UK and NHS...New clinic, new machine troubles.

SDBud wrote: ↑

Sun Jul 21, 2019 1:33 am

Pugsy wrote: ↑

Mon Jul 15, 2019 7:20 am

Is insurance paying for your machine or are you self pay or maybe have a really high deductible?

He CLEARLY SAID UK, and NHS (National Health Service).

You know that Socialized Medicine that Conservatives rail on and on and on about
...

.

Many people in those situations choose to pay for their own, either to get what they want or to get it a lot sooner.

SDBud wrote: ↑

Sun Jul 21, 2019 1:33 am

Pugsy wrote: ↑

Mon Jul 15, 2019 7:20 am

Is insurance paying for your machine or are you self pay or maybe have a really high deductible?

He CLEARLY SAID UK, and NHS (National Health Service).

You know that Socialized Medicine that Conservatives rail on and on and on about
...

.

No..... the part about UK and NHS was NOT clearly stated when I posted what I said in my first post that you wanted to be a helpful ass about.
Originally this was the topic line "Re: New clinic, new machine troubles."
No mention anywhere about UK and NHS until I edited the topic line and added UK and NHS to the front so that he wouldn't get any more replies that was geared to the US way of doing things.

Pugsy wrote: ↑

Sun Jul 21, 2019 6:02 am

SDBud wrote: ↑

Sun Jul 21, 2019 1:33 am

Pugsy wrote: ↑

Mon Jul 15, 2019 7:20 am

Is insurance paying for your machine or are you self pay or maybe have a really high deductible?

He CLEARLY SAID UK, and NHS (National Health Service).

You know that Socialized Medicine that Conservatives rail on and on and on about
...

.

No..... the part about UK and NHS was NOT clearly stated when I posted what I said in my first post that you wanted to be a helpful ass about.

It IS AND WAS THE (profanity removed by moderator) SUBJECTLINE!!

SDBud wrote: ↑

Sun Jul 21, 2019 1:31 pm

Pugsy wrote: ↑

Sun Jul 21, 2019 6:02 am

SDBud wrote: ↑

Sun Jul 21, 2019 1:33 am

Pugsy wrote: ↑

Mon Jul 15, 2019 7:20 am

Is insurance paying for your machine or are you self pay or maybe have a really high deductible?

He CLEARLY SAID UK, and NHS (National Health Service).

You know that Socialized Medicine that Conservatives rail on and on and on about
...

.

No..... the part about UK and NHS was NOT clearly stated when I posted what I said in my first post that you wanted to be a helpful ass about.

It IS AND WAS (profanity removed by moderator even from this quote) SUBJECTLINE!!

Ooh he’s tired.


That’s un called for

Folks....please don't include a quote of the profanity if you want to comment about potty mouth.
Makes more work for me to edit more posts.
Do your own editing if you must comment.

SDBud wrote: ↑

Sun Jul 21, 2019 1:31 pm

Pugsy wrote: ↑

Sun Jul 21, 2019 6:02 am

SDBud wrote: ↑

Sun Jul 21, 2019 1:33 am

Pugsy wrote: ↑

Mon Jul 15, 2019 7:20 am

Is insurance paying for your machine or are you self pay or maybe have a really high deductible?

He CLEARLY SAID UK, and NHS (National Health Service).

You know that Socialized Medicine that Conservatives rail on and on and on about
...

.

No..... the part about UK and NHS was NOT clearly stated when I posted what I said in my first post that you wanted to be a helpful ass about.

It IS AND WAS THE (profanity removed by moderator) SUBJECTLINE!!

That sort of language is not allowed...uncalled for profanity. It will always be removed.

No....it was NOT in the Subject line when I posted.

I was the one who added NHS and UK after I saw his post mentioning that fact.

When the topic line is changed any prior post before the change will reflect original Text...and this is what the original topic text showed. Only new posts made after the change will reflect the new edited topic.
You sir, as usual, don't know what you are talking about and only want to show how big of a jerk you can be.

SDBud wrote: ↑

Sun Jul 21, 2019 1:31 pm

Pugsy wrote: ↑

Sun Jul 21, 2019 6:02 am

SDBud wrote: ↑

Sun Jul 21, 2019 1:33 am

Pugsy wrote: ↑

Mon Jul 15, 2019 7:20 am

Is insurance paying for your machine or are you self pay or maybe have a really high deductible?

He CLEARLY SAID UK, and NHS (National Health Service).

You know that Socialized Medicine that Conservatives rail on and on and on about
...

.

No..... the part about UK and NHS was NOT clearly stated when I posted what I said in my first post that you wanted to be a helpful ass about.

It IS AND WAS THE (profanity removed by moderator) SUBJECTLINE!!

The Subject line that *PUGSY* CHANGED.

You're wrong, you should apologize.

SDBud wrote: ↑

Sun Jul 21, 2019 1:33 am

Should write:

I am an unmitigated A.H.
I am embarrassed to no end.
I will never be able to make this up to Pugsy.
So I am removing myself from this forum immediately.
I vow to never return.
This is the last sentence I will ever write.
Except to say. "I am now going to wash out my mouth with something caustic".
Goodbye forever.
.

JPB

My apologies to the OP for being a part of derailing this thread.

So EVERYONE....get back on topic and stay on topic please. You know you don't want to see smoke coming out of my ears again.
No more discussion about anything but the OP's issues. Thank you in advance.

