extremely tired all the time. need advice.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
dorlow
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Re: extremely tired all the time. need advice.

Post by dorlow » Thu Jul 07, 2016 1:51 pm

I don't like the cpap. I don't want to use it. it's uncomfortable. I feel since using it, my relationship with my wife has gone downhill because it's this barrier in the bed. I feel like an alien. it's not the way life is supposed to be. it's not natural to sleep with it. so no matter what evidence you can show me, I look at quality of life. if I see life as sucking because of this cpap, no matter it's value, all my negatives out weighs any positives.

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Julie
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Re: extremely tired all the time. need advice.

Post by Julie » Thu Jul 07, 2016 1:54 pm

I'm sorry, it wasn't clear to me that you weren't using equipment yet.

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mummmz
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Re: extremely tired all the time. need advice.

Post by mummmz » Thu Jul 07, 2016 2:13 pm

I'm sure your wife wants you to feel better and have more energy too. You don't have to wear it until you are ready to go to sleep. Don't put it on until the TV is off and you've said goodnight to your wife . Once the lights are off who cares what you wear on your nose?

Do you have a full face mask or nasal mask? Maybe it's not the right mask for you.

Instead of a new sleep study the doctor might just need to see information from the SD card. How about you pull the card out and upload your last night or two of use to SleepyHead?

Dani

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palerider
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Re: extremely tired all the time. need advice.

Post by palerider » Thu Jul 07, 2016 2:20 pm

dorlow wrote: I need an alternative resolution than a cpap.
why do you come to a cpap help forum to get help for something other than cpap?

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mummmz
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Re: extremely tired all the time. need advice.

Post by mummmz » Thu Jul 07, 2016 2:22 pm

Altrenative to cpap....CPR?

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palerider
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Re: extremely tired all the time. need advice.

Post by palerider » Thu Jul 07, 2016 2:23 pm

dorlow wrote:I don't like the cpap. I don't want to use it. it's uncomfortable. I feel since using it, my relationship with my wife has gone downhill because it's this barrier in the bed. I feel like an alien. it's not the way life is supposed to be. it's not natural to sleep with it. so no matter what evidence you can show me, I look at quality of life. if I see life as sucking because of this cpap, no matter it's value, all my negatives out weighs any positives.
waaaaaaaaaaaaaaaaaaaaaaa crybaby.

I don't like my glasses, I don't want to use them, they're uncomfortable (well, ok, just a little). people called me four eyes in school, I'm traumatized, I feel like an alien, it's not the way life is supposed to be, I should be a steely eyed fighter pilot! it's not NATURAL to have things hanging in front of my eyes, no matter what evidence you can show me, I look at the quality of life, the majestic line of my nose. if I see life as sucking because of these glasses, no matter whether they keep me from running into walls and stepping into potholes, my stupid vanity outweighs the positives!!

OUCH! :stumble: :thud:

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palerider
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Re: extremely tired all the time. need advice.

Post by palerider » Thu Jul 07, 2016 2:24 pm

mummmz wrote:Altrenative to cpap....CPR?
nah, sleep apnea isn't likely to induce cardiac arrest.

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Wulfman...
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Re: extremely tired all the time. need advice.

