GeneMpls wrote: ↑Fri Nov 18, 2022 10:42 am
I consider CPAP therapy as well suited to the technical approach, the machine is complicated but easy enough to understand and experiment with. I don't believe there are any dire results with changing air pressures gradually or turning on and off various features. I am looking for a tech who has knowledge and ability to guide me and if I have to cut the Dr. out of the picture because someone can do it better, let's go.
ASV therapy is something else as I understand it, it takes a lot more thought and knowledge. As to if I am taking any of the info on this forum for gospel... that remains to be determined.
The problem is that CPAP will not treat
central sleep apnea problems. And the data that you have posted points to the need to have your medical team thoroughly investigate whether you have complex sleep apnea (CompSA) instead of garden variety OSA.
The only current machines that will actually treat
central sleep apnea and
complex sleep apnea are ASV machines.
I understand your reluctance to go into a doctor's office and say, "I think I need an ASV".
But on the other hand, I think you do need to go into the doctor's office and say, "Is it possible that all of the CAs my current machine is flagging every night, along with the long stretches of periodic breathing being flagged as CSR needs to be looked at carefully in order to determine whether I have central sleep apnea or complex sleep apnea?" Would another titration study with xPAP/ASV titration be useful for figuring out why I still have so many events every night and why I am still feeling so bad during the daytime?"
I feel that the good people on this forum mean well and I am gratified that they have invested in me, that said, I am not prepared to use this as a serious argument with
the people who need to be convinced [sleep doc] and tell them they do not know their business. Thanks and sorry for stirring up any trouble. Gene
You have described your sleep doctor as
unresponse to your requests for appointments to talk about how CPAP therapy is currently
failing to make you better.
You don't have to argue with the sleep doc. But you do need to ask him (or her, if you've been moved to the female doc)
questions about
why CPAP is not working for you. That means asking the doc to take the time to
explain to you why he ordered your pressure reduced from 15 to 12. And how long he/she thinks you should wait for the CAs to resolve themselves. Most people who have a bit of a problem with CAs at the start of xPAP see the CAs disappear after a few weeks. In your case, it's been at least 3 months, and the CAs are not resolving. Further investigation needs to be done by your medical team. Asking them to do their job is not telling them they don't know their business. But it is telling them, you need them to not ignore the herd of zebras that are trampling all through your data just because they want to think those zebras are horses.
Joined as robysue on 9/18/10. Forgot my password & the email I used was on a machine that has long since died & gone to computer heaven.
Correct number of posts is 7250 as robysue + what I have as robysue1
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