This post was vaporized

by extraterrestrial forces

got your funeral arrangements taken care of?

Please do not give up. I know it is difficult and results sometimes are slow to come. It can be so frustrating. Please stay on your therapy. Jules is right, the results can be devastating to your loved ones. We would miss you too. I care and I know the others in here do too.

Laura

Although I thought Jules' comment was a little harsh, it did hit home when I read it, and has the desired effect and Jules really is spot on here in terms of reality. You really need to give CPAP a little more time. Quitting CPAP isn't like a "Oh I'll go to the shops later" type of procrastination. It's something you HAVE to do.

If you do not conitnue with CPAP therapy then you are likely to have
1) Prolonged Heart problem
2) High Blood Pressure
3) Lack of Sleep
4) Brain cells will start to die

If you drive a car you will not only be a danger to yourself but to others on the road. Not being on CPAP therapy if you suffer from Sleep Apnea is like trying to do 20 things at once and concentrate on each of the 20 items. It's something impossible to do, and that's what it's like without CPAP therapy. You will be oxygen deprived which has a huge knock on effect on your brain and other vital organs within your body.

CPAP for some is easy to adapt to, for others it's not. You have to try and stick at it for as long as you can. If something isn't working out, go talk to your Doctor/DME. When making changes, e.g. a new mask, you need to at least give it two weeks, preferably four weeks to get used to it.

Long term you'll find you will adapt to CPAP, but finding the right mask and size is key to staying on therapy. More importantly having a good support group where advice and talk is free, like it is here, can really help to allow you to try different things. Most of us have all been through this at least once in our life, and can help you out if you need it.

Thanks
Dave

Please listen to me and to everyone else. I came here yesterday with my machine packed up, and I was sure I couldnt do it..
I KNEW I had to be one of those cpap intolerant people.. Its been six weeks of hell, and then I came here ready to give up as you are..
and I learned so much! By trying so hard, I did a lot of things ass backwards....
You cant believe unless you stick around here, all the help and suggestions you will get.. and guess what? They will HELP YOU..
Maybe at this moment, youre doctor cant help you, or your DME, but THE PEOPLE HERE WILL help you figure out what your problem is with your masks,
or machine, or your feelings toward or, or your routine sourrounding it..
My machine was packed, I sterilized the equipment, I put in on my calander, to drop it off.. that was yesterday morning..
After all the suggestions I got, and THEY WORKED.. I had the best night ever..
no its not perfect yet, its going to take time...
I KNOW how frustrated you are, and many people have been where you are.. Its not time to give up yet, and they will tell you why..
They will tell you how many masks you have to go thru, how many machines... or it maybe something simple like it was with me..
(my thread was called.. "how do you know if you are cpap intolerant" Its probably on the next page.. go have a look..
You cant give up, if I didnt give you, you cant either. Just hang on a bit till you get some more suggestions..
One thing I can tell you is DONT make your decision to quit after you have "HAD" it with your mask or machine.. youre not thinking clearly,
and neither was I..
You cant put a price on your health, that I have learned here, and that price maybe time, it maybe money, it maybe frustration, it
maybe patience... .. its just non negotionable.. you need your health, and you need to get succeed at this therapy.. and you can.. just
dont give UP YET!

Get an oximeter. If your O2 goes below 88%, you're not getting enough oxygen, and you will eventually die or kill brain cells from oxygen starvation. You will then need to try a more invasive alternative. Unfortunately, it will probably be CPAP.

The Fischer & Paykel FF 431 and 432 masks sit under the chin, so no lower lip issues. The 432 comes with a foam insert and for me, it has reduced the nose pain. I wake up a little sore but it goes away in a few minutes.

elena88 wrote:Please listen to me and to everyone else. I came here yesterday with my machine packed up, and I was sure I couldnt do it..
I KNEW I had to be one of those cpap intolerant people.. Its been six weeks of hell, and then I came here ready to give up as you are..
and I learned so much! By trying so hard, I did a lot of things ass backwards....
You cant believe unless you stick around here, all the help and suggestions you will get.. and guess what? They will HELP YOU..
Maybe at this moment, youre doctor cant help you, or your DME, but THE PEOPLE HERE WILL help you figure out what your problem is with your masks,
or machine, or your feelings toward or, or your routine sourrounding it..
My machine was packed, I sterilized the equipment, I put in on my calander, to drop it off.. that was yesterday morning..
After all the suggestions I got, and THEY WORKED.. I had the best night ever..
no its not perfect yet, its going to take time...
I KNOW how frustrated you are, and many people have been where you are.. Its not time to give up yet, and they will tell you why..
They will tell you how many masks you have to go thru, how many machines... or it maybe something simple like it was with me..
(my thread was called.. "how do you know if you are cpap intolerant" Its probably on the next page.. go have a look..
You cant give up, if I didnt give you, you cant either. Just hang on a bit till you get some more suggestions..
One thing I can tell you is DONT make your decision to quit after you have "HAD" it with your mask or machine.. youre not thinking clearly,
and neither was I..
You cant put a price on your health, that I have learned here, and that price maybe time, it maybe money, it maybe frustration, it
maybe patience... .. its just non negotionable.. you need your health, and you need to get succeed at this therapy.. and you can.. just
dont give UP YET!

