Spoke with my Doctor

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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howkim
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Re: Spoke with my Doctor

Post by howkim » Mon Jun 08, 2009 1:50 pm

BleepingBeauty wrote: Why does the medical profession make it so difficult to get what you ask for? I had a feeling that this would be the result, although I was very specific in asking for a FREE T3 test, and the gal who drew my blood seemed to be on-board with exactly that.
I bet that the Free T3 test wasn't pre-printed on the lab request, so the tech checked the name of the one that looked closest. Usually Free T3 is not on pre-printed lab requests. The only thing that needs to be done is write it in and find the right code number from the big book.

Suggestion: Healthcheckusa.com, unless you live in New York or New Jersey (and maybe California). They have laws against patient direct testing. You can order your own tests. HOWEVER, insurance will not cover them. The actual tests are performed by LabOne (I hope they're still doing it), so most docs don't have a problem accepting them. Just don't tell them that you ordered them yourself. The VIPII profile is the one, I think, that includes the tests you want. It's about $80.

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Re: Spoke with my Doctor

Post by BleepingBeauty » Mon Jun 08, 2009 10:52 pm

SaltLakeJan wrote:Hi Beauty:: In the midst of your medical quandaries you took the time to give me support and encouragement. I don't know exactly why, but your words gave me the POWER to leave my fears about my sleep study. A short time ago, we didn't know each other, but now your words became THE TERMINATOR to my worries about my sleeop study. You are an awesome support person Beauty.
Thanks, Jan. As I said in your thread, just doin' my part around here.
Beauty, iof I ever run into a jam again (and knowing me, I will ) I hope you will help me out as you did here. I want to support you. I am frustrated at the poor medical care you have received. I would like to march into your doctor's offices, and say, "Guys, you are dealing with a very special person. Get your act together. "
Cool! I could use an advocate!
Today all we can hope for is that you get the medicare care you deserve.
Well, I'm getting the best care for my apnea that I can think of, right here in this forum. The rest will have to wait, as this is my priority right now. I'm expecting a data-capable machine on Wednesday, and I have much to learn about that aspect of therapy. I've been on the hose for more than 18 months now, but I'm a newbie where data is concerned. This machine will be the best b-day gift I've ever given myself, and I can't wait to get started with data collection. I bought some beautiful portabella mushrooms today, but I'll be happy not to BE one anymore.

I've been thinking about the thyroid and pulmonary issues for the past couple of days, and I've decided that I'm not going to push my PCP (or any other doctor, for that matter) to do further tests just yet. I have a lot on my plate as it is, trying to get good sleep, eating the right way, exercising, and cutting down on the smoking. I just don't have the energy or the ability to tackle anything more in the way of medical concerns until I've sorted out my sleep issues.
Beauty, other than your inedequate medicare care, you are perfect in my eyes. Best to you and many thanks again.
Rut-roh. You're gonna spoil me, Jan!

But thanks for the very kind words. We're all in this together.
Veni, vidi, Velcro. I came, I saw, I stuck around.

Dx 11/07: AHI 107, central apnea, Cheyne Stokes respiration, moderate-severe O2 desats. (Simple OSA would be too easy. ;))

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Re: Spoke with my Doctor

Post by BleepingBeauty » Mon Jun 08, 2009 11:06 pm

howkim wrote:
BleepingBeauty wrote: Why does the medical profession make it so difficult to get what you ask for? I had a feeling that this would be the result, although I was very specific in asking for a FREE T3 test, and the gal who drew my blood seemed to be on-board with exactly that.
I bet that the Free T3 test wasn't pre-printed on the lab request, so the tech checked the name of the one that looked closest. Usually Free T3 is not on pre-printed lab requests. The only thing that needs to be done is write it in and find the right code number from the big book.
I have no doubt you're right about that, howkim. But as I posted to Jan, above, I'm going to put further thyroid and pulmonary testing on the back burner for now. I can only handle so much, and I feel like I'm overextended on patience and fortitude at the moment. But thank you for your willingness to educate me. I do appreciate it.
Suggestion: Healthcheckusa.com, unless you live in New York or New Jersey (and maybe California). They have laws against patient direct testing. You can order your own tests. HOWEVER, insurance will not cover them. The actual tests are performed by LabOne (I hope they're still doing it), so most docs don't have a problem accepting them. Just don't tell them that you ordered them yourself. The VIPII profile is the one, I think, that includes the tests you want. It's about $80.
Very handy info, so thanks for that. I'll keep it for future reference. But I'm a little confused about how the process works. How would I go about doing it on my own, if it comes to that? Would I just walk into any local lab and tell them what I want, pay them for it, and have the results sent directly to me? Once the doctor has them (either through the lab or from me), isn't he going to ask who ordered the testing?

