Sick and Scared

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
HoseCrusher
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Re: Sick and Scared

Post by HoseCrusher » Tue Mar 24, 2015 5:37 pm

johncooke wrote:
Logies101 wrote:First i want to say that I am not someone who wants to stop CPAP. I know how I felt before I started three months ago and how I felt after using it. The difference was like night and day. I wasn't waking up with headaches anymore, I could go through the day without taking naps, I wasn't miserable anymore. Then I got stick. I started coughing, a dry cough then a cough with mucus and shortness of breath. The coughing and mucus won't stop, neither will the shortness of breath. Dr says it's bronchitis and to stop the CPAP to see if it goes away.

This is my third night without using it. I'm not only concerned that medicare will take the machine away because I'm not using it but I'm afraid that i'm not going to wake up in the morning. I sleep sitting up, with my oral device, a breathe rite strip and a neck collar. I'm not getting much sleep and I'm starting to get depressed. The bronchitis isn't getting any better and I have no idea how long it's going to take. They have me on my second round of antibiotics, nebulizer with albuterol, prednisone. I'm using methol cough drops like crazy. I've never had any thing like this before and I'm not even sure it's what they say it is, sigh

I need your input, has anyone had bronchitis and had to stop their cpap and how long did it take to get better? I've met my 90 day initial trial of cpap for Medicare but I'm not sure how they determine compliance after that period of time. I know I don't own the machine for about 13 months or so. I need some encouragement or advice please.
To answer the question about getting sick and stopping CPAP, you may need to check your water to make sure using only distilled and changing daily, also the humidifier definitely helps with dry throat but not sure if it will heal bronchitis as it will be soothing but its a virus or mold that might be causing it. There also is a problem that many don't figure out is that the machine can get mildew in where the machine attaches to the hose and the moisture can travel back into the CPAP causing molding and mildew issues and people get problems like what your talking about. Even if you clean your hoses every night you could still be leaving the main hose from the cpap hooked up all the time and this is where mold can build up and then you breathe it in.

I just wanted to add that you have hit the nail on the head as to the side effects of CPAP machine, They are amazing for getting those first few nights of sleep but for the long term they should be discontinued and by that I mean getting body to a much healthier state and taking in the proper minerals to balance your body so that it stops dis-functioning. The problem with sleep apnea is many people and doctors believe that their is nothing they can do beyond CPAP except for surgery. Their is many things that you can do and should do to get health back in order. The main thing is cutting certain foods that the body is looking at as poison that it is constantly detoxing.

When you have sleep apnea you have two options to go to a doctor or try to change your life and start finding natural ways to get your body back into shape as sleep apnea is the body's warning sign for help and by just using things that get rid of symptoms will only enable the problem to continue and to stay the same. For example CPAP is just forcing air in the throat and covering up the body's symptoms of sleep apnea. The problem is that when the bodys symptoms are covered up your not realizing that the body is not really healing only keeping symptoms at bay. When you wear a CPAP for a long time you have to get another sleep study done as it can stop working as effective as the machine will make the throat weaker. The goal while on CPAP is to start fueling your body with live natural foods as well as first cutting high allergy foods such as Gluten, Dairy, Corn and basically anything proceeded and not in original organic form. Also eating less at a time as well as using herbs such as marjoram can help. Taking the proper and correct minerals is a big deal and getting out in the sun and exercising as well as strengthening your breathing with Qi Gong.

Eating standard american food pyramid diet and not changing lifestyle and just relying on CPAP will just lead to more dysfunction. But just wanted to throw it out there that if you can't afford or don't want to get a polysomnograph test or (sleep study) then this is a way to find out for yourself. Also it is good to continue to do this type of sleep video monitoring all the time to find what (triggers, activities or foods) caused a "bad nights sleep full of apneas" and also what (triggers, activities or foods) encouraged and "helped good a nights sleep with significantly less apneas." By learning this simple little trick you can heal yourself just like anything else as before it was hard to heal as it happened when you where unconscious. Now when you monitor yourself you can be much more aware at what activities sleep pattern or foods before bed are bad and causing sleep apnea to occur.

If you sleep without your CPAP try also doing a test, You can start filming yourself at night and do this a few nights in a row and note what you ate throughout the day and how late you ate it before bed. Then document everything in a journal.

If you can have your dog sleep with you (Sometimes they will wake you up when your not breathing so you can at least not be suffocating for long periods) or have a bed partner try to monitor you one night as they stay awake. You will start to see some patterns and see the impact of what you ate and then see how poorly you slept. The only way to really get better is by focusing on total body detoxification and balancing and healing deficiencies. The more internal work you do and the more your body is healed the faster sleep apnea will just disappear on its own as your body is capable of healing itself but we get in our own way by eating the way we do.

