But that's not certain, or likely either. :D
People are notoriously bad at evaluating risk.

People overestimate the real risk of all kinds of things, including the risk of developing a real problem with central apnea while on PAP.

People underestimate the real risk of all kinds of things, including the chance of sustaining a serious injury at home or getting into a car crash.

And it seems to me that there is a great deal of psychology at work when we're estimating/evaluating risk as well as those mysterious culprits mathematics and statistics.

People vastly under estimate the risk involved in doing all kinds of everyday activities because we all tend to believe in our own ability to control events in our daily lives, even if we don't actually have as much control as we think---particularly when it comes to things like car crashes: We're a great driver (or so we tell ourselves) and so we'll be able to avoid getting into a car crash. And we know that excess fear of things like car crashes and being run over while walking etc. make it hard to actually have a life. So most of us are happy to discount the real risk and just get on with our lives until/unless something really bad happens to us or one of our family members. And even if we claim not to, we act like we believe in luck and karma, and we all want to believe freakish bad things (that are not really all that rare) only happen to those who deserve them.

And people fear things they don't think they can control, and that often leads to overestimating the risk involved. That's why we have newbies who get frightened about the possibility of developing central sleep apnea when put on PAP: They've read or heard that it happens to some people, but the actual numbers (and hence the real rarity) of such cases don't make much of an impact because newbies in particular feel like everything concerning the treatment of their OSA is somehow out of their control. So they develop an unhealthy and unrealistic fear that they may be one of the unlucky ones this happens to simply because everything seems so out of their own control.

I remember that feeling that everything was out of my control all too well from my absolutely horrible adjustment to PAP. I just couldn't quite wrap my head around why I a 5'1" shrimp of a woman weighing all of 105 pounds would develop OSA and I just couldn't quite wrap my head around why I, as someone who was working so darn hard at making this crazy therapy work, was feeling far more fatigued and far more sleepy in the daytime on CPAP than I had ever felt before CPAP. My crash-and-burn was real, but it was also a wild outlier in terms of experience, and the fact I was an outlier was not handled very well by my first 3 sleep doctors, all of whom were convinced that my whole problem was that I "knew" too much and "cared" too much about my own data. That if I would have just chilled out and not thought about the data, I would have responded the way they expected and I would have been sleeping well at night and bouncing around happy and glad during the daytime after just a few nights of PAPing. (Yeah, right.)
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Re: pressure range questions

Post by robysue1 » Sat Oct 15, 2022 4:20 pm

lynninnj wrote:
Sat Oct 15, 2022 4:06 pm
If you get a chance give the trend chart a look? (sorry if you already have).
Can you post a link rather than make me hunt for it?
Hovering over a day shows pressure low, median and 95%. I am not at pressures that are causing a great deal of fluctuations.I am hovering just above the median most day so I wanted to give it a go.
What I mean by a great deal of fluctuation is whether or not the machine is regularly doing 4 or 5 cm (or more) pressure increases in a very short period of time.

Some people's stomachs are more sensitive to several pressure increases from, say 7.5 cm to 11.5 cm during the night than they would be to running with a pressure range of 9.5-11.5, where the maximum pressure increase is only 2 cm.
I also don’t know if I am experiencing aerophagia or just plain gassy. (sorry if it’s tmi) Just feeling like a sailor some days and it can sometimes be inconvenient.

I heard you though.
Well we can't tell you for sure what you're experiencing.

But here are some things to ponder that may help you tease out what you are experiencing:

1) Do you ever wake up in the middle of the night feeling like you've swallowed a lot of air?

2) Do you ever have a visually swollen or a rock-hard stomach when you first wake up in the morning before you eat or drink anything?

3) Does the feeling get better the longer you are awake?

4) Do some foods aggravate the problem?

5) Does eating seem to trigger the problem?

6) Does the problem get worse a few hours after you eat?

Answering yes to Questions 1--3 would point to aerophagia.

Answering yes to Questions 4--6 would point to some kind of digestive track problem.

It's quite possible to have both aerophagia and a digestive track problem at the same time. Indeed, people who have known problems with things like acid reflux often also have problems with aerophagia once they start PAP.
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Re: pressure range questions

Post by lynninnj » Sat Oct 15, 2022 4:30 pm

robysue1 wrote:
Sat Oct 15, 2022 4:20 pm
lynninnj wrote:
Sat Oct 15, 2022 4:06 pm
If you get a chance give the trend chart a look? (sorry if you already have).
Can you post a link rather than make me hunt for it?
Hovering over a day shows pressure low, median and 95%. I am not at pressures that are causing a great deal of fluctuations.I am hovering just above the median most day so I wanted to give it a go.
What I mean by a great deal of fluctuation is whether or not the machine is regularly doing 4 or 5 cm (or more) pressure increases in a very short period of time.

Some people's stomachs are more sensitive to several pressure increases from, say 7.5 cm to 11.5 cm during the night than they would be to running with a pressure range of 9.5-11.5, where the maximum pressure increase is only 2 cm.
I also don’t know if I am experiencing aerophagia or just plain gassy. (sorry if it’s tmi) Just feeling like a sailor some days and it can sometimes be inconvenient.

