I hate the c pap machine

I've muddled through the three pages of this post, and the OP has made several replies, but he has yet to register or log in appropriately to the forum so that proper use of the features or filling out of the profile/equipment can happen. I suggest that we all abstain from any further discussion until this person takes the first step toward receiving some much needed help by registering properly, logging in, filling in the profile/equipment so we can know what machine/mask is being used and try to ascertain the specific problems to address. If he can't do that simple, initial step toward getting some help, there is no need to continue with this thread.

Emilia wrote:I've muddled through the three pages of this post, and the OP has made several replies, but he has yet to register or log in appropriately to the forum so that proper use of the features or filling out of the profile/equipment can happen. I suggest that we all abstain from any further discussion until this person takes the first step toward receiving some much needed help by registering properly, logging in, filling in the profile/equipment so we can know what machine/mask is being used and try to ascertain the specific problems to address. If he can't do that simple, initial step toward getting some help, there is no need to continue with this thread.

She did register well over an hour ago, despite the 'whiner' and 'tourettes' replies and the otherwise cold welcome.

@ameriken.... glad to hear that. Now maybe some constructive help can begin. I checked the member database to see the profile, and she did add her equipment. Once she posts again, we can all see that information. I don't use her machine or mask so I will leave it to those who do.

When did this forum have no rules of conduct? If unregistered users can come on here with that mouth does that mean anything goes from now on? We all can use any language we want? Just wondering.

I have registered and listed my equipment. There are things I don't understand like software and such. I don't know what that refers to. Don't really care either. I have read all the posts mean and otherwise and appreciate the ones that UNDERSTAND and are helpful. Like the T-shirt suggestion which I will be trying tonight. In regards to the questions about the surgery. It has nothing to do with sleep apnea. The reason I had a sleep study test in the first place was because of this surgery. It was required along with a lot of other medical tests. I have never fallen asleep at the wheel or missed the end of a movie. I've never napped during the day or woke up tired on a regular basis. I don't fall asleep watching T.V. and yet according to the sleep study test I supposedly stop breathing 30 times an hour and have 80% blood oxygen level. My stupid machine level is 16 which apparently is sufficent enough to nearly blow the stupid mask off my face in the middle of the night causing leaking, hissing and enough noise to wake me up the few moments I've actually fallen asleep. I am not a troll or a fake. I'm just tired all the time. Unlike my life previous to being subjected to the C pap machine.

Welcome 'Kat' (for short).

80% O2 and 30 events an hour is significant. I'm really surprised you're not feeling it, or weren't. If I read correctly, you were not feeling tired prior to CPAP but are now feeling tired?

With 80% O2 and 30/hour, I imagine you'll eventually feel it if you give up CPAP. IMO, and probably in the opinion of everyone else, you really do need the machine. I hope you try to stick it out with the machine and maybe one day you'll be able to live with it. Sleep apnea is ultimately deadly.

In any case, let us know if and how we can help.

Ldrakekat wrote:I have registered and listed my equipment. There are things I don't understand like software and such. I don't know what that refers to. Don't really care either. I have read all the posts mean and otherwise and appreciate the ones that UNDERSTAND and are helpful. Like the T-shirt suggestion which I will be trying tonight. In regards to the questions about the surgery. It has nothing to do with sleep apnea. The reason I had a sleep study test in the first place was because of this surgery. It was required along with a lot of other medical tests. I have never fallen asleep at the wheel or missed the end of a movie. I've never napped during the day or woke up tired on a regular basis. I don't fall asleep watching T.V. and yet according to the sleep study test I supposedly stop breathing 30 times an hour and have 80% blood oxygen level. My stupid machine level is 16 which apparently is sufficent enough to nearly blow the stupid mask off my face in the middle of the night causing leaking, hissing and enough noise to wake me up the few moments I've actually fallen asleep. I am not a troll or a fake. I'm just tired all the time. Unlike my life previous to being subjected to the C pap machine.

