I would imagine my machine is set for the Swift II, I cant find where that is. The mask settings doesnt actually change anything about the air pressure, just the math on the leakage right?
New to this- Husband vpap III 5 days but not taking breaths
It looks like both of you are covered machine wise by DSM so your good there.
The only few odd points I would add is please fill out your profiles with the equipment you have to make it easier for more people to help you.
General recommendations would be to take control of your therapies and get your ability to record data setup. This is discounted by the medical community almost universally as not needed but as you can see the data is the only way to tune your treatment without direct hands on medical people around 24/7 to monitor it. The more data you have the better you can tune your therapy.
Next recommendation is get a full copy of all PSGs you get as well as a copy of the script for the equipment on file. It sounds like you have it pretty well wrapped up on this end but you never know what will change in the future and having these on hand makes it a ton easier to get your equipment needs met online or otherwise if the local DME fails you.
I commend you both on taking charge and really encourage you on a job well done so far by seeing somethings wrong and working through it. So many people fail on this first hurdle. Learn all you can here and don't be afraid to ask anything.
Casiesea you deserve a big pat on the back for taking charge and caring enough to do this for your husband, many do not. Hopefully once your hubby wakes up more due to your care, he can take over =).
The only few odd points I would add is please fill out your profiles with the equipment you have to make it easier for more people to help you.
General recommendations would be to take control of your therapies and get your ability to record data setup. This is discounted by the medical community almost universally as not needed but as you can see the data is the only way to tune your treatment without direct hands on medical people around 24/7 to monitor it. The more data you have the better you can tune your therapy.
Next recommendation is get a full copy of all PSGs you get as well as a copy of the script for the equipment on file. It sounds like you have it pretty well wrapped up on this end but you never know what will change in the future and having these on hand makes it a ton easier to get your equipment needs met online or otherwise if the local DME fails you.
I commend you both on taking charge and really encourage you on a job well done so far by seeing somethings wrong and working through it. So many people fail on this first hurdle. Learn all you can here and don't be afraid to ask anything.
Casiesea you deserve a big pat on the back for taking charge and caring enough to do this for your husband, many do not. Hopefully once your hubby wakes up more due to your care, he can take over =).
_________________
| Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
| Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
| Additional Comments: I swap out the Swift FX as needed with the Mirage Quatro Full Face with Headgear. |
Personally I'm always ready to learn, although I do not always like being taught.
Sir Winston Churchill
I’m not asleep… but that doesn’t mean I’m awake.
- Albert Camus
Sir Winston Churchill
I’m not asleep… but that doesn’t mean I’m awake.
- Albert Camus
Casiesea
Good news - moving forward
I agree that trying a UMFF mask is a next step. That leak needs to be brought under control as mouth leaking really skews the AHI numbers.
As per PM, try the further adjustments suggested & I am sure we will have your husband into single digit AHI #s fairly quickly.
Good going
DSM
Good news - moving forward
I agree that trying a UMFF mask is a next step. That leak needs to be brought under control as mouth leaking really skews the AHI numbers.
As per PM, try the further adjustments suggested & I am sure we will have your husband into single digit AHI #s fairly quickly.
Good going
DSM
xPAP and Quattro std mask (plus a pad-a-cheek anti-leak strap)
Ozij,ozij wrote: <snip>
I'm sure you'll get the clinicians manual - or at least setup infomation from members of this board - without having to pay -- have just noticed DSM has already made the offer (Glad to see you posting again, DSM!).
<snip>
O.
Tks - also very pleased to see you are still here. This current thread is a particularly interesting one as it is showing up the apparent inadequacy of professional support for Casiesea's husband and with Casiesea being an RN she is a great asset in how she is able to support her husband and show how to get the best of a support group like this. Makes it a pleasure to be able to help.
DSM
xPAP and Quattro std mask (plus a pad-a-cheek anti-leak strap)
Guest/Help me breathe-Anonymous wrote:So you are making your own changes? Does the clinician know that? Also, definitely check out the hybrid mask, I have been through 3 and so far this one leaks the least.
Yes, we are making our own changes. No, the doctor does not know, mostly because she has not returned our phone calls. The RT said there was nothing she could do about his breathing and that we would have to call the doctor.
My husband went to the RT today for a new mask. I could not go with him because my daughter had an appt. The RT talked my husband into a Mirage Liberty full face mask. She tried to talk him into just trying the chin strap, but he knew better than to come home without a full face mask. I guess maybe I am breaking through his daze (a little bit anyway).
The RT told him she could change the rise time to 300. Is that something we should do? It was originally set on 150, last night we increased it to 250.
DSM - I got the numbers. Thanks!!!
Guest - Let me clarify a little bit. My husband is constantly exhausted ( as anyone with untreated apnea would be). I feel that his situation is an urgent one, yet I do not feel any urgency on the part of his medical team. We depend on my husbands income to live and support our family. As a RN, I would never advise anyone to do this without a physicians knowledge and approval, but as a wife I am willing to take the chance if it will help him.
