I've been on a CPA machine since last November. Each day is different -- some times I need a nap and other times I can fight my way through it.
Still not feeling rested.
My new sleep doc is just as much as an ***hole as my old one, and going to his office is like going to Motor Vehicles! But I'll see what he says at the Sept/Oct appointment before I change. I'm beginning to think that for many of us, we're victims of a medical racket! For the doc, a steady income, no emergency calls, regular business hours, etc. For us, not much improvement and we don't die from OSA either. It's like allergies (that's what my allergy doc told me!).
My AHI is still above 5 and my RDI runs 10-15. Pressure changes seem to make no difference (except when I had it a little higher, I was swallowing a lot of air).
Oh, me, oh my!
Status Report (If Anyone Cares)
Status Report (If Anyone Cares)
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“Holding on to anger is like grasping a hot coal with the intent of throwing it at someone else; YOU are the one who gets burned.”
“Holding on to anger is like grasping a hot coal with the intent of throwing it at someone else; YOU are the one who gets burned.”
Re: Status Report (If Anyone Cares)
sorry things are discouraging. hope you find a sleep doc you can work with and works with you.
_________________
| Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear |
| Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
| Additional Comments: Sleepyhead software, Pressure 9-14, EPRx1, Pad-a-cheek barrel cozy, Resmed hose cover |
Re: Status Report (If Anyone Cares)
I too hope you can find a good doctor Pikov22. I am so sorry you are still struggling.
You have pretty much nailed it about the sleep medicine industry. I mean, I don't think apnea is being overdiagnosed but there is no incentive for sleep medicine practices to do a good job. If you leave, there are plenty more customers on the way for the doctor.
49er
You have pretty much nailed it about the sleep medicine industry. I mean, I don't think apnea is being overdiagnosed but there is no incentive for sleep medicine practices to do a good job. If you leave, there are plenty more customers on the way for the doctor.
49er
_________________
| Mask: SleepWeaver Elan™ Soft Cloth Nasal CPAP Mask - Starter Kit |
| Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
| Additional Comments: Use SleepyHead |
Re: Status Report (If Anyone Cares)
Thanks. I'm not convinced that there is anything a doctor can do for most of us.49er wrote:I too hope you can find a good doctor Pikov22. I am so sorry you are still struggling.
You have pretty much nailed it about the sleep medicine industry. I mean, I don't think apnea is being overdiagnosed but there is no incentive for sleep medicine practices to do a good job.
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“Holding on to anger is like grasping a hot coal with the intent of throwing it at someone else; YOU are the one who gets burned.”
“Holding on to anger is like grasping a hot coal with the intent of throwing it at someone else; YOU are the one who gets burned.”
Re: Status Report (If Anyone Cares)
pikov22 wrote:49er wrote:I too hope you can find a good doctor Pikov22. I am so sorry you are still struggling.
You have pretty much nailed it about the sleep medicine industry. I mean, I don't think apnea is being overdiagnosed but there is no incentive for sleep medicine practices to do a good job.
Thanks. I'm not convinced that there is anything a doctor can do for most of us.
Agreed...That's why most of us manage our own therapy.
_________________
| Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
| Mask: Fisher & Paykel Vitera Full Face Mask with Headgear (S, M, or L Cushion) |
| Additional Comments: Back up is a new AS10. |
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johnthomasmacdonald
- Posts: 977
- Joined: Sun Sep 02, 2012 1:48 pm
- Location: northwest new jersey and Boston Mass
Re: Status Report (If Anyone Cares)
I see that you are in New Jersey - I'm very very happy with my sleep doctor at the JFK medical center in Edison NJ, their dept of neurosciences and sleep medicine. They seem to really want to get it to work for you. If you are interested I can give you her name and phone number.
_________________
| Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
| Additional Comments: Resmed ASV adapt enhanced - epap=8; minPS=3; maxPS=17 ave. pressure =10 |
Re: Status Report (If Anyone Cares)
Sorry you're feeling discouraged. I don't remember if you ever posted your reports but if you can do that I'm sure Pugsy or some other pros can possibly find out what the problem is and help you make adjustments. Keep us posted.
_________________
| Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
| Additional Comments: 14/8.4,PS=4, UMFF, 02@2L, |
"Do or Do Not-There Is No Try"-"Yoda"
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08
Re: Status Report (If Anyone Cares)
<sigh> So soon they forget! I've posted a fair number of reports. But, I'm happy to post more. What would you like to see?DoriC wrote:Sorry you're feeling discouraged. I don't remember if you ever posted your reports but if you can do that I'm sure Pugsy or some other pros can possibly find out what the problem is and help you make adjustments. Keep us posted.
