I think we both agree that more research needs to be done.BlackSpinner wrote:No the papers don't say that. Most of them state there is no research to prove it. Which is a whole different animal.Todzo wrote:
I would dearly like to believe that you are right BlackSpinner however the very sad sad usability numbers coupled with the guidelines builders' assessment that no statistically significant indication of improvement was found in the research reviewed for Quality of Life, neurocognitive, psychological, blood pressure, hemoglobin A1c, hypertension, cardiovascular events, and heart failure symptoms would indicate that you are not.
What I would really like to see is for someone to create an automated CPAP data gathering and presentation system that would work to download and use the nightly CPAP data. To make it available for the patient on a daily basis for lifestyle feedback and to explain problems noted in days. To flag problems as they occur. To inform the medical teams when there is a serious or continuing problem.
And then that someone would set up a little “CPAP University” program that provides classroom and homework time:
- To establish good and proper mask fit and comfort and leak proof nighttime use from the very first.
- To establish a good understanding of the acclimation process with time spent regularly with the machine during the daytime. Time in bed learning to breath at rates not above what would normally be and to check mask fit and hose management issues. Time spent with minor distraction to help establish the new breathing reflexes while using the CPAP.
- To establish a good understanding of how to use the gathered CPAP data to manage lifestyle well and to deal with problems as they do occur.
- To start the ongoing relationships with the dietitian and personal trainer.
Then I would like to see some comparative studies looking at those whose data is constantly used and who have good education and preparation to use CPAP compared to those who receive standard care.
And then some studies on how CPAP does to reduce the clinical markers mentioned above.