Total Average Leak Rate on PR System One (Spiky Graphs!)

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Pugsy
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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by Pugsy » Sun Jan 30, 2011 12:14 pm

DadscreepyCPAPmask wrote: Its funny, during my sleep tests you would have thought I would have been told I was mouth breathing at some point during it. If I am mouth breathing now I would think I was then too. It just makes me wonder how many other people on CPAP that do not visit these forums and just take the machine home with whatever mask they are initally given and "wing it". Most are probably not getting the most out of their therapy.
I think some sleep study techs probably do mention mouth breathing. It is too bad yours didn't because it would have at least given you a heads up on some potential problems. I knew I breathed through my mouth because I would have some raging sore throats and mouth dryness. I still opted to try to make the nasal pillow mask system work because I just couldn't breath with anything across my nose. It was my choice and I don't regret it. I remember when I first started and read about taping the mouth shut. I thought "no way", "how awful"..... but I did it and I found out it wasn't the death sentence my DME had tried to instill in me. The seal is easily broken with just a minimum of effort. I found this out when we had an unexpected power failure one night. Woke up and thought "Whoa, no air blowing" and realized that I had broken the seal and was breathing just fine.

Lots of people never make it to forums like this and lots of people go on to either less than adequate treatment or worse yet, put the machine in the closet because they don't see any improvement "so it must not be helping". It is indeed sad because sometimes all it takes is just a little trick or two to at least make this treatment not as much of a pain in the butt.
Sometimes it take a lot of tricks..... but that is the way of life. Sometimes easy, sometimes not so easy.

One other idea that might help you. Since I haven't read all your thread someone may have already mentioned this.
For myself and a lot of people we tend to open our mouths more often when we lay on our backs. This is why many people try to sleep on their sides as much as they can. So that is just another thing a person can try if they are trying to keep the mouth shut as much as possible.

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DadscreepyCPAPmask
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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by DadscreepyCPAPmask » Sun Jan 30, 2011 6:09 pm

I am mainly a side sleeper and very rarely sleep on my back.

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DadscreepyCPAPmask
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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by DadscreepyCPAPmask » Mon Jan 31, 2011 10:34 am

WOW my best night yet! Mouth tape again and the Resmed Soft Gel. Unfortuately, I have to send back the Soft Gel today to Sleep Nation Well at least I know what my problem is now. BTW, I had a few drinks last night and my VS rate was higher than normal

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DadscreepyCPAPmask
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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by DadscreepyCPAPmask » Mon Jan 31, 2011 10:39 am

Sorry lets trying this again

Image

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mayondair
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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by mayondair » Mon Jan 31, 2011 10:43 am

Whoo Hoo! You have tamed the leak monster! Kathy
Any landing you walk away from is a good one; if you don't break your airplane it's excellent.

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Pugsy
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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by Pugsy » Mon Jan 31, 2011 11:27 am

Well done.

How come you have to return the mask? Likely missed something in one of your posts but no time to go read them all. DME can't do anything with it.....

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DadscreepyCPAPmask
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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by DadscreepyCPAPmask » Mon Jan 31, 2011 12:30 pm

Pugsy wrote:Well done.

How come you have to return the mask? Likely missed something in one of your posts but no time to go read them all. DME can't do anything with it.....
I got it from Sleepnation.TV's mask trial program. There is a thread on the boards here about it. I have a Resmed Micro and Swift FX. I will try both of these with my mouth taped. I will probably try a full face mask next from sleep nation. Any recommendations?

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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by OutaSync » Mon Jan 31, 2011 12:42 pm

SoftGel and tape is my combination, too. I have to add a chinstrap because my jaw drops when I sleep and I can blow the tape right off. Plus when my jaw snaps shut it always catched my lips between my teeth.

You graph looks great!

Bev
Diagnosed 9/4/07
Sleep Study Titrated to 19 cm H2O
Rotating between Activa and Softgel
11/2/07 RemStar M Series Auto with AFlex 14-17
10/17/08 BiPAP Auto SV 13/13-23, BPM Auto, AHI avg <1

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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by jbn3boys » Mon Jan 31, 2011 12:44 pm

Wow! I've never had a night that good! I think I'd be rushing to buy a ResMed Soft Gel mask!

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DadscreepyCPAPmask
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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by DadscreepyCPAPmask » Mon Jan 31, 2011 1:57 pm

I am going to try my Swift FX for a few days with the mouth tape and see how it goes. After that, I will go back to the Micro. If I can't get achieve a relatively flat line with either, I will be picking up the Soft Gel sooner than later. I do want to try a FFM too. Its to bad Resmed does not make a Soft Gel FFM. I think I will try either the Quattro FX or the Respironics comfort gel FFM. Thanks to everyone for the encouraging words!

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Pugsy
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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by Pugsy » Mon Jan 31, 2011 8:18 pm

See how the Swift FX goes with taping. I have always tried and used nothing but nasal pillow mask systems so I can't really comment on the other types. I started out with the Swift LT and taping. I hated anything at all on my nose. Also at least if you have to tape with the FX you can decrease at least a little, all the crap on your face. Don't get it too tight and squish the nose. That actually makes it leak more.

Good luck.

Keep and eye out at cpapauction for the mask you have to send back. Sometimes some really good deals can be had there.
Just in case you decide you want to buy one. I have got many there, especially the ones I wanted to use as experiments that ended up in the drawer never to see the light of day again. Unfortunately I don't have the one you mentioned or I would just give it to you. I never would have wanted to try it because I would have already made up my stubborn little mind that I wouldn't like it...... Such is the way of a stubborn woman.

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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by DadscreepyCPAPmask » Tue Feb 01, 2011 3:03 pm

Had a rough night with the Swift FX and tape. I even switch out to the Resmed Micro because I knew the FX was being problematic. I had a 7 minute large leak and a fairly spiky graph. My numbers, possible not very accurate though, looked awesome 0.0 AHI!!!! I may just throw in the towel with this FX since I just can't seem to tame it. I can't wait for the slightly used Soft Gel to get here.

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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by DadscreepyCPAPmask » Mon Feb 07, 2011 9:42 am

Well, this past friday I got a Respironics premium chinstrap from my DME and finally last night decided to try it instead of taping. I was shocked when I looked at my graph this morning!! I just hope this was not a fluke

Image

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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by OutaSync » Mon Feb 07, 2011 9:47 am

Looking better and better! Was that with the SoftGel?
Diagnosed 9/4/07
Sleep Study Titrated to 19 cm H2O
Rotating between Activa and Softgel
11/2/07 RemStar M Series Auto with AFlex 14-17
10/17/08 BiPAP Auto SV 13/13-23, BPM Auto, AHI avg <1

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jbn3boys
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Re: Total Average Leak Rate on PR System One (Spikey Graphs!

Post by jbn3boys » Mon Feb 07, 2011 9:47 am

Much Better!

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Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: titration 11
Sleep study (Aug 2010): AHI 16 (On mask AHI 0.2) <-- Now, if I could just attain that "0.2" again!
aPAP for 4 months, Switched to BiPap, 2nd sleep study Feb 2011 Possible PLMD
to quote Madalot..."I'm an enigma"