Questions To Ask At A Support Group Meeting

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
RichRetired
Posts: 1
Joined: Sun Jan 18, 2009 5:56 pm

Re: Questions To Ask At A Support Group Meeting

Post by RichRetired » Sun Jan 18, 2009 6:17 pm

I am surprised that I found 4 people at work who have OSA. Some had a CPAP machine for a few months, some were in process of
getting their machine. One person tried his mask for 2 hours each day and took it off. His OSA is serious.
Not a huge workspace. When I found out I had a mild case (sleep study) of OSA, I was determined to find
out all I could about this condition. I bought "Phantom of the Night" book, researched the internet. When I showed my Sleep
Doctor the book, he flipped thru it...the Doctor said "yes its a good book, but most of my patients don't want to know or research
this". I plan to join a support group, meeting next month. You have prepared a great list of questions. I will stir the pot. I could not even
fathom having a disease or condition and not finding out all I can about it. Somewhere on one of the posts, I saw a recommendation
for a doctor to prescribe "Mask of patients choice". I made the doctor write this in the Rx he wrote. He gave me a funny look, don't
think anyone ever asked him that before. I had two insurances, said it would not be an issue. I got the mask I wanted.
I also thought it was unusual that my critical care pulmonologist, who holds a certification in sleep medicine, and owns his own office,
would not have the software to read the results of the machine that he prescribed. I have to have the DME do it and get the results forwarded to him.

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Slinky
Posts: 11372
Joined: Wed Nov 01, 2006 3:43 pm
Location: Mid-Michigan

Re: Questions To Ask At A Support Group Meeting

Post by Slinky » Sun Jan 18, 2009 7:01 pm

Do let us know how your support group meeting goes, please.

_________________
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Additional Comments: PR SystemOne BPAP Auto w/Bi-Flex & Humidifier - EncorePro 2.2 Software - Contec CMS-50D+ Oximeter - Respironics EverFlo Q Concentrator
Women are Angels. And when someone breaks our wings, we simply continue to fly.....on a broomstick. We are flexible like that.
My computer says I need to upgrade my brain to be compatible with its new software.

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Kiralynx
Posts: 2415
Joined: Wed Oct 08, 2008 5:42 am

Re: Questions To Ask At A Support Group Meeting

Post by Kiralynx » Mon Jan 19, 2009 5:51 pm

Slinky,

Yah... don't forget the brochure for this place here:

cpaptalk.com_brochure.pdf

It unfortunately requires legal paper to print correctly, and I don't have a tray for it, but it may be useful to someone else.

_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece
Additional Comments: Sleepyhead software, not listed. Currently using Dreamstation ASV, not listed
-- Kiralynx
Beastie, 2008-10-28. NEW Beastie, PRS1 960, 2014-05-14. NEWER Beastie, Dream Station ASV, 2017-10-17. PadaCheek Hosecover. Homemade Brandy Keg Chin Support. TapPap Mask.
Min PS = 4, Max PS = 8
Epap Range = 6 - 7.5