MyAir.com -- PissedMeOff.com more like it...

palerider wrote:

cathyf wrote: -- Your AHI might lose you up to 5 points, depending upon how many events you had before you were dead...

that last apnea is going to be a doozie though!

Yeah one of the weaknesses of counting events with no concern for duration is that an event that's long enough that it kills you doesn't count for any more than the 10.0001 second bobble. If that last apnea is also your first, your AHI could be basically zero.

cathyf wrote:Yeah one of the weaknesses of counting events with no concern for duration is that an event that's long enough that it kills you doesn't count for any more than the 10.0001 second bobble.

Nooo, what you stated is not the weakness. The weakness is, for example, 45-second apneas are counted the same as 15-second apneas.

Your reductio ad absurdum argument hurts the point you are trying to make.

palerider wrote:…
if they were making them for us, then the damnable "compliance" wouldn't be front and center and most important.

I think compliance is part of the therapy. Taking a machine and mask home with you for the first time and experiencing the sense of unnatural confinement, change in lifestyle and worry about how it may be perceived by one's bed partner and/or family puts a lot of pressure on first-time users to express exasperation and give it up and toss it all in the closet or up on a shelf.

Knowing that compliance is being checked and registered is a form of negative reinforcement for the beginning patient, which ends up helping those who stick with it and also not burdening the rest of us with the cost of the abandoned machines because coverage by Medicare or the insurance company will be terminated.

Personally I was lucky because I have a significant other who encouraged me to be tested and to stick with the therapy, in the absence of that factor and access to cpaptalk from the beginning, I might have been strongly tempted to give up the therapy effort within the first few nights had I not also known that my compliance was being checked electronically. I could have easily rationalized and stuck it in the closet and hoped no one would be the wiser.

So while I respect the views of those who resent compliance-checking upon introduction to CPAP-therapy, there are also those of us who didn't resent it all and believe it was just one more factor that helped keep us on the road to success.

Regards, Nate

NateS wrote:

palerider wrote:…
if they were making them for us, then the damnable "compliance" wouldn't be front and center and most important.

I think compliance is part of the therapy.

I think that *usage* is an important part of therapy, but "compliance" means doing what you're told.

if they reported "usage" as an element of overall treatment effectiveness, and gave the effectiveness equal billing, which the cheapest machines don't even *report*, then I'd believe it.

but as it is, you can be 100% compliant and still have an ahi of 90, and getting NO effective treatment out of the machine at all. (we've seen people come here with that exact problem)

palerider wrote:

NateS wrote:

palerider wrote:…
if they were making them for us, then the damnable "compliance" wouldn't be front and center and most important.

I think compliance is part of the therapy.

I think that *usage* is an important part of therapy, but "compliance" means doing what you're told.

if they reported "usage" as an element of overall treatment effectiveness, and gave the effectiveness equal billing, which the cheapest machines don't even *report*, then I'd believe it.

but as it is, you can be 100% compliant and still have an ahi of 90, and getting NO effective treatment out of the machine at all. (we've seen people come here with that exact problem)

I don't disagree with that. I put the blame on doctors who fail to write "Fill as Written" Rx's for only machine models which record and report everything. If doctors did that, then they'd stop making the damn bricks because nobody would be buying them. It is really medical malpractice for doctors to write these wide-open, any piece of junk will do, prescriptions. The latter is equivalent to doctors writing a drug Rx saying to the pharmacist "Put 90 pills of something in a bottle to be taken orally before bedtime."

Regards, Nate

NateS wrote:I don't disagree with that. I put the blame on doctors who fail to write "Fill as Written" Rx's for only machine models which record and report everything. If doctors did that, then they'd stop making the damn bricks because nobody would be buying them. It is really medical malpractice for doctors to write these wide-open, any piece of junk will do, prescriptions.

I agree, but we hear about so many doctors that *never* look at anything but the "did you do what i said" numbers, and don't give a damn about whether it's working for the end user.

that really should be malpractice, except it seems to be the standard

cathyf wrote: ...Login to share your accomplishment with friends on Facebook and Twitter... Notice the creepy button so that you can post this condescending crap on your Facebook page or twitter feed...

I guess newbies can use every "atta boy" they can get. I doubt there's a reasonable way to make such an application meet the expectations of the more discriminating user. I lean toward thinking this was simply a company's attempt to: 1. Appear current and relevant (everybody else is doing it), and 2. Utilize existing customers for promotions - it's an advertising piece. I wouldn't expect it to get all scientific and intricately involved from a medical perspective. In fact, for legal reasons I'd expect them to stay far from comparative interpretation of data. It is what it is. Gets an from me.

Midnight Strangler wrote: Ever try calling Ford Motor Co. because you don't like the design of the instrument panel?

When I had a Ford I had the opportunity to try it out before plunking down a pile of money for it. I bought it knowing that the instrument panel kind of sucked.

