100% compliant to CPAP, still tired, can I do something ?

[jaw]

It still feels as if you're hoping a 'Cpap' fix will change everything, but if hepatitis IS the problem, Cpap may help, but not fix it, and the sooner you know the result of the lab, the sooner you can intelligently address things. I'm sure no one wants to have hepatitis or have to deal with it, but at least knowing the bottom line can free you to know where to go ahead, and if you don't have it, then you can start crossing off cpap answers one by one properly, addressing features one by one for a short time til something makes sense.

Thanks, but as I have said "I remember that my doctors did confirm that I have chronic Hepatitis B, but that should not give me any symptoms. No treatment plan is needed, although a half-year check is necessary to see how it develops. They think that I might have had Hepatitis B since birth"

As a chronic H-B patient, my liver does not get worse easily, because I've been having that since so long (probably at birth).

Several blood tests were done, the last blood test was 2 months ago: at that time the doctor saw only one parameter that does not look so good, he combined with another echo last year showing that I have fat on my liver, he suggested me to eat less fat and come back in August to make another blood test.

[Julie]

"but that should not give me any symptoms".... maybe, but then every day someone here complains about their doctor telling them to lose weight and all will go away apnea-wise. Or something like that. Hepatitis (of any kind) is well known to make you tired, so possibly you need a referral to another doctor. And I would want to investigate how to live with it beyond a diet you find on this site (well intentioned though it/they may be).

I know I've been quite a pest about this, but it seems a shame for you to not find answers... and I have no idea if anything I said is remotely an answer, so I'll stop responding now but will follow and see how things go... I do hope you get good answers!

[Sonnyboy]

A doctor telling a patient with Chronic Hepatitis B that moderate alcohol consumption is ok makes as much sense to me as a doctor telling a patient they do not need to use Cpap every night. You need to fire that doctor and find a new one. Consider making an appointment with a hepatologist [liver specialist] or gastroenterologist familiar with Hepatitis B.

This appointment is in addition to any doctor you see regarding OSA. You have two serious medical problems.

[DeadlySleep]

A doctor telling a patient with Chronic Hepatitis B that moderate alcohol consumption is ok makes as much sense to me as a doctor telling a patient they do not need to use Cpap every night.

You are quite an aggravating person, but sigh, I must admit you are correct. Even an inactive carrier of hepatitis B should totally avoid consumption of alcohol.

Sorry, Jaw, maybe in the next life you will get your fill.

[Sonnyboy]

A doctor telling a patient with Chronic Hepatitis B that moderate alcohol consumption is ok makes as much sense to me as a doctor telling a patient they do not need to use Cpap every night.

You are quite an aggravating person, but sigh, I must admit you are correct. Even an inactive carrier of hepatitis B should totally avoid consumption of alcohol.

Sorry, Jaw, maybe in the next life you will get your fill.

I apologize for the aggravation.

We do not know that jaw's Hepatitis B concerns are limited to being an active or inactive carrier.

I am speaking from personal experience. I contracted Hepatitis B in the early 70's as a young adult. My doctor questioned me each visit about alcohol use, prescribed medications, over the counter medications, illegal drug use and yes it is aggravating particularly when you keep telling your doctor the answer is no. The other two main concerns - diet and avoiding transmission of the virus to others.

I experienced every symptom--Fever, Fatigue. Loss of appetite, Nausea, Vomiting, Dark urine, Clay-colored bowel movements and Jaundice. I reached a point where I could barely get out of bed to prepare a simple meal or go to the store for food. I'm very lucky. My virus was acute, left my body, and my liver healed. I attribute my healing to a very good doctor who taught me what I needed to know to heal and to not transmit the virus during the infectious stage. I attribute acquiring the virus to lack of education and knowledge regarding transmission.

jaw's situation is not the same, his disease is chronic, acquired at birth, and without current symptoms. You do not wait for symptoms to appear before you start learning about your disease. There are some simple things he can do to protect his liver and one is avoid alcohol.

The early 70's was pre Hepatitis B vaccine, pre Hepatitis medications, and pre blood borne pathogen protocol. We know a lot more about hepatitis B now, yet jaw is 38, apparently contracted the virus at birth but is only learning about it now. The only reason I posted in his thread is because I saw his doctor told him he could drink alcohol and I know this is harmful to him. With healthy habits, knowledgeable doctor follow-up and education jaw can help himself lead a healthy life.

https://www.cdc.gov/nchhstp/newsroom/do ... cancer.pdf

Per CDC:
"Screening and vaccinating individuals at high risk for
hepatitis B is also critical. Like hepatitis C, most people
living with hepatitis B are not aware of their infection,
but detection and treatment can prevent serious liver
damage, including reducing liver cancer risk between
50 percent and 80 percent. Hepatitis B vaccination, now
part of the standard infant vaccine schedule, is also safe
and highly effective.