Sorry if these are stupid questions; I'm confuzzled, as usual.
Veni, vidi, Velcro. I came, I saw, I stuck around.

Dx 11/07: AHI 107, central apnea, Cheyne Stokes respiration, moderate-severe O2 desats. (Simple OSA would be too easy. ;))

PR S1 ASV 950, DreamWear mask, F&P 150 humidifier, O2 @ 2L.

jules
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Re: Spoke with my Doctor

Post by jules » Mon Jun 08, 2009 11:21 pm

directlabs.com is another place to order tests out of pocket - I have used them for a test that isn't a blood draw but they appear to use to use a lab in my area also for blood work

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Tell Me Who They Are, And I'll Tell 'Em!

Post by Muffy » Tue Jun 09, 2009 3:12 am

BleepingBeauty wrote: I've been thinking about the thyroid and pulmonary issues for the past couple of days, and I've decided that I'm not going to push my PCP (or any other doctor, for that matter) to do further tests just yet.
Don't we at least want to tell the PCP office that they're doing the screening spirometry incorrectly? The way they're doing it now, everybody is coming out of there with some degree of restrictive component and an obstructive value so low (PEF, at < 50% predicted) that by definition, they should go to the ED. As well as a non-existent calibration procedure. And perhaps being prescribed medications that they don't need (you don't take bronchodilators for restrictive lung disease).

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Re: Tell Me Who They Are, And I'll Tell 'Em!

Post by BleepingBeauty » Tue Jun 09, 2009 7:49 am

Muffy wrote:
BleepingBeauty wrote: I've been thinking about the thyroid and pulmonary issues for the past couple of days, and I've decided that I'm not going to push my PCP (or any other doctor, for that matter) to do further tests just yet.
Don't we at least want to tell the PCP office that they're doing the screening spirometry incorrectly?
I certainly do appreciate your POV and your opinion on this, Muffy, but I don't want to risk alienating my PCP (who seems to think I'm over the edge with this stuff already) any further. We can do whatever we want, but I don't want to be left without a PCP. This is a small practice in a small town, and I don't have many choices when it comes to local doctors.

You probably think my PCP is pretty useless, and I'd be better off anywhere else. I'm not sure I agree with that, as I get pretty decent routine care there (from my layperson's POV, anyway). But even if I did agree, my options are limited, and who's to say another small-town doctor would be any different? Driving an hour or two each way to see a specialist is one thing; I can't take that on for routine visits to a PCP. Perhaps when my sleep is more consistent and I can rule it out as a contributor to other possible medical issues, I can pursue this further.

It was you who said to me repeatedly that sleep instability breeds breathing instability. (See, I listen.) It's not surprising that my lungs would have some restriction, considering my history; but I never feel so out-of-breath that I need an inhaler, even though I have one now. So I'm not worried about my ability to breathe; my apnea (obstructive and central) is the big problem, as I see it. So that's what I'm focusing on right now, getting consistently good sleep for awhile.

I spoke with the smartest woman I know (my mother) about all of this, and even she thinks I'm going overboard with these other avenues. She was a nurse for many years, and smart as a whip. Went to nursing school when I was in HS and my youngest sibling had just entered the first grade. Made the Dean's List every semester, was invited to join Who's Who in American Junior Colleges, basically put us kids to shame when it came to academics. As mother and daughter, we've certainly had some big disagreements over the years, but I respect her and value her opinion, especially on medical issues.
The way they're doing it now, everybody is coming out of there with some degree of restrictive component and an obstructive value so low (PEF, at < 50% predicted) that by definition, they should go to the ED. As well as a non-existent calibration procedure. And perhaps being prescribed medications that they don't need (you don't take bronchodilators for restrictive lung disease).

Muffy
I've been a proponent all my life of doing things the "right way," but I can't fix everything that isn't. I carry a good amount of personal responsibility in that regard, but I can't fight every battle, and this one just isn't at the top of my list right now.

