OT: Mike & I have Pneumonia!
Re: OT: Mike & I have Pneumonia!
Just a quick update. I've gotten mostly everything squared away with the staff and they seem to be paying better attention to details. I've slipped some $$ to a few aides and it's paying off. Mike is improving a bit in strength but we're dealing with dysphagia now and is on pureed food and thickened liquids. They're worried about aspiration. He has a terrible cough which seemed a little better today.Some tests and xrays have been ordered. He'll be in rehab until 7/6 so I'm now arranging for home care which is a whole other ballgame. There's been some talk about hospice but I'm not there yet. I've made some good contacts so hopefully it will work out with home care. Thanks to all of you for keeping us in your prayers. You're such a great group!
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Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Additional Comments: 14/8.4,PS=4, UMFF, 02@2L, |
"Do or Do Not-There Is No Try"-"Yoda"
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08
Re: OT: Mike & I have Pneumonia!
I know this is difficult but we are praying for you and hope for the best for Mike.
Hugs.
James
Hugs.
James
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Mask: Oracle HC452 Oral CPAP Mask |
Humidifier: DreamStation Heated Humidifier |
Additional Comments: EverFlo Q 3.0 Liters O2 PR DSX900 ASV |
Oracle 452 Lessons Learned Updated
DSX900 AutoSV with HC150 extra humidifier and Hibernite heated hose
Settings: EPAP Min-10.0, EPAP Max-17, PS Min-3, PS Max-10, Max Pressure-20, Rate-Auto, Biflex-1.
Sleepyhead and Encore Pro 2.21.
DSX900 AutoSV with HC150 extra humidifier and Hibernite heated hose
Settings: EPAP Min-10.0, EPAP Max-17, PS Min-3, PS Max-10, Max Pressure-20, Rate-Auto, Biflex-1.
Sleepyhead and Encore Pro 2.21.
- Stormynights
- Posts: 2273
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- Location: Oklahoma
Re: OT: Mike & I have Pneumonia!
Thank you for the update.
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Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV |
Re: OT: Mike & I have Pneumonia!
Thank you for posting Dori. Like everyone else, I was hoping for better news.
My thoughts continue to be with you both.
My thoughts continue to be with you both.
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Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: P: 6/10 |
If only the folks with sawdust for brains were as sweet and obliging and innocent as The Scarecrow! ~a friend~
Re: OT: Mike & I have Pneumonia!
Dori,
I'm so sorry your news wasn't better, but I am still praying for you & Mike.
With love,
Jen
I'm so sorry your news wasn't better, but I am still praying for you & Mike.
With love,
Jen
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Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Pressure Auto 12-20cm CPAP compliant since 2000 |
Other masks I've tried: *=liked, #= no way
Piliaro, SleepWeaver Elan*, Swift FX w&w/o Bella Loops#, OpitLife#,Simplicity*, Mirage Vista*, Go Life for Her#, IQ (original hg only)*, Quattro FX (barely)###, Wisp*, Nuance#, Swift LT for her**
Piliaro, SleepWeaver Elan*, Swift FX w&w/o Bella Loops#, OpitLife#,Simplicity*, Mirage Vista*, Go Life for Her#, IQ (original hg only)*, Quattro FX (barely)###, Wisp*, Nuance#, Swift LT for her**
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Re: OT: Mike & I have Pneumonia!
I will take this as good news and being an optimist I will say that it looks like Mike has turned the corner... Still sending prayers and warm thoughts your way.
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Mask: Brevida™ Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Machine is an AirSense 10 AutoSet For Her with Heated Humidifier. |
SpO2 96+% and holding...
Re: OT: Mike & I have Pneumonia!
My prayers are with you and Mike, Dori, and hope that by the time he gets to come home, you will have gained enough strength to deal with the extra load.
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Mask: Mirage Activa™ LT Nasal CPAP Mask with Headgear |
Additional Comments: pressure 10-12 |
Re: OT: Mike & I have Pneumonia!
