This Site Should Be Taken Down

Patient Safety is your concern?

Just what is the responsibility of those folks with those initials behind their names? is it to say, here's your script see ya in a year? is it to argue with an informed patient about which machine or mask is best for them when that patient knows what the heck they are talkiing about because they researched the heck out of it? Is it to do crappy mask fittings? to charge twice what the equipment costs and then, pocket the extra pillows, etc saying...oh, you're just not going to need those cause I fitted you perfectly? To give out crappy instruction, if any, about cleaning your equipment? to not explain the who, what, why and hows of CPAP therapy? the common problems to expect? I think that is called.....patient education.

Informed, educated patients do the best because they are educated and know where to go for help. The obvious failure of the system creates the need for forums like this ...the absolute need.

Safe patients are patients that ask questions, that go after info wherever they can find it and are assertive in their therapy. If I was in a hospital, you better believe I would be asking anyone who came at me with a pill, or wanted to put somethingin an IV, what is that drug, what is the dosage, am I supposed to get that now, etc....because med administration errors kill people. This is my therapy, not some professional's and I take responsibility for it.

If you have such concerns over patient safety, try changing the system that pays so little attention to it, not the patients that are trying to practice it and be responsible for their own care.

So what do you think you can do to change this dysfunctional care system?

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CPAPopedia Keywords Contained In This Post (Click For Definition): CPAP

Treesap wrote:Guest,

Clearly any advide given here cannot be construed as medical advice. People here know that, and take that in to consideration. People have to make choices for themselves before trying something new with their therapy.

Most people here don't get clear cut instructions from their Doctors or DMEs. We had to figure a lot our for ourselves. I am thankful for the wealth of knowledge on this board. For the record, I ran some of the suggestions by my doctor, and he agreed. He said it was OK to experiment to get better results. We aren't talking about drastic changes. We aren't talking about people taking medications. We are talking about the best way to get the air down our throats so we get the best rest and keep ourselves from choking at night.

ANYTHING WE DO CAN'T BE ANY WORSE THAN NOT USING THE MACHINE AT ALL!!!

Clearly is strikes you as unethical. That's your opinion, but that does not give you the right to come here and use the language you have.

Surely you have better things to do with your time.

Ditto and besides, why would we want to go back being treated like mushrooms ?

Anonymous wrote:There is some REALLY BAD AND POTENTIALLY DANGEROUS INFORMATION ON HERE on this site!

The people who make their own pressure changes, etc. I am talking to you. I could not believe when I started to read this forum.

If it's not taken down, then at the VERY LEAST the moderators should make a zero tolerance policy of posts related to these types of things.

Let me make something very clear. If you're having problems seek advice from a sleep professional (M.D., D.O., NP, PA, RPSGT) not some fool on an internet forum.

THIS SITE NEEDS TO GO!!!!!!!!!

Hey, Dum Bass......have you not heard that people with diabetes monitor and adjust their own medications? That's a little more involved and potentially serious than "AIR". There are many stupid doctors involved in that area of medicine, too. I can vouch for that.

It's been the general failure of the "sleep professionals" that have created the success of this forum in helping the users of this therapy to understand and manage their own therapy.

Only someone who is from the medical/sleep/DME profession and who is worried about losing a potential source of income would make the kind of statements you have.

And, TSK, TSK, TSK.......such a potty mouth, too. NAUGHTY, NAUGHTY!!


Den

Guest,

Full of air you are. Your close door concept is over. This is the internet age and x-y-z or a-b-c generations all welcome to learn, to spin to live better. Soon Youtube will event teach all the learners including the doctors.....soon doctors is not event required. The virtual expertise has taken control with without any bias person like you. Challenge us and this will be you down fall.

God has mercy and lead us to this place.

Mckooi

I am glad that patients have a place to discuss their condition, however, not at the price of putting themselves or others at risk.


CPAP/Bi-level pressure is a PRESCRIBED PRESSURE BY A PHYSICIAN.

Guest,

You are here to tell us we are so wrong, but you don't give specifics. What's wrong with adjusting your own pressures slightly??

I don't believe anyone here has changes their pressure from 4 to 20 lately. I was never titrated, so my doc gave me an AutoPap. When I saw him recently, I told him I was going to change it to CPAP mode and set my pressure around 10 because that has been my average pressure. He had no problem with that.

Give specifics before you point your finger and tell we are bad.

Anonymous wrote:Guest,

Full of air you are. Your close door concept is over. This is the internet age and x-y-z or a-b-c generations all welcome to learn, to spin to live better. Soon Youtube will event teach all the learners including the doctors.....soon doctors is not event required. The virtual expertise has taken control with without any bias person like you. Challenge us and this will be you down fall.

God has mercy and lead us to this place.

Mckooi

What? whuh whuh what? Wow. Learning from youtube. I can't take this site of retards anymore. Seriosly, I can't even read this ["stuff" edited out -Johnny] anymore. [Another F-Bomb Edited Out -Johnny] dumb hillbillys.

"God.?" If your god has mercy, why do you suffer from sleep apnea.

Treesap wrote:When I saw him recently, I told him I was going to change it to CPAP mode and set my pressure around 10 because that has been my average pressure. He had no problem with that

You doc is a retard then to allow you to dictate your own prescription. If in so this is how it happened.

Did you notice in the first post in that string that Slinky is working with the pulmonologist in changing settings before you jumped in?

"With permission of sleep pulmo changed to IPAP 12 cms, EPAP 7 cms "


We are not idiots here. Physicians and support staff should be so lucky to have such compliant, assertive patients!

Yes, your foul language is really going to make us take you more seriously.

Nice to have had such a meaningful conversation with you. Buh-Bye!

silver123 wrote:Did you notice in the first post in that string that Slinky is working with the pulmonologist in changing settings before you jumped in?

"With permission of sleep pulmo changed to IPAP 12 cms, EPAP 7 cms "


We are not idiots here. Physicians and support staff should be so lucky to have such compliant, assertive patients!

Yes I did notice that. That is great.

Did you read my first post? The main complaint was people adjusting their own machines. Not assertive patients. And yes, physicians and support staff are very lucky when they have compliant patients.

Guest,

You are full of air!
In life you face many problems.
Simply because you are a problem....with bad attitude.

You are not God and you don't deserve his mercy.

Mckooi

WHO is going to listen to, or pay any heed to or put any weight on any advice from someone who uses the type of language you do? Not I!!!

Anonymous wrote:Guest,

You are full of air!
In life you face many problems.
Simply because you are a problem....with bad attitude.

You are not God and you don't deserve his mercy.

Mckooi

Don't make this a discussion on your so called god. If in fact your god does exist, well, I can see the mercy he/she has placed upon us here on this planet and can glady say I would reject his/her mercy.

Guest,

I'm not sure why you are here, but don't let the door hit you on the [3 letters in English, 4 in the Queen's English - edited out all the same -Johnny]. If you were really a caring person here to show us something that might benefit us, it would be evident. But you are here to call names. If you are a doctor (which I serious doubt), I surely wouldn't choose your condescending nature.