OUCH! I feel your pain. You went in for one thing and was blindsided with an SA diagnosis. Many people--in fact, I would venture to guess most--are more tired after starting Pap therapy than before. It does get better with hard work and perseverance.

Ldrakekat wrote:... I don't know what that refers to. Don't really care either. ... I am not a troll or a fake. I'm just tired all the time.

....I don't want help, I just came here to gripe bitch and complain, and get lots of attention.

sounds familiar.
Later.

I am probably going to regret this, but...

First off, I think everyone one of us here understands how frustrating cpap can be. And if your situation is as you describe (I'll give you the benefit of the doubt right now), it does truly stink. And I'm truly sorry you find yourself in this position.

That being said...

Why are you posting here? If you want help to make it work, you couldn't find a better place with information, knowledge and support. The people here can help you get through this.

If you want help. And if you want help, the first thing you will need to do is try to take a step back, calm down and ask for it.

If your purpose in posting here is simply to complain about cpap, well you can already see how that goes over. You will not get people here simply agreeing with you and complaining with you. People here have all been in your shoes (or similar shoes) and had to start out, frustrated, tired, annoyed and some wanting to bash their cpap's into tiny pieces. But most of us have worked our butts off to get a positive attitude toward making it work.

Only you can decide what has motivated you to post -- to find and get help to make this better or just to complain.

Personally, I hope you want help because I know how many are willing to take you under their wing to help you succeed. All you need do it want it too.

Lizistired wrote:

Ldrakekat wrote:... I don't know what that refers to. Don't really care either. ... I am not a troll or a fake. I'm just tired all the time.

....I don't want help, I just came here to gripe bitch and complain, and get lots of attention.

sounds familiar.
Later.

Piss off

Well said madalot! Nice to see the 'attitude' word in there too .

You are so right - and none of us started out too happy about the prospect of being strapped to a machine shoving air into our lungs by force, but we all seem to have managed - some brilliantly, others still battling after some time - the rest somewhere amongst those.

No matter where we are on that scale of nirvana-with-XPAP, pretty much everyone is willing to support, advise and help anyone who asks for it.

Ldrakekat - I have the same mask you do - I don't USE that mask because I've found 2 others I prefer 100000% over the Mirage. I keep the Mirage in case I need a mask when I can't breathe through my nose.

In a year, I've tried 9 different masks, I have and use 2 different nasal pillow masks and am picking up a new SleepWeaver mask on Saturday, which I'm hoping will improve on the other 2.

Something to remember when you are very angry, and people starte getting angry back - this is a CPAP forum - pretty much everyone here is deprived of sleep in some way or other way, so it's not just you who is feeling this way. Although it may seem that way to you right now.

As suggested, just step back a little, calm down and you'll receive all the help you need to get through this. If you stay long enough, I'm guessing you'll get to a point where you'll look forward to sleeping with your equipment - it's a love/hate thing

xena

Madalot wrote:Why are you posting here? If you want help to make it work, you couldn't find a better place with information, knowledge and support. The people here can help you get through this.

I wanted support. I wanted understanding. I wanted to know that I'm not the only person who has felt this way. Apparently I am. And yes I am angry/tired/emotional and I wanted to vent. And I choose to vent to here because I thought I would find people who understood how I felt. I am brutally honest. I tell it like it is and I don't mince words or tolerate being dumped on, personal attacks, bullied or insulted without giving as good as I get. Especially when I am tired and angry. This lack of sleep is affecting my life, my work and my emotions. All of you who point fingers at me and shake your heads and judge me clearly haven't a clue. And you don't know how lucky you are.

Oh my goodness---we all certainly have strong opinions! I don't post much, I guess you could call me a "lurker". I started my cpap therapy August 29 of this year. Fortunately, I am one of the few users who seem to have adapted easily. My cardiologist sent me for a sleep study because I kept going into a heart rhythm called a-fib. All my cardiac tests were negative or normal so he thought sleep apnea was another cause that may have been the culprit. Well, I flunked the sleep study...it was the only test I have ever flunked except an Economics II test in college.

