It's been a well known fact among family and friends for several years that with all Mike's medical issues it's been my advocacy(obsession) that has kept him going this long and I'm still not giving up until I know for sure that's what he wants. But I have to admit that with each setback my resolve is getting weaker by the day. Thank you all for sticking with me through this long ordeal. It means a lot to me.Julie wrote:"Mike needs you now more than ever, without you he would never make it."
Nan I know you mean well, but I think that's a bit much to put on Dori! Unfair. And certainly unknown.
OT: Mike & I have Pneumonia!
Re: OT: Mike & I have Pneumonia!
_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Additional Comments: 14/8.4,PS=4, UMFF, 02@2L, |
"Do or Do Not-There Is No Try"-"Yoda"
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08
- chunkyfrog
- Posts: 34545
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nowhere special--this year in particular.
Re: OT: Mike & I have Pneumonia!
{{{{{HUG}}}}}
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Airsense 10 Autoset for Her |
Re: OT: Mike & I have Pneumonia!
Dori,
You and Mike are in my thoughts and prayers.
Robysue
You and Mike are in my thoughts and prayers.
Robysue
_________________
Machine: DreamStation BiPAP® Auto Machine |
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
Additional Comments: PR System DreamStation and Humidifier. Max IPAP = 9, Min EPAP=4, Rise time setting = 3, minPS = 3, maxPS=5 |
Re: OT: Mike & I have Pneumonia!
When Froggie is done hugging you it's my turn.
Love and prayers -- KG
Love and prayers -- KG
_________________
Machine: AirSense 10 AutoSet with Heated Humidifer + Aifit N30i Nasal Mask Bundle |
Additional Comments: SleepyHead-now-OSCAR software on Mac OSX Ventura |
Re: OT: Mike & I have Pneumonia!
Dori,
Your advocacy (obsession) is to be commended. This is love in its purest form & sometimes love does conqueror all. Hang in there & keep taking care of yourself too.
Lots of prayers & hugs being sent your way.
Jen
Your advocacy (obsession) is to be commended. This is love in its purest form & sometimes love does conqueror all. Hang in there & keep taking care of yourself too.
Lots of prayers & hugs being sent your way.
Jen
_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Pressure Auto 12-20cm CPAP compliant since 2000 |
Other masks I've tried: *=liked, #= no way
Piliaro, SleepWeaver Elan*, Swift FX w&w/o Bella Loops#, OpitLife#,Simplicity*, Mirage Vista*, Go Life for Her#, IQ (original hg only)*, Quattro FX (barely)###, Wisp*, Nuance#, Swift LT for her**
Piliaro, SleepWeaver Elan*, Swift FX w&w/o Bella Loops#, OpitLife#,Simplicity*, Mirage Vista*, Go Life for Her#, IQ (original hg only)*, Quattro FX (barely)###, Wisp*, Nuance#, Swift LT for her**
Re: OT: Mike & I have Pneumonia!
kaiasgram wrote:When Froggie is done hugging you it's my turn.
Love and prayers -- KG
My turn next.
_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: P: 6/10 |
If only the folks with sawdust for brains were as sweet and obliging and innocent as The Scarecrow! ~a friend~
Re: OT: Mike & I have Pneumonia!
(Hugs), Dori.
I pray for what is best for you AND for Mike.
I pray for what is best for you AND for Mike.
_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece |
Additional Comments: Sleepyhead software, not listed. Currently using Dreamstation ASV, not listed |
-- Kiralynx
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5
Re: OT: Mike & I have Pneumonia!
And then me.ems wrote:kaiasgram wrote:When Froggie is done hugging you it's my turn.
Love and prayers -- KG
My turn next.
Keeping you & Mike in my thoughts...
PR System One APAP, 10cm
Activa nasal mask + mouth taping w/ 3M micropore tape + Pap-cap + PADACHEEK + Pur-sleep
Hosehead since 31 July 2007, yippie!
Activa nasal mask + mouth taping w/ 3M micropore tape + Pap-cap + PADACHEEK + Pur-sleep
Hosehead since 31 July 2007, yippie!