I hope this can help you track down the part of your machine that possibly has mold or mildew and get that at least taken care of so you can start getting good sleep and then having the energy to start changing your life and balancing your body to heal the root of sleep apnea and not just cover up the symptoms.




I have no problems with striving for a decent and healthy diet and working in exercise on a regular basis. However if that is all it took the really healthy people would simply get over the sleeping disorders and move on. That doesn't seem to be the case in this real world.

If it was only that simple...

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archangle
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Re: Sick and Scared

Post by archangle » Tue Mar 24, 2015 5:40 pm

johncooke wrote:Drivel deleted
Pure nonsense from someone pushing a web site that sells a miracle cure.

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Re: Sick and Scared

Post by johncooke » Tue Mar 24, 2015 5:51 pm

OkyDoky wrote:Interesting way to try and sell your book.

Did you read the answer to the question that someone was asking, I did... then I answered it.... what are you doing to contribute to this post? adding sarcasm?.... did you notice that their was lots of info that is very relevant in my comment or did you think your contribution was better?

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Wulfman...
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Re: Sick and Scared

Post by Wulfman... » Tue Mar 24, 2015 5:54 pm

johncooke wrote:
OkyDoky wrote:Interesting way to try and sell your book.

Did you read the answer to the question that someone was asking, I did... then I answered it.... what are you doing to contribute to this post? adding sarcasm?.... did you notice that their was lots of info that is very relevant in my comment or did you think your contribution was better?
I think her contribution was far better than the "Snake Oil" you're selling.

Don't be surprised if nobody here is buying it.


Den

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OkyDoky
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Re: Sick and Scared

Post by OkyDoky » Tue Mar 24, 2015 5:57 pm

johncooke wrote:
OkyDoky wrote:Interesting way to try and sell your book.

Did you read the answer to the question that someone was asking, I did... then I answered it.... what are you doing to contribute to this post? adding sarcasm?.... did you notice that their was lots of info that is very relevant in my comment or did you think your contribution was better?
I looked at the number of your posts and then at your blog. Did you look at the number of my posts?
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Julie
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Re: Sick and Scared

Post by Julie » Tue Mar 24, 2015 6:00 pm

And FYI, Cpap does NOT make your throat weaker - you need to learn some basic physiology.

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Re: Sick and Scared

Post by johncooke » Tue Mar 24, 2015 6:08 pm

archangle wrote:
johncooke wrote:Drivel deleted
Pure nonsense from someone pushing a web site that sells a miracle cure.
Sounds like misery enjoys company, sounds like you have been on CPAP for a long time and are mad and want no one else to find help as you were unable to. A miracle cure would be snake oil physical product, real cures do involve information and techniques and methods for internal healing and involve balancing the body to repair itself...Im not talking about homeopathy or something. I think you are way too jaded and from the sound of it have been taken advantage of many times.

Really are you one of those that listens to just what the doctor tells you, well enjoy your short life span as my step dad believed them as well and died at 54. Also what do you have to say besides "its a miracle cure" as im assuming you do not have any Idea what it is about?? No you don't, your just mad because nothing has worked for you, that does not mean it will not work for more open minded people out there that are willing to try something different. There are people that just by cutting gluten have gotten rid of sleep apnea...is that a miracle cure??? because it was not prescribed by YOU or YOUR DOCTOR.

What do you have to say about helping the original poster, or are you just focused on trolling....Well I guess now is your time to shine, go ahead, say what Idea you have that is so much better.... if not your just trying to make up everybody's mind for them.

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Re: Sick and Scared

Post by johncooke » Tue Mar 24, 2015 6:14 pm

Wulfman... wrote:
johncooke wrote:
OkyDoky wrote:Interesting way to try and sell your book.

Did you read the answer to the question that someone was asking, I did... then I answered it.... what are you doing to contribute to this post? adding sarcasm?.... did you notice that their was lots of info that is very relevant in my comment or did you think your contribution was better?
I think her contribution was far better than the "Snake Oil" you're selling.

Don't be surprised if nobody here is buying it.


Den

.

Again let me know what snake oil Im selling, I am giving info that can help..If you know for sure what I am doing is selling snake oil, Then why don't you tell me what it is Im doing exactly.... since your so sure of it...let everyone know my secret snake oil and try to debunk me or are you just going to hide behind the snake oil comment.

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Re: Sick and Scared

Post by johncooke » Tue Mar 24, 2015 6:16 pm

OkyDoky wrote:
johncooke wrote:
OkyDoky wrote:Interesting way to try and sell your book.

