Where did all the help GO??

That is one problem, it is the changing of control as I fall a spleep..the machine reads a lack of breathing and reacts...and scares me wake.

Rich

sawinglogz wrote:

zoocrewphoto wrote:

racprops wrote:We had a lot of trouble, every time I started to drop off the machine would react and push a lot of air and wake me up...
I had a hard time sleeping..

This does not sound normal. Pressure doesn't normally go up instantly just because you fall asleep. Especially if you were at the study. The pressure should have gone up very slowly with them checking data at every setting. You really need to post the graphs of that night.

I'm guessing he was having a transitional apnea (totally normal), which the machine reasonably thought was a central apnea (since it is, albeit harmless), so it boosted pressure to make him breathe.

I had this happen a few times during my titration. I would have found it pretty irritating myself, except that those transitional apneas have been waking me up lately, so it wasn't any worse.

I am email a person whom is a Respiratory Therapist and send him a cople of panels from Sleepyhead.

He responded thus:

"Richard,

I thought you had stated that your inspiratory pressures were averaging 9-10cm h20? It appears from this report your inspiratory pressure are in low 20's? As far as mask pressure spikes, without seeing it in detail it is hard to know if there is a correlation with CA's and Hyponeas.

It would be interesting to see if that is the case."

I keep feeling something is not right..perhaps a problem with its programing...

Sadly I may not be able to talk with him until next Monday.

Rich

JohnBFisher wrote:

sawinglogz wrote:... I had this happen [have the machine respond to a transitional apnea] a few times during my titration. I would have found it pretty irritating myself, except that those transitional apneas have been waking me up lately, so it wasn't any worse. ...

THIS is exactly why I say you MUST give your body and the ASV therapy time. You need to adjust to things like this. It IS normal. It DOES happen. And for a while it WILL disturb your sleep. But after just a few weeks of experiencing that you will no longer notice when it happens.

I would stop breathing for a MINUTE or MORE at a time when I fall asleep. My old M Series Auto BiPAP would think I was no longer breathing and just STOP. [Yes, I know you can change that setting. And I did change it. But the problem was that regardless of the setting, I would just stop breathing. And stopping breathing for more than a minute is NOT a good thing and needs to be addressed.]

Now, because I'm adjusted to the therapy, I never notice when it happens. My ASV therapy data says it does occur. But the ASV unit tackles it .. all without disturbing my sleep ... BECAUSE I TOOK THE TIME TO ADJUST to the ASV therapy.

JohnBFisher wrote:

sawinglogz wrote:... I had this happen [have the machine respond to a transitional apnea] a few times during my titration. I would have found it pretty irritating myself, except that those transitional apneas have been waking me up lately, so it wasn't any worse. ...

THIS is exactly why I say you MUST give your body and the ASV therapy time. You need to adjust to things like this. It IS normal. It DOES happen. And for a while it WILL disturb your sleep. But after just a few weeks of experiencing that you will no longer notice when it happens.

I would stop breathing for a MINUTE or MORE at a time when I fall asleep.

And even during titration, I eventually did fall asleep after a few of those wake-ups-while-drifting-off. I know it's possible, so I'm going to stick with it.

I suspect my transitional apneas are pretty long too, which could be why they wake me up even without ASV.

I had sent him these reports:

Richard, I noticed a few posts back that you have a pulse oximeter and found that you had some desaturations down to around 85%. I don't know what elevation you live at but I get concerned when my O2 levels drop below 90%. You may want to pay a little closer attention to that.

I have been told that a short drop to even 80% is OK in sleep as long as it lasts less than 10 seconds.

Most of the time it has not been dropping at all.

I will keep watch.

Rich

HoseCrusher wrote:Richard, I noticed a few posts back that you have a pulse oximeter and found that you had some desaturations down to around 85%. I don't know what elevation you live at but I get concerned when my O2 levels drop below 90%. You may want to pay a little closer attention to that.

racprops wrote: You and me both...The machine is for some reason hitting 23 CM pressures at odd times and doing other odd things...

Did the doctor prescribe it to go that high, or is that one of your changes? It shouldn't go any higher than it was set to go.

I am losing ground as it now wakes me by making the mask fart, a nosily leaking... and some times it is running so low I wake and think it has failed or shut its self off.

I have almost NO obstructive apneas I am having Clear air and Hypopneas...lots of them....

Last night's report is 2.24.05 hours of sleep with a AHI of 25.99 that was 14.16 H and OB. of .42 and Clear air of 10.41.

I got two mask farts wake ups and one just woke up for no know reason.

I was up most of the night...
[/b]

Be aware that data will be inaccurate if the events occurred while you were awake or uncomfortable, which it sounds like you are doing a lot right now. So, don't worry about your ahi for now. Concentrate on learning to sleep with the machine, at your doctor prescribed levels. Then, once you are able to get some real hours asleep, you can look at the data and start working with it. The machine does not know if you are asleep or awake, so it will count false centrals and throw those into your data.

As for quoting, pick the quote button when you start to reply. Then, within the reply, everywhere that you want to add something, hit the quote button at the top.

It will show you this: <quote></quote> (I changed the [ ] to < > so that the program will display it and not try to do it.)

Move them around so that they are in this order with some room in between.