Blazing_Black_Beard


Your Old Autoset S9 is clearly treating you much better than the new machine. Normally a 30 day follow up is required after a machine change. I suggest now you have examples of how poorly the fixed pressure is doing go back you your old machine, take both machines with you to your 30 day follow up and request getting issues an Autoset if you don’t have a follow up get one booked phone up the clinic and bee a squeaky wheel. It may take a special request to the Trust but you have clearly demonstrated that the fixed pressure CPAP machine does not work for you so the Dr should be able to change your prescription and replace your machine with an Autoset.

To Jas_williams:

A couple of corrections, if I may. The OP had an S9 issued several years ago by the Leicester clinic. It was only when it stopped working and he went back to that clinic to have it fixed, that he found he had been discharged.

AFAIK, he still has that machine – but it hasn't been repaired or even looked at to see if it could be economically repaired. And he still has, I hope, the SD card from it.

The S9 that he is currently using is a friend's back-up machine, kindly provided on a loan basis – but obviously, that loan can't go on for ever.

To everybody else:

I make it that there are now four SD cards in play.

1. The first was in the Leicester-clinic-provided S9, and as I understand it, the ResMed S9 Auto keeps up to one year's worth of data in its memory, and then starts writing over it. That is, if everything is working as it should.

Since there wasn't, it seems, much of a follow-up regime in Leicester, there isn't any of the OP's data in the Leicester clinic's computer. So it can't be forwarded.

And AFAIK, the staff at the Northampton clinic have never seen the data which was (and hopefully still is) on the first SD card.

So the first thing to ask you, Blazing_Black_Beard is: do you still have that SD card? It might help your case.

2. The second SD card is not in the OP's possession. It was in the auto machine the Northampton clinic gave out for three weeks for him to do an at-home titration. And they have definitely had that SD card back. And the data from those three weeks is in their computer.

3. The third SD card is in the Elite the OP has been using on and off since the Norrhamptton clinic issued it to him 'recently'. He does not say how many nights he has used the Elite for, and so we don't know how much data is on this third card.

If we had our druthers, it would be more than a few nights worth. You mention a 30-day follow-up, Jas_williams, but from what Blazing_Black_Beard has said above, I doubt it is that much.

I will come back to that.

4. Then there is the fourth SD card from the S9 on loan from the friend. But unless the OP put a brand new and blank SD card in the loaner when he started using it, then his recent usage data will have been added to his friend's data file – and it may take a bit of detective work to mentally separate it out.

The reason I'm going into such detail about these four cards is to show you, Blazing_Black_Beard, why the staff at the Northampton clinic might well argue that so far there isn't enough evidence to support an individual funding request.

They might say: "It's all very well you saying that subjectively you feel you are doing better on the friend's loaner, and that you did well on the Leicester clinic's machine – thanks btw for showing us that first SD card. But what is the decider for us, here in Northampton, is the evidence – the hard evidence – as to how badly you are doing on the Elite machine – which, btw, it seems you have not used very much."

And if you haven't used it for enough nights – 'enough' meaning in the medical staff's definition of what 'enough' is – then they might not decide to request an upgrade.

I know it may seem a bit unfair for cases to be decided this way. But this is often how it is. For example, patients who 'clearly' need the next kind of upgrade – from an auto to a bi-level – they are sometimes required to struggle on with an auto for several months before the powers-that-be decide an ungrade is mandated.

I have phoned the clinic today and spoken directly to the specialist. I didn't have to say very much about anynything really, apart from announce who I was and to express that I was having terrible trouble trying to use the Elite. She immediately said that she would order an Autoset machine without asking any further questions, although I did offer some of my difficulties with the Elite machine after she said she would get the Autoset machine ordered in for me (which would take about a week) and exchange them on my next visit.

It seems like the only evidence she requires is an explanation that I'm simply feeling like crap using the Elite machine to try to find a pressure setting that can be used for uninterrupted and restful sleep all night long. In any event this seems to be a positive result. Thanks again for the help. I will post an update in a couple of weeks with graphs from the new machine.

That’s sounds great news

Good.

It appears that the consultant is departing from protocol. But in your favour.

That is welcome news.

Dear palerider,

I've been on breath-assist therapy for 2 months. 1 month ago, my Philips DreamStation APAP pressure was raised from 8 to 10 cm by my sleep therapist. I've set the C-flex pressure relief to 3 cm.

I've spliced my DIY U-tube differential manometer into the machine end of the hose and read exactly 10 cm when I hold my breath. When inhaling, the manometer indicates a bouncy 10 cm and exhaling, a bouncy 7 cm, exactly as they should.

I understand C-flex varies its dynamic response to slow versus fast exhales. Exhale pressure ramp and undershoot depend on the "puff" or exhale volume/time rate-of-change.

I've just installed OSCAR and, for the moment, I'm simply observing expanded views of flow rate and pressure over "uneventful" 1 and 2 minute segments. The typical breath-by-breath flow regularly cycles from +15 to -25 Liters/minute. Also appears fine.

But the RED pressure read-back is rock steady. Never fluctuates, so I'm assuming it's the "demand" or programmed pressure, not the actual sensor pressure. The GRN or EPAP pressure read-back fluctuates slightly, but doesn't reflect any discernible pattern or cycle. Somewhere, a read-back should indicate cyclical pressure variation from 10 to 7 cm.

Would you or any techie reading this reply, please tell me if and how I can find an OSCAR read-back of the actual pressure. I'll also post in other forums. I tend to scan instructions and always miss important stuff.

Thanks,

Ron