Did you read the answer to the question that someone was asking, I did... then I answered it.... what are you doing to contribute to this post? adding sarcasm?.... did you notice that their was lots of info that is very relevant in my comment or did you think your contribution was better?
I looked at the number of your posts and then at your blog. Did you look at the number of my posts?

I did how many people have you helped get off of CPAP, posts are irrelevant what you said to me was not needed and did not help anyone.

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archangle
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Re: Sick and Scared

Post by archangle » Tue Mar 24, 2015 7:01 pm

Oh, look the link to the "sleep apnea alternatives" web site that sells stuff is gone from his signature line now.

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Julie
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Re: Sick and Scared

Post by Julie » Tue Mar 24, 2015 7:19 pm

Your snake oil is that food can fix apnea... apples & oranges tho'. Apnea is about anatomy, neurology, respirology. Good food is good food but it doesn't cure everything and it doesn't cure apnea. That's all.

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BlackSpinner
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Re: Sick and Scared

Post by BlackSpinner » Tue Mar 24, 2015 7:25 pm

johncooke wrote:[drivel

There are people that just by cutting gluten have gotten rid of sleep apnea...is that a miracle cure???

drivel
ROFLMAO A lot of us don't eat gluten and it made not one iota of difference to our sleep apnea.

I spent a lot of time eating healthy food and exercising for decades - and it made no difference to the physical structure of the throat.

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Re: Sick and Scared

Post by johncooke » Tue Mar 24, 2015 7:44 pm

Julie wrote:Your snake oil is that food can fix apnea... apples & oranges tho'. Apnea is about anatomy, neurology, respirology. Good food is good food but it doesn't cure everything and it doesn't cure apnea. That's all.

Ok so you have not researched anything that I have said as that is just a part of it.
Do you know what effects your anatomy, neurology, respirology? certain chemicals and processing of foods, prescription medicine and a little bit of water and air pollution ( many other factors too many to get into right now but you get the point).

Then if you have any allergic food reaction to anything that you are unaware of you get your body will be fighting against itself causing dysfunction, auto immune problems thyroid problems etc...Then good food becomes more than good food it either feeds your body or feeds harmful bacteria or add more poison and adds more toxins to your body to try to detox along with all the other stuff we eat...

This all goes against your body and this is just the half of it. Saying there is no connection just makes me wonder what research you have done and why is it so important for you to proclaim that to everyone over what I am saying...is it cause your friend, dad, cousin is a doctor and they told you or somthing.

Do you know many people who have had sleep apnea surgery had to get back on CPAP, as well as CPAP making your throat weaker and dependent on a machine... would that be enough to stop listening to doctors?

Everybody has a opinion but I have not gone around attacking your opinions claiming your brainwashed by the medical industry...you don't have to listen or read it or take action with anything but if your still on CPAP you possibly are the one listening to the wrong info as CPAP takes care of symptoms does nothing for root cause.

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Re: Sick and Scared

Post by johncooke » Tue Mar 24, 2015 7:55 pm

BlackSpinner wrote:
johncooke wrote:[drivel

There are people that just by cutting gluten have gotten rid of sleep apnea...is that a miracle cure???

drivel
ROFLMAO A lot of us don't eat gluten and it made not one iota of difference to our sleep apnea.

I spent a lot of time eating healthy food and exercising for decades - and it made no difference to the physical structure of the throat.

If you have central sleep apnea that is a different story....But again that was one just one example (thanks for taking it out of context and making it look like that is the "miracle cure" when I never said anything of the sort it was an example... are you a representative for CPAP machines?) I did not say that is what will do it for you... did you ever consider that maybe your trigger is something else, Im fine with you asking a question but just jumpin on the bandwagon saying im promoting snake oil/ miracle cure just shows that you are angry cause things have not worked for you, I have no idea what you really have or have not done...do you still eat a lot of processed foods that is one on top of that exercise is just a part of the detox process and your opinion of eating healthy could still be in fact eating very poorly and unhealthy. I'm not sure what your diet really was, so for you to say you did all the healthy eating and working out is irrelevant without examples of what you really did and what you really ate. Do you make commissions selling CPAP machines or something you seem to be so against others getting help?

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Re: Sick and Scared

Post by johncooke » Tue Mar 24, 2015 7:59 pm

archangle wrote:Oh, look the link to the "sleep apnea alternatives" web site that sells stuff is gone from his signature line now.

Very good for you to notice that, do you know why? I thought maybe you would actually read the comment and what I said instead of simply stating the obvious If I put it in there your mad, now i take it out your mad..wow tough person to please.

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