</quote>
Type YOUR reply in between.

<quote>


Do this at every section where you add a comment. Then the quoted material will all be obvious, and your comments will all be seperate. Basically, what you are doing is ending every quote, adding your comment, and starting a new quote.

racprops wrote:I use respirator filter masks in my work…

Rich,

I believe that this is the first you have ever mentioned this!!!

1) What sort of work did you do using a respirator?

2) What were the materials that you were working with that required wearing a respirator?

3) For how many years did you do that work?

4) Did you always faithfully use the respirator or sometimes leave it off?

5) How did you deal with the particulate settling all around you on work surfaces, the floor, furnishings, your clothing, etc?

6) Do your doctors know the nature of your work?

7) What if any tests did you undergo to check the condition of your lungs and your entire respiratory system prior to or since your apnea diagnosis?

Regards, Nate

Sorry too tire to follow instructions...

That is what he prescribed, max 25CM.

I understand it not know awake and sleeping, most of those readings are mostly sleeping.

Rich

racprops wrote:I use respirator filter masks in my work…



Rich,

I believe that this is the first you have ever mentioned this!!!

1) What sort of work did you do using a respirator? Model making...once a month I might paint a small run of models with paint, I built a paint booth with a 4500 CFM blower to suck the fumes out, I can't even smell the paint.

2) What were the materials that you were working with that required wearing a respirator? Spray paints and sanding polyurethane plastic castings and pewter.

3) For how many years did you do that work? 30+

4) Did you always faithfully use the respirator or sometimes leave it off? Mostly Left off

5) How did you deal with the particulate settling all around you on work surfaces, the floor, furnishings, your clothing, etc? Didn't. Well normal blowing off with air gun and swripping of the floor.

6) Do your doctors know the nature of your work? Current ones NO, did not even ask.

7) What if any tests did you undergo to check the condition of your lungs and your entire respiratory system prior to or since your apnea diagnosis?

No, but was treated by Phumlogest while in the hospitable and they did not find anything wrong and was given a treadmill stress test and again no one saw anything wrong, twice. I am guilty of being a shallow breather.

OK I am hoping I can get some help here.

The last run I KNOW I sleep nearly 4+ hours, I feel asleep with my blood pressure cuff and my machine on at 1:17 as that was the reading of the built in clock and woke up at 5:12.

I again thought the machine was off.

There read outs are looking to my eyes as great BUT are they normal, after all the mask pressure just about disappears, drops off….everything else looks pretty good but for the tidal volume which looks low?

Please tell me these are OK.







IS this what I want to look for?

Rich

Also here is my O2 and pulse summery.

How does it look?? Any RED flags??



Again thanks to everyone for you help.

I am hoping all of there latest reports show I have turned a corner and am getting this thing settle in.

Rich

Tidal volume norms have wide ranges of normal depending on a lot of factors. Short or tall, skinny or fat, male or female, etc.
You can google tidal volume and find a wide range of norms. I am a short woman...my average TV is in the 300s. It's normal for me.

That mask pressure thing...I wonder if that is a graph scale issue or just a SH reporting glitch?? I don't think it is any cause for concern.

Your O2 reports look great. You can see one minor desat to around 90% and that's it. The first big drop I bet was loss of sensor artifact.

Looks to me like you have turned the corner as you say. Once you get to sleep the machine is doing what it is supposed to do. That last 4 hours looks awesome good.

Thanks for your feedback.

Having read your pointers I am very glad to get your post.

The TVs have all ran like this so I am guessing it is normal for me as well.

On the mask pressure thing I have seen that a few times...and it always shows up with the best reports.

Now if only I can keep it happening.

One thing I forgot to report was I fell asleep in more upright sitting position, and hope and fear that was a factor in this result.

Hope because it maybe repeatable and fear as it means I maybe stuck sleep in a recliner...

Rich

Pugsy wrote:Tidal volume norms have wide ranges of normal depending on a lot of factors. Short or tall, skinny or fat, male or female, etc.
You can google tidal volume and find a wide range of norms. I am a short woman...my average TV is in the 300s. It's normal for me.

That mask pressure thing...I wonder if that is a graph scale issue or just a SH reporting glitch?? I don't think it is any cause for concern.

Your O2 reports look great. You can see one minor desat to around 90% and that's it. The first big drop I bet was loss of sensor artifact.

Looks to me like you have turned the corner as you say. Once you get to sleep the machine is doing what it is supposed to do. That last 4 hours looks awesome good.

PS My Blood pressure is running nice as well.

I just got a reading of 118 over 70 with 56 BPM.

My BP machine shows a avg of 134 over 77 overall.

I find I get some of my highest readings right after waking like 140/85..or worst.

I am taking a Bata blocker and guys if your taking one that interferes with your performance...well the one I take is the Viagra of Blood pressure pills...it is call Bystolic, it cost $80.00 per month but both my wife and I say it is worth it..all the other BP meds I have taken (and I have taken a few) have cut back (pun intended) performance.

So I often check during my wake ups, but in relaxing to get a good low reading I can relax too well and fall asleep right in the middle of taking a reading.

On the other hand it is a good way to know for sure when I last fell asleep, like last night, I woke up with the pressure cuff still on so I had not been up and did no sleep walking either, not that I have ever.

Rich