[jaw]

Thank you all for your valuable inputs.

I've visted my family doctor yesterday, and have the blood test this morning about
- the shortage of Vitamine B12, D and someother B (6, 2 ???)
- whether my renal function (something with creatinine) work well
and some other things (I forgot taking a photocopy of that request before giving it to the person who took my blood. How stupid I was).

My family doctor yesterday read the report from another hospital doctor who are responsible for my Hepatitis B. The report says: "Not much Hepatitis-B viral activities".

My family doctor still thinks that "a glass of wine per day is OK" <--- Is there some difference in belief between America and Europe ?

Thanks

[jaw]

My father has died young of liver cancer. But he lives in a country full of polution in food and air (while I later moved to the Netherlands). I don't know if I should think that there's a high chance that I would have liver cancer.

[Julie]

Any alcohol will make hepatitis worse... maybe not in the first month, maybe not so much that you can feel a difference quickly, but over time it makes a difference and together with your OSA is not doing you any favors for living a long or good life. When things happen slowly, though very possibly suddenly end in a crisis (no warning) you don't necessarily feel a difference, but it doesn't mean it (alcohol or anything else bad for you) isn't affecting you. Europe may have a longer history of drinking wine with (more) meals than the US, but it doesn't mean it's 'OK', not for people who have problems with it (and a bad family history). You didn't say how much your father drank in his life, but liver cancer is pretty rare except in people with a history of too much alcohol.

[Eddie Fasolino]

My family doctor still thinks that "a glass of wine per day is OK" <--- Is there some difference in belief between America and Europe ?

You are not talking to medical professionals in this forum. You are talking to people who have little to no science background. You get stupid statements like this:

Any alcohol will make hepatitis worse

To these people, a toxin is a toxin. They don't understand that the dose makes the poison.

Follow your doctor's advice and have that daily glass of wine.

[Julie]

FWIW - worked my entire life in teaching hospitals for neurologists as well as other specialists, including an endocrinologist (who knew something about livers!).

Why don't YOU do some research jackass before posting stupid notes?

[Sonnyboy]

My father has died young of liver cancer. But he lives in a country full of polution in food and air (while I later moved to the Netherlands). I don't know if I should think that there's a high chance that I would have liver cancer.

Do you know if your father was ever tested for Hepatitis B?

A good thing you can be doing for yourself is to be learning all you can about Chronic Hepatitis B. It's chronic - not going anywhere - might as well learn about it. When you see your doctors start asking the names of the specific tests they are checking, why they are checking, and then what the results are. Get copies of the test results. When you become informed about your illness you will be able to make your own decision on whether or not it is ok for you to drink alcohol.

http://www.hepb.org/pdf/understanding_blood_tests.pdf

It's great that your doctor is testing vitamin levels in relation to your fatigue. Let us know what you find out.
Get copies of the results for your records.

Are you checking Sleepyhead? How are your treatments going? Were you able to check flow limitations like Pugsy suggested?

[jaw]

Flow limitation ? I can only see events there (hyponea, snore, apnea), then I have about 10 - 30 total events per night.



My father was never tested for Hepatitis B, but people in Asia are supposed to have it much more than the west.

My father also had not drunken much alcohol, as I said when cancer in Vietnam is suddenly increased at the rate of 10 times, we tend to think it is due to e polluted air and food that we are using. Vietnam is as polluted as China.

[jaw]

I tend to think there is a correlation between how fatigue my brain is in the morning and the room I used for sleeping.

Symptoms: foggy brain, brain with low processing speed, feeling of something is grabbing around my head especially the back part.

Good room: 13m2, windows half opened and room door opened, CPAP machine lies at an altitude 30cm higher than my head, at a spacious area. Bed size is 180 cm x 200 cm

Bad room: 8m2, windows half opened, room door opened, CPAP machine has two options: either (1) at a spacious area but 80cm higher than my head or (2) in a narrow and less ventilated area but only 15 cm higher. than my head. Bed size is 90cm x 200 cm

Both options in the bad room cause stronger negative symptoms to my head than the good room. Talking about grades: my pre CPAP morning foggieness was 10 / 10, with bad room: 7 / 10, with good room 5 / 10 (lower is better). With both rooms I sleep on my back.

My rooms are small, but it is the Netherlands where 400 persons share 1 km2

[jaw]

Good room: 13m2, windows half opened and room door opened, CPAP machine lies at an altitude 30cm higher than my head, at a spacious area. Bed size is 180 cm x 200 cm

I must say that I feel great today, thanks to the good room that I slept in yesterday.

[palerider]

Good room: 13m2, windows half opened and room door opened, CPAP machine lies at an altitude 30cm higher than my head, at a spacious area. Bed size is 180 cm x 200 cm

I must say that I feel great today, thanks to the good room that I slept in yesterday.

how very fung shui