New CPAP user having problems.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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palerider
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Re: New CPAP user having problems.

Post by palerider » Tue Jan 06, 2015 9:55 am

ChicagoGranny wrote: 1. 24-hour generic Zyrtec once in the morning. Shop around and you should find it cheap.
16$ for a years supply at costco.com, less in the stores.

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ChicagoGranny
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Re: New CPAP user having problems.

Post by ChicagoGranny » Tue Jan 06, 2015 10:01 am

Mike208 wrote:I have an ENT and he prescribed nasal spray that really doesn't help very long. I guess it lasts maybe 3 hours or so. He says I have no serious issues with the sinus area. One thing I just realized is that he has never suggested a prescription allergy medicine. All I have ever taken was over-the -counter and it doesn't work well.
If you haven't seen him since you were diagnosed with sleep apnea, another visit is in order. He should scope you and examine the size and condition of the nasal turbinates, vocal cords, tonsils, adenoids, soft palate and tongue. Once they know you have obstructive sleep apnea, some ENTs take a different perspective on your case. (The really good ones look for signs and symptoms of OSA on the first damn visit.)
"It's not the number of breaths we take, it's the number of moments that take our breath away."

Cuando cuentes cuentos, cuenta cuántas cuentos cuentas.

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OkyDoky
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Re: New CPAP user having problems.

Post by OkyDoky » Tue Jan 06, 2015 10:24 am

If you have a ramp of 45 minutes it doesn't sound like you are at therapeutic pressure for very long. I started out with a bilevel machine from the titration study after I had a hard time exhaling and history of GERD. After seeing some comments here about how sometimes you have to fail other machines and be persistent to get one, I consider myself lucky.
With my pressures of 15/11, I quit the ramp after a couple of weeks because it is a comfort feature and I didn't find it helpful, I have had only one episode of GERD since I started 5 months ago.
Seems like a discussion with your ENT about a bilevel machine would be helpful.
Last edited by OkyDoky on Tue Jan 06, 2015 11:13 am, edited 1 time in total.
ResMed Aircurve 10 VAUTO EPAP 11 IPAP 15 / P10 pillows mask / Sleepyhead Software / Back up & travel machine Respironics 760

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Mike208
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Re: New CPAP user having problems.

Post by Mike208 » Tue Jan 06, 2015 11:06 am

palerider wrote:
Mike208 wrote:
tan wrote:
Mike208 wrote:Well, I had a visit with the sleep specialist this morning. She said the high pressure was definitely the cause of the air in the stomach. It was lowered to 11 and the ramp time was changed to 45 min. instead of auto.
1) not sure how ramp can help with air swallowing
I'm not either but I assumed she knew what she was doing. I could tell there was a change in temp and humidity. It seemed to make the congestion worse.
that's a dangerous assumption.
That can be true. I learned a long time ago what assume means. LOL Yet, I still do it.

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Mike208
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Re: New CPAP user having problems.

Post by Mike208 » Tue Jan 06, 2015 11:10 am

ChicagoGranny wrote:
Mike208 wrote:I have an ENT and he prescribed nasal spray that really doesn't help very long. I guess it lasts maybe 3 hours or so. He says I have no serious issues with the sinus area. One thing I just realized is that he has never suggested a prescription allergy medicine. All I have ever taken was over-the -counter and it doesn't work well.
If you haven't seen him since you were diagnosed with sleep apnea, another visit is in order. He should scope you and examine the size and condition of the nasal turbinates, vocal cords, tonsils, adenoids, soft palate and tongue. Once they know you have obstructive sleep apnea, some ENTs take a different perspective on your case. (The really good ones look for signs and symptoms of OSA on the first damn visit.)
He knows about the apnea. He's the one that was pushing for me to get on CPAP. He has run a scope through my nose a couple of times and said nothing stood out that would be aided by surgery.

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Mike208
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Re: New CPAP user having problems.

Post by Mike208 » Tue Jan 06, 2015 11:12 am

OkyDoky wrote:If you have a ramp of 45 minutes it doesn't sound like you are at therapeutic pressure for very long. I started out with a bilevel machine from the titration study after I had a hard time exhaling and history of GERD. After seeing some comments here about how sometimes you have fail other machines and be persistant to get one, I consider myself lucky.
With my pressures of 15/11, I quit the ramp after a couple of weeks because it is a comfort feature and I didn't find it helpful, I have had only one episode of GERD since I started 5 months ago.
Seems like a discussion with your ENT about a bilevel machine would be helpful.
It sounds like, to me, a biPAP might be the thing I need. I suggested that yesterday and she said she didn't think it was necessary. But, if one of my other doctors agrees that it's necessary I will get it. It's not her call.

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ChicagoGranny
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Re: New CPAP user having problems.

Post by ChicagoGranny » Tue Jan 06, 2015 11:13 am

Mike208 wrote: He's the one that was pushing for me to get on CPAP. He has run a scope through my nose a couple of times and said nothing stood out that would be aided by surgery.
Sounds like you have one of the good ones.
"It's not the number of breaths we take, it's the number of moments that take our breath away."

Cuando cuentes cuentos, cuenta cuántas cuentos cuentas.

Sleeprider
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Re: New CPAP user having problems.