Post by Wulfman... » Thu Jul 07, 2016 2:36 pm

dorlow wrote:again, I am not using a cpap. but I just called and made an appointment to see my first doc that's 1.5 hour drive away but I like the doc. he seems to know what he is talking about unlike this other doc I don't trust.
dorlow wrote:even if I gave you my old info.... I guess I could find out through make and model, I don't know the pressure range it's set at and don't have a way to find it out. but I've packed it up and have no intentions on using it again. if I need help to resolve my sleep apnea, I need an alternative resolution than a cpap.
dorlow wrote:I don't like the cpap. I don't want to use it. it's uncomfortable. I feel since using it, my relationship with my wife has gone downhill because it's this barrier in the bed. I feel like an alien. it's not the way life is supposed to be. it's not natural to sleep with it. so no matter what evidence you can show me, I look at quality of life. if I see life as sucking because of this cpap, no matter it's value, all my negatives out weighs any positives.
dorlow wrote:even if I gave you my old info.... I guess I could find out through make and model, I don't know the pressure range it's set at and don't have a way to find it out. but I've packed it up and have no intentions on using it again. if I need help to resolve my sleep apnea, I need an alternative resolution than a cpap.
This is a CPAP user help forum! If you want help with your CPAP therapy, we'll be glad to help in any way we can.
But, if you have no intentions of using it, quit wasting our time!
You complain about it interfering with your relationship in bed, but if you're snoring and stopping breathing, you're disrupting your wife's "quality of life".
In short, you sound like a selfish and self-absorbed narcissist. You don't think of anybody but yourself.
What's going to happen if you have a stroke and are incapacitated and your wife needs to change your diapers and feed you and all the other things that go with that? If you haven't developed Diabetes yet.......you probably will.
You think it's affecting your "quality of life" now........just wait.......you ain't seen nothin' yet!

If you haven't bothered to research Sleep Apnea, you'd better get with it.

Grow up, little man. You've got a LOT to learn.

By the way.......it would be very easy to find out all the things to answer the questions others have asked you.
You're just too friggin' lazy and want to waste everybody else's time.


Den

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zoocrewphoto
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Re: extremely tired all the time. need advice.

Post by zoocrewphoto » Thu Jul 07, 2016 3:43 pm

dorlow wrote:even if I gave you my old info.... I guess I could find out through make and model, I don't know the pressure range it's set at and don't have a way to find it out. but I've packed it up and have no intentions on using it again. if I need help to resolve my sleep apnea, I need an alternative resolution than a cpap.

Then why are you here? This forum is about cpap use. We can help you with cpap. The alternatives aren't as good as cpap, and some cause permanent damage. We aren't going to promote them.

As I mentioned before, you probably had a doctor who prescribed the machine wide open which is basically useless, and then counted your compliance as good numbers and didn't bother to look at your actual data. So, while you used the machine, it wasn't set up to be successful. Your doctor did you a huge disservice. You need to accept your losses and start over, this time, using your data to hone in on the right settings for success.

If you just want to complain, you will never get better. We can't do much about a bad attitude.

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mummmz
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Re: extremely tired all the time. need advice.

Post by mummmz » Thu Jul 07, 2016 3:52 pm

Dorlow are you still using your dad's hand-me-down Resmed S8 Escape? Did your wife give up on it when she tried it too? Pugsy and wulfman tried to help you when you posted in 2013 and 2015. Now, one year later you're back. It seems you are fighting the treatment but you know you need it.

by dorlow on Mon Jun 10, 2013 8:44 am
So, a few years ago, I went to the doc and I can't remember why they refered me out to a sleep doctor. I think I commented I wasn't sleeping well. Well, they diagnosed me to need a CPAP. At the time, I felt like I was involved in a scam. I felt they were just trying to pressure me into buy some expensive piece of equipment. And the cost of the CPAP was out of my reach.

Well, it's now a few years later and my dad uses a CPAP. He just got a new one and gave me his old one. I really don't want to use it. My wife says she rarely hears me snore. My wife, in recent times, has started snoring quite loudly making it hard for me to sleep. Well, I figure she could use it more than me. My dad had the CPAP machine he gave me set to one of the lowest settings I'm told. I found how to get into the settings menu and change the CPAP's pressure and changed it to a larger number.

Now, it still doesn't seem right. When I went in for my sleep study, when I had the mask on, I could breath out of my nose just fine. It felt like I was having air forced up my nose but I could breath out fine. Also, if I tried opening my mouth, it felt like I was gagging and I had to close my mouth to breath.

