What happened??? I was so happy.

Thanks Lori, I certainly will.

GoofyUT wrote:BTW, some of what I've read here may already be in violation of some state licensing laws regarding the scope of medical practice without a license. States have licensing laws to perform an important quality assurance function in order to protect the public. I don't believe that CPAPtalk has any such vetting process in place. So, as always, CAVEAT EMPTOR.

How strange to hear such a warning from a psychologist. Usually it comes from an RRT or DME trying to salvage their usefulness as it applies to CPAP therapy. Every few months someone comes along with this scare tactic, but you are misinformed. It is not in violation of any state licensing laws to change your own pressure, and it is not in violation of any state licensing laws to suggest to someone else to change their own pressure.

GoofyUT wrote:Now, regarding the poster who supposedly quoted Respironics or ResMed about CPAP being so innocuous, I also wholeheartedly disagree with that, and I'd remind folks that it is FDA regulated for use "by or on the order of a physician" for a reason (ok, try to control your cynicism for just an instant).

You are wholeheartedly disagreeing with the CEO of Resmed. I'll put my faith in his opinion over yours. The quote came from Peter Farrell. It's on tape, so you can probably get it somewhere if you'd like to hear it for yourself. He said it during the ASAA lecture held in Washington DC last spring entitled, "Catching Our Breath: Reflections on Diagnosis and Treatment of Obstructive Sleep Apnea," where the speaker was Dr. David M. Rapoport, founder and director of the New York University Sleep Disorders Center and Director of the NYU Sleep Medicine Program.

Direct quote from Peter Farrell, CEO of Resmed:

"CPAP is as dangerous as a bowl of cereal. The only way you can get hurt by one is if someone picks the damn thing off the nightstand and hits you over the head with it."

"Innocuous" is a perfect word for cpap therapy. So much to gain from it and nothing to lose.

Do tell........

I didn't know that Peter Farrell sets healthcare policy and statute in the US. I am a state healthcare administrator and I do know about scope of practice. My point stands.

Chuck

guest5731 wrote:

GoofyUT wrote: I'm a shrink, not a pulmonologist.

Gee, it wasn't that long ago that your wrote, "None of us here are physicians".

Which is it, Chuck?

No comment Chuckie?

Guest wrote:How strange to hear such a warning from a psychologist.

Actually, not strange at all really. Psychologists have traditionally had to toe a very fine line. Although doctoral psychologists are more highly educated and knowledgeable than their counterparts in the medical field, psychiatrists, they must bow down before the medical profession, which has staunchly opposed licensing of psychologists. In order to survive, psychologists must be indoctrinated and learn to display customary reverence to the medical profession (and I use that term loosely).

Like many mantras, with repetition, all too often those repeating it begin to believe it, or at least begin to believe that every one else believes it. Like I said, not strange at all hearing such a thing from a psychologist. Sad, really.

Regards,
Bill

I'm one of those people who is somewhat concerned about giving medical advice.

Not withstanding that, I think that it is valuable to hear about other's experiences and how they handled them, and if they changed their own pressures because they (for example) didn't think that the doctor thought about all the possibilities) that is one of their experiences.

When I relate an experience I try to relate it in those terms rather than in the terms which sound more like medical advice, because I'm simply not qualified to give that advice. Sometimes I do well, in the way I put things, and sometimes I don't.

I don't worry about how others choose to give their advice. I'm a lot more worried about what I do or how I do it.

GoofyUT wrote:As a scientist myself, I respect any enterprise that is confident enough about its product to encourage potential consumers to access the body of juried scientific literature so that they can evaluate the product based on empirical data and evidence, themselves.

GoofyUT wrote: I'm a shrink, not a pulmonologist.

GoofyUT wrote:I am a state healthcare administrator and I do know about scope of practice. My point stands.

Let's see. Do I put my faith in the words spoken by the CEO of Resmed at the ASAA lecture, or in the words of a man who claims to be a scientist. Wait, I mean a shrink. Wait, I mean a healthcare administrator.

I'll stick with the CEO of Resmed.

brasshopper wrote:I'm one of those people who is somewhat concerned about giving medical advice.

No need to worry, brasshopper. On each and every page of the forum it says:

The information provided on this site is not intended nor recommended as a substitute for professional medical advice.

We're all well aware of the fact we are exchanging information with fellow hoseheads, not doctors. I'd hazard to guess many of us are here because of that fact, not in spite of it. It seems you can learn a heck of a lot more from people living with OSA and using CPAP than from someone who arranges for a sleep study and writes a prescription.

Been trying all evening to find a previously viewed technical site with study results comparing EDS of snorers with OSA and snorers without OSA, but haven't located it yet. I do remember that the study indicated that snoring alone had comparable impact on quality of life to that of snoring with apnea. If I find it again I'll post it.

I'm inclined to agree that joint and muscle pain sound unrelated to your cpap therapy, unless your symptoms are also the symptoms of improper venting. If your sleep was restless, I'd ask about PLMD, but if you can lay still for 7 or 8 hours sleep, it's not likely that.

As far as doc vs no doc, I try to follow my gut. If symptoms continue or even if your concern continues, there is no shame in seeing your doc, as well as no apology needed if you're handling it and achieving desired results.

Best wishes.
Kathy

Yet another update. I did my nightly ritual, took some Advil sinus, put my CL2 on, and drifted off to sleep..10 min later woke up snoring. I switched my mask back to my Aura and did not snore all night and woke up a little better this morning. Not sure if it was the advil or the mask change but I do feel better. I will see what the afternoon brings. I am on the road for 3 days starting today so I hope this all works. I would also like everyone to know that I am intellegent enough to know that this forum is for advice and I don't take it as gospel. If I thought by any means I needed a doctor, I would see my doctor here. I appreciate your input here and for me it is like talking to my friends. I would never substitute a friends opinion for a doctors orders or advice. I come here for the input of others in similar situations to see what has worked for them and what has not. I have recieved spectacular advice on this forum and will continue to see help and give advice here when I can. I do not think friendly helpful chat amongst friends constitues a violation of any regulations. Just my opinion.

_________________

CPAPopedia Keywords Contained In This Post (Click For Definition): Aura