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KMCKOB · Post by **KMCKOB** » Sat Apr 17, 2010 6:22 pm

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BlackSpinner · Post by **BlackSpinner** » Sat Apr 17, 2010 6:27 pm

KMCKOB wrote:Lifestyle and home remedies
By Mayo Clinic staff

In many cases, self-care may be the most appropriate way for you to deal with obstructive sleep apnea and possibly central sleep apnea. Try these tips:

.

Why don't you put these tips where the sun don't shine!

bearded_two · Post by **bearded_two** » Sat Apr 17, 2010 6:30 pm

The Mayo Clinic staff actually wrote this?

BlackSpinner · Post by **BlackSpinner** » Sat Apr 17, 2010 6:33 pm

bearded_two wrote:The Mayo Clinic staff actually wrote this?

Maybe it was Mayo as in Mayonnaise - This is like those old kraft food commercials - you know lime jello, mashmellows and mayonaise icecream?

jules · Post by **jules** » Sat Apr 17, 2010 6:48 pm

he wants to quit cpap and didn't like being told to make funeral arrangements

allen476 · Post by **allen476** » Sat Apr 17, 2010 6:51 pm

KMCKOB wrote:Lifestyle and home remedies
By Mayo Clinic staff

In many cases, self-care may be the most appropriate way for you to deal with obstructive sleep apnea and possibly central sleep apnea. Try these tips:

* Lose excess weight. Even a slight loss in excess weight may help relieve constriction of your throat. Sleep apnea may be cured in some cases by a return to a healthy weight. If you don't already have a weight-loss program, talk to your doctor about the best course of action for weight loss.
* Avoid alcohol and medications such as tranquilizers and sleeping pills. These relax the muscles in the back of your throat, interfering with breathing.
* Sleep on your side or abdomen rather than on your back. Sleeping on your back can cause your tongue and soft palate to rest against the back of your throat and block your airway. To prevent sleeping on your back, try sewing a tennis ball in the back of your pajama top.
* Keep your nasal passages open at night. Use a saline nasal spray to help keep your nasal passages open. Talk to your doctor about using nasal decongestants or antihistamines because these medications are generally recommended only for short-term use.

And while they were at it, they should have wrote that the OSA Fairy might be around to cure you as well. Or better yet, try a faith healer, I'm sure that one will work.

Allen

LinkC · Post by **LinkC** » Sat Apr 17, 2010 7:30 pm

Yes, those are all good tips...a bit simplistic, but good.

Unfortunately, none of them are a substitute for CPAP. Currently, some form of PAP is the most effective treatment available. There's no getting around that. Thinking that nasal spray and side-sleeping will solve your OSA problems is dreaming...and dangerous. But it's your life (or lack thereof).

DoriC · Post by **DoriC** » Sat Apr 17, 2010 9:18 pm

These are good tips IN ADDITION to using cpap. Nothing wrong with good eating habits and good sleep hygiene but not using cpap for sleep apnea is all wrong.

DreamDiver · Post by **DreamDiver** » Sat Apr 17, 2010 9:31 pm

jules wrote:he wants to quit cpap and didn't like being told to make funeral arrangements

I agree - this is an attempt to garner encouragement to stop CPAP. I wish he would stop shouting in the title of all his posts. I get the impression that in about the next month he's going to 'discover' some miracle cure and 'share with us' how 'great' it is. Watch for it. I told you first. There's no real engagement here. This persona seems staged. If I'm wrong, I apologize... But I don't think I'm wrong.

jules · Post by **jules** » Sat Apr 17, 2010 9:35 pm

If I remember right his first posts were should he get his machine and mask online or go to a local DME - then there was a problem with the script not being met exactly etc ------ he is looking for excuses to not do this --- he doesn't want to spend time energy money to find a mask that WILL work

we get them here every so often - they disappear - we don't get sent a copy of the obituary

ozij · Post by **ozij** » Sat Apr 17, 2010 10:30 pm

viewtopic/t51364/QUITTING-CPAP.html

A tracheotomy may be a very good solution for someone who wants good oxygenation.
http://www.mayoclinic.com/health/tracheostomy/MY00261

