Feel horrible on CPAP

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Oceangirl
Posts: 17
Joined: Sat May 29, 2021 6:51 am

Re: Feel horrible on CPAP

Post by Oceangirl » Sat May 29, 2021 2:59 pm

Pugsy wrote:
Sat May 29, 2021 11:03 am
Well....without a doctor it's really difficult for sure.

About all we can do is look at the data your machine gathers when you do use it and see if anything is standing out screaming as a potential cause of a problem.
Like excessive pressures or a lot of central apneas happening and maybe (stress the maybe) causing some sort of weird problem.

Get the software and post a typical night detailed report.
No guarantee it will show anything but obviously what you are thinking you are using...you are not using so the software won't mislead us.

OSCAR https://www.sleepfiles.com/OSCAR/
http://www.apneaboard.com/wiki/index.ph ... stallation
http://www.apneaboard.com/wiki/index.ph ... rpretation

viewtopic/t158560/How-to-post-images-for-review.html

and it does sound like hyperventilation to me as well but we need to rule out something weird going on like a truckload of central apneas or something.
A sticker was in my machine for an app to track my machine, but it said I don’t have a Bluetooth so I can’t use the app. My machine is not new enough for Bluetooth.

Oceangirl
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Re: Feel horrible on CPAP

Post by Oceangirl » Sat May 29, 2021 3:02 pm

Julie wrote:
Sat May 29, 2021 11:38 am
Are you taking any medication?
No I am not on any medication.

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Pugsy
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Re: Feel horrible on CPAP

Post by Pugsy » Sat May 29, 2021 3:05 pm

You don't need BlueTooth to use the software.
You would need a SD card though which are available at just about anyplace...Walmart has them.
Oceangirl wrote:
Sat May 29, 2021 10:09 am
I have a Phillips Reatoronics Remstar Auto A-Flex System one.
This model is compatible with the OSCAR software.
BlueTooth isn't needed and to be honest the app that BlueTooth works with is next to useless anyway.

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Oceangirl
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Re: Feel horrible on CPAP

Post by Oceangirl » Sat May 29, 2021 3:05 pm

chunkyfrog wrote:
Sat May 29, 2021 2:56 pm
Hyperventilation--yes, that.
Causes: maybe physical or environmental.
Stress much?
I had hyperventilation from stress--they said it was panic attacks.
They stopped when my horrible boss was replaced.
I tried to use the machine when I first got it for a few weeks. When I got used to wearing it the symptoms came on. Dizzy, numb, very light headed, anxious, excess uncomfortable energy. I stopped and tried it again weeks later, same thing. Months later tried it again. Same feelings again. Now it’s been months and tried it again since I am chronically exhausted and I have the same exact symptoms and it does not occur at any other time than when I have been on the machine.

Oceangirl
Posts: 17
Joined: Sat May 29, 2021 6:51 am

Re: Feel horrible on CPAP

Post by Oceangirl » Sat May 29, 2021 3:08 pm

Pugsy wrote:
Sat May 29, 2021 3:05 pm
You don't need BlueTooth to use the software.
You would need a SD card though which are available at just about anyplace...Walmart has them.
Oceangirl wrote:
Sat May 29, 2021 10:09 am
I have a Phillips Reatoronics Remstar Auto A-Flex System one.
This model is compatible with the OSCAR software.
BlueTooth isn't needed and to be honest the app that BlueTooth works with is next to useless anyway.
I found the SD card going to download the software and see if I can figure it out.

Oceangirl
Posts: 17
Joined: Sat May 29, 2021 6:51 am

Re: Feel horrible on CPAP

Post by Oceangirl » Sat May 29, 2021 3:17 pm

Pugsy wrote:
Sat May 29, 2021 3:05 pm
You don't need BlueTooth to use the software.
You would need a SD card though which are available at just about anyplace...Walmart has them.
Oceangirl wrote:
Sat May 29, 2021 10:09 am
I have a Phillips Reatoronics Remstar Auto A-Flex System one.
This model is compatible with the OSCAR software.
BlueTooth isn't needed and to be honest the app that BlueTooth works with is next to useless anyway.
Well it looks like my laptop doesn’t have an SD slot. :/

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zonker
Posts: 11259
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Re: Feel horrible on CPAP

Post by zonker » Sat May 29, 2021 3:44 pm

Oceangirl wrote:
Sat May 29, 2021 3:17 pm


Well it looks like my laptop doesn’t have an SD slot. :/
there are converters available so that you plug the usb end into the laptop and the other end has a receptacle for the sd card.

like these-
https://www.amazon.com/s?k=usb+to+sd+ca ... 135dgero_e

i THINK they are available at walmart but don't know as i don't shop there.

good luck!
people say i'm self absorbed.
but that's enough about them.
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Oceangirl
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Re: Feel horrible on CPAP

Post by Oceangirl » Sat May 29, 2021 4:11 pm

zonker wrote:
Sat May 29, 2021 3:44 pm
Oceangirl wrote:
Sat May 29, 2021 3:17 pm


Well it looks like my laptop doesn’t have an SD slot. :/
there are converters available so that you plug the usb end into the laptop and the other end has a receptacle for the sd card.

like these-
https://www.amazon.com/s?k=usb+to+sd+ca ... 135dgero_e

i THINK they are available at walmart but don't know as i don't shop there.

good luck!
Thanks, I will get one!

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Julie
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Re: Feel horrible on CPAP

Post by Julie » Sat May 29, 2021 4:28 pm

Something just occurred to me - does your mask have a small area with lots of tiny holes - where CO2 is supposed to leave when you exhale? Any chance you covered it up for any reason? Because if so, you may have been re-breathing CO2 all night and that could definitely cause your symptoms... possibly the holes in your mask were defective and not actually open, punched out as they should be? That happened to others who had to return the masks and/or punched out the holes themselves.

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zonker
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Re: Feel horrible on CPAP

Post by zonker » Sat May 29, 2021 4:52 pm

Oceangirl wrote:
Sat May 29, 2021 4:11 pm


Thanks, I will get one!
Image

by gum we'll get you sorted out yet!
8)
people say i'm self absorbed.
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg

Oceangirl
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Re: Feel horrible on CPAP

Post by Oceangirl » Sat May 29, 2021 7:42 pm

Julie wrote:
Sat May 29, 2021 4:28 pm
Something just occurred to me - does your mask have a small area with lots of tiny holes - where CO2 is supposed to leave when you exhale? Any chance you covered it up for any reason? Because if so, you may have been re-breathing CO2 all night and that could definitely cause your symptoms... possibly the holes in your mask were defective and not actually open, punched out as they should be? That happened to others who had to return the masks and/or punched out the holes themselves.
The only holes are the ones at the bottom of the mask where the tubing connects.
75A5ADA6-869F-4C62-B0DF-690A4A270231.jpeg
75A5ADA6-869F-4C62-B0DF-690A4A270231.jpeg (74.31 KiB) Viewed 432 times
It’s interesting though I looked up too much C02 and my symptoms are identical

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Julie
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Re: Feel horrible on CPAP

Post by Julie » Sat May 29, 2021 9:02 pm

Exactly - we need to be careful not to cover the vents with bedding or anything else to allow CO2 to escape, tho' a thin sheet apparently shouldn't be a problem.

Oceangirl
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Re: Feel horrible on CPAP

Post by Oceangirl » Sun May 30, 2021 10:11 am

Julie wrote:
Sat May 29, 2021 9:02 pm
Exactly - we need to be careful not to cover the vents with bedding or anything else to allow CO2 to escape, tho' a thin sheet apparently shouldn't be a problem.
Hard to say for sure but I do have a lot of blankets and pillows and at times I’m sure my position could be covering the holes.

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zonker
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Re: Feel horrible on CPAP

Post by zonker » Sun May 30, 2021 10:59 am

Oceangirl wrote:
Sun May 30, 2021 10:11 am
Julie wrote:
Sat May 29, 2021 9:02 pm
Exactly - we need to be careful not to cover the vents with bedding or anything else to allow CO2 to escape, tho' a thin sheet apparently shouldn't be a problem.
Hard to say for sure but I do have a lot of blankets and pillows and at times I’m sure my position could be covering the holes.
well, try it without ANY covers. i don't mean when you go to bed at your regular time. just try it for a bit at some other time, like take a nap for a short time.

that might show evidence that the bedding is to blame rather than the mask.

good luck!
people say i'm self absorbed.
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg

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Julie
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Re: Feel horrible on CPAP

Post by Julie » Sun May 30, 2021 11:03 am

Or just arrange them so they'll be unlikely to cover the holes when you sleep - after all, you said your symptoms were horrible, or aren't they?