Restless Leg Syndrom

Apneaat22 · Post by **Apneaat22** » Tue Nov 15, 2005 4:37 pm

Ok I know this is an Apnea/CPAP discussion, but I was just curious how common it was to have lots of leg movement reported during the sleep studies. Both of my studies showed that I had quite a bit of movement when I was sleeping. I would have thought after the first one it would have gone away with the CPAP as it seemed that I started kicking when my breathing stopped as I would expect myself to do, but I still continued to kick even with treatment being applied. I know very little about RLS but I fear this may be causing me some sleep issues that the CPAP will not help with as I assume it can wake you up as well (perhaps its my 3:00 am wakeup that I have mentioned previously)

Anyways just curious if anyone else had this reported when they had their studies?
I have never done a poll and dont know if they are used much, but thought I would try one.

Adam

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deedster · Post by **deedster** » Tue Nov 15, 2005 5:29 pm

I was told I have PLMD (Periodic Limb Movement Disorder). This is different than RLS as it occurs only when you are asleep and you are usually not aware of it. RLS usually also occurs when you are awake. The study said I was jerking my legs 200/hr. Wow, no wonder I'm tired after running all night! I thought I went to sleep and slept all night with no problems.

tlc95066 · Post by **tlc95066** » Tue Nov 15, 2005 6:56 pm

Ok I didn't exactly sleep like a baby, but I wasn't told that I was a kicker. As a matter of fact I had a very difficult time falling asleep. Go figure
I ended up taking some ambien and fell asleep in about 20 mins.

Take care.
Teri

tater pie · Post by **tater pie** » Tue Nov 15, 2005 7:07 pm

I didn't even know I had RLS until I got a copy of my sleep study. My sleep doctor never mentioned it to me nor did my ENT. My sleep doc mentioned that I had RLS in the copy of the study he sent to my ENT. My ENT replied back to him that I should be treated for RLS but on my office visits to them, neither one mentioned it to me and like I said, I wouldn't have ever known it if I hadn't requested a copy of my sleep study. It's too late to do anything about it now. I don't have insurance anymore.

Sleepless on LI · Post by **Sleepless on LI** » Tue Nov 15, 2005 7:11 pm

I was told that I must have been beating up my husband during our sleep, which could have explained his unexplainable black & blue marks. I averaged 14+ per hour PLMs during my first sleep study. They claimed that once on CPAP during my titration night, 0. How that can be, I don't know, but that's what they said. That's why I've always wondered if even though someone who has CPAP is sleeping better with little events at night but still isn't feeling energetic, but was diagnosed with PLMs during their PSG, if the CPAP cured that for them or not which could be the reason why they just still don't feel well. As my doctor said when I questioned her on why they were just treating the 4 HI I had but yet were doing nothing for the 14+ PLMs per hour, sometimes the CPAP eliminates/cures the PLMs. So if I went on the therapy for a month or so, which, according to her, would be a fair amount of time to give the therapy to make me feel better, and I still wasn't feeling better, she would THEN put me on something to help with PLMs. Fortunately, didn't need it.

Apneaat22 · Post by **Apneaat22** » Tue Nov 15, 2005 7:26 pm

That was what I was thinking. I know I havent been on therapy much, but I am still tired, especially at night (I am falling asleep as I type this at 8:30).I just remembered that I had this mentioned during my studies. I am setting up at least a phone follow up so hopefully I can get my several issues worked out.

Just curious if it was just me but it sounds like it is more of everyone in some form.

Adam

sleepyred · Post by **sleepyred** » Tue Nov 15, 2005 7:45 pm

Okay - this will be a strange answer. I did not have one episode of restless legs during my study. However, my ferritin level was 13 (12 is anemic) and my husband told the doctor that I shake the bed almost every night. The doc said he took my husband's 18 years of sleeping with me over the one night sleep study and said I have restless legs. I also take Klonopin.

No more restless legs - well, I have had a couple of nights and when it happens, my husband thinks we're having an earth quake!

allen · Post by **allen** » Tue Nov 15, 2005 7:59 pm

Hmm. My first reply got lost or I pushed a wrong command. Here goes again...

