can any one understand this ?

esel · Post by **esel** » Fri Jul 07, 2017 5:13 am

I slept soundly last night !

This had not happen since a long long time. Hardly remember what it feels like. Falling a sleep almost instantly even after toilet runs. I dreamed and felt like deeply asleep. It's just amazing...

Now the ? I slept without the CPAP last night !!!

I am on CPAP a little over one year. I learned to sleep on my side. I learned to breathe through my nose, not yet perfect. I have not had any serious cold with clogged nose since using CPAP. I cannot say I fell in love with my CPAP and still have trouble digesting the "calls from the wild burritos". I haven't felt the magic of CPAP except for my hope hitting the sky and slowly vanished.

I am a scientist, I need to understand... My biggest hope is to be able to reproduce it. Is it the vacation starting middle next weak ? Is it the one year CPAP ? Is it that for a while I did not make any stupid mistakes or saying what I think before thinking about what I sad ? I did not change my med. I did go late to bed (11 pm) something exceptional compared to the usual 9 - 9:30 pm. For me, going to bed is often the best moment of the day. Not that I am very tired but around that time I only think of going soon, of going now to bed. Getting out of bed usually is 7 but if I don't need to it often is a battle. Need to give myself a kick in the but.

Julie · Post by **Julie** » Fri Jul 07, 2017 8:24 am

Hi, glad you did get a good night. Well, I think it's possible that your natural body clock likes going to bed later, at a more 'normal' time for most, though whether it's the whole answer to last night remains to be seen. What else happened that day or evening, possibly less stress than usual, we obviously can't say, unless your weather changed in some way (cooler?). But one night is one night... why not see if it repeats (go to bed later if at all possible too) though I can't tell you not to use your machine. I think it would be smarter to use Sleepyhead to see what's what, though obviously you need to be on the machine to do that, but you'll at least get a comprehensive picture of all features involved.

chunkyfrog · Post by **chunkyfrog** » Fri Jul 07, 2017 9:53 am

So, you had a good night--IN SPITE of sleeping without your cpap!

My opinion--just a fluke!
Never press your luck. Don't do that again. Please.
You have a cute avatar, and have a good command of our language.

Goofproof · Post by **Goofproof** » Fri Jul 07, 2017 10:56 am

esel wrote: Need to give myself a kick in the but.

Yes for not using your XPAP, As a Sciencist I'm sure you track your data with software, so I don't need to tell you how important that is. You also should already know how important to keep with the program, or get another full sleep test, so we don't need to tell you that either, in the meantime don't drop you paddle. Jim

Good Luck on not dying last night and surviving the paper cuts.

jnk... · Post by **jnk...** » Fri Jul 07, 2017 11:37 am

If I understand your post correctly, than my response to it would be that you do not know how well you slept (only a PSG would tell you that); you only know you woke up with the perception/belief that you slept well. One foundation of science is that the subjective perceptions/beliefs concerning past events, especially without any independent objective documentation in the form of measurement of those events, cannot and should not be given undue weight in any scientific consideration of a matter.

ChicagoGranny · Post by **ChicagoGranny** » Fri Jul 07, 2017 1:05 pm

esel wrote:I learned to sleep on my side.

Have a look at the summary of your original diagnostic (sans CPAP) sleep study. Check what your AHI was in each body position. Look at your minutes of sleep on your sides - how many minutes total, how many minutes in each sleep stage, particularly REM sleep, AHI.

If you had long minutes in REM sleep with low AHI, then sleeping on your sides may effectively treat your condition.

Curious to know what that sleep study says,

jnk... · Post by **jnk...** » Fri Jul 07, 2017 1:39 pm

When perception and reality are in conflict, it is usually reality that asserts itself eventually, not perception.

Likewise, unless one is filming oneself all night every night, one is in no real, um, position, to assume what sleep position one, uh, assumes during the night.

Midnight Strangler · Post by **Midnight Strangler** » Fri Jul 07, 2017 2:00 pm

At the suggestion of this forum, I slept wearing a backpack until my CPAP machine arrived. Sleeping on my sides helped me a lot, but it was not a complete treatment. I use CPAP consistently now and sleep in any position that is comfortable.

For some people, sleeping on the sides may treat the condition very well. Forum member Mars is a good example - viewtopic/t70205/-Mars-Given-OK-On-Posi ... rapy-.html

zoocrewphoto · Post by **zoocrewphoto** » Fri Jul 07, 2017 2:10 pm

Many people develop coping skills over the years. For example, as you have trouble breathing, your brain wakes you up, you roll over, you go back to sleep. You remember some of them, but not all. You end up being alight sleeper as your brain tries to keep you alive.

