Going to the bathroom With Titration Update

Greg6657 · Post by **Greg6657** » Wed Sep 05, 2012 11:19 pm

Xney,
I have to agree and I think that is the direction my PCP is taking.

Goofproof · Post by **Goofproof** » Thu Sep 06, 2012 12:15 am

Also with heart problems comes added drugs, among the 15 I take, is Lasix, it's to keep water off the heart, it causes increased kidney output, I take it twice a day and time it so it works while i'm awake. I also take OTC Saw Palmetto twice daily to keep the pipes clear (increased kidney output) I won't bore you with the drugs and vitamins I take, just get a large book with all of them in it, scratch out three names, and I take the rest... Jim

You also need a A1C test for your blood sugar, it's a fasting blood draw... It gives you a 3 month AVG of sugar levels, much better than a daily stick.

Greg6657 · Post by **Greg6657** » Thu Sep 06, 2012 2:42 am

GoofProof,
I know the feeling but I only have 13 a day. 8 in the morning and 5 at night. So far I havent had the pleasure of Lasiks.
Without having the order on me I do believe that is the sugar test I'm getting. He told me to due a 12 hour fast for it.

G

DavidCarolina · Post by **DavidCarolina** » Thu Sep 06, 2012 6:34 am

Off the top, its good that youre urinating in one sense, because youre apparently staying hydrated. The problem is its interrupting your sleep patterns, but again the fact that your dreaming in REM is good in itself that youre reaching that stage of sleep.

Have you ever looked into excitotoxicity? Dr. Cheney did a lot of interesting work with fibromyalgia back in the day, and prescribes a trio of meds, doxepine, klonapin (a benzo), and magnesium. Google it. I "self prescribed" this med combination and have found it to be effective. And dont be fooled by the stigma that its a "panic" combo. Actually, those two meds were developed as histamine blockers initially. Cheney theorizes that they close down the overactive neuron firing (especially when aggravated by excito triggers including food allergies) that leads to neurons' death because its trying to download something and going into hyperdrive trying to accomplish that.

Fringe benefit of all this is that it induces a deeper sleep. Im not advocating any medical advice, just saying google it and see for yourself.

And as for the ramp, ive always despised that feature. To me, the problem putting a mask on is that its BLOCKING air. When i put my mask on i frequently pull it slightly off my face and inhale air deeply for about 30 seconds before strapping back on. I just dont get the need for ramp, especially on APAP.

Finally, for what its worth avoid eating after dinner. Beyond the digestion pooling if youre a slow emptier, those chemicals are in your brain when you should be free of them. That cant be helping you sleep.

I used to awaken every night at 2:30 too, but now much of the time i sleep straight through 7 hours. My biggest problem is backsleeping, but thats another story.

Java · Post by **Java** » Thu Sep 06, 2012 6:16 pm

Greg6657 wrote:But I can only sleep for maybe 2-2 1/2 hours before I wake up feeling like my kidneys are about to burst. I go to the bathroom put my mask back on and fall right back to sleep. 2-2 1/2 hours later guess who's knocking? Yep its another kidney call. This goes on all night till I finally have to get up to go to work.

I have the exact same problem. I have been tested for everything, all negative. Kidney CT scan and ultrasound all clear. I'm not diabetic. I don't drink a huge amount of fluids at night. I often wonder where all this "output" is coming from. I have more "output" at night than I drink in the entire day. I don't have any swelling or edema. I just can't figure it out. My doctor doesn't even know why and doesn't really seem to think it's a big deal because all my test results are fine. He just tells me to stop drinking so much at night... But I don't!! And he says if I lose some weight it might take pressure off my bladder. *rolls eyes*. There is definitely something going on here that makes me have to pee gallons every 2 hours at night. And this is ONLY at night. I don't have any frequent urination or excessive amounts or pee during the daytime. I have not slept threw the night in 9 years because of this *SIGH*

poppi2 · Post by **poppi2** » Thu Sep 06, 2012 7:55 pm

One of the pleasant side effects for my using CPAP has been the termination of my 2X - 3X nightly trips to the bathroom. My heart goes out to you who still have to get up. Earl

Greg6657 · Post by **Greg6657** » Thu Sep 06, 2012 9:37 pm

Java,
Maybe if we get enough people that respondes to this we can figure it out. You sound alot like me when I do something I do it big and they usually have a hard time figureing it out. It seems like when I do something via my health I never have common systems or it doesent hurt like it should. IE: When I tore my lower bicep off the bone they kept telling me it was just a upper bicep strain. Then when I got a little testy with them they decided to do a MRI, Low and behold my bicep was in the middle of my forearm. Needless to say they back stepped and got me schedule for surgery to repair it.

Greg6657 · Post by **Greg6657** » Thu Sep 06, 2012 9:48 pm

DavidCarolina wrote:Off the top, its good that youre urinating in one sense, because youre apparently staying hydrated. The problem is its interrupting your sleep patterns, but again the fact that your dreaming in REM is good in itself that youre reaching that stage of sleep.

OH I am definetly Hydrated.