-----------
“Holding on to anger is like grasping a hot coal with the intent of throwing it at someone else; YOU are the one who gets burned.”
“Holding on to anger is like grasping a hot coal with the intent of throwing it at someone else; YOU are the one who gets burned.”
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sawinglogz
- Posts: 400
- Joined: Mon Aug 27, 2012 12:53 pm
Re: Status Report (If Anyone Cares)
Don't wait. Change. Find someone you trust. Schedule with someone new now, and keep the sept/oct appointment if the wait for the new doc is too long.pikov22 wrote:But I'll see what he says at the Sept/Oct appointment before I change.
Re: Status Report (If Anyone Cares)
.....
_________________
| Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
| Mask: DreamWear Full Face CPAP Mask with Headgear (Small and Medium Frame Included) |
| Additional Comments: Pressure 11.0 Min-->14.0 Max EPR 2 |
Last edited by old dude on Fri Jun 15, 2018 6:13 pm, edited 1 time in total.
Re: Status Report (If Anyone Cares)
Gee,, I wish I had thought of that!sawinglogz wrote:Don't wait. Change. Find someone you trust.pikov22 wrote:But I'll see what he says at the Sept/Oct appointment before I change.
-----------
“Holding on to anger is like grasping a hot coal with the intent of throwing it at someone else; YOU are the one who gets burned.”
“Holding on to anger is like grasping a hot coal with the intent of throwing it at someone else; YOU are the one who gets burned.”
Re: Status Report (If Anyone Cares)
Can you post a picture of your wife?old dude wrote:At least your doc didn't come on to your wife. Had we not been in a medical situation I would have punched the guy out, but since he's part of our system (and the only system our insurer recognizes) I've had to let it go. It's happened now on two separate visits.
Right, I could call him on it politely and ask him in a nice way to back off-at which point he would passively-agressive pretend to be shocked and claim he was only being friendly. Trust me, I know inappropriate behavior when I see it. Don't ask me how I know...
KIDDING!
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“Holding on to anger is like grasping a hot coal with the intent of throwing it at someone else; YOU are the one who gets burned.”
“Holding on to anger is like grasping a hot coal with the intent of throwing it at someone else; YOU are the one who gets burned.”
Re: Status Report (If Anyone Cares)
pikov22 wrote:Can you post a picture of your wife?old dude wrote:At least your doc didn't come on to your wife. Had we not been in a medical situation I would have punched the guy out, but since he's part of our system (and the only system our insurer recognizes) I've had to let it go. It's happened now on two separate visits.
Right, I could call him on it politely and ask him in a nice way to back off-at which point he would passively-agressive pretend to be shocked and claim he was only being friendly. Trust me, I know inappropriate behavior when I see it. Don't ask me how I know...
KIDDING!
_________________
| Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
| Mask: DreamWear Full Face CPAP Mask with Headgear (Small and Medium Frame Included) |
| Additional Comments: Pressure 11.0 Min-->14.0 Max EPR 2 |
Last edited by old dude on Fri Jun 15, 2018 6:14 pm, edited 1 time in total.
Re: Status Report (If Anyone Cares)
Yes, Sorry, I do remember now that you had lots of interaction and excellent advice from the "experts" but I'm not one of them I'm afraid. Hopefully someone will come along to help you problem solve again.pikov22 wrote:<sigh> So soon they forget! I've posted a fair number of reports. But, I'm happy to post more. What would you like to see?DoriC wrote:Sorry you're feeling discouraged. I don't remember if you ever posted your reports but if you can do that I'm sure Pugsy or some other pros can possibly find out what the problem is and help you make adjustments. Keep us posted.
_________________
| Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
| Additional Comments: 14/8.4,PS=4, UMFF, 02@2L, |
"Do or Do Not-There Is No Try"-"Yoda"
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08
Re: Status Report (If Anyone Cares)
At least you haven't lost your sense of humor.pikov22 wrote:KIDDING!
_________________
| Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece |
| Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
| Additional Comments: Bleep/DreamPort for full nights, Tap Pap for shorter sessions |
My SleepDancing Video link https://www.youtube.com/watch?v=jE7WA_5c73c