Definition
By Mayo Clinic staff
Tracheostomy is a term used to describe a surgically created hole at the front of your neck going into your windpipe (trachea). The term for the surgical procedure to create a tracheostomy is "tracheotomy," but the two terms are often used interchangeably.
In rare circumstances, a tracheostomy is an emergency procedure to help you breathe when your airway is suddenly blocked or impaired, such as after a traumatic injury to your face or neck. But in most cases, tracheostomy is a planned procedure, such as when health problems require long-term use of a machine (ventilator) to help you breathe.
Most tracheostomy procedures are reversed once you regain the ability to breathe on your own. For some people, tracheostomy is permanent.

O.

DreamOn · Post by **DreamOn** » Sat Apr 17, 2010 10:57 pm

For anyone who's interested, here is the link to the information cited by KMCKOB: http://www.mayoclinic.com/health/sleep- ... e-remedies.

I agree with the others that those are fantastic tips to supplement CPAP therapy, but I sure wouldn't rely on those measures alone to prevent apneas from occurring, robbing my body and brain of oxygen night after night. Sleep apnea has already stolen enough from me. I am not going to allow it to do any more damage. My health and my life are too important!

jules · Post by **jules** » Sat Apr 17, 2010 11:00 pm

and the next topic on the list -

http://www.mayoclinic.com/health/sleep- ... e-medicine

Alternative medicine
By Mayo Clinic staff

Most alternative medicines for sleep apnea have not been well studied. Acupuncture has shown some benefit, but also needs more study. Although it may be used in conjunction with standard treatments, acupuncture should not replace them. Talk to your doctor about any alternative treatment approaches you're considering.

Standard treatment is XPAP - and yeah there are med school profs who don't rx it for their patients - been there

elena88 · Post by **elena88** » Sun Apr 18, 2010 1:39 am

Hey, from one newbie who wanted to quit to another.. suck it up, get it done..
YOu dont need to rustle up reasons why it wont work, I already did that, and THAT doesnt work either..
You dont need to mount a defense, you dont need to list all the reasons you cant or dont want to do it..
I tried that too..
Im very stubborn, you must be to. I dont like being controlled, you must not enjoy it either. I dont like doctors tell me "how it is"
I didnt want to "marry" this machine either..
That being said, Im sure you have been thru much tougher things in your life.. and you survived them.
Oh, and what someone said to me.. "was I prepared to have my family change my diapers after I had a stroke"
uh, short answer.. No, I NEED TO MAKE THIS WORK..
Use your energy contructively not descructively. If you are tired, frustrated, and sick of it all.. join my club.. ready to throw in the towel?
Its not worth it, I know that now.. Its not worth the alternatives..

park_ridge_dave · Post by **park_ridge_dave** » Sun Apr 18, 2010 9:04 am

DreamOn wrote:For anyone who's interested, here is the link to the information cited by KMCKOB: http://www.mayoclinic.com/health/sleep- ... e-remedies.

I agree with the others that those are fantastic tips to supplement CPAP therapy, but I sure wouldn't rely on those measures alone to prevent apneas from occurring, robbing my body and brain of oxygen night after night. Sleep apnea has already stolen enough from me. I am not going to allow it to do any more damage. My health and my life are too important!

Having read the information posted on the Mayo Clinic Website, I am a little disturbed by it. And as so many others have stated, "These are good tips to use in addition to therapy".

I think that many people would use this information as an excuse to avoid a sleep study and subsequent diagnosis of their problem. Additionally, anyone in the denial stage might just ignore a doctor's advice and

quit therapy. (The seven stages of CPAP therapy are described here in the wiki wiki/index.php/Seven_Stages_of_CPAP). I seem to be in Immersion and ownership right now

I think maybe we should write to the Mayo clinic and see if they might modify the information with some disclaimers that self diagnosis and treatment for the condition may be detrimental to one's health?

Maybe if enough of us wrote (no rants however ) they might reconsider what they have posted.

Just my opinion.

Cheers,

Dave

Machine	Mask	Humidifier

Additional Comments: 11-14 cmH2O

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