Once you have been on cpap for a good amount of time, you can sleep better and don't need to rely on the light sleep to keep you alive. But then you skip a night. Those coping skills don't work so well anymore. You probably had a boatload of events. You just don't remember them.

jnk... · Post by **jnk...** » Fri Jul 07, 2017 2:13 pm

If you aren't wearing a mask, you don't know how many events you have a night. You may feel fine but be doing serious damage to your health, just like the millions of undiagnosed who have no idea they have an issue with sleep and think they sleep just fine, thank you very much.

You don't treat a serious medical condition by using an assumption. Or at least I don't, although I would be perfectly free to do so, of course, if I thought that to be a wise choice for myself. I'd be wrong, but I'd be free to do it.

Many with serious untreated OSA think that they are especially good at sleep, since they fall right to sleep soon as their head hits the pillow and they can sleep for 10 or 12 hours at a time, or even parked at a red light. One of the symptoms of OSA is falling asleep quickly at the drop of a hat and staying asleep. So subjective judgment of having had a good night's sleep is more indicative of a sleep problem than of a lack of a sleep problem.

But hey, what do I know--I'm just some guy on the Internet. So if anyone is more interested in feeling like he's sleeping well than he is in actually sleeping well, more sleep to him! Just don't call it a viable medical choice for others with a life-threatening condition, since they just might believe you.

My understanding of the AASM position on positional therapy is this:

AASM dudes wrote:Positional therapy . . . is an effective secondary therapy or can be a supplement to primary therapies for OSA . . . Correction of OSA by position should be documented with PSG. http://www.aasmnet.org/Resources/clinic ... Adults.pdf

Color added by me.

ChicagoGranny · Post by **ChicagoGranny** » Fri Jul 07, 2017 5:51 pm

xxyzx wrote:all i want is that perception

if i feel good then i will be happy

dont want 'good' sleep that makes me tired and feeling bad
i will take 'fake' sleep that makes me feel good any day

Who are you to judge? You've never had one night of good CPAP therapy.

CPAPPED-ADAPT · Post by **CPAPPED-ADAPT** » Fri Jul 07, 2017 8:54 pm

xxyzx wrote:
ChicagoGranny wrote:
xxyzx wrote:all i want is that perception

if i feel good then i will be happy

dont want 'good' sleep that makes me tired and feeling bad
i will take 'fake' sleep that makes me feel good any day
Who are you to judge? You've never had one night of good CPAP therapy.
========

i never will have a good night of cpap therapy as i failed that during titration

i never got a good night with a bipap because it was the wrong treatment for my actual diagnosis

i am waiting for the correct AVS now that i have the proper diagnosis
the bad news is that not everybody with complex apnea can be treated
as fixing one makes the other worse and there may not be a happy medium that improves things enough to bother if at all

What do you mean, 'the correct AVS'? Please explain.

Julie · Post by **Julie** » Fri Jul 07, 2017 9:08 pm

He asked why you specified the 'correct' ASV, not why you were waiting for one.

ChicagoGranny · Post by **ChicagoGranny** » Sat Jul 08, 2017 8:28 am

xxyzx wrote:ASV is the only treatment FDA approved for central apnea

... and you depend on the government for your health. Libtard!

jnk... · Post by **jnk...** » Sat Jul 08, 2017 8:52 am

Actually, the FDA has NO problem whatsoever with ANY of the MANY forms of treatment recommended by the AASM for CSAS:

AASM dudes wrote:The recommendations for treatment of CSAS are summarized as follows: • CPAP therapy targeted to normalize the apnea-hypopnea index (AHI) is indicated for the initial treatment of CSAS related to CHF. (STANDARD) • Nocturnal oxygen therapy is indicated for the treatment of CSAS related to CHF. (STANDARD) • Adaptive Servo-Ventilation (ASV) targeted to normalize the apnea-hypopnea index (AHI) is indicated for the treatment of CSAS related to CHF. (STANDARD) • BPAP therapy in a spontaneous timed (ST) mode targeted to normalize the apnea-hypopnea index (AHI) may be considered for the treatment of CSAS related to CHF only if there is no response to adequate trials of CPAP, ASV, and oxygen therapies. (OPTION) • The following therapies have limited supporting evidence but may be considered for the treatment of CSAS related to CHF after optimization of standard medical therapy, if PAP therapy is not tolerated, and if accompanied by close clinical follow-up: acetazolamide and theophylline. (OPTION) • Positive airway pressure therapy may be considered for the treatment of primary CSAS. (OPTION) • Acetazolamide has limited supporting evidence but may be considered for the treatment of primary CSAS. (OPTION) • The use of zolpidem and triazolam may be considered for the treatment of primary CSAS only if the patient does not have underlying risk factors for respiratory depression. (OPTION) • The following possible treatment options for CSAS related to end-stage renal disease may be considered: CPAP, supplemental oxygen, bicarbonate buffer use during dialysis, and nocturnal dialysis. (OPTION) --

can any one understand this ?

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xzyxzzzzz - Closet Libtard

Re: can any one understand this ?