Post
by racprops » Wed May 08, 2013 9:41 am
I have written my Doctor off as a lost.
He said to come back after 60 days. He doesn’t care and does not want to know.
In a sleep study, they start with a setting and watch the same kind of reports I have for 20 minutes..and then make a change and wait 20 minutes and make a change..all night long.
Then from the reactions of a 20 minute reading based the settings to set the machine.
These readings are taken under duress, you’re not at home in your own bed, but someplace else, you brand new to the use of a CPAP Machine and your WIRED with a ton of sensors, and in my case also taking a sleeping pill they say will not affect the readings.
So based on their results: @ 10/15cm I SHOULD have NO OAs, 1 CAs, and 31 Ns and be running O2 @ 89%.
That was what he prescribed.
BUT in his own report, I was better at 9/15cm as I had: NO OA, NO CA, and my Ns were 19 with O2 at 89%..
He did not even follow his own report…
Worst is once I got my own machine I have not seen anything like their results, my readings have been over 30 AHIs almost every night.
WHY?? Why did I not get the same results within days of getting the machine?? Why did I not respond as I did in the lab, I should be responding so much better than I did in the lab, but I am so very much worst, during the study it was a matter of minor degrees of Apneas, they got me down to NO apneas…not the high numbers I am seeing…
Why am I not getting these results as I am now sleeping in my own home and giving myself every advantage and sleeping in my recliner and I am now very used to my machine…
The sleep study showed me cured. Well treated anyway.
So if the sleep study and the Doctor’s prescription is holly: I should have seen something like what they did, NOT the I can’t breathe with the machine and nightmare readings and reports I have been getting from day one. It should only be a matter of a little fine tuning.
So it comes down to only a few possibilities: Their machine is much better that the one I bought and I should have one like theirs.
OR the sleep study is a sham and only a beginning and their best GUESS to what settings I need.
The good thing about a sleep study is they can report IF you have sleep apneas, what kind and if there is something else going wrong, IE other conductions. (If they look for them..that is: Hammers only look for and see nails)
AND a sleep study can show that treatment on a PAP machine CAN help, but in my treatment it did not give me a working treatment, I am not responding as I did in the sleep study.
So they make life changing decisions with only one nights study and with only 20 minutes at each setting in an bed not my own, sleeping in the worst position, flat on my back and hooked up to all those wires with a sleeping pill and my readings over a full night’s sleep at home on one set of settings, in my recliner with no sleeping pill and no wires and I am more used to my machine and these reports are so much less reliable??
AND WORST: My results are nowhere like theirs, I have massive centrals and Hypopneas.
So yes I cannot believe my Doctor nor his test results as what happened in the sleep lab is NOT happening at home with my own PAP Machine.
And you wonder why I am going nuts…
At this point all I can say is I BELIEVE I would be a lot worse off, sicker without the machine…so all I am doing is slowing down and keeping my finger in the dike.
And I hope to get better…
More:
On cars I have found I could work up to a good MPG setting by doing it one step at a time…and it will work UNTIL I turned it off and restarted and which point it would totally NOT work with the setting I had just worked up to..
That in these cases working a running car to a setting will ONLY work if you’re willing to start over every time and work up to that setting…
I think the sleep study has a bit of that kind of results, good only in the lab and only if you willing to take ½ of the night getting to those settings/results and that will NOT work as it did in the lab once you’re at home.
I am starting to think the medical profession is working a little bit of a scam, these are real problems, BUT perhaps not as dangerous as they are making it and they are calming it causes more problems than it does and that their treatment will cure too many things!
How many of us read and were told our weight problems might be caused by apneas and the treatment might help cure that?? (Now it is: Well you will have more energy and can eat less and workout more..thank to better sleep...)
I have been lead to believe my heart surgery might have been caused by sleep apneas. (Could be a enzine I am lacking and causing eggs and meat to not be digressed as correctly)
One note about scams, they make a lot of noise and a lot of unproven clams and promises and charge a lot of money for the fix. (I know about scams...) So it is charge as much as possible and get out of town fast...
The sleep Doctors and sleep centers are over charging, I can see a Heart Doctor cheaper, in face all my Doctors are cheaper that my sleep Doctor.
And $1200.00 to $2500.00 for ONE night study…
I fear they are throwing wood on a small fire here…do not look behind the curtain.
Rich
Rich
Last edited by
racprops on Wed May 08, 2013 11:37 am, edited 1 time in total.