Well worth repeating!! I can hear so much positive emotion behind that post.

Aren't the worst critics the best advocates once they've been converted to the Dark Side?!

Elena, in the few days you've gone from anti-CPAP to pro-CPAP, I am sure your posts have already helped nudge others towards the Hose. See, you don't have to be a long-time Cpaper to give help on this forum.

This is what I meant in the other thread by this original poster: no engagement. I suspect this will end up being an advertisement for some 'miracle' discovery he's building up to 'discovering'. Just wait for it. If this were a real person, he'd engage us personally, rather than making bland reports about health issues and leaving us to hash out and emote about his 'problems'. I'm convinced this is not a real person. It's a spammer waiting to spring his product. For those of you on other apnea forums - are you seeing anything like this guy posting there? That would be the proof.

From the other thread:

DreamDiver wrote:

jules wrote:he wants to quit cpap and didn't like being told to make funeral arrangements

I agree - this is an attempt to garner encouragement to stop CPAP. I wish he would stop shouting in the title of all his posts. I get the impression that in about the next month he's going to 'discover' some miracle cure and 'share with us' how 'great' it is. Watch for it. I told you first. There's no real engagement here. This persona seems staged. If I'm wrong, I apologize... But I don't think I'm wrong.

SingleMom wrote:The Fischer & Paykel FF 431 and 432 masks sit under the chin, so no lower lip issues. The 432 comes with a foam insert and for me, it has reduced the nose pain. I wake up a little sore but it goes away in a few minutes.

So far, the 431 is the ONLY mask I have been able to continue using and mainly for this reason. Because it is full face AND goes below the chin, my nose and mouth are totally free inside the mask and I can breathe through both. The 432, with the foam insert, gave me a blister on my cheek, so I switched back to the 431. And I use it every night, all night, without much trouble.

I had to try 6 masks before setting on 2 that I rotate between. I agree with the PP's on the F&P 432 that sits with a place for your chin. This is my favorite mask. I could not use either of the masks that you tried. In fact, they were both, of the six masks I tried, the very bottom two. I Might as well throw them out.

Guest wrote:I had to try 6 masks before setting on 2 that I rotate between. I agree with the PP's on the F&P 432 that sits with a place for your chin. This is my favorite mask. I could not use either of the masks that you tried. In fact, they were both, of the six masks I tried, the very bottom two. I Might as well throw them out.

In order for me to be comfortable and feel safe with a mask, my mouth MUST be able to open and allow me to breathe, plus I need to be able to lick my lips if necessary. If the mask touches my lips, at all, I can't handle it. The 431 is the ONLY one I've found that works okay for that. The total face masks do too, but because I am a side sleeper, they were very uncomfortable for me.

I know the feeling,I have been on cpap for three years now and still feel tired during the day and fall asleep in evening watching tv.
I have no trouble with cpap other than I awake every day with only five to six hours of sleep,I just wake up!I am hoping to find
a sleep aid or sleeping pill to keep me out longer,anyone hear of puresleep...Any how hang in there,I am...




Mike

Guest wrote:I had to try 6 masks before setting on 2 that I rotate between.

In the six months that I've been using CPAP, I've tried on at least 15 different masks, most in various sizes. I've only found a few that work for me. You have to be persistent. Try different styles and sizes of masks until you find what works.

Sure, using the machine is a hassle. I'd rather not do it IF I had the choice. But I don't, so I keep working through any therapy challenges and carry on with my life. I hope that you do too, KMCKOB (aka "Suffocation Guy"). There are lots of people here to support you along the way. Trust me, the positive results are worth it! This therapy has changed my life, for the better.

Obviously since you took the time to post this, you are looking to be talked out of quitting. Consider your motivation for doing so and think about what others here have said. Then when you are ready to deal with the issues you have been having, consider the questions:

- Do you really need a full face mask? I had similar issues with nose bridge and leaking with full face masks. I thought I was a mouth breather, but turns out I can breath just fine through my nose all night (and I'm lucky that I don't mouth-leak very often at all). Nasal masks (over the nose is what I use) don't have the same issues as full face masks.

- Have you really done all you can to find the right mask? Trying 2 different ones may not be enough... yes that is frustrating, but it is the reality. I tried 3 different masks before finding the one that works for me. I'm certain others had to try even more... and in different sizes.

- Is your mask the right size?

If you are really quitting, then I doubt you will come back to read the responses. If you want help figuring your issues, post more specifics on the issues you are having, do some searching on the forum for previous posts and suggestions (the issues you describe are very common).