What happened??? I was so happy.

Guest · Post by **Guest** » Sun Jun 04, 2006 8:51 am

Susan,
My sleep doctor told me snoring was a sign the pressure wasn't high enough and that on cpap I shouldn't be snoring at all. I finally got it high enough to eliminate the snoring and did it just like Wulfman said. One cm at a time. But if I knew I was still snoring, I didn't wait a week to bump it up again.

I think you will stop snoring before you hit 20. I wouldn't worry about that. Judging your treatment on how you feel is your best indication. If it bugs you not knowing, you could always buy the cardreader and software to see what's going on.

idahogal · Post by **idahogal** » Sun Jun 04, 2006 8:54 am

Thank you all for such great help. I was so overwhelmed trying to figure this out with the added factor of being so tired again. I will continue to up my pressure 1 cm at a time as suggested. I am very relieved to know that snoring is not an issue but I would like to stop it because of the noise waking me up. I am finally to 8 hrs of cpap per night and I want it to stay there. Thanks again. It has been great to get so much help.

Sleepless on LI · Post by **Sleepless on LI** » Sun Jun 04, 2006 9:12 am

Susan,

Like I said in my first reply to you, the difference between 9 cms. and 10 cms. for me eliminates ALL of my snores. It's amazing what one cm. more of pressure does for me, so maybe one more cm. of pressure can do it for you, too. It's not like you're going to bump it up 5 cms. at a time. If you want to, try it and see what happens. You really don't have anything to lose IF you're worried about it. If you are feeling well, though, like Wulfman said, I wouldn't worry about it.

Cameron · Post by **Cameron** » Sun Jun 04, 2006 9:29 am

idahogal wrote:I am very relieved to know that snoring is not an issue but I would like to stop it because of the noise waking me up.

Susan,
I wouldn't say snoring is not an issue. I would say if you're still snoring you need to up your pressure. You might want to check with your doctor for his opinion. When you are professionally titrated one of their goals is to increase the pressure until snoring is eliminated, so it stands to reason you'll want to do the same on your own. The noise waking you up is a problem, but it's also an indication your airway is not fully open.

Goofproof · Post by **Goofproof** » Sun Jun 04, 2006 9:34 am

I do worry about snoring, I find that my snore level matches my AHI, they both go up together. I also tend to feel unrested.

For me it usually a product of congestion, or mask leaks, or general unrest.(stress}. On the nights I snore less, I feel better rested and at peace with myself. So I for one will try to keep the snoring down to the the lowest levels I can. Different masks can change how you are treated.

My 431 feels better to use, but my ComfortFull FF gives me better AHI readings, so I use it, even though I like the F & P 431 better. Sometimes we have to do what works, even if we don't love it. Jim

NightHawkeye · Post by **NightHawkeye** » Sun Jun 04, 2006 10:13 am

idahogal wrote:Is it ok to crank up the machine beyond what the prescription states if I do it 1cm at a time? And if it is ok to crank it up then when does it become "too much". I know that when I reach a place where I stop snoring that I should stop increasing the pressure but what If I am at 13cm now and don't stop snoring until 20???? Any ideas?

Maybe I missed something, but your profile says you have the Pro 2 which records data, yet it looks like you don't have the software which could help you figure out what is really happening. Right now you're just guessing.

My recommendation would be to get the software to figure it out. There are multiple possibilities for what's happening - centrals, leaks, changed pressure needs, machine problem, etc. Just my $0.02, of course.

Regards,
Bill

Wulfman · Post by **Wulfman** » Sun Jun 04, 2006 10:27 am

Bill,

I already asked her about that and she said she has the REMstar "Plus" model.
She's got to go on how she "feels".

Den

Linda3032 · Post by **Linda3032** » Sun Jun 04, 2006 10:41 am

IdahoGal, after reading this thread, my thought is that you didn't have a problem until you tried using the CL2. You've mentioned twice that you used the CL2 and wake up snoring.

I would go back to the Aura and see if the snoring stops - before I start upping my pressure. Then if you are still snoring, you can up the pressure bit by bit.

And yes, different masks require different pressures - at least that is true for me.