I heard you though.
Well we can't tell you for sure what you're experiencing.

But here are some things to ponder that may help you tease out what you are experiencing:

1) Do you ever wake up in the middle of the night feeling like you've swallowed a lot of air?

2) Do you ever have a visually swollen or a rock-hard stomach when you first wake up in the morning before you eat or drink anything?

3) Does the feeling get better the longer you are awake?

4) Do some foods aggravate the problem?

5) Does eating seem to trigger the problem?

6) Does the problem get worse a few hours after you eat?

Answering yes to Questions 1--3 would point to aerophagia.

Answering yes to Questions 4--6 would point to some kind of digestive track problem.

It's quite possible to have both aerophagia and a digestive track problem at the same time. Indeed, people who have known problems with things like acid reflux often also have problems with aerophagia once they start PAP.
I will repost link to trends that I posted when bumping my thread again. If you hover over a day or section it gives much data. https://sleephq.com/public/1d534cec-190 ... beb2c73b32

1) no
2) maybe a little?
3) farting always feels better so yes (tmi)

4, 5, 6 were all occasionally present from time to time likely due to gall bladder issue. But since cpap I feel like a gas monster and wonder if it’s related.

And so.. I feel no shame in asking or admitting I don’t know.

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Re: pressure range questions

Post by palerider » Sat Oct 15, 2022 4:58 pm

robysue1 wrote:
Sat Oct 15, 2022 4:10 pm
We're a great driver (or so we tell ourselves) and so we'll be able to avoid getting into a car crash.
Statistically speaking, 95% of drivers think their driving skills are above average... :D

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Re: pressure range questions

Post by robysue1 » Sat Oct 15, 2022 7:15 pm

palerider wrote:
Sat Oct 15, 2022 4:58 pm
robysue1 wrote:
Sat Oct 15, 2022 4:10 pm
We're a great driver (or so we tell ourselves) and so we'll be able to avoid getting into a car crash.
Statistically speaking, 95% of drivers think their driving skills are above average... :D
I would think that statistically speaking 95% of drivers think their driving skills are way above average.

And most of those drivers are wrong.
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Re: pressure range questions

Post by robysue1 » Sat Oct 15, 2022 7:18 pm

lynninnj wrote:
Sat Oct 15, 2022 4:30 pm
robysue1 wrote:
Sat Oct 15, 2022 4:20 pm
lynninnj wrote:
Sat Oct 15, 2022 4:06 pm
If you get a chance give the trend chart a look? (sorry if you already have).
Can you post a link rather than make me hunt for it?
Hovering over a day shows pressure low, median and 95%. I am not at pressures that are causing a great deal of fluctuations.I am hovering just above the median most day so I wanted to give it a go.
What I mean by a great deal of fluctuation is whether or not the machine is regularly doing 4 or 5 cm (or more) pressure increases in a very short period of time.

Some people's stomachs are more sensitive to several pressure increases from, say 7.5 cm to 11.5 cm during the night than they would be to running with a pressure range of 9.5-11.5, where the maximum pressure increase is only 2 cm.
I also don’t know if I am experiencing aerophagia or just plain gassy. (sorry if it’s tmi) Just feeling like a sailor some days and it can sometimes be inconvenient.

I heard you though.
Well we can't tell you for sure what you're experiencing.

But here are some things to ponder that may help you tease out what you are experiencing:

1) Do you ever wake up in the middle of the night feeling like you've swallowed a lot of air?

2) Do you ever have a visually swollen or a rock-hard stomach when you first wake up in the morning before you eat or drink anything?

3) Does the feeling get better the longer you are awake?

4) Do some foods aggravate the problem?

5) Does eating seem to trigger the problem?

6) Does the problem get worse a few hours after you eat?

Answering yes to Questions 1--3 would point to aerophagia.

Answering yes to Questions 4--6 would point to some kind of digestive track problem.

It's quite possible to have both aerophagia and a digestive track problem at the same time. Indeed, people who have known problems with things like acid reflux often also have problems with aerophagia once they start PAP.
I will repost link to trends that I posted when bumping my thread again. If you hover over a day or section it gives much data. https://sleephq.com/public/1d534cec-190 ... beb2c73b32

1) no
2) maybe a little?
3) farting always feels better so yes (tmi)

4, 5, 6 were all occasionally present from time to time likely due to gall bladder issue. But since cpap I feel like a gas monster and wonder if it’s related.

And so.. I feel no shame in asking or admitting I don’t know.
If the problem has gotten a whole lot worse since starting cpap, you may very well be having some aerophagia.

The questions are:

Is the aerophagia causing you to wake up at night?

How much do the daytime symptoms bother you? Is it just embarrassing to fart a lot, or do you actually feel like it's a real issue because you're feeling bloated?
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lynninnj
Posts: 1324
Joined: Mon Jul 25, 2022 8:56 am

Re: pressure range questions

Post by lynninnj » Sat Oct 15, 2022 7:33 pm

At the risk of not being very ladylike throughout this conversation I feel a bit like it’s not horrible but in a professional setting it’s never a good thing.

I appreciate the insights thus far and will continue the experiment a bit longer, barring any negative impacts.

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