This one my dad gave me is different. When wearing it, there is definite pressure going in my nose, but it feels like there's only pressure in where I have to breath against the wind to breath out. I don't remember there being resistance when breathing out in the sleep study. Also, we can open our mouth and get some air coming out, but we don't gag. I could still hear my wife snore slightly with the mask on.

I know most replies are going to be "go to a sleep study, have it prescribed and have someone that knows what they're doing set it for you." I take it most people that say this have good insurance or are rich. We are neither. Our insurance doesn't cover this and we are on the brink of poor. I can't afford it. So, any advice would be appreciated.

I think I have the CPAP set at 10 right now for the pressure. I think when he gave us it, it was set at about 4. Is there a formula that we could use as a good starting point number then make minor adjustments?

by dorlow on Mon Jun 10, 2013 9:03 am
Sorry, it's a Resmed S8 Escape.

by dorlow on Tue Aug 18, 2015 8:46 pm
So, I am not someone that was forced into cpap. Years ago, I was told I need a cpap. Then I was defiant and hated the idea of having one. Afterwords, ovee the next 5 years, I've talked to many people that use and think they're the greatest thing and couldn't imagine living without it. I know I have sleep apnea and am always tired so I went to the doctor and asked him to schedule me for a sleep study hoping they would prescribe me kne so hopefully I could sleep better and be more awake during the day.

I've now been using it at home for two months. The sleep study showed before that I woke up manh times an hour but with it, I wake about every two hours.

I see the numbers, but I'm not any more awake during the day. About as tired as I ever been. I also wear a fitbit. I watch my restless sleep with that also. Before and after according to my fitbit hasn't changed much. I'm awake pretty much all night according to the fitbit. Maybe a little less restlessness.

But it was extremely rare before the cpap fhaf I would have a night that I straight out cant fall asleep. This week I've had two of them. One night went to bed about 9 finally around 1 am I took the mask off so I could fall asleep. This morning. I woke up at 3 am. Lied there for hours trying to fall back asleep.

It just happens more often. I really want it to work. I want that magic potion that I use this cpap and I'm like a new me woke up. More energetic and productive. But its like the opposite is happening. I find the nose rhibg kind of uncomfortable. Find the hose extremely annoying. I'm not sure what to do.

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Omne
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Re: extremely tired all the time. need advice.

Post by Omne » Thu Jul 07, 2016 4:21 pm

The fitbit is about as accurate as a ouija board as far as sleep stages, don't rely on it for anything useful. http://www.huffingtonpost.com/2014/01/2 ... 37328.html
It's not very accurate on whether you are asleep either, if you don't move it thinks you're sleeping.

I hate to ask but what kind of a relationship do you have with your wife? I started using CPAP a month or so ago and my wife, of 11 years, is perfectly willing to accept it as part of who I am. She has told me that I look like I'm on life support but I honestly don't think it would ever even occur to her to really complain about it or hold it against me. I'm secure enough in the relationship that I accept that without second guessing it. If you have/had a healthy relationship then the barrier is going to be your creation and the downhill slide is on you.

dorlow
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Re: extremely tired all the time. need advice.

Post by dorlow » Thu Jul 07, 2016 7:37 pm

I need people to just accept that I'm not using the CPAP. Just pretend that is not an option because it's not. What else can I do.

dorlow
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Re: extremely tired all the time. need advice.

Post by dorlow » Thu Jul 07, 2016 7:39 pm

About the relationship with my wife, my wife doesn't mind it. I'm the one that's self conscious. Again, CPAP... not an option.

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palerider
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Re: extremely tired all the time. need advice.

Post by palerider » Thu Jul 07, 2016 7:40 pm

dorlow wrote:About the relationship with my wife, my wife doesn't mind it. I'm the one that's self conscious. Again, CPAP... not an option.
then why are you here, bothering us, on a cpap help site?

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dorlow
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Re: extremely tired all the time. need advice.

Post by dorlow » Thu Jul 07, 2016 7:42 pm

I figured it was sleep apnea help for the most part.