I think you and I share a few personality traits, Muffy, and, with your background, you'd probably get along very well with my mother (likely better than I do). But I don't have the medical expertise that you and many others do, to make this kind of point with my doctor and be taken seriously. The title of your post indicates that YOU want to tell them where they're going wrong on spirometry; I'd love that if it wouldn't negatively impact my own situation, but I fear it will...
Veni, vidi, Velcro. I came, I saw, I stuck around.

Dx 11/07: AHI 107, central apnea, Cheyne Stokes respiration, moderate-severe O2 desats. (Simple OSA would be too easy. ;))

PR S1 ASV 950, DreamWear mask, F&P 150 humidifier, O2 @ 2L.

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Re: Spoke with my Doctor

Post by howkim » Tue Jun 09, 2009 8:24 am

BleepingBeauty wrote: How would I go about doing it on my own, if it comes to that? Would I just walk into any local lab and tell them what I want, pay them for it, and have the results sent directly to me? Once the doctor has them (either through the lab or from me), isn't he going to ask who ordered the testing?

Sorry if these are stupid questions; I'm confuzzled, as usual.
You to to the website, order and pay for the test panel you want. They send you (via s-mail) the test requisition. With req in hand, you go to a LabOne phlebotomy office to have the blood drawn. You can get your results online (after a couple of days) and through s-mail (a week or 10 days). Sure the doc can ask. You can tell him/her whatever you please (health fair in a different town, perhaps?), EXCEPT that you ordered them yourself. If you do that, be prepared for a chewing out.

My mother the English teacher taught me that questions based in ignorance (lack of knowledge) are not stupid.

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Re: Tell Me Who They Are, And I'll Tell 'Em!

Post by -SWS » Tue Jun 09, 2009 8:32 am

BleepingBeauty wrote: I've been a proponent all my life of doing things the "right way," but I can't fix everything that isn't. I carry a good amount of personal responsibility in that regard, but I can't fight every battle... But I don't have the medical expertise that you and many others do, to make this kind of point with my doctor and be taken seriously. The title of your post indicates that YOU want to tell them where they're going wrong on spirometry; I'd love that if it wouldn't negatively impact my own situation, but I fear it will...
I completely understand where you're coming from with that, BB. You're battling fatigue right now. So your plate is overly full with an entire array of health care concerns and battles. We can only take on so much. Much less when we're fatigued.

I agree that it's okay to put that one on the back burner for now. However, I'd suggest eventually arranging a PFT at a clinic or pulmonologist's office where they are known to be done properly. Then ask those PFT savvy clinicians if they wouldn't mind quickly evaluating the methods and results of your previous PFT. When/if they find faults, you might ask them if they would politely make PFT suggestions to your PCP for the benefit of all follow-up patients. Ask them not to burn bridges with your PCP as well.

Just a thought... Good luck!

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Re: Spoke with my Doctor

Post by BleepingBeauty » Tue Jun 09, 2009 9:25 am

howkim wrote:
BleepingBeauty wrote: How would I go about doing it on my own, if it comes to that? Would I just walk into any local lab and tell them what I want, pay them for it, and have the results sent directly to me? Once the doctor has them (either through the lab or from me), isn't he going to ask who ordered the testing?

Sorry if these are stupid questions; I'm confuzzled, as usual.
You to to the website, order and pay for the test panel you want. They send you (via s-mail) the test requisition. With req in hand, you go to a LabOne phlebotomy office to have the blood drawn. You can get your results online (after a couple of days) and through s-mail (a week or 10 days). Sure the doc can ask. You can tell him/her whatever you please (health fair in a different town, perhaps?), EXCEPT that you ordered them yourself. If you do that, be prepared for a chewing out.

My mother the English teacher taught me that questions based in ignorance (lack of knowledge) are not stupid.
Whew. I don't feel stupid now, with your detailed explanation (and your mother's wisdom).

Thanks again.
Veni, vidi, Velcro. I came, I saw, I stuck around.

Dx 11/07: AHI 107, central apnea, Cheyne Stokes respiration, moderate-severe O2 desats. (Simple OSA would be too easy. ;))

PR S1 ASV 950, DreamWear mask, F&P 150 humidifier, O2 @ 2L.

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Re: Tell Me Who They Are, And I'll Tell 'Em!