Midnight Strangler wrote: Ever call Samsung because a pixel is burnt out?

I have emailed Samsung that a pixel was burnt out. Within 72 hours there was a Samsung repair truck at my home, and a tech replaced the panel with a brand new one in about 20 minutes, no questions asked. That's right, one single dead pixel. Maybe Samsung will get into the CPAP business. I'll be lined up like a teenager at the Apple store on new iPhone day.

Midnight Strangler wrote: Ever call Cal-Maine because you think they should use a different egg-grading scale?

I have no idea what Cal-Maine is, but I'm guessing they have something to do with eggs.

I don't get all the drama here. Unsubscribe from the service. Was this something you asked for and subscribed to, or is this a requirement of your equipment provider to track your equipment compliance? If the latter, then my concern would be with the invasion of privacy. This seems to be a service to make tracking your usage and efficacy easy. If you find it offensive, quit.

MyAirTM is an easy-to-use web program that is available exclusively for AirSense™ 10 and AirCurve™ 10 users. By allowing patients to track their nightly sleep data, and through interactive coaching, myAir empowers patients to stay engaged with therapy – an important part of helping them stay compliant long term. And with patients more involved in managing their own sleep therapy, myAir can help reduce callbacks and allow you to focus more of your time and resources on those who need extra support.

I got curious. Sooooooo......

http://www.calmainefoods.com/

http://en.wikipedia.org/wiki/Cal-Maine


Den

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palerider wrote:

NateS wrote:

palerider wrote:…
if they were making them for us, then the damnable "compliance" wouldn't be front and center and most important.

I think compliance is part of the therapy.

I think that *usage* is an important part of therapy, but "compliance" means doing what you're told.

if they reported "usage" as an element of overall treatment effectiveness, and gave the effectiveness equal billing, which the cheapest machines don't even *report*, then I'd believe it.

but as it is, you can be 100% compliant and still have an ahi of 90, and getting NO effective treatment out of the machine at all. (we've seen people come here with that exact problem)

I'm so glad I went the route I did......not dealing with a DME and all that. I would have been seriously pissed if I would have had to prove my "compliance". I didn't need to be prodded to use my equipment. I immediately started looking for better settings than the ones I had been "prescribed".......and found them on my own.


Den

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Frankly, I also don't get the hostility about FaceBook.

Karen and I are in our 70s, and we're on FaceBook every night.
Why? Because that's where all our septuagenarian friends are, and we have a great time chatting, arguing politics, admiring each others' photos of our grandchildren and our pets, admiring beautiful works of art posted by fans of the greatest artists of the last few centuries, and cheering up those of us going through any challenges.

Besides, it's the one way to keep in regular touch with our adult children and grandchildren and on their activities and the neat pictures they take almost every day with their cellphones. We see more ongoing activity photos of our children and grandchildren in a week than our parents saw of us and our kids in months.

This is not an adv for FaceBook - I just think that some people who are dismissive of social media don't know what they're missing.

And yeah, I would put up that CPAP badge on FaceBook if I was just starting, and it would bring me loads of words of encouragement right back from friends and family, and would have done a lot to help ease my initial discomfort and frustration, even if none of them know what cpaptalk members know. Every bit helps.

Just sharing another point of view.

Best wishes, Nate

It could be more useful if they would add features like: if you stop using the machine, it would E-Mail you, "HELP, I'm trapped in the Closet", put me by the bed and use me! Or Please E-Mail me, your friends have hinted to me you took a trip to De-Nile, and were last seen taking on distilled water... Did you really go down with the ship? That could be useful! Jim

Wulfman... wrote:I got curious. Sooooooo......

http://www.calmainefoods.com/

http://en.wikipedia.org/wiki/Cal-Maine


Den

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I personally have gotten good service from this company. Only last month I opened a carton of their Jumbo Eggs, one was cracked and leaking. I e-mailed them about the problem and the next day a truck pulled into my driveway, the driver went to the back of the truck and pulled out a big fat hen, then proceeded to hold it over the egg carton, it promptly laid a fresh jumbo egg in the carton, not many companies have better service than that. Jim

Goofproof wrote:It could be more useful if they would add features like: if you stop using the machine, it would E-Mail you, "HELP, I'm trapped in the Closet", put me by the bed and use me! Or Please E-Mail me, your friends have hinted to me you took a trip to De-Nile, and were last seen taking on distilled water... Did you really go down with the ship? That could be useful! Jim

Goofproof wrote:
I personally have gotten good service from this company. Only last month I opened a carton of their Jumbo Eggs, one was cracked and leaking. I e-mailed them about the problem and the next day a truck pulled into my driveway, the driver went to the back of the truck and pulled out a big fat hen, then proceeded to hold it over the egg carton, it promptly laid a fresh jumbo egg in the carton, not many companies have better service than that. Jim

Good ones, Jim!

Regards, Nate