MandoJohnny · Post by **MandoJohnny** » Sun Jun 04, 2006 11:08 am

There is one obvious answer: Go back and see your sleep doc! If you don't like the one you have, find a better one. If I had a problem like that, I would call my doc and he would actually get on the phone with me, listen carefully to what I had to say and tell me exactly what to do. If he thought it was an equipment problem, he would have me call the DME and tell them he said to do XXX. Those are the magic words for my DME. They will fall all over themselves to do what he says, because he accounts for a huge % of their business. If he thought I needed to come in and see him, he would make a space on the schedule. He always knows what to do and although I am very suspicious of doctors in general, I have complete confidence in him. You need to find one like that.

GoofyUT · Post by **GoofyUT** » Sun Jun 04, 2006 11:20 am

RIGHT ON MANDOJOHNNY!!!!!!!!!

I couldn't agree more!!!

Its time someone said it!!!

Thank you!!!!

Chuck

Snoozin' Bluezzz · Post by **Snoozin' Bluezzz** » Sun Jun 04, 2006 11:43 am

MandoJohnny wrote:There is one obvious answer: Go back and see your sleep doc! If you don't like the one you have, find a better one.

MandoJohnny - you're a lucky man. Your advice is wonderful, but from my experience with the Health Care industry, a little unrealistic. I could wander forever and go broke looking for what you seem to already have. Good idea though.

Take Care

David

Sleepless on LI · Post by **Sleepless on LI** » Sun Jun 04, 2006 12:33 pm

Honestly, no offense, but I don't think that going back to a sleep doctor, when she feels "great," by her own admission, and is just worried about a little snoring, is really necessary. This doctor, depending on his ethics, may be inclined to now put her though all sorts of unnecessary testing when it's just like either Linda said, the mask, or nothing at all to worry about. If it continued, and she started to feel unwell more frequently in the future, then I'd go back to see my sleep doctor and find out what, if anything, was going on. But things change all the time and I can't see running to the doctor for them every time they do.

If she feels great, God bless her. Not everyone, even those who don't snore and are on therapy, can say the same. I say she's one lucky girl.

Guest · Post by **Guest** » Sun Jun 04, 2006 12:42 pm

I'd have to agree with Sleepless on LI about not needing to go back to the sleep doctor.

All you need to do is increase your pressure until the snoring is gone. You don't need a sleep doctor or DME to do that.

GoofyUT · Post by **GoofyUT** » Sun Jun 04, 2006 12:57 pm

How about if the snoring is caused by a neoplasm??(I'm sure that its not in this case). MandoJohnny's point remains; We ALL deserve to have sleep docs that are knowledgeable, accessible and trustworthy, so that when a change occurs (or even a simple question) we can call them up and get the answers that we need, not have to rely upon the many and the unsubstantiated speculations of other pappers here.

The fact that many sleep docs and DMEs are exploitive doesn't mean that we should throw up our hands in disgust and cynicism and give up!!! We ARE NOT trained professionals. WE ARE USERS. We have our own experiences, but none that are scientifically validated. We have docs that are trained to evaluate the body of available literature and use that to assess our conditions accurately and prescribe the treatment best indicated for our conditions, and to answer our questions as well.

Are any of you prepared to stake this person's health and welfare on your beliefs? I hope not. Only the doctor she has and presumably trusts should do that. If she's concerned about what's happening in HER life, she should seek the advice of a professional that she trusts, and settle for NOTHING less than a professional who earns her trust.

No Lori, she's not complaining about snoring. She's complaining about reverting to pre-CPAP symptoms. You feel confident that the solution is simply increasing her pressure a cm or two??? I hope not.

Chuck

Wulfman · Post by **Wulfman** » Sun Jun 04, 2006 1:02 pm

When I first skimmed over MandoJohnny's post, I thought he WAS serious. But then a little later, I re-read it and took it that he was being "tongue-in-cheek" or facetious. So, I'm hoping he WASN'T serious.....cause after I re-read it I thought it was FUNNY. (ie. call the doctor and dme's everytime you have some little glitch, leak, etc.)

Den

What happened??? I was so happy.

Go See Your Sleep Doc!

Finally!!!!!!!

Re: Go See Your Sleep Doc!

Oh really?

Mask

Additional Comments: cpap pressure: 12