I did speak with a MD today (one that I know and trust), told him the situation, and what I had done with the bipap. He agreed that it needed to be done...and told me that my husbands physician (he knows her) is far too busy and he thinks she has dropped the ball on this one. He gave me the name of a diff Neuro/Sleep Specialist that he feels will take my husbands situation much more seriously.
I did speak with a MD today (one that I know and trust), told him the situation, and what I had done with the bipap. He agreed that it needed to be done...and told me that my husbands physician (he knows her) is far too busy and he thinks she has dropped the ball on this one. He gave me the name of a diff Neuro/Sleep Specialist that he feels will take my husbands situation much more seriously.
Re: Last Night
A friendly suggestion for future reference: I suggest only changing one thing about the whole system at a time (mask, lower pressure, upper pressure, etc.), wait at least a week to see what effect that has, then move on if necessary. If you make several changes at once, you don't know for sure which one actually fixed the problem or even made it worse!Casiesea wrote:We changed the settings last night.
And to answer your question up-thread, yes it is all trial-and-error, this is especially true with masks and pressures. Getting the right machine is the same way for some people.
Doug.
_________________
| Mask | ||||
 | ||||
| Additional Comments: Encore Pro, Encore Pro Analyzer | ||||
Meddle not in the affairs of dragons, for you are crunchy and taste good with ketchup
Let's be honest, this guy doesn't need a doctor, he needs a Resmed Adapt SV. Anyone who stops breathing long enough that it startles him awake, the SV is the only cure. I should know, I've been there. I used to wake up gasping for air on a ResMed Vantage APAP, and not because the pressure was too GD high. He should have got a Quattro FF, but the Mirage FF is definitely be better than the goofy nasal pillow that'll kill him for sure
Good luck.
Cheers
I'm not a medical professional either. In fact, my sleep-lab doc said he would never prescribe a ResMed Adapt SV for me. Some doctors really suck!
Machine: ResMed Adapt SV
Mask: Quattro FF
Humidifier: ResMed Sullivan HumidAire (Old style stand-alone)
Good luck.
Cheers
I'm not a medical professional either. In fact, my sleep-lab doc said he would never prescribe a ResMed Adapt SV for me. Some doctors really suck!
Machine: ResMed Adapt SV
Mask: Quattro FF
Humidifier: ResMed Sullivan HumidAire (Old style stand-alone)
He says he tried the UMFF and it didn't seal on his face (he has a little beard thing). He also tried the QuatroFF, same problem. I think what he ended up with (mirage liberty) is a hybrid.
What is an Adapt SV?
Our insurance co has not purchased his VPAP machine yet, so we can still change if we need to. The insurance co pays at 100% so cost doesn't matter (I never get to say that...kind of nice ).
What is an Adapt SV?
Our insurance co has not purchased his VPAP machine yet, so we can still change if we need to. The insurance co pays at 100% so cost doesn't matter (I never get to say that...kind of nice ).
Scroll down 6-8 topics to 'ResMed VPAP Adapt SV - for Central Sleep Apnea". Your husband will have to step up his game to use this machine. He can't be a (excuse the 'p' word) pussey.
Cheers
I'm not a medical professional either. In fact, my sleep-lab doc said he would never prescribe a ResMed Adapt SV for me. Some doctors really suck!
Machine: ResMed Adapt SV
Mask: Quattro FF
Humidifier: ResMed Sullivan HumidAire (Old style stand-alone)
Cheers
I'm not a medical professional either. In fact, my sleep-lab doc said he would never prescribe a ResMed Adapt SV for me. Some doctors really suck!
Machine: ResMed Adapt SV
Mask: Quattro FF
Humidifier: ResMed Sullivan HumidAire (Old style stand-alone)
[quote="Casiesea"]He says he tried the UMFF and it didn't seal on his face (he has a little beard thing). He also tried the QuatroFF, same problem. I think what he ended up with (mirage liberty) is a hybrid.
What is an Adapt SV?
Our insurance co has not purchased his VPAP machine yet, so we can still change if we need to. The insurance co pays at 100% so cost doesn't matter (I never get to say that...kind of nice ).
What is an Adapt SV?
Our insurance co has not purchased his VPAP machine yet, so we can still change if we need to. The insurance co pays at 100% so cost doesn't matter (I never get to say that...kind of nice ).
xPAP and Quattro std mask (plus a pad-a-cheek anti-leak strap)
Hi Casiesea,
I hope hubby had an ok time with his FF mask and VPAP machine. If he truly does stop breathing for periods of time while asleep, the FF mask and VPAP machine will not help him. He will still wake up startled. Trust me. The ResMed Adapt SV is a very simple machine to use, it's fully automatic (it's not that difficult to set up), and it works on a breath-by-breath basis which it sounds like your man needs. Insist on the ResMed VPAP Adapt SV and let us know how the journey goes. Also ,if he is fortunate enough to get an Adapt SV you will want to get him into the Quattro FF mask. It works fine with full beards and mustaches. Tell him to make it work.