Have you ever looked into excitotoxicity? Dr. Cheney did a lot of interesting work with fibromyalgia back in the day, and prescribes a trio of meds, doxepine, klonapin (a benzo), and magnesium. Google it. I "self prescribed" this med combination and have found it to be effective. And dont be fooled by the stigma that its a "panic" combo. Actually, those two meds were developed as histamine blockers initially. Cheney theorizes that they close down the overactive neuron firing (especially when aggravated by excito triggers including food allergies) that leads to neurons' death because its trying to download something and going into hyperdrive trying to accomplish that.
Fringe benefit of all this is that it induces a deeper sleep. Im not advocating any medical advice, just saying google it and see for yourself.

I just got to work so I am going to look it up in just a few minutes. Thanks for the tip I'm ready to try just about anything for a good nights sleep.

And as for the ramp, ive always despised that feature. To me, the problem putting a mask on is that its BLOCKING air. When i put my mask on i frequently pull it slightly off my face and inhale air deeply for about 30 seconds before strapping back on. I just dont get the need for ramp, especially on APAP.

I'm glad that Im not the only one that felt that way, I finally just turned ramp off and it so much better.

Finally, for what its worth avoid eating after dinner. Beyond the digestion pooling if youre a slow emptier, those chemicals are in your brain when you should be free of them. That cant be helping you sleep.

I try not to eat when I get home I usually stay up about an hour or so unwinding and may have a glass of OJ then its off to La La land at least for a couple of hours.

I used to awaken every night at 2:30 too, but now much of the time i sleep straight through 7 hours. My biggest problem is backsleeping, but thats another story.

Your a lucky man

Greg6657 · Post by **Greg6657** » Thu Sep 06, 2012 9:52 pm

poppi2 wrote:One of the pleasant side effects for my using CPAP has been the termination of my 2X - 3X nightly trips to the bathroom. My heart goes out to you who still have to get up. Earl

When I was first diagnosed that is exactly how I felt PLEASANT isnt even close to how nice it felt to sleep like that. And thank you for the heart felt thoughts for us poor folk.

Greg6657 · Post by **Greg6657** » Thu Sep 06, 2012 11:13 pm

Goofproof wrote:You also need a A1C test for your blood sugar, it's a fasting blood draw... It gives you a 3 month AVG of sugar levels, much better than a daily stick.

Goofproof as soon as I got home I checked my order and yep he has a A1C ordered.

Afterhours · Post by **Afterhours** » Mon Sep 17, 2012 6:02 am

Any news about this yet? I am really curious to see what transpired.

Greg6657 · Post by **Greg6657** » Tue Sep 18, 2012 4:31 am

Afterhours wrote:Any news about this yet? I am really curious to see what transpired.

Afterhours my apoligies for not answering sooner, I have my sleep study on the 24th and my followup with the doctor on the 13th.
I'm excited in one sense to see whats up I'll let you know once I find out something

Greg6657 · Post by **Greg6657** » Mon Sep 24, 2012 10:40 pm

Well I had my titration today, it went about as well as can be expected. I swear after they got me all wired up I was picking up radio Tokyo anyway the tech and I discussed my paperwork and he couldn't figure out why I was started with a bipap. Once I told him I was diagnosed with Complex apnea he just smiled and said well that explains alot. My pressures were 12/5 and he said 4 years ago that was pretty common. He said since I was snoring like a freight train he wanted to up my EPAP pressure to 8 stating the standard is now no more then 4 without special circumstances. Well the first 3 hours was hit or miss as far as sleeping went, never got past stage 2 sleep before I would wake up. But the last 3 1/2 hours I slept pretty darn good. He said that my IPAP pressure was doing a good job, but at 5 my throat was collapsing causing my snoring and breathing issues which was waking me up. After 3 1/2 hours of sleep he woke me. I immediately started asking questions. What about Hypopneas, Apneas, Centrals. He just had a great big smile and said they were all "0" across the board, he considered raising the pressures to see what would happen but was convinced that it looked about as good as I could get.
He was actually pretty surprised when I told him I didnt care if I had to go to an "ASV" machine. He asked how I knew about ASV because alot of tech are just learning about them. Thats when I got to smile big and promote CPAPTALK. He had never heard of it so I invited him to join. He is a great tech and very very informative I hope he joins.
Anyway now to wait till the 10th to get my lab results.

Xney · Post by **Xney** » Tue Sep 25, 2012 12:50 am

Sounds like your pressure settings might be good then. It's the kind of thing where you may need to tweak it, but having a good starting point helps.

If you really have complex sleep apnea, you may need an ASV - the bipap may also work with it great. You just have to try and see.

Glad you got sleep on your sleep study, I think my first one I got like an hour.

Greg6657 · Post by **Greg6657** » Tue Sep 25, 2012 2:34 am

Xney wrote:Sounds like your pressure settings might be good then. It's the kind of thing where you may need to tweak it, but having a good starting point helps.

If you really have complex sleep apnea, you may need an ASV - the bipap may also work with it great. You just have to try and see.

Glad you got sleep on your sleep study, I think my first one I got like an hour.

Xney I have been following your thread religiously, and like I told the Tech if thats what it takes then sign me up. We'll just have to wait and see how I do with the bipap for now. Please keep up the info even if I dont end up needing AVS I sure have found following your thread interesting.

Going to the bathroom With Titration Update

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