I was diagnosed with RLS during the sleep study. Like Lori, once they had me on CPAP for titration, the episodes went down to zero or very few.

Just this morning, I made a connection between two dreams that have recurred over the last several years and RLS.

In one of the dreams, I'm trying to start jogging, but my feet won't work. I can walk, but I cannot run. Sometimes, in that dream, I'm already running and then, suddenly, I realize that I can't run. The feet just don't know what to do. It's a very perplexing feeling.

In the other, more frequent dream, I'm driving a car and apply the brakes. Not only does the brake pedal go straight down to the floorboard, it goes right through the floorboard. I keep pushing the brake pedal and it keeps going forward. My foot stays connected to the pedal and I'm pushing it "into infinity". It's a very strange and physical feeling in the dream, accompanied by a sense of panic from not being able to stop the car.

I'd bet a lot of money that when I dream those dreams, I'm having some pretty big episodes of RLS.

I don't think I've had either dream since I began CPAP, but I've been dreaming so much that I'm not sure.

Allen

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CPAPopedia Keywords Contained In This Post (Click For Definition): Titration, CPAP

Snoozie · Post by **Snoozie** » Tue Nov 15, 2005 8:31 pm

I don't have restless leg syndrome, but I did have a lot of episodes of PLMD also, which now explains why my legs used to ache so very much with no explanation as to why. Thankfully the leg pain has gone away for the most part.

Guest · Post by **Guest** » Tue Nov 15, 2005 8:41 pm

i had periodic limb movements during my sleep study. Once titrated the second study, I still had them but not as much. My wife used to tell me how often I would have them. I would have them before i even went to sleep. The creepy crawley feeling is soooo annoying.

Anyway, I don't really have many episodes of that nature. I still get the occasional Charlie horse though.

JimH

Jere · Post by **Jere** » Tue Nov 15, 2005 8:46 pm

No kicking but not much sleeping like a baby, either.

Colorado Jan · Post by **Colorado Jan** » Tue Nov 15, 2005 9:26 pm

I've always had Restless leg syndrome and been very aware of it. Hubby had to learn quickly that when we are out to dinner or a movie or whatever, when I say I have to leave I MEAN I have to LEAVE. NOW. My legs go NUTS and I can't hold them still. And I can't pretend I'm not in agony.

But my sleep study also showed I have periodic leg movement when I sleep as well. I had 21 episodes per hour and 20 of those times I woke up. After CPAP, then they said I had 20 episodes per hour still...but the difference was that they didn't awaken me. So I guess that is good?

And yes, my legs ache and itch and whatever they can think of all the time. But prior to CPAP, I would wake up in such misery that I'd often think...how bad would having your legs amputated be? Couldn't I adjust to that? But then I'd think with my luck I'd have phantom limb pain....My legs haven't been as bad since CPAP therapy. That's been three months? now?
So time will tell whether that is just pure luck or whether the therapy is actually helping.

Oh, I didn't vote in the poll...officially anyway....

Jan in Colo.

Severeena · Post by **Severeena** » Tue Nov 15, 2005 9:52 pm

My very first sleep study showed all kinds of leg movement and now I am on Mirapex and no I do not have the urge to go gambling.

I was never put on a cpap or apap during any of my studies.

Sleepless on LI · Post by **Sleepless on LI** » Tue Nov 15, 2005 9:54 pm

[quote="Severeena"]My very first sleep study showed all kinds of leg movement and now I am on Mirapex and no I do not have the urge to go gambling.

I was never put on a cpap or apap during any of my studies.

Severeena · Post by **Severeena** » Tue Nov 15, 2005 10:05 pm

You are not going to believe this, but this was on Fox News or CNN about one of the side affects being an addiction to gambling.

My husband and I love to go to Potawanimee, but not any more.

Mask

Additional Comments: Aussie Heated hose for rain out/PapCap Headgear and chin strap

Restless Leg Syndrom

Were you told you were kicking during your sleep study, even on CPAP?

Restless Leg Syndrom

RLS