Having said all that....do I like to wear my cpap at night? Absolutely not. Does it make me feel better? Jury is still out on that one. Would I rather wear the cpap at night or pay the astronomical hospital bills every time I wind up in the intensive care unit with the abnormal heart rhythm? Uh, guess I'll take the cpap at night!

"kat", if you read this, please reconsider wearing the stupid mask at night. I know it's not pleasant, I'm right in the boat with you on that one. It takes a lot of getting used to and I am still on the journey myself. But please give the members of this forum a chance. There are many here who have been through exactly what you are going through and have come out on the other side. They have many good ideas and suggestions to help all of us. I have learned so much from reading all their posts and have taken away much knowledge.

I don't know what kind of surgery you are set to have and it really doesn't matter. What does matter is that you take the diagnosis of sleep apnea very seriously and think of this as another step to get you healthy, just as you are considering having the surgery to get or keep you healthy as well.

Good luck!

Do you want help making this work?
Or do you just want someone to understand where you are coming from? Some place to vent and express your anger and have others express it with you but not do anything to perhaps make it work better?

You may not realize it but there is a reason that Madalot has that ID... Mad-a-lot. She understands completely your frustrations as do everyone else here.

We have all been in your shoes in some way or another. We vented, we ranted and raged and many have cried.
You aren't alone with these feelings despite what you might think.

If you want help making the best out of a bad situation there are people here willing to help.
If you want only to rant about life's injustices...there are some that will help you with that too but since most of the people here have been in your shoes and worked through the problems, they know it can be done and aren't too keen on sitting back and patting someone on the head and saying "oh, poor thing"... because they know it accomplishes nothing except promoting a pity party.

It's okay to have the pity party...but when it is over, one either has to decide to work on fixing the problem if at all possible or just stay in a pity party forever.

BTW would you look at the machine you have chose in your profile and see if it looks like your machine.
The machine you have chosen has been discontinued since pre 2007 unless you didn't get it from a DME or normal supplier.

Pugsy wrote:You may not realize it but there is a reason that Madalot has that ID... Mad-a-lot. She understands completely your frustrations as do everyone else here.

Thanks for supporting me in this, Pugsy. I appreciate it. I thought I was being pretty supportive of the OP. In my situation (which I realize OP isn't familiar with so I'm not holding it against her) -- her comments were pretty hurtful to me as well.

Pugsy wrote:If you want help making the best out of a bad situation there are people here willing to help.If you want only to rant about life's injustices...there are some that will help you with that too but since most of the people here have been in your shoes and worked through the problems, they know it can be done and aren't too keen on sitting back and patting someone on the head and saying "oh, poor thing"... because they know it accomplishes nothing except promoting a pity party.

It's okay to have the pity party...but when it is over, one either has to decide to work on fixing the problem if at all possible or just stay in a pity party forever.

Agreed completely, Pugsy. We all have to have our pity party, but in the end, we have a choice: continue feeling sorry for ourselves (which doesn't solve anything) or picking ourselves up and doing what we can to help ourselves.

To OP -- I'm sorry you feel that none of us are supportive or understand how upset you are. Sadly, we understand better than you think and some of us, more than you can understand. We're simply further along in this journey. I hope you can find a way to deal with this in a way that makes you happier. And we'll help you if we can, but as Pugsy says -- we're not going to promote a pity party.

Whether this will help or not, I don't know, but I'll give it a shot. My daughter has a medical problem that requires her to take a medication once a day and watch her diet. She sometimes gets into the "poor me" mentality and gripes and bitches about why her? Why did SHE have to inherit this disease she has?

If my inherited diseases (which the doctors still cannot pinpoint) only required a pill and watching my diet, but allowed me to live a normal life, I would be thrilled. I won't bore you with the details (read some of my threads to get an idea) but when I ask my daughter if she'd rather have HER problem or mine, she admits she'll keep her's.

And as bad as my situation is, there are people in the world much worse off than I am, and if I have to choose mine over their's, I'll keep mine - thank you.