Sister, I'm sorry to read you're having such a difficult time.
What did your doctor say about your having so many side effects, and no relief? You did bring that to his attention, I hope.
I need friends at this time,lots of problems
Re: I need friends at this time,lots of problems
_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Machine: Resmed AirSense10 for Her with Climateline heated hose ; alternating masks. |
And now here is my secret, a very simple secret; it is only with the heart that one can see rightly, what is essential is invisible to the eye.
Antoine de Saint-Exupery
Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023
Antoine de Saint-Exupery
Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023
Re: I need friends at this time,lots of problems
[quote="ozij"]Sister, I'm sorry to read you're having such a difficult time.
What did your doctor say about your having so many side effects, and no relief? You did bring that to his attention, I hope.[/quote
Oh yes, I tried to talk to him,he said,'sometimes we have to tolerate the side effects of a medication for awhile to get better.
I took a long list of side effects on paper and gave it to him to read.
I am so miserable, at this point I am wondering if it is worth it to go through this,and even if we are lucky enough to get the sed rate down and under control I'll have to stay on low dose prednisone for years with the possibilty that it may come back at any time and have to start all over again.
I feel today that it's not worth it. My face is so swollen,I don't even want to go out anymore.
Depressed? yes I am, and I think anybody else would be too.
This is no fun at all!
What did your doctor say about your having so many side effects, and no relief? You did bring that to his attention, I hope.[/quote
Oh yes, I tried to talk to him,he said,'sometimes we have to tolerate the side effects of a medication for awhile to get better.
I took a long list of side effects on paper and gave it to him to read.
I am so miserable, at this point I am wondering if it is worth it to go through this,and even if we are lucky enough to get the sed rate down and under control I'll have to stay on low dose prednisone for years with the possibilty that it may come back at any time and have to start all over again.
I feel today that it's not worth it. My face is so swollen,I don't even want to go out anymore.
Depressed? yes I am, and I think anybody else would be too.
This is no fun at all!
_________________
Mask: Swift™ FX Bella Nasal Pillow CPAP Mask with Headgears |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Re: I need friends at this time,lots of problems
No, it isn't.sister wrote:This is no fun at all!
But please do your best to find some fun for yourself. The fact that the world is full of people most of whom don't have a swollen face shouldn't keep you from going out. Look them straight in the eye - you've done nothing wrong, and how you look is not who your are -- despite the fact that society brought us women to think that's the most important thing in life. Some of us has more have things happening to then that others do - through no fault of their own. Your real friends won't care less for you because of how you look.
If you haven't read "When bad things happen to good people" perhaps now is a good time for you to do it.
I hope the medicine will have you feeling better soon.
Take care.
O.
_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Machine: Resmed AirSense10 for Her with Climateline heated hose ; alternating masks. |
And now here is my secret, a very simple secret; it is only with the heart that one can see rightly, what is essential is invisible to the eye.
Antoine de Saint-Exupery
Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023
Antoine de Saint-Exupery
Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023
- JohnBFisher
- Posts: 3821
- Joined: Wed Oct 14, 2009 6:33 am
Re: I need friends at this time,lots of problems
I can also recommend reading "A Delicate Balance: Successfully Living With Chronic Illness". You clearly are dealing with the impact of a chronic illness. Though it's not as easy to explain as MS or chronic pain, it is just as real. The fact it is hard to explain to people makes it that much more difficult for you.
Here's hoping you will find peace with your situation and your doctors will be able to help you as much as possible!
Here's hoping you will find peace with your situation and your doctors will be able to help you as much as possible!
_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear |
Additional Comments: User of xPAP therapy for over 20 yrs. Resmed & Respironics ASV units with EEP=9cm-14cm H2O; PSmin=4cm H2O; PSmax=15cm H2O; Max=25cm H2O |
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński