Hi there

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
prodigyplace
Posts: 1795
Joined: Mon Mar 27, 2017 5:45 pm
Location: Central Virginia

Re: Hi there

Post by prodigyplace » Tue Jul 16, 2019 5:54 pm

Guitarist wrote:
Tue Jul 16, 2019 4:39 pm
I’m having a hard time with the idea of not cleaning the tubing and probably not the humidifier. I need more convincing.
I use have used distilled water in my humidifier for over 2 years with only an occasional rinsing.

I am sure my NOT cleaning my hose is better that the instruction from Lincare to wash it daily and let it dry in the most germ-laden room of the house - the bathroom!

As you may have guessed, our experiences give is a low regard for educated people like my former DME.

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ChicagoGranny
Posts: 15185
Joined: Sun Jan 29, 2012 1:43 pm
Location: USA

Re: Hi there

Post by ChicagoGranny » Tue Jul 16, 2019 6:17 pm

Guitarist wrote:
Tue Jul 16, 2019 4:39 pm
I’m having a hard time with the idea of not cleaning the tubing and probably not the humidifier. I need more convincing.
Time is the convincer.

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chunkyfrog
Posts: 34545
Joined: Mon Jul 12, 2010 5:10 pm
Location: Nowhere special--this year in particular.

Re: Hi there

Post by chunkyfrog » Tue Jul 16, 2019 6:19 pm

I have been using cpap since 2010.
It took me less than 5 months to realize that "recommended" cleaning frequency.
wears out parts, wastes water and cleaners, and is a time consuming NUISANCE.
Ignore the scare-marketing--it is ALL LIES.

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Grace~~~
Posts: 662
Joined: Tue May 10, 2016 3:27 pm
Location: Florida

Re: Hi there

Post by Grace~~~ » Tue Jul 16, 2019 6:27 pm

ChicagoGranny wrote:
Tue Jul 16, 2019 6:17 pm
Guitarist wrote:
Tue Jul 16, 2019 4:39 pm
I’m having a hard time with the idea of not cleaning the tubing and probably not the humidifier. I need more convincing.
Time is the convincer.
oOoOoooOOOO~~~nice !!!

I LIKE it.

If that is not a song (lyric) it should be!
Where's ...jnk?

Make us a song, Mr Music Man 8)
...or maybe Guitarist is a musician?
Began XPAP May 2016. Autoset Pressure min. 8 / max 15. Ramp off. ERP set at 2. No humidity. Sleepyhead software installed and being looked at daily, though only beginning to understand the data.

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Guitarist
Posts: 57
Joined: Mon Jul 15, 2019 4:06 pm
Location: New York

Re: Hi there

Post by Guitarist » Tue Jul 16, 2019 6:31 pm

prodigyplace wrote:
Tue Jul 16, 2019 5:54 pm
Guitarist wrote:
Tue Jul 16, 2019 4:39 pm
I’m having a hard time with the idea of not cleaning the tubing and probably not the humidifier. I need more convincing.
I use have used distilled water in my humidifier for over 2 years with only an occasional rinsing.

I am sure my NOT cleaning my hose is better that the instruction from Lincare to wash it daily and let it dry in the most germ-laden room of the house - the bathroom!

As you may have guessed, our experiences give is a low regard for educated people like my former DME.

Thanks for that. I find all this “no need to clean” talk odd but okay, you all have 1st hand experience.

So as a RT
the Respiratory world is all disgusting and full of mucus, green , brown Sputum, infections like MRSA etc etc
The 1st 5 years I was sick all the time until I built up immunity’s.
Forgive me for not grasping that concept :)

I quess being at home and not in a facility plays into it all . Home being a cleaner environment.

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Guitarist
Posts: 57
Joined: Mon Jul 15, 2019 4:06 pm
Location: New York

Re: Hi there

Post by Guitarist » Tue Jul 16, 2019 6:44 pm

chunkyfrog wrote:
Tue Jul 16, 2019 6:19 pm
I have been using cpap since 2010.
It took me less than 5 months to realize that "recommended" cleaning frequency.
wears out parts, wastes water and cleaners, and is a time consuming NUISANCE.
Ignore the scare-marketing--it is ALL LIES.
Thanks

So what was the recommended cleaning frequency ?

When I taught use guys it was:
1 time a month throw everything in a bowl with some Dawn and soak it for 20-30 minutes and then dry all the stuff - basically.
Clean the mask PRN

And...

The Home care company I just got my equipment from said do that 1 time a week. :)

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palerider
Posts: 32299
Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: Hi there

Post by palerider » Tue Jul 16, 2019 6:51 pm

Guitarist wrote:
Tue Jul 16, 2019 6:31 pm
I quess being at home and not in a facility plays into it all . Home being a cleaner environment.
That is a huge difference, yes. The vast majority of any germs in your cpap are *your* germs, the ones that you carry around with you in and on your body... They're not exotic things, ... as far as I know, nobody has discovered ebola spontaneously erupting on their cpap... so far.

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Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

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palerider
Posts: 32299
Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: Hi there

Post by palerider » Tue Jul 16, 2019 6:53 pm

Guitarist wrote:
Tue Jul 16, 2019 6:44 pm
chunkyfrog wrote:
Tue Jul 16, 2019 6:19 pm
I have been using cpap since 2010.
It took me less than 5 months to realize that "recommended" cleaning frequency.
wears out parts, wastes water and cleaners, and is a time consuming NUISANCE.
Ignore the scare-marketing--it is ALL LIES.
Thanks

So what was the recommended cleaning frequency ?

When I taught use guys it was:
1 time a month throw everything in a bowl with some Dawn and soak it for 20-30 minutes and then dry all the stuff - basically.
Clean the mask PRN

And...

The Home care company I just got my equipment from said do that 1 time a week. :)
What most people get told is to do that *DAILY*.

Weekly (or as needed) is completely reasonable.

_________________
Mask: Bleep DreamPort CPAP Mask Solution
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Get OSCAR

Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

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chunkyfrog
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Joined: Mon Jul 12, 2010 5:10 pm
Location: Nowhere special--this year in particular.

Re: Hi there

Post by chunkyfrog » Tue Jul 16, 2019 6:56 pm

Soaking is a bad idea with hard water.
It leaves a nasty white film on silicone.
Wash quickly like a water bottle--hot water and dish detergent, then rinse.
As clean as if you intended to drink out of it.
Washing hoses is not necessary, but can be done when the user feels like it.

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Guitarist
Posts: 57
Joined: Mon Jul 15, 2019 4:06 pm
Location: New York

Re: Hi there

Post by Guitarist » Tue Jul 16, 2019 6:56 pm

palerider wrote:
Tue Jul 16, 2019 6:53 pm
Guitarist wrote:
Tue Jul 16, 2019 6:44 pm
chunkyfrog wrote:
Tue Jul 16, 2019 6:19 pm
I have been using cpap since 2010.
It took me less than 5 months to realize that "recommended" cleaning frequency.
wears out parts, wastes water and cleaners, and is a time consuming NUISANCE.
Ignore the scare-marketing--it is ALL LIES.
Thanks

So what was the recommended cleaning frequency ?

When I taught use guys it was:
1 time a month throw everything in a bowl with some Dawn and soak it for 20-30 minutes and then dry all the stuff - basically.
Clean the mask PRN

And...

The Home care company I just got my equipment from said do that 1 time a week. :)
What most people get told is to do that *DAILY*.

Weekly (or as needed) is completely reasonable.

Okay cool

and yeah wow Daily would be a bit to much. That’s crazy 😜

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palerider
Posts: 32299
Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: Hi there

Post by palerider » Tue Jul 16, 2019 7:02 pm

Guitarist wrote:
Tue Jul 16, 2019 6:56 pm
palerider wrote:
Tue Jul 16, 2019 6:53 pm
What most people get told is to do that *DAILY*.

Weekly (or as needed) is completely reasonable.

Okay cool

and yeah wow Daily would be a bit to much. That’s crazy 😜
Most (not all) of us have come to agree that daily cleaning is crazy.