- BlackSpinner
- Posts: 9742
- Joined: Sat Apr 25, 2009 5:44 pm
- Location: Edmonton Alberta
- Contact:
Re: OT: Mike & I have Pneumonia!
And me too.chunkyfrog wrote:{{{{{HUG}}}}}
_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Additional Comments: Quatro mask for colds & flus S8 elite for back up |
71. The lame can ride on horseback, the one-handed drive cattle. The deaf, fight and be useful. To be blind is better than to be burnt on the pyre. No one gets good from a corpse. The Havamal
Re: OT: Mike & I have Pneumonia!
Super, Duper, Mega --
{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}
{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}
_________________
Mask: FlexiFit HC431 Full Face CPAP Mask with Headgear |
Humidifier: HC150 Heated Humidifier With Hose, 2 Chambers and Stand |
Additional Comments: Trilogy 100. S/T AVAPS, IPAP 18-23, EPAP 10, BPM 7 |
Re: OT: Mike & I have Pneumonia!
Dori,
My heart goes out to you. And my eyes get a little wet when I read this thread. But a lot of that is because I feel I'm reading a love story for the ages created by your actions and intentions and thoughts that you continue to do us the honor of sharing with us. I hope you truly feel the respect and love sent your way from people who feel a little frustrated that we haven't had the privilege of meeting you in person yet.
I hope you are able to treasure every little thing that you are able to do for him without concentrating on those human limitations of what any of us are able to do for each other in difficult times. I am sure that what Mike wants most right now is for you, the love of his life, to be taking good care of yourself--eating, hydrating, resting, sleeping to the best of your ability. Of course he understands that there are limitations to what you can do, no matter how much he continues to enjoy and appreciate it when you can be there. It isn't a matter of giving up or not giving up; it's about feeling good about doing what you can without overdoing. For Mike's sake. For your sake. For our sake.
My heart goes out to you. And my eyes get a little wet when I read this thread. But a lot of that is because I feel I'm reading a love story for the ages created by your actions and intentions and thoughts that you continue to do us the honor of sharing with us. I hope you truly feel the respect and love sent your way from people who feel a little frustrated that we haven't had the privilege of meeting you in person yet.
I hope you are able to treasure every little thing that you are able to do for him without concentrating on those human limitations of what any of us are able to do for each other in difficult times. I am sure that what Mike wants most right now is for you, the love of his life, to be taking good care of yourself--eating, hydrating, resting, sleeping to the best of your ability. Of course he understands that there are limitations to what you can do, no matter how much he continues to enjoy and appreciate it when you can be there. It isn't a matter of giving up or not giving up; it's about feeling good about doing what you can without overdoing. For Mike's sake. For your sake. For our sake.
Re: OT: Mike & I have Pneumonia!
Dori, these decisions are far beyond our control.DoriC wrote:Julie wrote: It's been a well known fact among family and friends for several years that with all Mike's medical issues it's been my advocacy(obsession) that has kept him going this long and I'm still not giving up until I know for sure that's what he wants. But I have to admit that with each setback my resolve is getting weaker by the day. Thank you all for sticking with me through this long ordeal. It means a lot to me.
Ours is to do what we think is right, to the best of our abilities.
You know you have done what you thought was right,
to the best of your abilities.
After that, it is by the will and grace of God what happens.
Watching your family make the transition from this physical world
into the light of the Universe is brutal.
I tried w/all my being to stop it and could not.
No one can.
I live today in the peace that I did.....
everything I could....to the best of my abilities.
It is my path to walk....I do so w/no regrets.
I know in my heart...you will, too.
Prayers for strength, guidance and peace.
I'll see you on the road.
"If your therapy is improving your health but you're not doing anything
to see or feel those changes, you'll never know what you're capable of."
I said that.
to see or feel those changes, you'll never know what you're capable of."
I said that.
- Sir NoddinOff
- Posts: 4190
- Joined: Mon May 14, 2012 5:30 pm
- Location: California
Re: OT: Mike & I have Pneumonia!