Post by BleepingBeauty » Tue Jun 09, 2009 9:57 am

-SWS wrote:
BleepingBeauty wrote: I've been a proponent all my life of doing things the "right way," but I can't fix everything that isn't. I carry a good amount of personal responsibility in that regard, but I can't fight every battle... But I don't have the medical expertise that you and many others do, to make this kind of point with my doctor and be taken seriously. The title of your post indicates that YOU want to tell them where they're going wrong on spirometry; I'd love that if it wouldn't negatively impact my own situation, but I fear it will...
I completely understand where you're coming from with that, BB. You're battling fatigue right now. So your plate is overly full with an entire array of health care concerns and battles. We can only take on so much. Much less when we're fatigued.
Thank you for understanding. I really do appreciate it.
I agree that it's okay to put that one on the back burner for now. However, I'd suggest eventually arranging a PFT at a clinic or pulmonologist's office where they are known to be done properly. Then ask those PFT savvy clinicians if they wouldn't mind quickly evaluating the methods and results of your previous PFT. When/if they find faults, you might ask them if they would politely make PFT suggestions to your PCP for the benefit of all follow-up patients. Ask them not to burn bridges with your PCP as well.

Just a thought... Good luck!
More great advice. If a medical practitioner who's involved with my future (correct) PFT testing determines that my PCP's method is sub-par and is willing to advise my PCP of the correct procedure to follow (without burning that bridge for me in the process), that could certainly produce much better results than if I attempted it on my own. You're SO smart, -SWS, and I'm really glad to "know" you!
Veni, vidi, Velcro. I came, I saw, I stuck around.

Dx 11/07: AHI 107, central apnea, Cheyne Stokes respiration, moderate-severe O2 desats. (Simple OSA would be too easy. ;))

PR S1 ASV 950, DreamWear mask, F&P 150 humidifier, O2 @ 2L.

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Re: Tell Me Who They Are, And I'll Tell 'Em!

Post by -SWS » Tue Jun 09, 2009 12:55 pm

BleepingBeauty wrote: You're SO smart, -SWS, and I'm really glad to "know" you!
Thanks, but no such nonsense, BB... It's "smart a%s" that I'm most often accused of by loving friends and family members in my inner circle.

Glad to know you too!

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Re: Tell Me Who They Are, And I'll Tell 'Em!

Post by ozij » Tue Jun 09, 2009 1:09 pm

-SWS wrote:
BleepingBeauty wrote: You're SO smart, -SWS, and I'm really glad to "know" you!
Thanks, but no such nonsense, BB... It's "smart a%s" that I'm most often accused of by loving friends and family members in my inner circle.

Glad to know you too!
Well, if you're an ass, I'd say typing on forums is very smart for one, and doing it intelligibly is way beyond smart, for an ass.
And if that's not what they mean, then I wonder how a smart a%s can exist without a smart brain.

See - I picked up logical analysis and some absurd humor from you, you....

O.

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Re: Tell Me Who They Are, And I'll Tell 'Em!

Post by BleepingBeauty » Tue Jun 09, 2009 1:12 pm

-SWS wrote:It's "smart a%s" that I'm most often accused of by loving friends and family members in my inner circle.
Well, I like that in a person, too. But you've proven my earlier assessment, so I stand by it. Brain power and common sense work very well together, and you prove that here every day.
Glad to know you too!
Thanks!
Veni, vidi, Velcro. I came, I saw, I stuck around.

Dx 11/07: AHI 107, central apnea, Cheyne Stokes respiration, moderate-severe O2 desats. (Simple OSA would be too easy. ;))

PR S1 ASV 950, DreamWear mask, F&P 150 humidifier, O2 @ 2L.

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Re: Spoke with my Doctor

Post by -SWS » Tue Jun 09, 2009 1:14 pm

Let's not forget that if I accidentally sit on an ice cream cone, I can usually tell you the flavor and the brand before getting up.

Now if that doesn't fit the definition of smart ass...

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Re: Spoke with my Doctor

Post by BleepingBeauty » Tue Jun 09, 2009 1:18 pm

-SWS wrote:Let's not forget that if I accidentally sit on an ice cream cone, I can usually tell you the flavor and the brand before getting up.

Now if that doesn't fit the definition of smart ass...


Flavor is one thing, but the brand, too? You are truly something special!
Veni, vidi, Velcro. I came, I saw, I stuck around.

Dx 11/07: AHI 107, central apnea, Cheyne Stokes respiration, moderate-severe O2 desats. (Simple OSA would be too easy. ;))

PR S1 ASV 950, DreamWear mask, F&P 150 humidifier, O2 @ 2L.