Some people still want to do that, and that's perfectly fine if they want to... just so long as they're not still buying the DME lies that they HAVE to do it daily...

Just like the lie that you HAVE to use distilled water... Resmed manuals in Europe don't even specify distilled water, that seems to be a north america thing. (haven't seen any Australia manuals)

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: S9 VPAP Auto
Get OSCAR

Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

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Guitarist
Posts: 57
Joined: Mon Jul 15, 2019 4:06 pm
Location: New York

Re: Hi there

Post by Guitarist » Tue Jul 16, 2019 7:03 pm

chunkyfrog wrote:
Tue Jul 16, 2019 6:56 pm
Soaking is a bad idea with hard water.
It leaves a nasty white film on silicone.
Wash quickly like a water bottle--hot water and dish detergent, then rinse.
As clean as if you intended to drink out of it.
Washing hoses is not necessary, but can be done when the user feels like it.
Thanks

Makes sense about the no soaking

So NO need to clean the hose even if you use a heated humidifier ?

Forgive me all for asking this over and over ... lol


Blows my mind. :shock:
Last edited by Guitarist on Tue Jul 16, 2019 7:20 pm, edited 1 time in total.

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Guitarist
Posts: 57
Joined: Mon Jul 15, 2019 4:06 pm
Location: New York

Re: Hi there

Post by Guitarist » Tue Jul 16, 2019 7:14 pm

palerider wrote:
Tue Jul 16, 2019 7:02 pm
Guitarist wrote:
Tue Jul 16, 2019 6:56 pm
palerider wrote:
Tue Jul 16, 2019 6:53 pm
What most people get told is to do that *DAILY*.

Weekly (or as needed) is completely reasonable.

Okay cool

and yeah wow Daily would be a bit to much. That’s crazy 😜
Most (not all) of us have come to agree that daily cleaning is crazy.

Some people still want to do that, and that's perfectly fine if they want to... just so long as they're not still buying the DME lies that they HAVE to do it daily...

Just like the lie that you HAVE to use distilled water... Resmed manuals in Europe don't even specify distilled water, that seems to be a north america thing. (haven't seen any Australia manuals)
Okay and thanks for that.
So that year I did home care we would occasionally get returns on machines that where all hard crusted from guys that used hard water. I guess they had some really bad water :twisted:

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Pugsy
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Joined: Thu May 14, 2009 9:31 am
Location: Missouri, USA

Re: Hi there

Post by Pugsy » Tue Jul 16, 2019 7:18 pm

If it bugs you....clean it.
If it doesn't bug you...don't clean it.
It's entirely up to what you are most comfortable doing or not doing.

I have/had a S9 heated hose that went through 3 different S9 machines with well over 10K hours of use...and I never washed it.
And I use a high humidity setting to boot. That hose got retired when I got the AirSense 10 machine because S9 hoses won't work with AirSense machines or else I would probably still be using it.
It is what I am comfortable with...and I am the only person that I have to please and I really don't give a rat's behind what someone else does or doesn't do.

Been on cpap a little over 10 years now...
When I first started cpap I did the weekly cleaning of EVERYTHING...that got old real fast. After 6 months my cleaning routine consisted of washing the nasal pillows when I happened to think about it. And I didn't think about it very often. :lol: Back when I first started therapy we didn't even have heated hoses.

One thing I would never do is use a stiff brush on the inside of a heated hose. I would be afraid that the brush would damage the hose or heater coils.

Bottom line...you get to decide what you are most comfortable doing or not doing.
You are the only person that you have to make happy.

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palerider
Posts: 32299
Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: Hi there

Post by palerider » Tue Jul 16, 2019 8:34 pm

Guitarist wrote:
Tue Jul 16, 2019 7:14 pm
So that year I did home care we would occasionally get returns on machines that where all hard crusted from guys that used hard water. I guess they had some really bad water :twisted:
Well, anything besides very soft water will leave mineral deposits after a bit... I line the tank with paper towel, then put a little vinegar in there, and the towel wicks it up the side, ... leave that to soak for a while and the tank will be clean as new.

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: S9 VPAP Auto
Get OSCAR

Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.