That's what being human is all about. Here's some of King Solomon's wisdom:DoriC wrote: But I have to admit that with each setback my resolve is getting weaker by the day. Thank you all for sticking with me through this long ordeal. It means a lot to me.
To everything there is a season, a time for every purpose under heaven. – Ecclesiastes 3:1 NKJV
Also amplifying that idea, a popular pop band of the sixties, The Byrds. Written by Pete Seegar. Anybody who wants to listen to this moving song, one of the best pop songs ever written can do so here. My wife's church plays it quite often:
https://www.youtube.com/watch?v=W4ga_M5Zdn4
Lyrics: Turn! Turn! Turn! The Byrds.
To everything, turn, turn, turn.
There is a season, turn, turn, turn.
And a time to every purpose under heaven.
A time to be born, a time to die.
A time to plant, a time to reap.
A time to kill, a time to heal.
A time to laugh, a time to weep.
To everything, turn, turn, turn.
There is a season, turn, turn, turn.
And a time to every purpose under heaven.
A time to build up, a time to break down.
A time to dance, a time to mourn.
A time to cast away stones.
A time to gather stones together.
To everything, turn, turn, turn.
There is a season, turn, turn, turn.
And a time to every purpose under heaven.
A time of love, a time of hate.
A time of war, a time of peace.
A time you may embrace.
A time to refrain from embracing.
To everything, turn, turn, turn.
There is a season, turn, turn, turn.
And a time to every purpose under heaven.
A time to gain, a time to lose.
A time to rend, a time to sow.
A time for love, a time for hate.
A time for peace, I swear it's not too late.
Songwriters: WORDS FROM THE BOOK OF, ECCLESIASTES FRENCH, GEORGE ABER ADAPTATION AND, PETE SEEGER
_________________
Mask: AirFit™ F10 Full Face Mask with Headgear |
Additional Comments: Sleepyhead software v.0.9.8.1 Open GL and Encore Pro v2.2. |
I like my ResMed AirFit F10 FFM - reasonably low leaks for my ASV therapy. I'm currently using a PR S1 AutoSV 960P Advanced. I also keep a ResMed S9 Adapt as backup. I use a heated Hibernite hose. Still rockin' with Win 7 by using GWX to stop Win 10.
- Pad A Cheek
- Posts: 836
- Joined: Sat Oct 22, 2005 3:40 pm
- Location: Virginia, In the shadow of the Blue Ridge Mountains
- Contact:
Re: OT: Mike & I have Pneumonia!
Dori,
The love that you show and the love that you share is amazing. I want to reflect that warm feeling of caring and concern back to you and Mike during your journey. Please know that you are in my prayers and will be along the way.
Take care of yourself,
With Love.
Karen
The love that you show and the love that you share is amazing. I want to reflect that warm feeling of caring and concern back to you and Mike during your journey. Please know that you are in my prayers and will be along the way.
Take care of yourself,
With Love.
Karen
_________________
Machine: DreamStation Auto CPAP Machine |
Additional Comments: This CPAP stuff at night makes the days so much more productive |
And I think to myself...... What a Wonderful World
- BleepingBeauty
- Posts: 2454
- Joined: Thu Apr 02, 2009 5:30 pm
- Location: Aridzona ;-)
Re: OT: Mike & I have Pneumonia!
Dori, so sorry to read that you're still dealing with this, weeks later. I haven't been around and so haven't caught up on the thread yet, but you and Mike are still in my thoughts. I'm dealing with pneumonia, myself, right now, and wishing you both the best. I know too well how hard it is.


Veni, vidi, Velcro. I came, I saw, I stuck around.
Dx 11/07: AHI 107, central apnea, Cheyne Stokes respiration, moderate-severe O2 desats. (Simple OSA would be too easy.
)
PR S1 ASV 950, DreamWear mask, F&P 150 humidifier, O2 @ 2L.
Dx 11/07: AHI 107, central apnea, Cheyne Stokes respiration, moderate-severe O2 desats. (Simple OSA would be too easy.

PR S1 ASV 950, DreamWear mask, F&P 150 humidifier, O2 @ 2L.