HUGS!
49er
49er
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Mask: SleepWeaver Elan™ Soft Cloth Nasal CPAP Mask - Starter Kit |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Use SleepyHead |
- chunkyfrog
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Re: OT: Mike & I have Pneumonia!
And yet more hugs.
I wish I were close enough to drop in and help in person.
I wish I were close enough to drop in and help in person.
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Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Airsense 10 Autoset for Her |
Re: OT: Mike & I have Pneumonia!
I haven't been posting lately, but I do check up from time to time. Dori, I just finished reading your posts. My heart goes out to you! What a horrible time you're having!! It's pretty scary to read up on the lack of quality care Mike is getting, at least as concerns his sleep apnea! If someone told me that the machine wasn't that important for the short run I'd be incredibly angry. Having pneumonia certainly doesn't seem to me like a reason NOT to use xPAP therapy .... if anything the challenge with getting enough O2 that pneumonia causes only makes the need for xPAP that much stronger. O2 that isn't getting in to his lungs isn't doing him a whole lot of good.
Having your own medical issues at the same time is a real drag! You absolutely DO have to take care of yourself. Seems like you are getting some help from your kids, which is great ... you just have to let yourself recover.
I'm keeping you in my thoughts Dori!
-Kevin, with hugs!
Having your own medical issues at the same time is a real drag! You absolutely DO have to take care of yourself. Seems like you are getting some help from your kids, which is great ... you just have to let yourself recover.
I'm keeping you in my thoughts Dori!
-Kevin, with hugs!
Sleep loss is a terrible thing. People get grumpy, short-tempered, etc. That happens here even among the generally friendly. Try not to take it personally.
Re: OT: Mike & I have Pneumonia!
Dori,
My heart goes out to you. You and Mike are in my thoughts and prayers.
My heart goes out to you. You and Mike are in my thoughts and prayers.
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Machine: DreamStation BiPAP® Auto Machine |
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
Additional Comments: PR System DreamStation and Humidifier. Max IPAP = 9, Min EPAP=4, Rise time setting = 3, minPS = 3, maxPS=5 |
Re: OT: Mike & I have Pneumonia!
Dori,
Continuing to think about you and Mike. Thanks for the update. My sister's MIL quit eating, and it turns out she is now going to have therapy to teach her how to swallow again. Hopefully, with the thickened liquids, Mike will get enough calories to continue healing.
Drop me a PM if you want any ideas for what I call "savory smoothies."
Continuing to think about you and Mike. Thanks for the update. My sister's MIL quit eating, and it turns out she is now going to have therapy to teach her how to swallow again. Hopefully, with the thickened liquids, Mike will get enough calories to continue healing.
Drop me a PM if you want any ideas for what I call "savory smoothies."
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Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece |
Additional Comments: Sleepyhead software, not listed. Currently using Dreamstation ASV, not listed |
-- Kiralynx
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5
Re: OT: Mike & I have Pneumonia!
Oh my, just got back to the forum and have read your thread Dori. I too have been battling pneumonia, so definitely do know the problems that can ensue from this, still can't do much but am progressing slowly. I hope Mike is doing the same, with all of his problems it will be a hard row to hoe, but I hope and pray that he will get well enough for you to take him home. You MUST take care of yourself too Dori, Mike needs you now more than ever, without you he would never make it. Take care both of you and get well soon..... prayers and the biggest hugs ever are on the way.
Love ya
Nan
Love ya
Nan
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Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Started cpap in 2010.. still at it with great results.
Re: OT: Mike & I have Pneumonia!
"Mike needs you now more than ever, without you he would never make it."
Nan I know you mean well, but I think that's a bit much to put on Dori! Unfair. And certainly unknown.
Nan I know you mean well, but I think that's a bit much to put on Dori! Unfair. And certainly unknown.
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Re: OT: Mike & I have Pneumonia!
I am new here, but sending great thoughts for Mike's healing.
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Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |