bdwalters wrote:Have you considered hypoglycemia? Blood sugar problems run in my family and I've found that I do much better when I avoid refined carbohydrates. Many of the symptoms, although not all, that you mention are common with hypoglycemia. I've also begun sleeping much better once I gave up refined carbohydrates.
Yes, I gave up all refined carbs. I don't even eat whole wheat more than a couple of times a week anymore. Just about the only carb I eat is old-fashioned oatmeal for breakfast. After a while you don't really miss them much. Hypoglycemia is part of this syndrome, because of the adrenals not working properly. You have to eat regularly to keep your blood sugar stable etc. Also, I seem to be insulin resistant as well, which is part of this for some people.
My biggest struggle lately has to do with the herb licorice. Licorice prevents cortisol from breaking down, keeping more circulating in your system and helping you to feel better, with more energy--also helps with acid reflux. I feel so much better when I take it, but I just can't take it for too long because it makes my blood pressure go sky high over time. I take a minimal amount, and, by the way, most people with this syndrome have chronically low blood pressure so taking licorice is very helpful for them for that reason, but over time my bp starts creeping up from low normal to waaaaaay too high. I discontinued the licorice at the end of last week and when I took my bp today it was 140/95 (where it has been hovering since last friday). Luckily for me, I am so in tune with my body I am aware of my bp getting too high and have the presence of mind to take my bp and monitor it. It will probably take another week for the licorice to clear my system. I might take DGL licorice and see if it helps at all. DGL has the gycerhizen (sp?) removed which is the component believed to impact blood pressure. DGL licorice is commonly taken for acid reflux, but I have no idea if it would help with cortisol at all.
Even though my energy is gradually increasing, I am still very weak and my muscles fatigue so quickly it is very strange. I have had a lot of muscle pain lately in my left shoulder (new) and ongoing in my feet. Luckily I am still able to run the household and knit, so my life remains relatively normal despite the pain and fatigue. It can take months to years for the body to heal from this, unfortunately. I have brought my closest friends back into my life on a more regular basis too and I'm not as crabby as I was just a couple of months ago, so I am happier too. I am really anxious to get better though!
Here is a current list of my meds/supplements for the curious (copied and pasted from my current "take to the docs document":
A.M. Empty Stomach
T3 (thyroid)
Thyroid glandular support (thyroid)
Morning with Breakfast*
1 B-complex (adrenal support)
1 vitamin C (adrenal support)
1 Biotin (improve hair)
1 alpha-lipoic acid (antioxidant)
1 Echinacea (immune booster, mild stimulant, short term for cold/flu season only)
1 ginkgo biloba (brain fog)
1 L-theanine (mood and sleep)
1 acetyl L-carnitine (mitochondrial support)
Noon with Lunch*
1 Complete Essential Fatty Acids (optimal health)
1 vitamin E (adrenal support, antioxidant)
2 vitamin D 1000 IU (bone health, overall optimal health)
1 cymbalta (mood, pain)
2 cal/mag/trace minerals (bone health, muscle pain support, optimal health)
1 iodoral (iodine supplement for thyroid support)
1 resveritrol (anti-oxidant, optimal health, reverse premature aging)
1 echinacea
1 L-theanine
1 coenzyme Q-10 (mitochondrial support)
Evening with Dinner*
2 krill oil (best source omega-3)
1 B-complex
1 vitamin C
1 biotin
1 iron (anemia support: everyday during menstruation, otherwise every other day)
1 alpha lipoic acid
1 multi vitamin (optimal health)
1 ginkgo biloba
Bedtime
2 jigsaw slow release magnesium (muscle pain/bone health)
2 calcium citrate (bone health)
3 vitamin D 1000 IU
1 salmon oil (omega 3)
1 acetyl L-carnitine
1 Revitalizing Sleep Herbal Formula (improve sleep quality)
1 probiotic (improve digestion)
Apply estrogen/progesterone (bioidentical) cream
*Betaine HCl with each meal to assist digestion