Post by Sleeprider » Tue Jan 06, 2015 11:22 am

Mike208 wrote:
OkyDoky wrote:If you have a ramp of 45 minutes it doesn't sound like you are at therapeutic pressure for very long. I started out with a bilevel machine from the titration study after I had a hard time exhaling and history of GERD. After seeing some comments here about how sometimes you have fail other machines and be persistant to get one, I consider myself lucky.
With my pressures of 15/11, I quit the ramp after a couple of weeks because it is a comfort feature and I didn't find it helpful, I have had only one episode of GERD since I started 5 months ago.
Seems like a discussion with your ENT about a bilevel machine would be helpful.
It sounds like, to me, a biPAP might be the thing I need. I suggested that yesterday and she said she didn't think it was necessary. But, if one of my other doctors agrees that it's necessary I will get it. It's not her call.
Now that is the right attitude! Do YOU know how to access the clinical menus of your device to change settings? Your sense of air starvation early in therapy is from the ramp being too long at too low of a pressure. Also, you can take control of the pressure settings and try to find that threshold where you're not dumping air in your stomach, and if you will download the software already discussed, you can determine if the impact on you therapy is positive or not. Your experience, as you passively wait for the "experts" to get it right, is what drove most of us to take our therapy in hand and do something positive. Someone has to say it, stop being so passive and waiting for someone else to do what you yourself can do today.

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Mike208
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Re: New CPAP user having problems.

Post by Mike208 » Tue Jan 06, 2015 11:42 am

Sleeprider wrote:
Mike208 wrote:
OkyDoky wrote:If you have a ramp of 45 minutes it doesn't sound like you are at therapeutic pressure for very long. I started out with a bilevel machine from the titration study after I had a hard time exhaling and history of GERD. After seeing some comments here about how sometimes you have fail other machines and be persistant to get one, I consider myself lucky.
With my pressures of 15/11, I quit the ramp after a couple of weeks because it is a comfort feature and I didn't find it helpful, I have had only one episode of GERD since I started 5 months ago.
Seems like a discussion with your ENT about a bilevel machine would be helpful.
It sounds like, to me, a biPAP might be the thing I need. I suggested that yesterday and she said she didn't think it was necessary. But, if one of my other doctors agrees that it's necessary I will get it. It's not her call.
Now that is the right attitude! Do YOU know how to access the clinical menus of your device to change settings? Your sense of air starvation early in therapy is from the ramp being too long at too low of a pressure. Also, you can take control of the pressure settings and try to find that threshold where you're not dumping air in your stomach, and if you will download the software already discussed, you can determine if the impact on you therapy is positive or not. Your experience, as you passively wait for the "experts" to get it right, is what drove most of us to take our therapy in hand and do something positive. Someone has to say it, stop being so passive and waiting for someone else to do what you yourself can do today.
Thanks! I'm tired of people screwing around, taking their sweet time, while I sit here suffering. I'm currently going through this with the cervical issues I have. Wait, wait, wait, wait. I do know how to access the clinical menu. I have gone in and reset the ramp, lowered the pressure to 8, and put the temp and humidity back to where it was. I'll try this tonight and see what happens. I refuse to wait any longer.

New guest

Re: New CPAP user having problems.

Post by New guest » Tue Jan 06, 2015 11:48 am

I had a cervical fusion years ago. I still have nerve damage with my face and neck. I still choke on food and liquid. I have a resumed air sense 10 Autoset. I have the H5 I humidifier, setting on auto which is 81 and 4. I use the P10 mask. My pressures are 12 -18. I have air filling my stomach every time I use the CPAP. I was told by the DME to use the maximum ramp. I start to fill up with air after 30 minutes on ramp. I have tried sitting up but get the same result. Pain in my chest, stomach and intestines. I have seen the gastroenterologist. I took a medication to relax the esophogus but I still have the filling with air problems. I have no help to offer just letting you know I have the neck fusion and nerve damage problem. I am following your posts to see if there are any other ideas to help with filling with air. I am actively seeing doctors to get help too.

Sleeprider
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Re: New CPAP user having problems.

Post by Sleeprider » Tue Jan 06, 2015 11:49 am

Image Way to go Mike!

Do you have EPR dialed in at 3?

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Mike208
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Re: New CPAP user having problems.

Post by Mike208 » Tue Jan 06, 2015 1:30 pm

Sleeprider wrote:Image Way to go Mike!

Do you have EPR dialed in at 3?
Thanks! Yes, it is on 3. Tube temp back to 81. Humidity back to 6. Pressure at 8.

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ChicagoGranny
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Re: New CPAP user having problems.

Post by ChicagoGranny » Tue Jan 06, 2015 2:03 pm

I wonder what you do for a living? You seem to know how to keep a lot of balls in the air.
"It's not the number of breaths we take, it's the number of moments that take our breath away."

Cuando cuentes cuentos, cuenta cuántas cuentos cuentas.

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Mike208
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Re: New CPAP user having problems.

Post by Mike208 » Tue Jan 06, 2015 2:12 pm

ChicagoGranny wrote:I wonder what you do for a living? You seem to know how to keep a lot of balls in the air.
Balls in the air? No, I can't juggle. I tried that with chainsaws once. The results were not impressive. Just kidding.

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Mike208
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Re: New CPAP user having problems.

Post by Mike208 » Tue Jan 06, 2015 2:22 pm

I'm actually retired, more or less. I went on disability for back injuries suffered in 1992. My body has been steadily falling apart ever since.