Cheers
I'm not a medical professional either. In fact, my sleep-lab doc said he would never prescribe a ResMed Adapt SV for me. Some doctors really suck!
Machine: ResMed Adapt SV
Mask: Quattro FF
Humidifier: ResMed Sullivan HumidAire (Old style stand-alone)
I hope hubby had an ok time with his FF mask and VPAP machine. If he truly does stop breathing for periods of time while asleep, the FF mask and VPAP machine will not help him. He will still wake up startled. Trust me. The ResMed Adapt SV is a very simple machine to use, it's fully automatic (it's not that difficult to set up), and it works on a breath-by-breath basis which it sounds like your man needs. Insist on the ResMed VPAP Adapt SV and let us know how the journey goes. Also ,if he is fortunate enough to get an Adapt SV you will want to get him into the Quattro FF mask. It works fine with full beards and mustaches. Tell him to make it work.
Cheers
I'm not a medical professional either. In fact, my sleep-lab doc said he would never prescribe a ResMed Adapt SV for me. Some doctors really suck!
Machine: ResMed Adapt SV
Mask: Quattro FF
Humidifier: ResMed Sullivan HumidAire (Old style stand-alone)
We must have spent an hour trying to fix the mask so it wouldn't leak. The machine says there was leak of 32 L/M, but it also says mask-v good fit.
Last nights numbers (with new mask)
Pressure 13.4/10.4
LEAK 32L/M
VT 150-500
RR 6-21
MV 3.2-10.2
AHI 18.7
AI 7.3
9:32 HRS
I felt like he slept better last night. He still had periods where his breathing stopped for 10-30 sec. Of course, I didn't sleep at all because I was watching him. Guess I am going to get a sleep problem of my own!
_________________
CPAPopedia Keywords Contained In This Post (Click For Definition): AHI
Last nights numbers (with new mask)
Pressure 13.4/10.4
LEAK 32L/M
VT 150-500
RR 6-21
MV 3.2-10.2
AHI 18.7
AI 7.3
9:32 HRS
I felt like he slept better last night. He still had periods where his breathing stopped for 10-30 sec. Of course, I didn't sleep at all because I was watching him. Guess I am going to get a sleep problem of my own!
_________________
CPAPopedia Keywords Contained In This Post (Click For Definition): AHI
Casiesea,
As per the PM - what we need to work out now is if your husband's breathing is stopping because of a block (OSA) or because he just stops trying (CSA).
There is a big difference in how to resolve each type.
The main thing you need to clarify is - does your husband slow & stop his breathing & show little or no effort (possible CSA) or is he clearly trying to breathe but can't (probable OSA)
Cheers
DSM
As per the PM - what we need to work out now is if your husband's breathing is stopping because of a block (OSA) or because he just stops trying (CSA).
There is a big difference in how to resolve each type.
The main thing you need to clarify is - does your husband slow & stop his breathing & show little or no effort (possible CSA) or is he clearly trying to breathe but can't (probable OSA)
Cheers
DSM
xPAP and Quattro std mask (plus a pad-a-cheek anti-leak strap)
Casiesea
Also, another very helpful aid here would be if you can rent a Recording Pulse Oximeter. These can usually be rented from the place you got the vpap. You only need it for about 1 week perhaps 2.
You need one that allows you to readily print out the nightly SpO2 data & in a way that you can email or post it here.
The important things are to get a copy of your nightly data from the vpap (hopefully hubby has that working ) and then match that data with a night's SpO2 reading. Then combined with you observations the picture should be much clearer.
Also at this time, stay with the current settings (the only change might be to bump up ipap by 0.2 if hubby can handle it, but I gather he has a new mask & may need a couple of nights to get used to it before varying ipap up)
The data from both the vpap and an SpO2 machine will tell us a lot more.
Cheers
DSM
Also, another very helpful aid here would be if you can rent a Recording Pulse Oximeter. These can usually be rented from the place you got the vpap. You only need it for about 1 week perhaps 2.
You need one that allows you to readily print out the nightly SpO2 data & in a way that you can email or post it here.
The important things are to get a copy of your nightly data from the vpap (hopefully hubby has that working ) and then match that data with a night's SpO2 reading. Then combined with you observations the picture should be much clearer.
Also at this time, stay with the current settings (the only change might be to bump up ipap by 0.2 if hubby can handle it, but I gather he has a new mask & may need a couple of nights to get used to it before varying ipap up)
The data from both the vpap and an SpO2 machine will tell us a lot more.
Cheers
DSM
xPAP and Quattro std mask (plus a pad-a-cheek anti-leak strap)